Use of community-based participatory research in primary care to improve healthcare outcomes and disparities in care

Journal of Comparative Effectiveness Research

Volumn 2, Issue 4, 2013, Pages 405-419

  Tapp, Hazel ^a   White, Lauren ^a   Steuerwald, Mark ^a   Dulin, Michael ^a  

^a LEVINE CANCER INSTITUTE   (United States)

Author keywords

CBPR; community engagement; community based participatory research; primary care delivery

Indexed keywords

ASTHMA; CHILD HEALTH; CHRONIC DISEASE; COMMUNITY BASED PARTICIPATORY RESEARCH; DIABETES MELLITUS; EXERCISE; HEALTH CARE ACCESS; HEALTH CARE DISPARITY; HEALTH CARE NEED; HISPANIC; HUMAN; MATERNAL WELFARE; MEDICAL RESEARCH; OBESITY; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; REVIEW; WEIGHT REDUCTION;

EID: 84886945184     PISSN: 20426305     EISSN: 20426313     Source Type: Journal    
DOI: 10.2217/cer.13.45     Document Type: Review

References (75)

1. Israel BA, Schulz AJ, Parker EA, Becker AB. Review of community-based research: assessing partnership approaches to improve public health. Ann. Rev. Public Health 19, 173-202 (1998).
2. Wallerstein N, Duran B. Community-based participatory research contributions to intervention research: the intersection of science and practice to improve health equity.Am. J.Public Health 100(SUPPL. 1), S40-S46 (2010).
3. O'Brien MJ, Whitaker RC. The role of community-based participatory research to inform local health policy: a case study. J.Gen. Intern. Med. 26(12), 1498-1501 (2011).
4. Horowitz CR, Arniella A, James S, Bickell NA. Using community-based participatory research to reduce health disparities in East and Central Harlem. Mt Sinai J.Med. 71(6), 368-374 (2004).
5. Brenner B, Manice M. Community engagement in children's environmental health research. Mt Sinai J.Med. 78(1), 85-97 (2011).
6. Starfield B, Shi L, Macinko J. Contribution of primary care to health systems and health. Milbank Q 83(3), 457-502 (2005).
7. Macinko J, Starfield B, Shi L. Quantifying the health benefits of primary care physician supply in the United States. Int. J.Health Serv. 37(1), 111-126 (2007).
8. Franks P, Fiscella K. Primary care physicians and specialists as personal physicians. Health care expenditures and mortality experience. J.Fam. Pract. 47(2), 105-109 (1998).
9. O'Malley AS, Forrest CB, Politzer RM, Wulu JT, Shi L. Health center trends, 1994-2001: what do they portend for the federal growth initiative? Health Aff. (Millwood) 24(2), 465-472 (2005).
10. Agency for Healthcare Research and Quality. National Healthcare Disparities Report. (2006).
11. McWilliams A, Tapp H, Barker J, Dulin M. Cost analysis of the use of emergency departments for primary care services in Charlotte, North Carolina. NC Med. J. 72(4), 265-271 (2011).
12. Louis MR. Surprise and sense making: what newcomers experience in entering unfamiliar organizational settings. Adm. Sci. Q 25, 226-251 (1980).
13. Zoellner J, Hill JL, Zynda K, Sample AD, Yadrick K. Environmental perceptions and objective walking trail audits inform a community-based participatory research walking intervention. Int. J.Behav. Nutr. Phys. Act. 9, 6 (2012).
14. Salimi Y, Shahandeh K, Malekafzali H etal. Is community-based participatory research (CBPR) useful? A systematic review on papers in a decade. Int. J.Prev. Med. 3(6), 386-393 (2012).
15. Tapp H, Dulin M. The science of primary health-care improvement: potential and use of community-based participatory research by practice-based research networks for translation of research into practice. Exp. Biol. Med. (Maywood) 235(3), 290-299 (2010).
16. Tierney WM, Oppenheimer CC, Hudson BL etal. A national survey of primary care practice-based research networks. Ann. Fam. Med. 5(3), 242-250 (2007).
17. Westfall JM, Vanvorst RF, Main DS, Herbert C. Community-based participatory research in practice-based research networks. Ann. Fam. Med. 4(1), 8-14 (2006).
18. Pylypchuk G, Vincent L, Wentworth J etal. Diabetes risk evaluation and microalbuminuria (DREAM) studies: ten years of participatory research with a First Nation's home and community model for Type 2 diabetes care in Northern Saskatchewan. Int. J.Circumpolar Health 67(2-3), 190-202 (2008).
19. Freeman ER, Brugge D, Bennett-Bradley WM, Levy JI, Carrasco ER. Challenges of conducting community-based participatory research in Boston's neighborhoods to reduce disparities in asthma. J.Urban Health 83(6), 1013-1021 (2006).
20. Levy JI, Brugge D, Peters JL, Clougherty JE, Saddler SS. A community-based participatory research study of multifaceted in-home environmental interventions for pediatric asthmatics in public housing. Soc. Sci. Med. 63(8), 2191-2203 (2006).
21. Moreno G, Rodriguez MA, Lopez GA, Bholat MA, Dowling PT. Eight years of building community partnerships and trust: the UCLA family medicine community-based participatory research experience. Acad. Med. 84(10), 1426-1433 (2009).
22. Kruger DJ, Hamacher L, Strugar-Fritsch D, Shirey L, Renda E, Zimmerman MA. Facilitating the development of a county health coverage plan with data from a community-based health survey. J.Public Health Policy 31(2), 199-211 (2010).
23. Tapp H, Smith HA, Dixon JT, Ludden T, Dulin M. Evaluating primary care delivery systems for an uninsured Hispanic immigrant population. Fam. Comm. Health 36(1), 19-33 (2013).
24. Forno E, Celedon JC. Asthma and ethnic minorities: socioeconomic status and beyond. Curr. Opin. Allergy Clin. Immunol. 9(2), 154-160 (2009).
25. Canino G, Mcquaid EL, Rand CS. Addressing asthma health disparities: amultilevel challenge. J.Allergy Clin. Immunol. 123(6), 1209-1217; quiz1218-1209 (2009).
26. Martin CG, Andrade AA, Vila D, Acosta-Perez E, Canino G. The development of a community-based family asthma management intervention for Puerto Rican children. Prog. Community Health Partnersh. 4(4), 315-324 (2010).
27. Bonilla S, Kehl S, Kwong KY, Morphew T, Kachru R, Jones CA. School absenteeism in children with asthma in a Los Angeles inner city school. J.Pediatr. 147(6), 802-806 (2005).
28. Brenner BL, Markowitz S, Rivera M etal. Integrated pest management in an urban community: a successful partnership for prevention. Environ. Health Perspect. 111(13), 1649-1653 (2003).
29. Center for Disease Control (CDC). National Diabetes Fact Sheet (2011).
30. Cowie CC, Rust KF, Byrd-Holt DD etal. Prevalence of diabetes and impaired fasting glucose in adults in the U.S. population: National Health And Nutrition Examination Survey 1999-2002. Diabetes Care 29(6), 1263-1268 (2006).
31. Genuth S, Alberti KG, Bennett P etal. Follow-up report on the diagnosis of diabetes mellitus. Diabetes Care 26(11), 3160-3167 (2003).
32. Horowitz CR, Eckhardt S, Talavera S, Goytia C, Lorig K. Effectively translating diabetes prevention: a successful model in a historically underserved community. Transl. Behav. Med. 1(3), 443-452 (2011).
33. Herman WH, Hoerger TJ, Hicks K etal. Managing people at high risk for diabetes. Ann. Intern. Med. 144(1), 66-67; author reply 67-68 (2006).
34. Parikh P, Simon EP, Fei K, Looker H, Goytia C, Horowitz CR. Results of a pilot diabetes prevention intervention in East Harlem, New York City: Project HEED. Am. J.Public Health 100(SUPPL. 1), S232-S239 (2010).
35. Jackson L. Translating the Diabetes Prevention Program into practice: a review of community interventions. Diabetes Educ. 35(2), 309-320 (2009).
36. Mau MK, Keawe'aimoku Kaholokula J, West MR etal. Translating diabetes prevention into native Hawaiian and Pacific Islander communities: the PILI 'Ohana Pilot project. Prog. Community Health Partnersh. 4(1), 7-16 (2010).
37. Brown B, Noonan C, Harris KJ etal. Developing and piloting the journey to native youth health program in northern plains Indian communities. Diabetes Educ. 39(1), 109-118 (2013).
38. Brown BD, Harris KJ, Harris JL, Parker M, Ricci C, Noonan C. Translating the diabetes prevention program for Northern Plains Indian youth through community-based participatory research methods. Diabetes Educ. 36(6), 924-935 (2010).
39. Noonan CW, Brown BD, Bentley B etal. Variability in childhood asthma and body mass index across Northern Plains American Indian communities. J.Asthma 47(5), 496-500 (2010).
40. Bisset S, Cargo M, Delormier T, Macaulay AC, Potvin L. Legitimizing diabetes as a community health issue: a case analysis of an Aboriginal community in Canada. Health Promot. Int. 19(3), 317-326 (2004).
41. Mead MN. The sprawl of food deserts. Environ. Health Perspect. 116(8), A335 (2008).
42. Mabachi NM, Kimminau KS. Leveraging community-academic partnerships to improve healthy food access in an urban, Kansas City, Kansas, community. Prog. Community Health Partnersh. 6(3), 279-288 (2012).
43. Cummins S, Macintyre S. Food environments and obesity-neighbourhood or nation? Int. J.Epidemiol. 35(1), 100-104 (2006).
44. Reininger BM, Barroso CS, Mitchell-Bennett L etal. Process evaluation and participatory methods in an obesity-prevention media campaign for Mexican Americans. Health Promot. Pract. 11(3), 347-357 (2010).
45. Gebel K, Bauman AE, Petticrew M. Thephysical environment and physical activity: a critical appraisal of review articles. Am.J.Prev. Med. 32(5), 361-369 (2007).
46. Morrison SD, Haldeman L, Sudha S, Gruber KJ, Bailey R. Cultural adaptation resources for nutrition and health in new immigrants in central North Carolina. J.Immigr. Minor. Health 9(3), 205-212 (2007).
47. Sachs J. The End of Poverty. Penguin Press, NY, USA (2005).
48. Foster JW, Chiang F, Burgos RI etal. Community-based participatory research and the challenges of qualitative analysis enacted by lay, nurse, and academic researchers. Res. Nurs. Health 35(5), 550-559 (2012).
49. Foster J, Chiang F, Hillard RC, Hall P, Heath A. Team process in community-based participatory research on maternity care in the Dominican Republic. Nurs. Inq. 17(4), 309-316 (2010).
50. Foster J, Burgos R, Tejada C etal. Acommunity-based participatory research approach to explore community perceptions of the quality of maternal-newborn health services in the Dominican Republic. Midwifery 26(5), 504-511 (2010).
51. Bermudez-Millan A, Damio G, Cruz J etal. Stress and the social determinants of maternal health among Puerto Rican women: a CBPR approach. J.Health Care Poor Underserved 22(4), 1315-1330 (2011).
52. Vaughn LM, Wagner E, Jacquez F. A review of community-based participatory research in child health. MCN Am. J.Matern. Child Nurs. 38(1), 48-53 (2013).
53. Jacquez F, Vaughn LM, Wagner E. Youth as partners, participants or passive recipients: areview of children and adolescents in community-based participatory research (CBPR). Am. J.Community Psychol. 51(1-2), 176-189 (2012).
54. Earls F, Carlson M. The social ecology of child health and well-being. Ann. Rev. Public Health 22, 143-166 (2001).
55. Israel B, Eng E, Schulz A, Parker E. Methods in Community-Based Participatory Research. Jossey-Bass, CA, USA (2005).
56. Dancy BL, Wilbur J, Talashek M, Bonner G, Barnes-Boyd C. Community-based research: barriers to recruitment of African Americans. Nurs. Outlook 52(5), 234-240 (2004).
57. Tumiel-Berhalter LM, Mclaughlin-Diaz V, Vena J, Crespo CJ. Building community research capacity: process evaluation of community training and education in a community-based participatory research program serving a predominately puerto rican community. Prog. Community Health Partnersh. 1(1), 89-97 (2007).
58. Israel BA, Parker EA, Rowe Z etal. Community-based participatory research: lessons learned from the Centers for Children's Environmental Health and Disease Prevention Research. Environ. Health Perspect. 113(10), 1463-1471 (2005).
59. Hirani SS, Karmaliani R, Mcfarlane J etal. Development of an economic skill building intervention to promote women's safety and child development in Karachi, Pakistan. Issues Ment. Health Nurs. 31(2), 82-88 (2010).
60. Karmaliani R, Mcfarlane J, Asad N etal. Applying community-based participatory research methods to improve maternal and child health in Karachi, Pakistan. Nurs. Outlook 57(4), 204-209 (2009).
61. Mulvaney-Day NE, Rappaport N, Alegria M, Codianne LM. Developing systems interventions in a school setting: an application of community-based participatory research for mental health. Ethn. Dis. 16(1SUPPL. 1), S107-S117 (2006).
62. Minkler M, Blackwell AG, Thompson M, Tamir H. Community-based participatory research: implications for public health funding. Am. J.Public Health 93(8), 1210-1213 (2003).
63. Stacciarini JM, Wiens B, Coady M etal. CBPR: building partnerships with latinos in a rural area for a wellness approach to mental health. Issues Ment. Health Nurs. 32(8), 486-492 (2011).
64. Stacciarini JM, Shattell MM, Coady M, Wiens B. Review: community-based participatory research approach to address mental health in minority populations. Community Ment Health J.47(5), 489-497 (2011).
65. Tapp H, Philips S, Waxman D, Alexander M, Brown R, Hall M. Multidisciplinary team approach to improved chronic care management for diabetic patients in an urban safety net ambulatory care clinic. J.Am. Board Fam. Med. 25(2), 245-246 (2012).
66. Tumiel-Berhalter LM, Mclaughlin-Diaz V, Vena J, Crespo CJ. Building community research capacity: process evaluation of community training and education in a community-based participatory research program serving a predominantly Puerto Rican community. Prog. Community Health Partnersh. 1(1), 89-97 (2007).
67. Penslar RL. Basic IRB review. In: IRB Guidebook. US Department of Health & Human Services, DC, USA (1993).
68. Macaulay AC, Cross EJ, Delormier T, Potvin L, Paradis G, Mccomber A. Developing a code of research ethics for research with a native community in Canada: a report from the Kahnawake Schools Diabetes Prevention Project. Int. J.Circumpolar Health 57(SUPPL.1), 38-40 (1998).
69. Nevin JE, Gohel MM. Community-oriented primary care. Prim. Care 23(1), 1-15 (1996).
70. Macaulay AC, Hanusaik N, Beauvais JE. Breastfeeding in the Mohawk community of Kahnawake: revisited and redefined. Arctic Med. Res. (SUPPL.), 581-585 (1991).
71. Green LA, Hickner J. A short history of primary care practice-based research networks: from concept to essential research laboratories. J.Am. Board Fam Med. 19(1), 1-10 (2006).
72. Viswanathan M, Ammerman A, Eng E etal. Community-based participatory research: assessing the evidence. Evid. Rep. Technol. Assess. (Summ.) 99, 1-8 (2004).
73. Green LW, Mercer SL. Can public health researchers and agencies reconcile the push from funding bodies and the pull from communities? Am. J.Public Health 91(12), 1926-1929 (2001).
74. Dalal M, Skeete R, Yeo HL, Lucas GI, Rosenthal MS. A physician team's experiences in community-based participatory research: insights into effective group collaborations. Am. J. Prev. Med. 37(6 SUPPL. 1), S288-S291 (2009).
75. Spector AY. CBPR with service providers: arguing a case for engaging practitioners in all phases of research. Health Promot. Pract. 13(2), 252-258 (2012).