Psychological perspectives on pediatric eosinophilic esophagitis

Eosinophilic Esophagitis

Volumn , Issue , 2012, Pages 375-394

  Klinnert, Mary ^a,b  

^a DEPARTMENT OF MEDICINE   (United States)

^b UNIVERSITY OF COLORADO SCHOOL OF MEDICINE   (United States)

Author keywords

Adolescents; Children; Chronic illness; Eosinophilic esophagitis; Psychosocial functions

Indexed keywords

EID: 84885294785     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.1007/978-1-60761-515-6_29     Document Type: Chapter

References (60)

1. Furuta GT, Liacouras CA, Collins MH, et al. Eosinophilic esophagitis in children and adults: a systematic review and consensus recommendations for diagnosis and treatment. Gastroenterology. 2007;133(4):1342-63.
2. Liacouras CA, Spergel JM, Ruchelli E, et al. Eosinophilic esophagitis: a 10-year experience in 381 children. Clin Gastroenterol Hepatol. 2005;3:1198-206.
3. Aceves SS, Bastian JF, Newbury RO, Dohil R. Oral viscous budesonide: a potential new therapy of eosinophilic esophagitis in children. Am J Gastroenterol. 2007;102(10):2271-9.
4. KonikoffMR, Noel RJ, Blanchard C, et al. A randomized, double blind, placebo-controlled trial of fluticasone propionate for pediatric eosinophilic esophagitis. Gastroenterology. 2006;131(5):1381-91.
5. Atkins D, Kramer R, Capocelli K, Lovell M, Furuta GT. Eosinophilic esophagitis: the newest esophageal inflammatory disease. Nat Rev Gastroenterol Hepatol. 2009;6:267-78.
6. Franciosi JP, Liacouras CA. Eosinophilic esophagitis. In: Furuta GT, Atkins D, Alam R (eds). Immunology and Allergy Clinics of North America: Eosinophilic Gastrointestinal Diseases. Volume 29(1). Philadelphia: W.B. Saunders Company, 2009.
7. Klinnert MD. Psychological impact of eosinophilic esophagitis on children and families. In: Furuta GT, Atkins D, Alam R (eds). Immunology and Allergy Clinics of North America: Eosinophilic Gastrointestinal Diseases. Volume 29(1). Philadelphia: W. B. Saunders Company, 2009.
8. Spergel JM, Brown-Whitehorn TF, Beausoleil JL, et al. 14 years of eosinophilic esophagitis: clinical features and prognosis. J Pediatr Gastroenterol Nutr. 2009;48:30-6.
9. Jyonouchi S, Brown-Whitehorn TA, Spergel JM. Association of eosinophilic gastrointestinal disorders with other atopic disorders. In: Furuta GT, Atkins D, Alam R (eds). Immunology and Allergy Clinics of North America: Eosinophilic Gastrointestinal Diseases. Volume 29(1). Philadelphia: W. B. Saunders Company, 2009.
10. Pentiuk SP, Miller CK, Kaul A. Eosinophilic esophagitis in infants and toddlers. Dysphagia. 2007;22:44-8.
11. Putnam PE. Evaluation of the child who has eosinophilic esophagitis. In: Furuta GT, Atkins D, Alam R (eds). Immunology and Allergy Clinics of North America: Eosinophilic Gastrointestinal Diseases. Volume 29(1). Philadelphia: W. B. Saunders Company, 2009.
12. Flood EM, Beusterien KM, Amonkar MM, et al. Patient and caregiver perspective on pediatric eosinophilic esophagitis and newly developed symptom questionnaires. Curr Med Res Opin. 2008;24(12):3369-81.
13. Aceves SS, Newbury RO, Dohil MA, Bastian JF, Dohil R. A symptom scoring tool for identifying pediatric patients with eosinophilic esophagitis and correlating symptoms with inflammation. Ann Allergy Asthma Immunol. 2009;103:401-6.
14. Pentiuk S, Putnam PE, Collins MH, Rothenberg ME. Dissociation between symptoms and histological severity in pediatric eosinophilic esophagitis. J Pediatr Gastroenterol Nutr. 2009;48:152-60.
15. Stoltenberg AM, Melin-Aldana H, Li B, Kagalwalla AF, Sentongo TA, Nelson SP. Gastroesophageal reflux symptoms and quality of life do not correlate with esophageal histo-pathology in children with eosinophilic esophagitis. J Pediatr Gastroenterol Nutr. 2004;39:S243-4.
16. Aceves SS, Furuta GT, Spechler SJ. Integrated approach to treatment of children and adults with eosinophilic esophagitis. In: Furuta GT, Lightdale CJ (eds). Gastrointestinal Endoscopy Clinics of North America: Eosinophilic Esophagitis. Volume 18(1). Philadelphia: W.B. Saunders Company, 2008.
17. Maity S, Thomas AG. Quality of life in paediatric gastrointestinal and liver disease: a systematic review. J Pediatr Gastroenterol Nutr. 2007;44(5):540-54.
18. Landgraf JM, Abetz L, Ware JE. Child health questionnaire (CHQ): a user's manual. Boston, MA: The Health Institute, New England Medical Center; 1996.
19. Varni JW, Limbers CA, Burwinkle TM. Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL 4.0 Generic Core Scales. Health Qual Life Outcomes. 2007;5:43.
20. DunnGalvin A, de BlokFlokstra BMJ, Burks AW, Dubois AEJ, Hourihane JOB. Food allergy QoL questionnaire for children aged 0-12 years: content, construct, and cross-cultural validity. Clin Exp Allergy. 2008;38:977-86.
21. Juniper EF, Guyatt GH, Epstein RS, Ferrie PJ, Jaeschke R, Hiller TK. Evaluation of impairment of health related quality of life in asthma: development of a questionnaire for use in clinical trials. Thorax. 1992;47:76-83.
22. Kim J, Keininger DL, Becker S, Crawley JA. Simultaneous development of the pediatric GERD caregiver impact questionnaire (PGCIQ) in American English and American Spanish. Health Qual Life Outcomes. 2005;3:5.
23. Janse AJ, Sinnema G, Uiterwall CS, Kimpen JL, Gemke RJ. Quality of life in chronic illness: children, parents and paediatricians have different, but stable perceptions. Acta Paediatr. 2008;97(8):1118-24.
24. King R, Knibb R, Hourihane JB. Impact of peanut allergy on quality of life, stress and anxiety in the family. Allergy. 2009;64:461-8.
25. Price M, Bratton D, Klinnert M. Determinants of caregiver report of asthma quality of life. Ann Allergy Asthma Immunol. 2002;89:572-7.
26. Boruk M, Lee P, Faynzilbert Y, Rosenfeld R. Caregiver well-being and child quality of life. Otolaryngol Head Neck Surg. 2007;136:159-68.
27. Stein R, Riessman C. The development of an impact-on-family scale: preliminary findings. Med Care. 1980;18:465-72.
28. Hatzmann J, Heymans H, Ferrer-i-Carbonell A, van Praag B, Grootenhuis M. Hidden consequences of success in pediatrics: parental health-related quality of life-results from the care project. Pediatrics. 2008;122:e1030-8.
29. Cohen B, Noone S, Munoz-Furlong A, Sicherer S. Development of a questionnaire to measure quality of life in families with a child with food allergy. J Allergy Clin Immunol. 2004;114(6):1159-63.
30. Greer A, Gulotta C, Masler E, Laud R. Caregiver stress and outcomes of children with pediatric feeding disorders treated in an intensive interdisciplinary program. J Pediatr Psychol. 2008;33(6):612-20.
31. Wong C, Akobeng A, Miller V. Quality of life of parents of children on home parenteral nutrition. Gut. 2000;46:294-5.
32. Heyman M, Harmatz P, Acree M, et al. Economic and psychologic costs for maternal caregiv-ers of gastrostomy-dependent children. J Pediatr. 2004;145:511-6.
33. Hysing M, Elgen I, Gillberg C, Lundervold AJ. Emotional and behavioural problems in subgroups of children with chronic illness: results from a large-scale population study. Child Care Health Dev. 2009;35(4):527-33.
34. Lavigne JV, Faier-Routman J. Psychological adjustment to pediatric physical disorders: a meta-analytic review. J Pediatr Psychol. 1992;17(2):133-57.
35. McQuaid EL, Kopel SJ, Nassau JH. Behavioral adjustment in children with asthma: a meta-analysis. J Dev Behav Pediatr. 2001;22(6):430-9.
36. Reinfjell T, Hjemdal O, Aune T, Vikan A, Diseth T. The pediatric quality of life inventory (PedsQL) 4.0 as an assessment measure for depressive symptoms: a correlational study with young adolescents. Nord J Psychiatry. 2008;62(4):279-86.
37. LeBovidge JS, Strauch H, Kalish LA, Schneider LC. Assessment of psychological distress among children and adolescents with food allergy. J Allergy Clin Immunol. 2009;124:1282-8.
38. Van der Zaag-Loonen HJ, Grootenhuis MA, Last BF, Derkx HHF. Coping strategies and quality of life of adolescents with inflammatory bowel disease. Qual Life Res. 2004;13:1011-9.
39. Staab D, Wenninger K, Gebert N, et al. Quality of life in patients with cystic fibrosis and their parents: what is important besides disease severity? Thorax. 1998;53:727-31.
40. Klinnert MD, McQuaid EL, McCormick D, AdinoffAD, Bryant NE. A multimethod assessment of behavioral and emotional adjustment in children with asthma. J Pediatr Psychol. 2000;25:35-46.
41. Kazak AE, Rourke MT, Navsaria N. Families and other systems in pediatric psychology. In: Roberts MC, Steele RG, editors. Handbook of pediatric psychology. 4th ed. New York: Guilford; 2009. p. 656-71.
42. Rommel N, De Meyer A, Feenstra L, Veereman-Wauters G. The complexity of feeding problems in 700 infants and young children presenting to a tertiary care institution. J Pediatr Gastroenterol Nutr. 2003;37:75-84.
43. Haas AM, Maune NC. Clinical presentation of feeding dysfunction in children with eosino-philic gastrointestinal disease. In: Furuta GT, Atkins D, Alam R (eds). Immunology and Allergy Clinics of North America: Eosinophilic Gastrointestinal Diseases. Volume 29(1). Philadelphia: W. B. Saunders Company, 2009.
44. Assa'ad AH, Putnam PE, Collins MH, et al. Pediatric patients with eosinophilic esophagitis: an 8-year follow-up. J Allergy Clin Immunol. 2007;119(3):731-8.
45. Nelson S, Chen E, Synair G, et al. One-year follow-up of symptoms of gastroesophageal reflux during infancy. Pediatrics. 1998;106(6):1-4.
46. Powers S, Byars K, Mitchell M, Patton S, Standiford D, Dolan L. Parent report of mealtime behavior and parenting stress in young children with type 1 diabetes and in healthy control subjects. Diabetes Care. 2002;25(2):313-8.
47. Silverman A, Tarbell S. Feeding and vomiting problems in pediatric populations. In: Roberts MC, Steele RG, editors. Handbook of pediatric psychology. 4th ed. New York: Guilford; 2009. p. 429-45.
48. Markowitz JE, Spergel JM, Ruchelli E, Liacouras CA. Elemental diet is an effective treatment for eosinophilic esophagitis in children and adolescents. Am J Gastroenterol. 2003;98(4):777-82.
49. Goldberg E, Kaye R, Yaworski J, Liacouras C. Gastrostomy tubes: facts, fallacies, fistulas, and false tracts. Gastroenterol Nurs. 2005;28(6):485-94.
50. Byars K, Burklow K, Gerguson K, et al. A multicomponent behavioral program for oral aversion in children dependent on gastrostomy feedings. J Pediatr Gastroenterol Nutr. 2003;34:473-80.
51. Huertas-Ceballos A, Logan S, Bennet C, Macarthur C. Psychosocial Interventions for recurrent abdominal pain (RAP) and irritable bowel syndrome (IBS) in childhood. Cochrane Database Syst Rev. 2008.
52. Walker L, Jones D. Psychosocial factors: impact on symptom severity and outcomes of pediatric functional gastrointestinal disorders. J Pediatr Gastroenterol Nutr. 2005;41:S51-2.
53. Puzanovova M, Rudzinski E, Shirkey K, Cherry R, Acra S, Walker L. Sex, psychosocial factors, and reported symptoms influence referral for esophagogastroduodenoscopy and biopsy results in children with chronic abdominal pain. J Pediatr Gastroenterol Nutr. 2008;47:54-60.
54. Olsson C, Lyon P, Hornell A, Ivarsson A, Sydner YM. Food that makes you different: the stigma experienced by adolescents with celiac disease. Qual Health Res. 2009;19(7):976-84.
55. DunnGalvin A, Gaffney A, Hourihane JB. Developmental pathways in food allergy: a new theoretical framework. Allergy. 2009;64(4):560-8.
56. Sampson MA, Munoz-Furlong A, Sicherer SH. Risk-taking and coping strategies of adolescents and young adults with food allergy. J Allergy Clin Immunol. 2006;117(6):1440-5.
57. Cadman D, Rosenbaum P, Boyle M, Offord D. Children with chronic illness: family and parent demographic characteristics and psychosocial adjustment. Pediatrics. 1991;87:884-9.
58. Wallander J. Special section editorial: current research on pediatric chronic illness. J Pediatr Psychol. 1993;18:7-10.
59. Beebe A, Gelfand E, Bender B. A randomized trial to test the effectiveness of art therapy for children with asthma. J Allergy Clin Immunol. 2010;126(2):263-6.
60. Wallander J, Varni J. Effects of pediatric chronic physical disorders on child and family adjustment. J Child Psychol Psychiatry. 1998;39(1):29-46.