Modes of death in pediatrics: Differences in the ethical approach in neonatal and pediatric patients

Journal of Pediatrics

Volumn 162, Issue 6, 2013, Pages 1107-1111

  Fontana, Matteo S ^a   Farrell, Catherine ^b   Gauvin, France ^b   Lacroix, Jacques ^a,b   Janvier, Annie ^b  

^a CHILDREN S HOSPITAL   (Switzerland)

^b UNIVERSITY OF MONTREAL   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CHILD; CHILDHOOD MORTALITY; DEATH; HUMAN; MAJOR CLINICAL STUDY; MEDICAL ETHICS; MEDICAL RECORD REVIEW; MODES OF DEATH; NEWBORN; NEWBORN INTENSIVE CARE; PRIORITY JOURNAL; QUALITY OF LIFE; TERMINAL CARE; TERMINAL DISEASE;

EID: 84880571720     PISSN: 00223476     EISSN: 10976833     Source Type: Journal    
DOI: 10.1016/j.jpeds.2012.12.008     Document Type: Article

References (26)

1. Feudtner C, Silveira MJ, Christakis DA. Where do children with complex chronic conditions die? Patterns in Washington State, 1980-1998. Pediatrics 2002;109:656-60.
2. Ryan CA, Byrne P, Kuhn S, Tyebkhan J. No resuscitation and withdrawal of therapy in a neonatal and a pediatric intensive care unit in Canada. J Pediatr 1993;123:534-8.
3. Sands R, Manning JC, Vyas H, Rashid A. Characteristics of deaths in paediatric intensive care: a 10-year study. Nurs Crit Care 2009;14: 235-40.
4. Lago PM, Piva J, Garcia PC, Troster E, Bousso A, Sarno MO, et al. Endof- life practices in seven Brazilian pediatric intensive care units. Pediatr Crit Care Med 2008;9:26-31.
5. Verhagen AA, Janvier A, Leuthner SR, Andrews B, Lagatta J, Bos AF, et al. Categorizing neonatal deaths: a cross-cultural study in the United States, Canada, and The Netherlands. J Pediatr 2010;156: 33-7.
6. Beauchamps TL, Childress JF. Nonmaleficience: Principles of biomedical ethics. New York: Oxford University Press; 2001. p. 113-64.
7. American Academy of Pediatrics. Committee on Bioethics: Guidelines on foregoing life-sustaining medical treatment. Pediatrics 1994;93:532-6.
8. Janvier A, Lantos J. Variations of practice in the care of extremely preterm infants. In: Diekema D, Mercurio M, Adam M, eds. Clinical ethics in pediatrics: a case-based textbook. Cambridge, UK: Cambridge University Press; 2011. p. 94-100.
9. National Institute of Child Health and Human Development. Available from: http://www.nichd.nih.gov/about/org/cdbpm/pp/prog-epbo/epbo-case.cfm. Accessed January 3, 2013.
10. de Leeuw R, de Beaufort AJ, de Kleine MJ, van Harrewijn K, Kollee LA. Foregoing intensive care treatment in newborn infants with extremely poor prognoses: a study in four neonatal intensive care units in The Netherlands. J Pediatr 1996;129:661-6.
11. Hagen CM, Hansen TW. Deaths in a neonatal intensive care unit: a 10-year perspective. Pediatr Crit Care Med 2004;5:463-8.
12. Wilkinson DJ, Fitzsimons JJ, Dargaville PA, Campbell NT, Loughnan PM, McDougall PN, et al. Death in the neonatal intensive care unit: changing patterns of end of life care over two decades. Arch Dis Child Fetal Neonatal Ed 2006;91:F268-71.
13. Wall SN, Partridge JC. Death in the intensive care nursery: physician practice of withdrawing and withholding life support. Pediatrics 1997; 99:64-70.
14. Roy R, Aladangady N, Costeloe K, Larcher V. Decision making and modes of death in a tertiary neonatal unit. Arch Dis Child Fetal Neonatal Ed 2004;89:F527-30.
15. Barton L, Hodgman JE. The contribution of withholding or withdrawing care to newborn mortality. Pediatrics 2005;116:1487-91.
16. Arlettaz R, Mieth D, Bucher HU, Duc G, Fauchere JC. End-of-life decisions in delivery room and neonatal intensive care unit. Acta Paediatr 2005;94:1626-31.
17. Verhagen AA, van der Hoeven MA, van Meerveld RC, Sauer PJ. Physician medical decision-making at the end of life in newborns: insight into implementation at 2 Dutch centers. Pediatrics 2007;120:e20-8.
18. Neonatal Resuscitation (NRP) Textbook-6th Edition. American Academy of Pediatrics and American Heart Association; John Kattwinkel, MD, FAAP, Editor. May 2011.
19. Batton DG. Clinical report: antenatal counseling regarding resuscitation at an extremely low gestational age. Pediatrics 2009;124:422-7.
20. Nuffield Council on Bioethics. Critical care decisions in fetal and neonatal medicine: ethical issues. Nuffield Council on Bioethics; 2006. http://www.nuffieldbioethics.org/sites/default/files/CCD%20web%20version%20 22%20June%2007%20(updated).pdf. Accessed January 3, 2013.
21. Janvier A, Bauer KL, Lantos JD. Are newborns morally different from older children? Theor Med Bioeth 2007;28:413-25.
22. Janvier A, Leblanc I, Barrington KJ. The best interest standard is not applied for neonatal resuscitation decisions. Pediatrics 2008;121:963-9.
23. Laventhal N, Spelke MB, Andrews B, Larkin LK, Meadow W, Janvier A. Ethics of resuscitation at different stages of life: a survey of perinatal physicians. Pediatrics 2011;127:e1221-9.
24. Armstrong K, Ryan CA, Hawkes CP, Janvier A, Dempsey EM. Life and death decisions for incompetent patients: determining best interests. The Irish perspective. Acta Paediatr 2011;100:519-23.
25. Hagen EM, Therkelsen OB, Førde R, Aasland O, Janvier A, Hansen TW. Challenges in reconciling best interest and parental exercise of autonomy in pediatric life-or-death situations. J Pediatr 2012;161:146-51.
26. Wilkinson DJ. The window of opportunity for treatment withdrawal. Arch Pediatr Adolesc Med 2011;165:211-5.