Perceived Stereotyping and Seeking Care for Chronic Vulvar Pain

Pain Medicine (United States)

Volumn 14, Issue 10, 2013, Pages 1461-1467

  Nguyen, Ruby H N ^a   Turner, Rachael M ^a   Rydell, Sarah A ^a   Maclehose, Richard F ^a   Harlow, Bernard L ^a  

^a UNIVERSITY OF MINNESOTA   (United States)

Author keywords

Chronic Pain; Seeking Care; Stereotype; Stigma; Vulvodynia

Indexed keywords

ADULT; ARTICLE; CHRONIC PAIN; COMMUNITY ASSESSMENT; CROSS-SECTIONAL STUDY; DOSE RESPONSE; FEMALE; HELP SEEKING BEHAVIOR; HUMAN; MAJOR CLINICAL STUDY; MEDICAL CARE; MEDICAL HISTORY; OUTCOME ASSESSMENT; PERCEPTION; PHYSICIAN; RISK FACTOR; SEXUAL INTERCOURSE; SOCIAL PSYCHOLOGY; UNITED STATES; VAGINAL BURNING SENSATION; VULVODYNIA;

CHRONIC PAIN; SEEKING CARE; STEREOTYPE; STIGMA; VULVODYNIA;

ADOLESCENT; ADULT; CHRONIC PAIN; CROSS-SECTIONAL STUDIES; FEMALE; HUMANS; STEREOTYPING; VULVODYNIA; YOUNG ADULT;

EID: 84885843812     PISSN: 15262375     EISSN: 15264637     Source Type: Journal    
DOI: 10.1111/pme.12151     Document Type: Article

References (35)

1. Harlow BL, Stewart EG. A population-based assessment of chronic unexplained vulvar pain: Have we underestimated the prevalence of vulvodynia? J Am Med Womens Assoc 2003;58:82-88.
2. Arnold LD, Bachmann GA, Rosen R, Rhoads GG. Assessment of vulvodynia symptoms in a sample of US women: A prevalence survey with a nested case control study. Am J Obstet Gynecol 2007;196:128 e1-1286.
3. Bachmann GA, Rosen R, Pinn VW, etal. Vulvodynia: A state-of-the-art consensus on definitions, diagnosis and management. J Reprod Med 2006;51:447-456.
4. Reed BD, Harlow SD, Sen A, etal. Prevalence and demographic characteristics of vulvodynia in a population-based sample. Am J Obstet Gynecol 2012;206:170 e1-1709.
5. Arnold LD, Bachmann GA, Rosen R, Kelly S, Rhoads GG. Vulvodynia: Characteristics and associations with comorbidities and quality of life. Obstet Gynecol 2006;107:617-624.
6. Rodriguez MA, Afari N, Buchwald DS. Evidence for overlap between urological and nonurological unexplained clinical conditions. J Urol 2009;182:2123-2131.
7. Reed BD, Harlow SD, Sen A, etal. Relationship between vulvodynia and chronic comorbid pain conditions. Obstet Gynecol 2012;120:145-151.
8. Nguyen RH, Ecklund AM, Maclehose RF, Veasley C, Harlow BL. Co-morbid pain conditions and feelings of invalidation and isolation among women with vulvodynia. Psychol Health Med 2012;17:589-598.
9. Nguyen RH, MacLehose RF, Veasley C, etal. Comfort in discussing vulvar pain in social relationships among women with vulvodynia. J Reprod Med 2012;57:109-114.
10. Reed BD, Haefner HK, Punch MR, etal. Psychosocial and sexual functioning in women with vulvodynia and chronic pelvic pain. A comparative evaluation. J Reprod Med 2000;45:624-632.
11. Jelovsek JE, Walters MD, Barber MD. Psychosocial impact of chronic vulvovagina conditions. J Reprod Med 2008;53:75-82.
12. Ayling K, Ussher JM. "If sex hurts, am I still a woman?" the subjective experience of vulvodynia in hetero-sexual women. Arch Sex Behav 2008;37:294-304.
13. Xie Y, Shi L, Xiong X, etal. Economic burden and quality of life of vulvodynia in the United States. Curr Med Res Opin 2012;28:601-608.
14. Reed BD, Haefner HK, Cantor L. Vulvar dysesthesia (vulvodynia). A follow-up study. J Reprod Med 2003;48:409-416.
15. Nguyen RH, Stewart EG, Harlow BL. A population-based study of pregnancy and delivery characteristics among women with vulvodynia. Pain Ther 2012;1:2.
16. Clare CA, Yeh J. Vulvodynia in adolescence: Childhood vulvar pain syndromes. J Pediatr Adolesc Gynecol 2011;24:110-115.
17. Reed BD, Cantor LE. Vulvodynia in preadolescent girls. J Low Genit Tract Dis 2008;12:257-261.
18. Reed BD, Haefner HK, Edwards L. A survey on diagnosis and treatment of vulvodynia among vulvodynia researchers and members of the International Society for the Study of Vulvovaginal Disease. J Reprod Med 2008;53:921-929.
19. Gardella B, Porru D, Nappi RE, etal. Interstitial cystitis is associated with vulvodynia and sexual dysfunction-A case-control study. J Sex Med 2011;8:1726-1734.
20. Smith KB, Pukall CF. A systematic review of relationship adjustment and sexual satisfaction among women with provoked vestibulodynia. J Sex Res 2011;48:166-191.
21. Farajun Y, Zarfati D, Abramov L, Livoff A, Bornstein J. Enoxaparin treatment for vulvodynia: A randomized controlled trial. Obstet Gynecol 2012;120:565-572.
22. Brotto LA, Sadownik L, Thomson S. Impact of educational seminars on women with provoked vestibulodynia. J Obstet Gynaecol Can 2010;32:132-138.
23. Sadownik LA, Seal BN, Brotto LA. Provoked vestibulodynia-women's experience of participating in a multidisciplinary vulvodynia program. J Sex Med 2012;9:1086-1093.
24. Tribo MJ, Andion O, Ros S, etal. Clinical characteristics and psychopathological profile of patients with vulvodynia: An observational and descriptive study. Dermatology 2008;216:24-30.
25. Petersen CD, Giraldi A, Lundvall L, Kristensen E. Botulinum toxin type A-A novel treatment for provoked vestibulodynia? Results from a randomized, placebo controlled, double blinded study. J Sex Med 2009;6:2523-2537.
26. Foster DC, Kotok MB, Huang LS, etal. Oral desipramine and topical lidocaine for vulvodynia: A randomized controlled trial. Obstet Gynecol 2010;116:583-593.
27. Andrews JC. Vulvodynia interventions-Systematic review and evidence grading. Obstet Gynecol Surv 2011;66:299-315.
28. Nguyen RH. Sexual medicine: When good isn't good enough-Treatment for vulvodynia. Nat Rev Urol 2012;9:482-483.
29. Brown CS, Wan J, Bachmann G, Rosen R. Self-management, amitriptyline, and amitripyline plus triamcinolone in the management of vulvodynia. J Womens Health (Larchmt) 2009;18:163-169.
30. Cohen M, Quintner J, Buchanan D, Nielsen M, Guy L. Stigmatization of patients with chronic pain: The extinction of empathy. Pain Med 2011;12:1637-1643.
31. Marbach JJ, Lennon MC, Link BG, Dohrenwend BP. Losing face: Sources of stigma as perceived by chronic facial pain patients. J Behav Med 1990;13:583-604.
32. Drossman DA, Chang L, Schneck S, etal. A focus group assessment of patient perspectives on irritable bowel syndrome and illness severity. Dig Dis Sci 2009;54:1532-1541.
33. Harlow BL, Vazquez G, MacLehose RF, etal. Self-reported vulvar pain characteristics and their association with clinically confirmed vestibulodynia. J Womens Health (Larchmt) 2009;18:1333-1340.
34. Reed P. Chronic Pain Stigma: Development of the Chronic Pain Stigma Scale. San Francisco, CA: Alliant International University; 2006.
35. Reed BD, Haefner HK, Harlow SD, Gorenflo DW, Sen A. Reliability and validity of self-reported symptoms for predicting vulvodynia. Obstet Gynecol 2006;108:906-913.