Psychosocial services in the first 30 days after diagnosis: Results of a web-based survey of children's oncology group (COG) member institutions

Pediatric Blood and Cancer

Volumn 58, Issue 3, 2012, Pages 435-440

  Selove, Rebecca ^a   Kroll, Thilo ^b   Coppes, Max ^c   Cheng, Yao ^d  

^a Centerstone Research Institute   (United States)

^b UNIVERSITY OF DUNDEE   (United Kingdom)

^c CHILDREN'S NATIONAL MEDICAL CENTER   (United States)

^d CHILDREN S RESEARCH INSTITUTE   (United States)

Author keywords

Pediatric oncology; Psychosocial; Quality of life; Support care

Indexed keywords

ARTICLE; CHILDHOOD CANCER; EVIDENCE BASED MEDICINE; HEALTH CARE PERSONNEL; LONG TERM CARE; PRIORITY JOURNAL; PSYCHOSOCIAL CARE;

CHILD; HEALTH CARE SURVEYS; HEALTH SERVICES ACCESSIBILITY; HUMANS; NEOPLASMS; QUALITY OF LIFE; SOCIAL SUPPORT; SOCIAL WORK;

EID: 84855788786     PISSN: 15455009     EISSN: 15455017     Source Type: Journal    
DOI: 10.1002/pbc.23235     Document Type: Article

References (40)

1. Institute of Medicine (IOM). Cancer care for the whole patient. Adler NE, Page AEK, editors. Meeting psychosocial health needs. Washington, DC: The National Academies Press; 2008.
2. Kazak AE, Rourke MT, Alderfer MA, et al. Evidence-based assessment, intervention and psychosocial care in pediatric oncology: A blueprint for comprehensive services across treatment. J Pediatr Psychol 2007; 32: 1099-1110.
3. Arceci R, Ettinger A, Forman E, et al. National Action Plan for Childhood Cancer: Report of the National Summit Meetings on Childhood Cancer. CA Cancer J Clin 2002; 52: 377-379.
4. American Academy of Pediatrics. Guidelines for the pediatric cancer center and role of such centers in diagnosis and treatment. Pediatrics 1997; 99: 139-141.
5. Masera G, Chesler MA, Jankovic M, et al. SIOP Working Committee on Psychosocial Issues in Pediatric Oncology: Guidelines for communication of the diagnosis. Med Pediatr Oncol 1997; 28: 382-385.
6. Masera G, Spinetta JJ, Jankovic M, et al. Guidelines for a therapeutic alliance between families and staff: A report of the SIOP Working Committee on Psychosocial Issues in Pediatric Oncology. Med Pediatr Oncol 1998; 30: 183-186.
7. Noll RB, Kazak AE. Psychosocial care. Altman AJ, editor. Supportive care of children with cancer. Current therapy and guidelines from the Children's Oncology Group, 3rd edition. Baltimore: Johns Hopkins University Press; 2004. pp 337-353.
8. Lauria MM, Hockenberry-Eaton M, Pawletko T, et al. Psychosocial protocol for childhood cancer. Cancer 1996; 78: 1345-1356.
9. Spinetta JJ, Jankovic M, Masera G, et al. Optimal care for the child with cancer: A summary statement from the SIOP Working Committee on Psychosocial Issues in Pediatric Oncology. Pediatr Blood Cancer 2009; 52: 904-907.
10. Adams-Greenly M. Psychosocial assessment and intervention at initial diagnosis. Pediatr 1991; 18: 3-10.
11. Sahler OJ, Fairclough DL, Phipps S, et al. Using problem-solving skills training to reduce negative affectivity in mothers of children with newly diagnosed cancer: Report of a multisite randomized trial. J Consult Clin Psychol 2005; 73: 272-283.
12. Kazak AE, Cant CM, Jensen MM, et al. Identifying psychosocial risk indicative of subsequent resource use in families of newly diagnosed pediatric oncology patients. J Clin Oncol 2003; 21: 3220-3225.
13. Kullgren KA, Morris RD, Morris MK, et al. Risk factors associated with long-term social and behavioral problems among children with brain tumors. J Psychosoc Oncol 2003; 21: 73-87.
14. Butler RW, Copeland R. Attentional processes and their remediation in children treated for cancer: A literature review and the development of a therapeutic approach. J Int Neuropsychol Soc 2002; 8: 115-124.
15. Hudson MM, Tyc VL, Srivastava DK, et al. Multi-component behavioral intervention to promote health protective behaviors in childhood cancer survivors: The Protect Study. Med Pediatr Oncol 2002; 39: 2-11.
16. Murray JS. A qualitative exploration of psychosocial support for siblings of children with cancer. J Pediatr Nurs 2002; 17: 327-337.
17. Hinds PS, Quargnenti A, Bush AJ, et al. An evaluation of the impact of a self-care coping intervention on psychological and clinical outcomes in adolescents with newly diagnosed cancer. Eur J Oncol Nurs 2000; 4: 6-17.
18. Sherman AC, Simonton S, Latif U, et al. Psychosocial supportive care for children receiving stem cell transplantation: Practice patterns across centers. Bone Marrow Transplant 2004; 34: 169-174.
19. Coluzzi PH, Grant M, Doroshow JH, et al. Survey of the provision of supportive care services at National Cancer Institute-designated cancer centers. J Clin Oncol 1995; 13: 756-764.
20. Ellis JA, McCarthy P, Hershon L, et al. Pain practices: A cross-Canada survey of pediatric oncology centers. J Pediatr Oncol Nurs 2003; 20: 26-35.
21. Ljungman GL, McGrath PJ, Cooper E, et al. Psychosocial needs of families with a child with cancer. J Pediatr Hematol Oncol 2003; 25: 223-231.
22. Loman P, Vincent N. School reintegration: Current trends and future directions. Presentation at Children's Oncology Group Meeting, St. Louis, MO (October 2002). Childhood cancer survivorship (2003) Institute of Medicine, National Research Council, The National Academies Press, Washington, DC. p 131.
23. Tesauro GM, Rowland JH, Lustig C. Survivorship resources for post-treatment survivors. Cancer Pract 2002; 10: 277-283.
24. Mitchell W, Clarke S, Sloper P. Survey of psychosocial support provided by UK paediatric oncology centres. Arch Dis Child 2005; 90: 796-800.
25. Armstrong D, Reaman G. Psychological research in childhood cancer: The Children's Oncology Group perspective. J Pediatr Psychol 2005; 30: 89-97.
26. Agency for Health Care Research and Quality Hospital survey on patient safety culture: Conducting a web-based survey, para. 4-5 (n.d.). Retrieved September 29, 2005, from
27. University of Texas Austin Information Technology Services Online Surveys, Advantages of Online Surveys, para. 2 (n.d.). Retrieved September 29, 2005, from and
28. Askins MA, Moore BD. Psychosocial support of the pediatric cancer patient: Lessons learned over the past 50 years. Curr Oncol Rep 2008; 10: 469-476.
29. Armstrong FD. Cancer and blood disorders in childhood: Biopysychosocial-developmental issues in assessment and treatment. Brown RT, editor. Childhood cancer and sickle cell disease: A biopsychosocial approach. New York: Oxford University Press; 2006. pp 17-32.
30. Holland JC. An international perspective on the development of psychosocial oncology: Overcoming cultural and attitudinal barriers to improve psychosocial care. Psychooncology 2004; 13: 445-459.
31. Kupst MJ, Bingen K. Stress and coping in the pediatric cancer experience. Brown RT, editor. Childhood cancer and sickle cell disease: A biopsychosocial approach. New York: Oxford University Press; 2006. pp 35-52.
32. Mehnert A, Koch U. Psychosocial care of cancer patients-international differences in definition, healthcare structures, and therapeutic approaches. Support Care Cancer 2005; 13: 579-588.
33. Schofield P, Carey M, Bonevski B, et al. Barriers to the provision of evidence-based psychosocial care in oncology. Psychooncology 2006; 15: 863-872.
34. Jacobsen PB. Promoting evidence-based psychosocial care for cancer patients. Psychooncology 2009; 18: 6-13.
35. Dix DB, Klassen AF, Papsdorf M, et al. Factors affecting the delivery of family-centered care in pediatric oncology. Pediatr Blood Cancer 2009; 53: 1079-1085.
36. Holm KE, Patterson JM, Gurney JG. Parental involvement and family-centered care in the diagnostic and treatment phases of childhood cancer: Results from a qualitative study. J Pediatr Oncol Nurs 2003; 20: 301-313.
37. Kazak AE. Commentary: Progress and challenges in evidence-based family assessment in pediatric psychology. J Pediatr Psychol 2008; 33: 1062-1064.
38. Holmbeck GN, Thill AW, Bachanas P, et al. Evidence-based assessment in pediatric psychology: Measures of psychosocial adjustment and psychopathology. J Pediatr Psychol 2008; 33: 958-980.
39. Peek G, Melnyk BM. Coping interventions for parents of children newly diagnosed with cancer: An evidence review with implications for clinical practice and future research. Pediatr Nurs 2010; 36: 306-313.
40. Clancy CM, Lawrence W. Is outcomes research on cancer ready for prime time? Med Care 2002; 40: III92-III100.