Comfort in discussing vulvar pain in social relationships among women with vulvodynia

Journal of Reproductive Medicine

Volumn 57, Issue 3-4, 2012, Pages 106-114

  Nguyen, Ruby H N ^a,b   MacLehose, Richard F ^a,b   Veasley, Christin ^a,b   Turner, Rachael M ^a,b   Harlow, Bernard L ^a,b   Horvath, Keith J ^a,b  

^a UNIVERSITY OF MINNESOTA   (United States)

^b National Vulvodynia Association   (United States)

Author keywords

Chronic; Disclosure; Pain; Relationship; Social; Stigma; Vulvodynia

Indexed keywords

ADULT; AGE DISTRIBUTION; ARTICLE; DEMOGRAPHY; DISEASE SEVERITY; FAMILY HISTORY; FEMALE; FRIEND; HUMAN; MAJOR CLINICAL STUDY; MARRIAGE; MOTHER; PRIORITY JOURNAL; SELF REPORT; SOCIAL INTERACTION; VULVODYNIA; HOSPITALIZATION; MIDDLE AGED; PSYCHOLOGICAL ASPECT; SEXUALITY; SOCIAL SUPPORT;

ADULT; FEMALE; FRIENDS; HUMANS; MIDDLE AGED; SEVERITY OF ILLNESS INDEX; SEXUAL PARTNERS; SOCIAL SUPPORT; VULVODYNIA; YOUNG ADULT;

EID: 84869227454     PISSN: 00247758     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (31)

1. Harlow BL, Stewart EG: A population-based assessment of chronic unexplained vulvar pain: Have we underestimated the prevalence of vulvodynia? J Am Med Womens Assoc 2003;58:82-88
2. Bachmann GA, Rosen R, Pinn VW, et al: Vulvodynia: A state-of-the-art consensus on definitions, diagnosis and management. J Reprod Med 2006;51:447-456
3. Arnold LD, Bachmann GA, Rosen R, et al: Assessment of vulvodynia symptoms in a sample of US women: A prevalence survey with a nested case control study. Am J Obstet Gynecol 2007;196:128, e1-6
4. Reed BD, Haefner HK, Sen A, et al: Vulvodynia incidence and remission rates among adult women: A 2-year followup study. Obstet Gynecol 2008;112(2 Pt 1):231-237
5. Sutton JT, Bachmann GA, Arnold LD, et al: Assessment of vulvodynia symptoms in a sample of U.S. women: A followup national incidence survey. J Womens Health (Larchmt) 2008;17:1285-1292
6. Arnold LD, Bachmann GA, Rosen R, et al: Vulvodynia: Characteristics and associations with comorbidities and quality of life. Obstet Gynecol 2006;107:617-624
7. Ponte M, Klemperer E, Sahay A, et al: Effects of vulvodynia on quality of life. J Am Acad Dermatol 2009;60:70-76
8. Jason LA, Roesner N, Porter N, et al: Provision of social support to individuals with chronic fatigue syndrome. J Clin Psychol 2010;66:249-258
9. Lackner JM, Brasel AM, Quigley BM, et al: The ties that bind: Perceived social support, stress, and IBS in severely affected patients. Neurogastroenterol Motil 2010;22:893-900
10. Phillips LJ, Stuifbergen AK: The relevance of depressive symptoms and social support to disability in women with multiple sclerosis or fibromyalgia. Int J Rehabil Res 2010;33: 142-150
11. Rothrock NE, Lutgendorf SK, Kreder KJ: Coping strategies in patients with interstitial cystitis: Relationships with quality of life and depression. J Urol 2003;169:233-236
12. Nickel JC, Tripp DA, Pontari M, et al: Psychosocial phenotyping in women with interstitial cystitis/painful bladder syndrome: A case control study. J Urol 2010;183:167-172
13. van Koulil S, van Lankveld W, Kraaimaat FW, et al: Risk factors for longer term psychological distress in wellfunctioning fibromyalgia patients: A prospective study into prognostic factors. Patient Educ Couns 2010;80:126-129
14. Wade M: Support group helps women with vulvodynia. Nurs N Z 2000;6:17-19
15. Spiegelman D, Hertzmark E: Easy SAS calculations for risk or prevalence ratios and differences. Am J Epidemiol 2005; 162:199-200
16. Slade P, O'Neill C, Simpson AJ, et al: The relationship between perceived stigma, disclosure patterns, support and distress in new attendees at an infertility clinic. Hum Reprod 2007;22:2309-2317
17. Field D, Minkler M: Continuity and change in social support between young-old and old-old or very-old age. J Gerontol 1988;43:P100-106
18. Levitt MJ, Coffman S, Guacci-Franco N, et al: Social support and relationship change after childbirth: An expectancy model. Health Care Women Int 1993;14:503-512
19. Joachim G, Acorn S: Stigma of visible and invisible chronic conditions. J Adv Nurs 2000;32:243-248
20. Smith R, Rossetto K, Peterson BL: A meta-analysis of disclosure of one's HIV-positive status, stigma and social support. AIDS Care 2008;20:1266-1275
21. Kinsler JJ, Wong MD, Sayles JN, et al: The effect of perceived stigma from a health care provider on access to care among a low-income HIV-positive population. AIDS Patient Care STDS 2007;21:584-592
22. U.S. Department of Health and Human Services: Mental Health: A Report of the Surgeon General. Rockville, MD, 1999, pp 453-458
23. Sirey JA, Bruce ML, Alexopoulos GS, et al: Stigma as a barrier to recovery: Perceived stigma and patient-rated severity of illness as predictors of antidepressant drug adherence. Psychiatr Serv 2001;52:1615-1620
24. Sirey JA, Bruce ML, Alexopoulos GS, et al: Perceived stigma as a predictor of treatment discontinuation in young and older outpatients with depression. Am J Psychiatry 2001;158: 479-481
25. Alonso J, Buron A, Rojas-Farreras S, et al: Perceived stigma among individuals with common mental disorders. J Affect Disord 2009;118:180-186
26. Jones MP, Keefer L, Bratten J, et al: Development and initial validation of a measure of perceived stigma in irritable bowel syndrome. Psychol Health Med 2009;14:367-374
27. Looper KJ, Kirmayer LJ: Perceived stigma in functional somatic syndromes and comparable medical conditions. J Psychosom Res 2004;57:373-378
28. Taft TH, Keefer L, Leonhard C, et al: Impact of perceived stigma on inflammatory bowel disease patient outcomes. Inflamm Bowel Dis 2009;15:1224-1232
29. Newman PA, Daley A, Halpenny R, et al: Community heroes or "high-risk" pariahs? Reasons for declining to enroll in an HIV vaccine trial. Vaccine 2008;26:1091-1097
30. Newman PA, Duan N, Roberts KJ, et al: HIV vaccine trial participation among ethnic minority communities: Barriers, motivators, and implications for recruitment. J Acquir Immune Defic Syndr 2006;41:210-217
31. Zuniga ML, Blanco E, Martinez P, et al: Perceptions of barriers and facilitators to participation in clinical trials in HIVpositive Latinas: A pilot study. J Womens Health (Larchmt) 2007;16:1322-1330