Decisional control preferences of hispanic patients with advanced cancer from the United States and Latin America

Journal of Pain and Symptom Management

Volumn 46, Issue 3, 2013, Pages 376-385

  Yennurajalingam, Sriram ^a   Parsons, Henrique A ^a   Duarte, Eva Rossina ^b   Palma, Alejandra ^c   Bunge, Sofia ^d   Lynn Palmer, J ^a   Delgado Guay, Marvin Omar ^a   Allo, Julio ^a   Bruera, Eduardo ^a  

^a UNIVERSITY OF TEXAS MD ANDERSON CANCER CENTER   (United States)

^b Instituto de Cancerologia   (Guatemala)

^c PONTIFICIA UNIVERSIDAD CATÓLICA DE CHILE   (Chile)

^d FEMEBA   (Argentina)

Author keywords

Acculturation; Cancer; Decision Making Preferences; Hispanic Cancer Patients; Palliative Care

Indexed keywords

ADULT; ADVANCED CANCER; ARGENTINA; ARTICLE; BREAST CANCER; CHILE; CULTURAL FACTOR; DECISIONAL CONTROL PREFERENCE; DIGESTIVE SYSTEM CANCER; EDUCATIONAL STATUS; FAMILY; FEMALE; GUATEMALA; GYNECOLOGIC CANCER; HEAD AND NECK CANCER; HISPANIC; HUMAN; KARNOFSKY PERFORMANCE STATUS; LUNG CANCER; MAJOR CLINICAL STUDY; MALE; PATIENT DECISION MAKING; PATIENT PREFERENCE; PHYSICIAN; PROSTATE CANCER; UNITED STATES; UROGENITAL TRACT CANCER;

ACCULTURATION; CANCER; DECISION-MAKING PREFERENCES; HISPANIC CANCER PATIENTS; PALLIATIVE CARE;

ACCULTURATION; AGE DISTRIBUTION; AGED; DECISION MAKING; FEMALE; HISPANIC AMERICANS; HUMANS; LATIN AMERICA; MALE; MARITAL STATUS; MIDDLE AGED; NEOPLASMS; PALLIATIVE CARE; PATIENT PARTICIPATION; PATIENT PREFERENCE; PHYSICIAN-PATIENT RELATIONS; PREVALENCE; SEX DISTRIBUTION; SOCIAL CLASS; TERMINAL CARE; UNITED STATES;

EID: 84888640826     PISSN: 08853924     EISSN: 18736513     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2012.08.015     Document Type: Article

References (29)

1. Keating NL, Guadagnoli E, Landrum MB, Borbas C, Weeks JC. Treatment decision making in early-stage breast cancer: should surgeons match patients? desired level of involvement? J Clin Oncol 2002;20:1473e1479.
2. Gattellari M, Butow PN, Tattersall MHN. Sharing decisions in cancer care. Soc Sci Med 2001;52: 1865e1878.
3. Pieterse AH, Baas-Thijssen MC, Marijnen CA, Stiggelbout AM. Clinician and cancer patient views on patient participation in treatment decisionmaking: A quantitative and qualitative exploration. Br J Cancer 2008;99:875e882.
4. Davidson JR, Brundage MD, Feldman-Stewart D. Lung cancer treatment decisions: Patients? desires for participation and information. Psychooncology 1999;8:511e520.
5. Hubbard G, Kidd L, Donaghy E. Preferences for involvement in treatment decision making of patients with cancer: A review of the literature. Eur J Oncol Nurs 2008;12:299e318.
6. Hagerty RG, Butow PN, Ellis PM, Dimitry S, Tattersall MHN. Communicating prognosis in cancer care: A systematic review of the literature. Ann Oncol 2005;16:1005e1053.
7. Bruera E, Sweeney C, Calder K, Palmer L, Benisch-Tolley S. Patient preferences versus physician perceptions of treatment decisions in cancer care. J Clin Oncol 2001;19:2883e2885.
8. Stalmeier PFM, van Tol-Geerdink JJ, van Lin ENJT, et al. Doctors? and patients? preferences for participation and treatment in curative prostate cancer radiotherapy. J Clin Oncol 2007;25: 3096e3100.
9. Kagawa-Singer M, Blackhall LJ. Negotiating cross-cultural issues at the end of life. JAMA 2001; 286:2993e3001.
10. Gattellari M, Voigt KJ, Butow PN, Tattersall MHN. When the treatment goal is not cure: Are cancer patients equipped to make informed decisions? J Clin Oncol 2002;20:503e513.
11. Singh JA, Sloan JA, Atherton PJ, et al. Preferred roles in treatment decision making among patients with cancer: A pooled analysis of studies using the Control Preferences Scale. Am J Manag Care 2010; 16:688e696.
12. Passel JS. Size and characterstics of unauthorized migrant population in US. Washington, DC: Pew Hispanic Center, 2006.
13. Ortega AN, Fang H, Perez VH, et al. Health care access, use of services, and experiences among undocumented Mexicans and other Latinos. Arch Intern Med 2007;167:2354e2360.
14. Vargas Bustamante A, Chen J. Physicians cite hurdles ranging from lack of coverage to poor communication in providing high-quality care to Latinos. Health Aff (Millwood) 2011;30:1921e1929.
15. Katz JN, Lyons N, Wolff LS, et al. Medical decision-making among Hispanics and non- Hispanic Whites with chronic back and knee pain: A qualitative study. BMC Musculoskelet Disord 2011;12:78e85.
16. Kelley AS, Wenger NS, Sarkisian CA. Opiniones: End-of-life care preferences and planning of older Latinos. J Am Geriatr Soc 2010;58:1109e1116.
17. Wallace LS, DeVoe JE, Rogers ES, Malagon- Rogers M, Fryer GE. The medical dialogue: Disentangling differences between Hispanic and non-Hispanic whites. J Gen Intern Med 2007;22: 1538e1543.
18. Kwak J, Haley WE, Chiriboga DA. Racial differences in hospice use and in-hospital death among Medicare and Medicaid dual-eligible nursing home residents. Gerontologist 2008;48:32e41.
19. Cooper-Patrick L, Gallo JJ, Gonzales JJ, et al. Race, gender, and partnership in the patientphysician relationship. JAMA 1999;282:583e589.
20. Marin G, Sabogal F, Marin BV, Otero-Sabogal R, Perez-Stable EJ. Development of a short acculturation scale for Hispanics. Hisp J Behav Sci 1987;9: 183e205.
21. Degner LF, Sloan JA. Decision making during serious illness: What role do patients really want to play? J Clin Epidemiol 1992;45:941e950.
22. Bruera E, Willey JS, Lynn Palmer J, Rosales M. Treatment decisions for breast carcinoma. Cancer 2002;94:2076e2080.
23. Degner LF, Sloan SJ, Venkatesh P. The Control Preferences Scale. Can J Nurs Res 1997;29:21e43.
24. Cassileth BR, Zupkis RV, Sutton-Smith K, March V. Information and participation preferences among cancer patients. Ann Intern Med 1980;92: 832e836.
25. Tariman JD, Berry DL, Cochrane B, Doorenbos A, Schepp K. Preferred and actual participation roles during health care decision making in persons with cancer: A systematic review. Ann Oncol 2010;21:1145e1151.
26. Gaston CM, Mitchell G. Information giving and decision-making in patients with advanced cancer: A systematic review. Soc Sci Med 2005;61: 2252e2264.
27. Hack TF, Degner LF, Watson P, Sinha L. Do patients benefit from participating in medical decision making? Longitudinal follow-up of women with breast cancer. Psychooncology 2006;15:9e19.
28. Murray E, Pollack L, White M, Lo B. Clinical decision-making: Patients? preferences and experiences. Patient Educ Couns 2007;65:189e196.
29. Blackhall LJ, Murphy ST, Frank G, Michel V, Azen S. Ethnicity and attitudes toward patient autonomy. J Am Med Assoc 1995;274:820e825.