A review of instruments to measure health-related quality of life and well-being among pregnant women

Journal of Reproductive and Infant Psychology

Volumn 31, Issue 5, 2013, Pages 512-530

  Morrell, C J ^a   Cantrell, A ^b   Evans, K ^c   Carrick Sen, D M ^d  

^a UNIVERSITY OF NOTTINGHAM   (United Kingdom)

^b UNIVERSITY OF SHEFFIELD   (United Kingdom)

^c NEWCASTLE UNIVERSITY   (United Kingdom)

^d NOTTINGHAM UNIVERSITY HOSPITALS NHS TRUST   (United Kingdom)

Author keywords

health related quality of life; instrument; pregnancy; psychological; well being

Indexed keywords

ANXIETY; CAMBRIDGE WORRY SCALE; CHILDBIRTH; CLINICAL DECISION MAKING; CROSS-SECTIONAL STUDY; EMOTION; HEALTH CARE; HEALTH CARE POLICY; HUMAN; MENTAL HEALTH; MORBIDITY; NAUSEA AND VOMITING; PREGNANCY EXPERIENCE SCALE; PREGNANCY RELATED ANXIETY QUESTIONNAIRE; PREGNANT WOMAN; PRENATAL DISTRESS QUESTIONNAIRE; PRENATAL PSYCHOSOCIAL PROFILE; QUALITY OF LIFE; QUESTIONNAIRE; RANDOMIZED CONTROLLED TRIAL (TOPIC); REVIEW; RISK ASSESSMENT; SOCIAL STATUS; STRESS; SYSTEMATIC REVIEW (TOPIC); WELLBEING; WIJMA DELIVERY EXPECTANCY QUESTIONNAIRE;

EID: 84887915055     PISSN: 02646838     EISSN: 1469672X     Source Type: Journal    
DOI: 10.1080/02646838.2013.835795     Document Type: Review

References (69)

1. Alderdice, F., & Lynn, F. (2010). Factor structure of the Prenatal Distress Questionnaire. Midwifery, 27, 553-559. doi:10.1016/j.midw.2010.05.003.
2. Alderdice, F., Lynn, F., & Lobel, M. (2012). A review and psychometric evaluation of pregnancy-specific stress measures. Journal of Psychosomatic Obstetrics & Gynecology, 33, 62-77.
3. Allan, C., Carrick-Sen, D., & Martin, C. (2013). What is perinatal well-being? A concept analysis and review of the literature. Journal of Reproductive and Infant Psychology doi:10.1080/02646838.2013.791920
4. Brazier, J. E., & Roberts, J. R. (2004). The estimation of a preference-based index from the SF-12. Medical Care, 42, 851-859.
5. Buist, A., Condon, J., Brooks, J., Speelman, C., Milgrom, J., Hayes, B., et al. (2006). Acceptability of routine screening for postnatal depression. Journal of Affective Disorders, 93, 233-237.
6. Central Intelligence Agency. (2013). The World Factbook (Field Listing: Birth Rate). Retrieved from https://www.cia.gov/library/publications/the-world-factbook/fields/2054.html.
7. Chan, O. K., Sahota, D. S., Leung, T. Y., Chan, L. W., Fung, T. Y., & Lau, T. K. (2010). Nausea and vomiting in health-related quality of life among Chinese pregnant women. Australian and New Zealand Journal of Obstetrics and Gynaecology, 50, 512-518.
8. Curry, M. A., Campbell, R. A., & Christian, M. (1994). Validity and reliability testing of the Prenatal Psychosocial Profile. Research in Nursing and Health, 17, 127-135.
9. Da Costa, D., Dritsa, M., Verreault, N., Balaa, C., Kudzman, J., & Khalife, S. (2010). Sleep problems and depressed mood negatively impact health-related quality of life during pregnancy. Archives of Women's Mental Health, 13, 249-257. doi:10.1007/s00737-009-0104-3.
10. Department of Health. (2009). Healthy Child Programme: Pregnancy and the first five years of life. Retrieved from https://www.gov.uk/government/publications/healthy-child-programme-pregnancy-and-the-first-5-years-of-life (accessed 24 July 2013).
11. DiPietro, J. A., Ghera, M. M., Costigan, K., & Hawkins, M. (2004). Measuring the ups and downs of pregnancy stress. Journal of Psychosomatic Obstetrics and Gynaecology, 25, 189-201. doi:10.1080/01674820400017830.
12. Edwards, B., Galletly, C., Semmler-Booth, T., & Dekker, G. (2008). Antenatal psychosocial risk factors and depression among women living in socioeconomically disadvantaged suburbs in Adelaide, South Australia. Australian and New Zealand Journal of Psychiatry, 42, 45-50. doi:10.1080/00048670701732673.
13. Evans, J., Heron, J., Francomb, H., Oke, S., & Golding, J. (2001). Cohort study (ALSPAC) of depressed mood during pregnancy and after childbirth. British Medical Journal, 323, 257-260.
14. Fenwick, J., Gamble, J., Nathan, E., Bayes, S., & Hauck, Y. (2009). Pre- and postpartum levels of childbirth fear and the relationship to birth outcomes in a cohort of Australian women. Journal of Clinical Nursing, 18, 667-677. doi:10.1111/j.1365-2702.2008.02568.x.
15. Gadsby, R., & Barnie-Adshead, A. M. (2013). Nausea and vomiting of pregnancy: Clinical information about nausea and vomiting of pregnancy its relation to various aspects of women's personal and obstetric histories and other significant factors related to nausea and vomiting of pregnancy or hyperemesis gravidarum. A literature review. Warwick Medical School. Retrieved from http://www.pregnancysicknesssupport.org.uk/documents/NVP-lit-review.pdf
16. Gartland, D., Brown, S., Donat, S., & Perlen, S. (2010). Women's health in early pregnancy: Findings from an Australian nulliparous study. Australian and New Zealand Journal of Obstetrics and Gynaecology, 50, 413-418.
17. Gavin, N., Gaynes, B. N., Lohr, K. N., Meltzer-Brody, S., Gartlehner, G., & Swinson, T. (2005). Perinatal depression: A systematic review of prevalence and incidence. Obstetrics and Gynecology, 5, 1071-1083. doi:10.1097/01.AOG.0000183597.31630.db.
18. Giurgescu, C., Penckofer, S., Maurer, M. C., & Bryant, F. B. (2006). Impact of uncertainty, social support, and prenatal coping on the psychological well-being of high-risk pregnant women. Nursing Research, 55, 356-365. Ovid MEDLINE(R). UI - 16980836.
19. Gourounti, K., Anagnostopoulos, F., & Lykeridou, K. (2013). Coping strategies as psychological risk factor for antenatal anxiety, worries, and depression among Greek women. Archives of Women's Mental Health. Advance online publication. doi: 10.1007/s00737-013-0338-y.
20. Green, J., & Kafetsios, K. (1997). Positive experiences of early motherhood: Predictive variables from a longitudinal study. Journal of Reproductive and Infant Psychology, 15, 141-157. doi:10.1080/02646839708404540.
21. Green, J., Kafetsios, K., Statham, H., & Snowdon, C. (2003). Factor structure, validity and reliability of the Cambridge Worry Scale in a pregnant population. Journal of Health Psychology, 8, 753-764.
22. Grote, N. K., Bridge, J. A., Gavin, A. R., Melville, J. L., Iyengar, S., & Katon, W. J. (2010). A meta-analysis of depression during pregnancy and the risk of preterm birth, low birth weight, and Intrauterine Growth Restriction. Archives of General Psychiatry, 67, 1012-1024. doi:10.1001/archgenpsychiatry.2010.111.
23. Heaman, M. I., & Gupton, A. L. (2009). Psychometric testing of the Perception of Pregnancy Risk Questionnaire. Research in Nursing & Health, 32, 493-503. doi:10.1002/nur.20342.
24. Heimstad, R., Dahloe, R., Laache, I., Skogvoll, E., & Schei, B. (2006). Fear of childbirth and history of abuse: Implications for pregnancy and delivery. Acta Obstetricia et Gynecologica Scandinavica, 85, 435-440. doi:10.1080/00016340500432507.
25. Helliwell, J. F., & Barrington-Leigh, C. P. (2010). Viewpoint: Measuring and understanding subjective well-being. Canadian Journal of Economics, 43, 729-752.
26. Hueston, W. J., & Kasik-Miller, S. (1998). Changes in functional health status during normal pregnancy. Journal of Family Practice, 47, 209-212. Ovid MEDLINE(R). UI - 9752373.
27. Jesse, D. E., Walcott-McQuigg, J., Mariella, A., & Swanson, M. S. (2005). Risks and protective factors associated with symptoms of depression in low-income African American and Caucasian women during pregnancy. Journal of Midwifery & Women's Health, 50, 405-410. doi:10.1016/j.jmwh.2005.05.001.
28. Jomeen, J. (2004). The importance of assessing psychological status during pregnancy, childbirth and the postnatal period as a multidimensional construct: A literature review. Clinical Effectiveness in Nursing, 8, 143-155. CINAHL Accession Number: 2009048603.
29. Jomeen, J., & Martin, C. (2005). The factor structure of the SF-36 in early pregnancy. Journal of Psychosomatic Research, 59, 131-138.
30. Kivlighan, K. T., DiPietro, J. A., Costigan, K. A., & Laudenslager, M. L. (2008). Diurnal rhythm of cortisol during late pregnancy: Associations with maternal psychological well-being and fetal growth. Psychoneuroendocrinology, 33, 1225-1235. doi:10.1016/j.psyneuen.2008.06.008.
31. Kleinveld, J. H., Timmermans, D. R., de Smit, D. J., Ader, H. J., van der Wal, G., & ten Kate, L. P. (2006). Does prenatal screening influence anxiety levels of pregnant women? A longitudinal randomised controlled trial. Prenatal Diagnosis, 26, 354-361. doi:10.1002/pd.1419.
32. Kramer, J., Bowen, A., Stewart, N., & Muhajarine, N. (2013). Nausea and vomiting of pregnancy: Prevalence, severity and relation to psychosocial health. MCN, American Journal of Maternal Child Nursing, 38, 21-27.
33. Lacasse, A., Rey, E., Ferreria, E., Morin, C., & Bérard, A. (2008). Nausea and vomiting in pregnancy: What about quality of life? British Journal of Obstetrics and Gynaecology, 115, 1484-1493.
34. Lynn, F. A., Alderdice, F. A., Crealey, G. E., & McElnay, J. C. (2011). Associations between maternal characteristics and pregnancy related stress among low-risk mothers: An observational cross-sectional study. International Journal of Nursing Studies, 48, 620-627. doi:10.1016/j.ijnurstu.2010.10.002.
35. Martin, C. R., & Savage-McGlynn, E. A. (2013). 'Good practice' guide for the reporting of design and analysis for psychometric evaluation, Journal of Reproductive and Infant Psychology, this issue.
36. McMahon, C. A., Boivin, J., Gibson, F. L., Hammarberg, K., Wynter, K., Saunders, D., et al. (2011). Age at first birth, mode of conception and psychological well-being in pregnancy: Findings from the parental age and transition to parenthood Australia (PATPA) study. Human Reproduction, 26, 1389-1398. doi:10.1093/humrep/der076.
37. Meades, R., & Ayers, S. (2011). Anxiety measures validated in perinatal populations: A systematic review. Journal of Affective Disorders, 113, 1-15.
38. Milano, A. G. (2013). Medical disorders during pregnancy. Retrieved from http://www.health.am/pregnancy/disorders-during-pregnancy.
39. Mohammad, K. I., Gamble, J., & Creedy, D. K. (2011). Prevalence and factors associated with the development of antenatal and postnatal depression among Jordanian women. Midwifery, 27, e238-e245. doi:10.1016/j.midw.2010.10.008.
40. Ngai, F. W., Wai-Chi, C. S., & Ip, W. Y. (2010). Predictors and correlates of maternal role competence and satisfaction. Nursing Research, 59, 185-193. doi:10.1097/NNR.0b013e3181dbb9ee.
41. NHS Commissioning Board. (2012). Commissioning maternity services: A resource pack to support clinical commissioning groups. Retrieved from http://www.england.nhs.uk/wp-content/uploads/2012/07/comm-maternity-services.pdf.
42. NICE (National Institute for Health and Clinical Excellence). (2012). Social and emotional well-being: Early years. Public Health Guidance 40. London: National Institute for Health and Clinical Excellence.
43. Nieminen, K., Stephansson, O., & Ryding, E. L. (2009). Women's fear of childbirth and preference for cesarean section - A cross-sectional study at various stages of pregnancy in Sweden. Acta Obstetricia et Gynecologica Scandinavica, 88, 807-813. doi:10.1080/00016340902998436.
44. Nordeng, H., Hansen, C., Garthus-Niegel, S., & Eberhard-Gran, M. (2012). Fear of childbirth, mental health, and medication use during pregnancy. Archives of Women's Mental Health, 15, 203-209. doi:10.1007/s00737-012-0278-y.
45. O'Connor, T., Heron, J., Golding, J., Beveridge, M., & Glover, V. (2002). Maternal prenatal anxiety and children's behavioural and emotional problems at 4 years. British Journal of Psychiatry, 180, 502-508.
46. Office for National Statistics (2013a). Statistical bulletin: Births and Deaths in England and Wales, 2011. Retrieved from http://www.ons.gov.uk/ons/rel/vsob1/birth-summary-tables-england-and-wales/2011-final-/.html
47. Office for National Statistics (2013b). Statistical bulletin: Personal Well-being in the UK, 2012/13. Retrieved from http://www.ons.gov.uk/ons/rel/well-being/measuring-national-well-being/personal-well-being-in-the-uk-2012-13/.html.
48. Öhman, S. G., Grunewald, C., & Waldenstrom, U. (2003). Women's worries during pregnancy: Testing the Cambridge worry scale on 200 Swedish women. Scandinavian Journal of Caring Sciences, 17, 148-152.
49. Öhman, S. G., Saltvedt, S., Grunewald, C., & Waldenström, U. (2004). Does fetal screening affect women's worries about the health of their baby?: A randomized controlled trial of ultrasound screening for Down's syndrome versus routine ultrasound screening. Acta Obstetricia et Gynecologica Scandinavica, 83 634-640.
50. Oostdam, N., Bosmans, J., Wouters, M. G. A. J., Eekhoff, E. M. W., van Mechelen, W., & van Poppel, M. N. M. (2012). Cost-effectiveness of and exercise programme during pregnancy to prevent gestational diabetes: Results of an economic evaluation alongside a randomised controlled trial. BMC Pregnancy and Childbirth, 12, 64.
51. Penacoba-Puente, C., Monge, F. J., & Morales, D. M. (2011). Pregnancy worries: A longitudinal study of Spanish women. Acta Obstetricia et Gynecologica Scandinavica, 90, 1030-1035. doi:10.1111/j.1600-0412.2011.01208.x.
52. Pop, V. J. M., Pommer, A. M., & Pop-Purceleanu, M. (2011). The development of the Tilburg Pregnancy Distress Scale: The TPDS. BMC Pregnancy and Childbirth, 11, 80.
53. Reck, C., Zimmer, K., Dubber, S., Zipser, B., Schlehe, B., & Gawlik, S. (2013). The influence of general anxiety and childbirth-specific anxiety on birth outcome. Archives of Women's Mental Health, doi:10.1007/s00737-013-0344-0.
54. Rouhe, H., Salmela-Aro, K., Toivanen, R., Tokola, M., Halmesmaki, E., & Saisto, T. (2013). Obstetric outcome after intervention for severe fear of childbirth in nulliparous women - Randomised trial. British Journal of Obstetrics and Gynaecology, 120, 75-84. doi:10.1111/1471-0528.12011.
55. Setse, R., Grogan, R., Pham, L., Cooper, L. A., Strobino, D., Powe, N. R., et al. (2009). Longitudinal study of depressive symptoms and health-related quality of life during pregnancy and after delivery: The Health Status in Pregnancy (HIP) study. Maternal & Child Health Journal, 13, 577-587. doi:10.1007/s10995-008-0392-7.
56. Sluijs, A. M., Cleiren, M. P., Scherjon, S. A., & Wijma, K. (2012). No relationship between fear of childbirth and pregnancy-/delivery-outcome in a low-risk Dutch pregnancy cohort delivering at home or in hospital. Journal of Psychosomatic Obstetrics & Gynecology, 33, 99-105. doi:10.3109/0167482X.2012.685905.
57. Stahl, K., & Hundley, V. (2003). Risk and risk assessment in pregnancy - Do we scare because we care? Midwifery, 19, 298-309. doi:10.1016/S0266-6138(03).00041-X/midw.2003.036.
58. Storksen, H. T., Garthus-Niegel, S., Vangen, S., & Eberhard-Gran, M. (2013). The impact of previous birth experiences on maternal fear of childbirth. Acta Obstetricia et Gynecologica Scandinavica, 92, 318-324. doi:10.1111/aogs.12072.
59. Symon, A. (2003). A review of mothers' prenatal and postnatal quality of life. Health and Quality of Life Outcomes, 1, 38.
60. van Bussel, J. C., Spitz, B., & Demyttenaere, K. (2009). Anxiety in pregnant and postpartum women. An exploratory study of the role of maternal orientations. Journal of Affective Disorders, 114, 232-242. doi:10.1016/j.jad.2008.07.018.
61. Van Den Bergh, B. (1989). The emotional state of the (pregnant) woman, obstetrical complications and the behaviour and development of fetus and child until seven months after birth Unpublished doctoral dissertation. Faculty of Psychology and Educational Sciences. Leuven: Katholieke Universiteit Leuven.
62. van Haaren-Ten Haken, H. T., Hendrix, M., Nieuwenhuijze, M., Budé, L., de Vries, R., & Nijhuis, J. (2012). Preferred place of birth: Characteristics and motives of low-risk nulliparous women in the Netherlands. Midwifery, 28, 609-618. doi:10.1016/j.midw.2012.07.010.
63. Voegtline, K. M., Costigan, K. A., Kivlighan, K. T., Laudenslager, M. L., Henderson, J. L., & DiPietro, J. A. (2013). Concurrent levels of maternal salivary cortisol are unrelated to self-reported psychological measures in low-risk pregnant women. Archives of Women's Mental Health, 16, 101-108. doi:10.1007/s00737-012-0321-z.
64. Ware, J. E., & Sherbourne, C. D. (1992). The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Medical Care, 30, 473-483.
65. Wijma, K., Wijma, B., & Zar, M. (1998). Psychometric aspects of the W-DEQ; A new questionnaire for the measurement of fear of childbirth. Journal of Psychosomatic Obstetrics & Gynecology, 19, 84-97.
66. World Health Organisation. (1946). Preamble to the Constitution of the World Health Organization as adopted by the International Health Conference, New York, 19-22 June, 1946 (Official Records, no. 2, p. 100).
67. World Health Organisation. (2011). Mental health: A state of well-being. Retrieved from http://www.who.int/features/factfiles/mental_health/en/
68. Yali, A. M., & Lobel, M. (1999). Coping and distress in pregnancy: An investigation of medically high risk women. J Psychosom Obstet Gynaecol, 20, 39-52.
69. Zar, M., Wijma, K., & Wijma, B. (2002). Relations between anxiety disorders and fear of childbirth during late pregnancy. Clinical Psychology & Psychotherapy, 9, 122-130. doi:10.1002/cpp.305.