Is cognitive functioning associated with subjective quality of life in young adults with Spina bifida and hydrocephalus?

Journal of Rehabilitation Medicine

Volumn 42, Issue 1, 2010, Pages 56-59

  Barf, Hans A ^a   Post, Marcel W M ^b   Verhoef, Marjolein ^b   Gooskens, Rob H J M ^b   Prevo, Arie J H ^b  

^a UNIVERSITY MEDICAL CENTER GRONINGEN   (Netherlands)

^b UNIVERSITY MEDICAL CENTER UTRECHT   (Netherlands)

Author keywords

Cognition disorders; Congenital hydrocephalus; Neural tube defects; Neuropsychological tests; Quality of life

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CLINICAL TRIAL; COGNITION; COGNITIVE DEFECT; CROSS-SECTIONAL STUDY; FEMALE; HUMAN; HYDROCEPHALUS; MALE; MULTICENTER STUDY; NEUROPSYCHOLOGICAL TEST; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; SPINAL DYSRAPHISM;

ADOLESCENT; COGNITION; COGNITION DISORDERS; CROSS-SECTIONAL STUDIES; FEMALE; HUMANS; HYDROCEPHALUS; MALE; NEUROPSYCHOLOGICAL TESTS; QUALITY OF LIFE; SPINAL DYSRAPHISM; YOUNG ADULT;

EID: 75649096733     PISSN: 16501977     EISSN: None     Source Type: Journal    
DOI: 10.2340/16501977-0481     Document Type: Article

References (35)

1. McDonnell GV, McCann JP. Issues of medical management in adults with spina bifida. Childs Nerv Syst 2000; 16: 222-227.
2. Hunt GM, Poulton A. Open spina bifida: a complete cohort reviewed 25 years after closure. Dev Med Child Neurol 1995; 37: 19-29.
3. Hunt GM, Oakeshott P. Outcome in people with open spina bifida at age 35: prospective community based cohort study. BMJ 2003; 326: 1365-1366.
4. Iddon JL, Morgan DJR, Loveday C, Sahakian BJ, Pickard JD. Neuropsychological profile of young adults with spina bifida with or without hydrocephalus. J Neurol Neurosurg Psychiatry 2004; 75: 1112-1118.
5. Appleton PL, Minchom PE, Ellis NC, Elliott CE, Boll V, Jones P. The self-concept of young people with spina bifida: a population- based study. Dev Med Child Neurol 1994; 36: 198-215.
6. Padua L, Rendeli C, Rabini A, Girardi E, Tonali P, Salvaggio E. Health-related quality of life and disability in young patients with spina bifida. Arch Phys Med Rehabil 2002; 83: 1384-1388.
7. Sawin KJ, Brei TJ, Buran CF, Fastenau PS. Factors associated with quality of life in adolescents with spina bifida. J Holist Nurs 2002; 20: 279-304.
8. Schoenmakers MA, Uiterwaal CS, Gulmans VA, Gooskens RH, Helders PJ. Determinants of functional independence and quality of life in children with spina bifida. Clin Rehabil 2005; 19: 677-685.
9. Lemelle JL, Guillemin F, Aubert D, Guys JM, Lottmann H, Lortat- Jacob S, et al. Quality of life and continence in patients with spina bifida. Qual Life Res 2006; 15: 1481-1492.
10. MacNeilyAE, Morrell J, Secord S. Lower urinary tract reconstruction for spina bifida - does it improve health related quality of life? J Urol 2005; 174: 1637-1643.
11. Oddson BE, Clancy CA, McGrath PJ. The role of pain in reduced quality of life and depressive symptomology in children with spina bifida. Clin J Pain 2006; 22: 784-789.
12. Kirpalani HM, Parkin PC, Willan AR, Fehlings DL, Rosenbaum PL, King D, et al. Quality of life in spina bifida: importance of parental hope. Arch Dis Child 2000; 83: 293-297.
13. Wallander JL, Schmitt M, Koot HM. Quality of life measurement in children and adolescents: issues, instruments, and applications. J Clin Psychol 2001; 57: 571-585.
14. Padua L, Rendeli C, Ausili E, Aprile I, Caliandro P, Tonali P, et al. Relationship between the clinical neurophysiologic pattern, disability, and quality of life in adolescents with spina bifida. J Child Neurol 2004; 19: 952-957.
15. Parkin PC, Kirpalani HM, Rosenbaum PL, Fehlings DL, Van Nie A, Willan AR, et al. Development of a health-related quality of life instrument for use in children with spina bifida. Qual Life Res 1997; 6: 123-132.
16. Andren E, Grimby G. Dependence and perceived difficulty in activities of daily living in adults with cerebral palsy and spina bifida. Disabil Rehabil 2000; 22: 299-307.
17. Barf HA, Post MW, Verhoef M, Jennekens-Schinkel A, Gooskens RH, Prevo AJ. Life satisfaction of young adults with spina bifida. Dev Med Child Neurol 2007; 49: 458-463.
18. Verhoef M, Barf HA, Post MW, van Asbeck FW, Gooskens RH, Prevo AJ. Secondary impairments in young adults with spina bifida. Dev Med Child Neurol 2004; 46: 420-427.
19. Post M, Noreau L. Quality of life after spinal cord injury. J Neurol Phys Ther 2005; 29: 139-146.
20. Hetherington R, Dennis M, Barnes M, Drake J, Gentiii F. Functional outcome in young adults with spina bifida and hydrocephalus. Childs Nerv Syst 2006; 22: 117-124.
21. Heffelfinger AK, Koop JI, Fastenau PS, Brej TJ, Conant L, Katzenstein J, et al. The relationship of neuropsychological functioning to adaptation outcome in adolescents with spina bifida. J Int Neurpsychol Soc 2008; 14: 793-804.
22. Barf HA, Verhoef M, Jennekens-Schinkel A, Post MW, Gooskens RH, Prevo AJ. Cognitive status of young adults with spina bifida. Dev Med Child Neurol 2003; 45: 813-820.
23. Hommet C, Billard C, Gillet P, Barthez MA, Lourmiere JM, Santini JJ, et al. Neuropsychologic and adaptive functioning in adolescents and young adults shunted for congenital hydrocephalus. J Child Neurol 1999; 14: 144-150.
24. Bier JA-B, Morales Y, Liebling J, Geddes L, Kim E. Medical and social factors associated with cognitive outcome in individuals with myelomeningocele. Dev Med Child Neurol 1997; 39: 263-266.
25. Roebroeck ME, Hempenius L, van Baalen B, Hendriksen JG, van den Berg-Emons HJ, Stam HJ. Cognitive functioning of adolescents and young adults with meningomyelocele and level of everyday physical activity. Disabil Rehabil 2006; 28: 1237-1242.
26. Verhoef M, Barf HA, Post MW, van Asbeck FW, Gooskens RH, Prevo AJ. Functional independence among young adults with spina bifida, in relation to hydrocephalus and level of lesion. Dev Med Child Neurol 2006; 48: 114-119.
27. Raven JC. Standard progressive matrices. Oxford: Oxford Psychologist Press; 1996.
28. Wechsler D. Wechsler memory scale. San Antonio, TX: The Psychological Corporation; 1974.
29. Nelson HE. A modified card sorting test sensitive to frontal lobe defects. Cortex 1976; 12:313-324.
30. Reitan RM, Wolfson D. Trail Making Test. In: Grant I, Adams KM, editors. Neuropsychological assessment of neuropsychiatric disorders. 2nd edn. Oxford: Oxford University Press; 1996, p. 3-42.
31. Jennekens-Schinkel A, Lanser JB, van der Velde EA, Sanders EA. Performances of multiple sclerosis patients in tasks requiring language and visuoconstruction. Assessment of outpatients in quiescent disease stages. J Neurol Sei 1990; 95: 89-103.
32. de Boer AGEM, van Lanschot JJB, Stalmeier PFM, van Sandick JW, Hulscher JBF, de Haes JCJM, et al. Is a single-item visual analogue scale as valid, reliable and responsive as multi-item scales in measuring quality of life? Qual Life Res 2004; 13: 311-320.
33. Verhoef M, Post MW, Barf HA, van Asbeck FW, Gooskens RH, Prevo AJ. Perceived health in young adults with spina bifida. Dev Med Child Neurol 2007; 49: 192-197.
34. van der Sluis S, de Jong PF, van der Leij A. Inhibition and shifting in children with learning deficits in arithmetic and reading. J Exp Child Psychol 2004; 87: 239-266.
35. Tarazi RA, Mahone EM, Zabel TA. Self-care independence in children with neurological disorders: An interactional model of adaptive demands and executive dysfunction. Rehabil Psychol 2007; 52: 196-205.