Health related quality of life in patients with spina bifida: A prospective assessment before and after lower urinary tract reconstruction

Journal of Urology

Volumn 182, Issue 4 SUPPL., 2009, Pages 1984-1992

  MacNeily, A E ^a   Jafari, S ^a   Scott, H ^a   Dalgetty, A ^a   Afshar, K ^a  

^a UNIVERSITY OF BRITISH COLUMBIA   (Canada)

Author keywords

Meningomyelocele; Outcome assessment (health care); Quality of life; Urinary bladder; Urinary incontinence

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; FEMALE; HUMAN; MALE; PRESCHOOL CHILD; PROSPECTIVE STUDY; QUALITY OF LIFE; QUESTIONNAIRE; SPINAL DYSRAPHISM; URINE INCONTINENCE; UROLOGIC SURGERY;

ADOLESCENT; CHILD; CHILD, PRESCHOOL; FEMALE; HUMANS; MALE; PROSPECTIVE STUDIES; QUALITY OF LIFE; QUESTIONNAIRES; SPINAL DYSRAPHISM; URINARY INCONTINENCE; UROLOGIC SURGICAL PROCEDURES; YOUNG ADULT;

EID: 70350502324     PISSN: 00225347     EISSN: 15273792     Source Type: Journal    
DOI: 10.1016/j.juro.2009.02.060     Document Type: Conference Paper

References (18)

1. Heymen S: Psychological and cognitive variables affecting treatment outcomes for urinary and fecal incontinence. Gastroenterology, suppl., 2004; 126: S146.
2. Fialkow MF, Melville JL, Lentz GM et al: The functional and psychosocial impact of fecal incontinence on women with urinary incontinence. Am J Obstet Gynecol 2003; 189: 127.
3. Miner PB Jr: Economic and personal impact of fecal and urinary incontinence. Gastroenterology, suppl., 2004; 126: S8.
4. Parekh AD, Trusler LA, Pietsch JB et al: Prospective, longitudinal evaluation of health related quality of life in the pediatric spina bifida population undergoing reconstructive urological surgery. J Urol 2006; 176: 1878.
5. MacNeily AE, Morrel J and Secord S: Lower urinary tract reconstruction for spina bifida: does it improve health related quality of life? J Urol 2005; 174: 1637.
6. Parkin PC, Kirpalani HM, Rosenbaum PL et al: Development of a health-related quality of life instrument for use in children with spina bifida. Qual Life Res 1997; 6: 123.
7. Varni JW, Limbers CA and Burwinkle TM: Parent proxy-report of their children's health-related quality of life: an analysis of 13,878 parents'reliability and validity across age subgroups using the PedsQL™ 4.0 Generic Core Scales. Health Qual Life Outcomes 2007, 5: 2.
8. Sawin KJ, Brei TJ, Stevens S et al: The meaning of quality of life in adolescents with spina bifida and their parents. Cerebrospinal Fluid Res, suppl., 2006; 3: S36.
9. Fitzpatrick R, Davey C, Buxton MJ et al: Evaluating patient-based outcome measures for use in clinical trials. Health Technol Assess 1998; 2: 14.
10. A review of measures of quality of life for children with chronic illness. Arch Dis Child 2001; 84: 205.
11. Aaronson NK, Meyerowitz BE, Bard M et al: Quality of life research in oncology: past achievements and future priorities. Cancer 1991; 67: 839.
12. Ageing - Exploding the Myths. Ageing and Health Programme (AHE0). Geneva, Switzerland: WHO 1999; pp 1-21.
13. Lemelle JL, Guillemin F, Aubert D et al: Quality of life and continence in patients with spina bifida. Qual Life Res 2006; 15: 1481.
14. Lassmann J, Gonalez FG, Melchionni JB et al: Sexual function in adult patients with spina bifida and its impact on quality of life. J Urol 2007; 178: 1611.
15. Cadman D, Goldsmith C and Bashim P: Values, preferences, and decisions in the care of children with developmental disabilities. J Dev Behav Pediatr 1984; 5: 60.
16. Kirpalani HM, Parkin PC, Willan AR et al: Quality of life in spina bifida: importance of parental hope. Arch Dis Child 2000; 83: 293.
17. Assessing health status and quality of life instruments: attributes and review criteria. Scientific Advisory Committee of the Medical Outcomes Trust. Qual Life Res 2002; 11: 193.
18. Austin PC and Brunner LJ: Type 1 error inflation in the presence of a ceiling effect. Am Statist 2003; 57: 97.