Shunted hydrocephalus has a significant impact on quality of life in children with spina bifida

PM and R

Volumn 5, Issue 10, 2013, Pages 825-831

  Ramachandra, Puneeta ^a,b   Palazzi, Kerrin L ^a   Skalsky, Andrew J ^b   Marietti, Sarah ^b   Chiang, George ^b  

^a UNIVERSITY OF CALIFORNIA   (United States)

^b RADY CHILDREN'S HOSPITAL   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; CLINICAL ARTICLE; COMPARATIVE STUDY; CONTINENCE; CONTROLLED STUDY; DEMOGRAPHY; ETHNICITY; FEMALE; HEALTH INSURANCE; HEALTH STATUS; HUMAN; HYDROCEPHALUS; MALE; MOBILIZATION; PARENT; PERCEPTION; PRESCHOOL CHILD; PRIORITY JOURNAL; PROSPECTIVE STUDY; QUALITY OF LIFE; SCHOOL CHILD; SHUNTING; SOCIAL STATUS; SPINAL DYSRAPHISM;

ADOLESCENT; CHILD; CHILD, PRESCHOOL; FEMALE; HEALTH STATUS; HUMANS; HYDROCEPHALUS; MALE; MULTIVARIATE ANALYSIS; PROSPECTIVE STUDIES; QUALITY OF LIFE; QUESTIONNAIRES; SPINAL DYSRAPHISM;

EID: 84886100157     PISSN: 19341482     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pmrj.2013.05.011     Document Type: Article

References (25)

1. Centers for Disease Control and Prevention Racial/ethnic differences in the birth prevalence of spina bifida-United States, 1995-2005. MMWR Morbid Mortal Wkly Rep 2009, 57:1409-1413.
2. Reigel D.H., Rotenstein D. Spina bifida. Pediatric Neurosurgery 1994, Saunders, Philadelphia, PA. 3rd ed. W.R. Cheek (Ed.).
3. Burmeister R., Hannay H.J., Copeland K., Fletcher J.M., Boudousquie A., Dennis M. Attention problems and executive functions in children withspina bifida and hydrocephalus. Child Neuropsychol 2005, 11:265-283.
4. Fletcher J.M., Brookshire B.L., Landry S.H., et al. Attentional skills and executive functions in children with early hydrocephalus. Dev Neuropsychol 1996, 12:53-76.
5. Fletcher J.M., Dennis M., Northrup H. Hydrocephalus. Pediatric Neuropsychology: Research, Theory, and Practice. The Science and Practice of Neuropsychology 2000, 25-46. Guilford Press, New York, NY. K.M. Yeates, M.D. Ris, H.G. Taylor (Eds.).
6. Hetherington R., Dennis M. Motor function profile in children with early onset hydrocephalus. Dev Neuropsychol 1999, 15:25-51.
7. The World Health Organization Quality of Life Assessment (WHOQOL): Position paper from the World Health Organization. Soc Sci Med 1995, 41:1403-1409. The WHOQOL Group. 1995.
8. Varni J.W., Seid M., Rode C.A. The PedsQL: Measurement model for the pediatric quality of life inventory. Med Care 1999, 37:126-139.
9. TM: reliability and validity of the short-form generic core scales and asthma module. Med Care 2005, 43:256-265.
10. Varni J.W., Seid M., Kurtin P.S. PedsQL™ 4.0: Reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 generic core scales in healthy and patient populations. Med Care 2005, 39:800-812.
11. Parekh A.D., Trusler L.A., Pietsch J.B., et al. Prospective, longitudinal evaluation of health related quality of life in the pediatric spina bifida population undergoing reconstructive urological surgery. JUrol 2006, 176:1878-1882.
12. MacNeily A.E., Jafari S., Scott H., Dalgetty A., Afshar K. Health related quality of life in patients with spina bifida: A prospective assessment before and after lower urinary tract reconstruction. JUrol 2009, 182(Suppl):1984-1991.
13. Ok J.H., Kurzrock E.A. Objective measurement of quality of life changes after ACE Malone using the FICQOL survey. JPediatr Urol 2011, 7:389-393.
14. Lemelle J.L., Guillemin F., Aubert D., et al. Quality of life and continence in patients with spina bifida. Qual Life Res 2006, 15:1481-1492.
15. Cate I.M., Kennedy C., Stevenson J. Disability and quality of life in spina bifida and hydrocephalus. Dev Med Child Neurol 2002, 44:317-322.
16. TM: measurement model for pediatric quality of life inventory. Med Care 1999, 37:126-139.
17. TM 4.0 as a pediatric population health measure: Feasibility, reliability, and validity. Ambulat Pediatr 2003, 3:329-341.
18. Wallander J.L., Schmitt M., Koot H.M. Quality of life measurement in children and adolescents: Issues, instruments, and applications. JClin Psychol 2001, 57:571-585.
19. Sawin K.J., Brei T., Stevens S., et al. The meaning of quality of life in adolescents with spina bifida and their parents. Cerebrospinal Fluid Res 2006, 3(Suppl 1):S36.
20. Shin M., Kucik J.E., Siffel C., et al. Improved survival among children with spina bifida in the United States. JPediatr 2012, 161:1132-1137.
21. Swartwout M.D., Garnaat S.L., Myszka K.A., Fletcher J.M., Dennis M. Associations of ethnicity and SES with IQ and achievement in spina bifida meningomyelocele. JPediatr Psychol 2010, 35:927-936.
22. Hetherington R., Dennis M., Barnes M., Drake J., Gentili F. Functional outcome in young adults with spina bifida and hydrocephalus. Childs Nerv Syst 2006, 22:117-124.
23. Hayden P.W., Davenport S.L., Campbell M.M. Adolescents with myelodysplasia: Impact of physical disability on emotional maturation. Pediatrics 1979, 64:53-59.
24. Barf H.A., Post M.W., Verhoef M., Gooskens R.H., Prevo A.J. Is cognitive functioning associated with subjective quality of life in young adults with spina bifida and hydrocephalus?. JRehabil Med 2010, 42:56-59.
25. Schoenmakers M.A., Uiterwaal C.S., Gulmans V.A., Gooskens R.H., Helders P.J. Determinants of functional independence and quality of life in children with spina bifida. Clin Rehabil 2005, 19:677-685.