External validity and reliability of the psychosocial assessment tool (PAT) among Canadian parents of children newly diagnosed with cancer

Pediatric Blood and Cancer

Volumn 61, Issue 1, 2014, Pages 165-170

  Barrera, M ^a,b   Hancock, K ^a   Rokeach, A ^a   Cataudella, D ^c   Atenafu, E ^d   Johnston, D ^e   Punnett, A ^a   Nathan, P C ^a   Bartels, U ^a   Silva, M ^f   Cassidy, M ^e   Jansen, P ^f   Shama, W ^a   Greenberg, C ^g  

^a HOSPITAL FOR SICK CHILDREN   (Canada)

^b UNIVERSITY OF TORONTO   (Canada)

^c LONDON HEALTH SCIENCES CENTRE   (Canada)

^d UNIVERSITY HEALTH NETWORK   (Canada)

^e CHILDREN S HOSPITAL OF EASTERN ONTARIO   (Canada)

^f KINGSTON GENERAL HOSPITAL   (Canada)

^g Pediatric Oncology Group of Ontario ^*  (Canada)

Author keywords

Early psychosocial identification; Pediatric cancer; Reliable and valid screening tool

Indexed keywords

ACUTE GRANULOCYTIC LEUKEMIA; ACUTE LYMPHOBLASTIC LEUKEMIA; ANXIETY; AREA UNDER THE CURVE; ARTICLE; BEHAVIOR ASSESSMENT SYSTEM FOR CHILDREN 2; BRAIN TUMOR; CANADIAN; CANCER CENTER; CHILD; CHILDHOOD CANCER; CHRONIC MYELOID LEUKEMIA; CLINICAL ARTICLE; CLINICAL ASSESSMENT TOOL; CONSTRUCT VALIDITY; CONVENIENCE SAMPLE; CORRELATION ANALYSIS; CORRELATION COEFFICIENT; CULTURAL ANTHROPOLOGY; DISCRIMINATIVE VALIDITY; EXTERNAL VALIDITY; FEMALE; HUMAN; INTERNAL CONSISTENCY; INTERRATER RELIABILITY; LANGUAGE; MALE; MULTICENTER STUDY; NAMED INVENTORIES, QUESTIONNAIRES AND RATING SCALES; PEDIATRIC QUALITY OF LIFE INVENTORY CANCER MODULE; PRIORITY JOURNAL; PSYCHOSOCIAL ASSESSMENT TOOL; QUALITY OF LIFE; RECEIVER OPERATING CHARACTERISTIC; SOLID TUMOR; STATE TRAIT ANXIETY INVENTORY; TEST RETEST RELIABILITY; ADULT; CANADA; CAREGIVER; DEVICES; MIDDLE AGED; NEOPLASM; PARENT; PSYCHOLOGY; PSYCHOMETRY; REPRODUCIBILITY; VALIDATION STUDY; BEHAVIOR ASSESSMENT; CANCER DIAGNOSIS; CANCER SCREENING; CANCER THERAPY; CLINICAL ASSESSMENT; CLINICAL PRACTICE; FAMILY ASSESSMENT; FAMILY CENTERED CARE; MAJOR CLINICAL STUDY; PARENT COUNSELING; PARENTAL ATTITUDE; PARENTAL BEHAVIOR ASSESSMENT; PEDIATRIC QUALITY OF INVENTORY CANCER MODULE; QUALITY OF LIFE ASSESSMENT; RISK ASSESSMENT; SCREENING TEST; TRANSCULTURAL CARE;

ADULT; AREA UNDER CURVE; CANADA; CAREGIVERS; CHILD; FEMALE; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; PARENTS; PSYCHOMETRICS; REPRODUCIBILITY OF RESULTS; ROC CURVE;

EID: 84891691116     PISSN: 15455009     EISSN: 15455017     Source Type: Journal    
DOI: 10.1002/pbc.24774     Document Type: Article

References (44)

1. Boman K, Lindahl A, Björk O. Disease-related distress in parents of children with cancer at various stages after the time of diagnosis. Acta Oncol 2003;42:137-146.
2. Crist WM, Kun LE. Common solid tumors of childhood. N Engl J Med 1991;324:461-471.
3. Kazak AE, Boeving CA, Alderfer MA, et al. Posttraumatic stress symptoms during treatment in parents of children with cancer. J Clin Oncol 1991;23:7405-7410.
4. Kazak AE, Simms S, Rourke MT. Family systems practice in pediatric psychology. J Pediatr Psychol 2002;27:133-143.
5. Sawyer M, Antoniou G, Toogood I, et al. A prospective study of the psychological adjustment of children and families of children with cancer. J Paediatr Child Health 1993;29:352-356.
6. Sloper P. Predictors of distress in parents of children with cancer: A prospective study. J Pediatr Psychol 2000;25:79-91.
7. Wijnberg-Williams BJ, KampsWA, Klip EC, et al. Psychological distress and the impact of social support on fathers and mothers of pediatric cancer patients: Long-term prospective results. J Pediatr Psychol 2006;31:785-792.
8. Woodgate RL, Degner LF, Yanofsky R. A different perspective to approaching cancer symptoms in children. J Pain Symptom Manage 2003;26:800-817.
9. Kazak AE, Kassam-Adams N, Schneider S, et al. An integrative model of pediatric medical traumatic stress. J Pediatr Psychol 2006;31:343-355.
10. Kupst MJ, Natta M, Richardson C, et al. Family coping with pediatric leukemia: Ten years after treatment. J Pediatr Psychol 1995;20:601-617.
11. Alderfer MA, Cnaan A, Annunziato RA, et al. Patterns of posttraumatic stress symptoms in parents of childhood cancer survivors. J Fam Psychol 2005;19:430-440.
12. Patenaude AF, Kupst MJ. Psychological functioning in pediatric cancer. J Pediatr Psychol 2005;30:9-27.
13. Kazak AE, Brier M, Alderfer MA, et al. Screening for psychosocial risk in pediatric cancer. Pediatr Blood Cancer 2012;59:822-827.
14. Patel SK, Mullins W, Turk A, et al. Distress screening, rater agreement, and services in pediatric oncology. Psychooncology 2011;20:1324-1333.
15. Pai AL, Patiño-Fernández AM, McSherry M, et al. The Psychosocial Assessment Tool (PAT2.0): Psychometric properties of a screener for psychosocial distress in families of children newly diagnosed with cancer. J Pediatr Psychol 2008;33:50-62.
16. Kazak AE, Prusak A, McSherry M, et al. The Psychosocial Assessment Tool (PAT): Development of a brief screening instrument for identifying high risk families in pediatric oncology. Fam Syst Health 2001;19:303-317.
17. Kazak AE, Rourke MT, Alderfer MA, et al. Evidence-based assessment, intervention and psychosocial care in pediatric oncology: A blueprint for comprehensive services across treatment. J Pediatr Psychol 2007;32:1099-1110.
18. National Comprehensive Cancer Network. Distress management clinical practice guidelines. J Natl Compr Canc Netw 2003;1:344-374.
19. Holland JC, Bultz BD. The NCCN guideline for distress management:Acase for making distress the sixth vital sign. J Natl Compr Canc Netw 2007;5:3-7.
20. Kazak AE, Cant MC, Jensen M, et al. Identifying psychosocial risk indicative of subsequent resource utilization in families of newly diagnosed pediatric oncology patients. J Clin Oncol 2003;21:3220-3225.
21. Alderfer MA, Mougianis I, Barakat LP, et al. Family psychosocial risk, distress, and service utilization in pediatric cancer. Cancer 2009;115:4339-4349.
22. McCarthy MC, Clarke NE, Vance A, et al. Measuring psychosocial risk in families caring for a child with cancer: The psychosocial assessment tool (PAT2.0). Pediatr Blood Cancer 2009;53:78-83.
23. Geisinger KF. Cross-cultural normative assessment: Translation and adaptation issues influencing the normative interpretation of assessment instruments. Psychol Assess 1994;6:304.
24. Scientific Advisory Committee of the Medical Outcomes Trust. Assessing health status and quality-oflife instruments: Attributes and review criteria. Qual Life Res 2002;11:193-205.
25. Statistics Canada. Ontario (Code35) (table). 2006 Community Profiles. 2006 Census. Statistics Canada Catalogue no. 92-591-XWE. Ottawa. Released March 13, 2007. http://www12.statcan.ca/censusrecensement/2006/dp-pd/prof/92-591/index.cfm?Lang=E (accessed June 21, 2013).
26. Reynolds CR, Kamphaus RW. Manual for the behavior assessment system for children, 2nd edition. Circle Pines, MN: AGS Publishing; 2004.
27. Varni JW, Burwinkle TM, Katz ER, et al. The PedsQL in pediatric cancer: Reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module. Cancer 2002;94:2090-2106.
28. Spielberger CD. Manual for the State-Trait Anxiety Inventory STAI (Form Y). Palo Alto, CA: Mind Garden; 1983.
29. Sim J, Wright CC. Research in health care: Concepts, designs and methods. Cheltenham, England: Nelson Thornes; 2000.
30. McFall RM, Treat TA. Quantifying the information value of clinical assessment with signal detection theory. Annu Rev Psychol 1999;50:215-241.
31. Zweig MH, Campbell G. Receiver-operating characteristic (ROC) plots:Afundamental evaluation tool in clinical medicine. Clin Chem 1993;39:561-577.
32. Walter SD, Eliasziw M, Donner A. Sample size and optimal designs for reliability studies. Stat Med 1998;17:101-110.
33. Ware JE, Brook RH, Ross Davies A, et al. Conceptualization and measurement of health for adults in the Health Insurance Study. Vol. I: Model of health and methodology. Santa Monica, CA: Rand Corporation; 1980.
34. Russell KM, Hudson M, Long A, et al. Assessment of health-related quality of life in children with cancer. Cancer 2006;106:2267-2274.
35. Wu E, Robison LL, Jenney ME, et al. Assessment of health-related quality of life of adolescent cancer patients using the Minneapolis-Manchester Quality of Life Adolescent Questionnaire. Pediatr Blood Cancer 2007;48:678-686.
36. Meeske KA, Patel SK, Palmer SN, et al. Factors associated with health-related quality of life in pediatric cancer survivors. Pediatr Blood Cancer 2007;49:298-305.
37. Shankar S, Robison L, Jenney ME, et al. Health-related quality of life in young survivors of childhood cancer using the Minneapolis-Manchester Quality of Life-Youth Form. Pediatrics 2005;115:435-442.
38. Aziz NM, Rowland JH. Cancer survivorship research among ethnic minority and medically underserved groups. Oncol Nurs Forum 2002;29:789-801.
39. Barrera M, D'Agostino NM, Gibson J, et al. Predictors and mediators of psychological adjustment in mothers of children newly diagnosed with cancer. Psychooncology 2003;13:630-641.
40. Landolt MA, Ystrom E, Sennhauser FH, et al. The mutual prospective influence of child and parental post-traumatic stress symptoms in pediatric patients. J Child Psychol Psychiatry 2012;53:767-774.
41. Rodriguez EM, Dunn MJ, Zuckerman T, et al. Cancer-related sources of stress for children with cancer and their parents. J Pediatr Psychol 2012;37:185-197.
42. Steele RG, Dreyer ML, Phipps S. Patterns of maternal distress among children with cancer and their association with child emotional and somatic distress. J Pediatr Psychol 2004;29:507-517.
43. Bearden DJ, Feinstein MS, Cohen LL. The influence of parent procedural anxiety on child procedural pain: Mediation by child procedural anxiety. J Pediatr Psychol 2012;37:680-686.
44. Selove R, Kroll T, Coppes M, et al. Psychosocial services in the first 30 days after diagnosis: Results of a web-based survey of Children's Oncology Group (COG) member institutions. Pediatr Blood Cancer 2012;58:435-440.