The clinical utility of health-related quality of life screening in a pediatric inflammatory bowel disease clinic

Inflammatory Bowel Diseases

Volumn 19, Issue 12, 2013, Pages 2666-2672

  Ryan, Jamie L ^a,b   Mellon, Michael W ^b,c   Junger, Katherine W F ^b   Hente, Elizabeth A ^b   Denson, Lee A ^b,c   Saeed, Shehzad A ^b,c   Hommel, Kevin A ^b,c  

^a OKLAHOMA STATE UNIVERSITY   (United States)

^b CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER   (United States)

^c UNIVERSITY OF CINCINNATI COLLEGE OF MEDICINE   (United States)

Author keywords

Disease outcomes; Health related quality of life; Healthcare utilization; Inflammatory bowel disease

Indexed keywords

ADOLESCENT; ADULT; ANALGESIA; ARTICLE; CHILD; CHILDHOOD DISEASE; CROHN DISEASE; DISEASE SEVERITY; ENTERITIS; FEMALE; HEALTH CARE UTILIZATION; HOSPITAL ADMISSION; HUMAN; MAJOR CLINICAL STUDY; MALE; MEDICAL RECORD REVIEW; OUTCOME ASSESSMENT; PREDICTION; PRIORITY JOURNAL; QUALITY OF LIFE; SCHOOL CHILD; SCREENING; ULCERATIVE COLITIS;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; CHILD; COLITIS, ULCERATIVE; CROHN DISEASE; FEMALE; FOLLOW-UP STUDIES; HUMANS; MALE; MASS SCREENING; PROGNOSIS; QUALITY OF LIFE; RETROSPECTIVE STUDIES; STRESS, PSYCHOLOGICAL;

EID: 84888376771     PISSN: 10780998     EISSN: 15364844     Source Type: Journal    
DOI: 10.1097/MIB.0b013e3182a82b15     Document Type: Article

References (48)

1. Ingerski LM, Baldassano RN, Denson LA, et al. Barriers to oral medication adherence for adolescents with inflammatory bowel disease. J Pediatr Psychol. 2010;35:683-691.
2. Greenley RN, Stephens M, Doughty A, et al. Barriers to adherence among adolescents with inflammatory bowel disease. Inflamm Bowel Dis. 2010; 16:36-41.
3. Greenley RN, Hommel KA, Nebel J, et al. A meta-analytic review of the psychosocial adjustment of youth with inflammatory bowel disease. J Pediatr Psychol. 2010;35:857-869.
4. Mackner LM, Sisson DP, Crandall WV. Review: psychosocial issues in pediatric inflammatory bowel disease. J Pediatr Psychol. 2004;29: 243-257.
5. Gray WN, Denson LA, Baldassano RN, et al. Treatment adherence in adolescents with inflammatory bowel disease: the collective impact of barriers to adherence and anxiety/depressive symptoms. J Pediatr Pscyhol. 2012;37:282-291.
6. Mardini HE, Kip KE, Wilson JW. Crohn's disease: a two-year prospective study of the association between psychological distress and disease activity. Dig Dis Sci. 2004;49:492-497.
7. Mittermaier C, Dejacto C, Waldhoer T, et al. Impact of depressive mood on relapse in patients with inflammatory bowel disease: a prospective 18-month follow-up study. Psychosom Med. 2004;66:79-84.
8. Varni JW, Seid M, Smith Knight T, et al. The PedsQL in pediatric rheumatology: reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory Generic Core Scales and Rheumatology Module. Arthritis Rheum. 2002;46:714-725.
9. Gerson AC, Wentz A, Abraham AG, et al. Health-related quality of life of children with mild to moderate chronic kidney disease. Pediatrics. 2010; 125:e349-e357.
10. Varni JW, Seid M, Knight TS, et al. The PedsQL 4.0 Generic Core Scales: sensitivity, responsiveness, and impact on clinical decision-making. J Behav Med. 2002;25:175-193.
11. Seid M, Sobo EJ, Gelhard LR, et al. Parents' reports of barriers to care for children with special health care needs: development and validation of the barriers to care questionnaire. Ambul Pediatr. 2004;4:323-331.
12. Mapes DL, Lopes AA, Satayathum S, et al. Health-related quality of life as a predictor of mortality and hospitalization: the Dialysis Outcomes and Practice Patterns Study (DOPPS). Kidney Int. 2003;64:339-349.
13. Fogel J, Fauerbach JA, Ziegelstein RC, et al. Quality of life in physical health domains predicts adherence among myocardial infarction patients even after adjusting for depressive symptoms. J Psychosom Res. 2004;56:75-82.
14. Seid M, Varni JW, Segall D, et al. Health-related quality of life as a predictor of pediatric healthcare costs: a two-year prospective cohort analysis. Health Qual Life Outcomes. 2004;2:48.
15. Carpentieri SC, Meyer EA, Delaney BL, et al. Psychosocial and behavioral functioning among pediatric brain tumor survivors. J Neurooncol. 2003;63:279-287.
16. Gonzalez-Tejera G, Canino G, Ramirez R, et al. Examining minor and major depression in adolescents. J Child Psychol Psychiatry. 2005;46: 888-899.
17. Brent DA, Birmaher B, Kolko D, et al. Subsyndromal depression in adolescents after a brief psychotherapy trial: course and outcome. J Affect Disord. 2001;63:51-58.
18. Cortina S, McGraw KJ, deAlarcon A, et al. Psychological functioning of children and adolescents with eosinophil-associated gastrointestinal disorders. Child Health Care. 2010;39:266-278.
19. Varni JW, Burwinkle TM, Seid M. The PedsQL 4.0 as a school population health measure: feasibility, reliability, and validity. Qual Life Res. 2006;15:203-215.
20. Bastiaansen D, Koot HM, Bongers IL, et al. Measuring quality of life in children referred for psychiatric problems: psychometric properties of the PedsQL 4.0 generic core scales. Qual Life Res. 2004;13:489-495.
21. Bolge SC, Doan JF, Kannan H, et al. Association of insomnia with quality of life, work productivity, and activity impairment. Qual Life Res. 2009; 18:415-422.
22. Montazeri A, Milroy R, Hole D, et al. Quality of life in lung cancer patients - as an important prognostic factor. Lung Cancer. 2001;31:233-240.
23. Varni JW, Seid M, Rode CA. The PedsQL: measurement model for the pediatric quality of life inventory. Med Care. 1999;37:126-139.
24. Varni JW, Seid M, Kurtin PS. PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Med Care. 2001;39:800-812.
25. Kovacs M. Children's Depression Inventory. North Tonawanda, NY: Multi-Health Systems; 1992.
26. Beck A, Steer R, Brown G. Manual for Beck Depression Inventory II (BDI-II). San Antonio, TX: Psychology Corporation; 1996.
27. Crandall W, Kappelman MD, Colletti RB, et al. ImproveCareNow: the development of a pediatric inflammatory bowel disease improvement network. Inflamm Bowel Dis. 2011;17:450-457.
28. Stjernman H, Tysk C, Almer S, et al. Factors predicting the outcome of disease activity assessment in Crohn's disease. Inflamm Bowel Dis. 2009; 15:1859-1866.
29. Hyams JS, Ferry GD, Mandel FS, et al. Development and validation of a pediatric Crohn's disease activity index. J Pediatr Gastroenterol Nutr. 1991;12:439-447.
30. Hyams JS, Markowitz J, Otley A, et al. Evaluation of the pediatric Crohn disease activity index: a prospective multicenter experience. J Pediatr Gastroenterol Nutr. 2005;41:416-421.
31. Turner D, Hyams J, Markowitz J, et al. Appraisal of the pediatric ulcerative colitis activity index (PUCAI). Inflamm Bowel Dis. 2009;15:1218-1223.
32. SPSS [Computer Program]. Version 20. IBM Corp., Armonk, NY, 2011.
33. Varni JW, Limbers CA, Burwinkle TM. Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL 4.0 Generic Core Scales. Health Qual Life Outcomes. 2007;5:43.
34. Hommel KA, Baldassano RN. Brief report: barriers to treatment adherence in pediatric inflammatory bowel disease. J Pediatr Psychol. 2010;35: 1005-1010.
35. Ingerski LM, Modi AC, Hood KK, et al. Health-related quality of life across pediatric chronic conditions. J Pediatr. 2010;156:639-644.
36. Perrin JM, Kuhlthau K, Chughtai A, et al. Measuring quality of life in pediatric patients with inflammatory bowel disease: psychometric and clinical characteristics. J Pediatr Gastroenterol Nutr. 2008;46:164-171.
37. Marcus SB, Strople JA, Neighbors K, et al. Fatigue and health-related quality of life in pediatric inflammatory bowel disease. Clin Gastroenterol Hepatol. 2009;7:554-561.
38. Patrick DL, Deyo RA. Generic and disease-specific measures in assessing health status and quality of life. Med Care. 1989;27(3 suppl):S217-S232.
39. Guyatt GH, Feeny DH, Patrick DL. Measuring health-related quality of life. Ann Intern Med. 1993;118:622-629.
40. Kunz JH, Hommel KA, Greenley RN. Health-related quality of life of youth with inflammatory bowel disease: a comparison with published data using the PedsQL 4.0 generic core scales. Inflamm Bowel Dis. 2010;16: 939-946.
41. Varni JW, Burwinkle TM, Lane MM. Health-related quality of life measurement in pediatric clinical practice: an appraisal and precept for future research and application. Health Qual Life Outcomes. 2005;3:34.
42. Wagner AK, Ehrenberg BL, Tran TA, et al. Patient-based health status measurement in clinical practice: a study of its impact on epilepsy patients' care. Qual Life Res. 1997;6:329-341.
43. Szigethy E, Kenney E, Carpenter J, et al. Cognitive-behavioral therapy for adolescents with inflammatory bowel disease and subsyndromal depression. J Am Acad Child Adolesc Psychiatry. 2007;46:1290-1298.
44. Wysocki T, Harris MA, Buckloh LM, et al. Effects of behavioral family systems therapy for diabetes on adolescents' family relationships, treatment adherence, and metabolic control. J Pediatr Psychol. 2006;31:928-938.
45. Janicke DM, Finney JW, Riley AW. Children's health care use: a prospective investigation of factors related to care-seeking. Med Care. 2001; 39:990-1001.
46. Detmar SB, Aaronson NK. Quality of life assessment in daily clinical oncology practice: a feasibility study. Eur J Cancer. 1998;34:1181-1186.
47. Carlson LE, Speca M, Hagen N, et al. Computerized quality-of-life screening in a cancer pain clinic. J Palliat Care. 2001;17:46-52.
48. Greineder DK, Loane KC, Parks P. Reduction in resource utilization by an asthma outreach program. Arch Pediatr Adolesc Med. 1995;149:415-420.