E-health innovations, collaboration, and healthcare disparities: Developing criteria for culturally competent evaluation

Families, Systems and Health

Volumn 31, Issue 3, 2013, Pages 248-263

  Bacigalupe, Gonzalo ^a,b   Askari, Sabrina F ^c  

^a UNIVERSITY OF MASSACHUSETTS BOSTON   (United States)

^b UNIVERSITY OF DEUSTO   (Spain)

^c Home for Little Wanderers   (United States)

Author keywords

Collaborative health; E health; Health care disparities; Health disparities; Information communication technologies; Social media

Indexed keywords

ARTICLE; CLASSIFICATION; COOPERATION; CULTURAL COMPETENCE; HEALTH CARE DISPARITY; HEALTH DISPARITY; HUMAN; MASS COMMUNICATION; MEDICAL INFORMATICS; PUBLIC HEALTH; SOCIAL MEDIA; UNITED STATES;

COOPERATIVE BEHAVIOR; CULTURAL COMPETENCY; DIFFUSION OF INNOVATION; HEALTH STATUS DISPARITIES; HEALTHCARE DISPARITIES; HUMANS; MEDICAL INFORMATICS; PUBLIC HEALTH; SOCIAL MEDIA; UNITED STATES;

EID: 84884690092     PISSN: 10917527     EISSN: None     Source Type: Journal    
DOI: 10.1037/a0033386     Document Type: Article

References (58)

1. Agency for Healthcare Research and Quality. (2004). National healthcare disparities report. Rockville, MD: U.S. Dept. of Health and Human Services, Agency for Healthcare Research and Quality.
2. Agency for Healthcare Research and Quality. (2010). National healthcare disparities report 2010 AHRQ publication; no. 11-0005 Rockville, MD: U.S. Dept. of Health and Human Services, Agency for Healthcare Research and Quality.
3. Bacigalupe, G. (2011). Is there a role for social technologies in collaborative healthcare? Families, Systems, & Health, 29, 1-14. doi:10.1037/ a0022093
4. Barak, A., Boniel-Nissim, M., & Suler, J. (2008). Fostering empowerment in online support groups. Computers in Human Behavior, 24, 1867-1883. doi:10.1016/j.chb.2008.02.00
5. Berwick, D. M. (2003). Disseminating innovations in health care. Journal of the American Medical Association, 289(15), 1969-1975. doi:10.1001/jama .289.15.1969
6. Blount, A. (1998). Integrated primary care: The future of medical and mental health collaboration (1st ed.). New York, NY: Norton.
7. Bodie, G. D., & Dutta, M. J. (2008). Understanding health literacy for strategic health marketing:EHealth literacy, health disparities, and the digital divide. Health Marketing Quarterly, 25, 175-203. doi:10.1080/07359680802126301
8. Boyer, C., Baujard, V., & Geissbuhler, A. (2011). Evolution of health web certification through the HONcode experience. Studies in Health Technology and Informatics, 169, 53-57.
9. Brennan, N., Mattick, K., & Ellis, T. (2011). The Map of Medicine: A review of evidence for its impact on healthcare. Health Information & Libraries Journal, 28, 93-100. doi:10.1111/j.1471-1842.2011.00940.x
10. Chu, A., Huber, J., Mastel-Smith, B., & Cesario, S. (2009). Partnering with Seniors for Better Health: Computer use and Internet health information retrieval among older adults in a low socioeconomic community. Journal of the Medical Library Association: JMLA, 97, 12-20. doi:10.3163/1536-5050 .97.1.003
11. Edwards, N. (2002). Clinical networks. British Medical Journal, 324, 63. doi:10.1136/bmj.324 .7329.63
12. EPPI-Centre. (2007). EPPI-Centre methods for conducting systematic reviews. London, UK: EPPICentre, Social Science Research Unit, Institute of Education, University of London.
13. Epstein, S. (2008). Patient groups and health movements. In E. J. Hackett & Society for Social Studies of Science. (Eds.), The handbook of science and technology studies (3rd ed., pp. xiv, 1065 p.). Cambridge, MA: MIT Press.
14. Eysenbach, G. (2008). Medicine 2.0: Social networking, collaboration, participation, apomediation, and openness. Journal of Medical Internet Research, 10, e22. doi:v10i3e22[pii]10.2196/jmir .1030
15. Fergurson, T., & The E-Patient Scholars Editorial Team. (2007). E-patients: How they can help us heal health care. From http://www.acor.org/ epatientswiki/index.php?titleImage:E-patients_ cover.png&printableyes
16. Fokkenrood, H. J. P., Lauret, G.-J., Scheltinga, M. R. M., Spreeuwenberg, C., de Bie, R. A., & Teijink, J. A. W. (2012). Multidisciplinary treatment for peripheral arterial occlusive disease and the role of eHealth and mHealth. Journal of Multidisciplinary Healthcare, 5, 257.
17. Fox, S. (2011). The social life of health information. PewInternet and American Life Project. Washington, DC: PewInternet Research.
18. Frost, J. H., & Massagli, M. P. (2008). Social uses of personal health information within Patients-LikeMe, an online patient community: What can happen when patients have access to one another's data. Journal of Medical Internet Research, 10, e15. doi:10.2196/jmir.1053
19. Frost, J., & Massagli, M. (2009). PatientsLikeMe the case for a data-centered patient community and how ALS patients use the community to inform treatment decisions and manage pulmonary health. Chronic respiratory disease, 6, 225-229.
20. Gibbons, M. C. (2005). A historical overview of health disparities and the potential of eHealth solutions. Journal of Medical Internet Research, 7, e50. doi:10.2196/jmir.7.5.e50
21. Gibbons, M. C. (2007). eHealth solutions for healthcare disparities. New York, NY: Springer.
22. Gibbons, M. C., Fleisher, L., Slamon, R. E., Bass, S., Kandadai, V., & Beck, J. R. (2011). Exploring the potential of Web 2.0 to address health disparities. Journal of Health Communication, 16 Suppl, 1, 77225-89. doi:10.1080/10810730.2011.596916
23. Griffiths, K. M., Crisp, D., Christensen, H., Mackinnon, A. J., & Bennett, K. (2010). The ANU Well-Being study: A protocol for a quasi-factorial randomised controlled trial of the effectiveness of an Internet support group and an automated Internet intervention for depression. BMC Psychiatry, 10, 20. doi:1471-244X-10-20[pii]10.1186/1471-244X-10-20
24. Guzman, C. E.-V., Mireles, G., Christopherson, N., & Janning, M. (2010). Class and race health disparities and health information seeking behaviors: The role of social capital. In J. J. Kronenfeld (Ed.), The impact of demographics on health and health care: Race, ethnicity and other social factors (pp. 127-149). London, UK: Emerald Group Publishing Limited. doi:10.1108/S0275-4959(2010)0000028008
25. Hardiker, N. R., & Grant, M. J. (2011). Factors that influence public engagement with eHealth: A literature review. International Journal of Medical Informatics, 80(1), 1-12. doi:10.1016/j.ijmedinf .2010.10.017
26. Health on the Net Foundation. (2011, September 19, 2011). Certification for collaborative Websites/ Websites with Web 2.0 elements. Retrieved January 2, 2011, 2012, from http://www.hon.ch/cgibin/ HONcode/guidelines_comments_en.pl
27. Hesse, B. W., O'Connell, M., Augustson, E. M., Chou, W. Y., Shaikh, A. R., & Rutten, L. J. (2011). Realizing the promise of Web 2.0: Engaging community intelligence. Journal of Health Communication, 16 Suppl, 1, 101-31. doi:10.1080/ 10810730.2011.589882
28. Hughes, B., Joshi, I., & Wareham, J. (2008). Health 2.0 and Medicine 2.0: Tensions and controversies in the field. Journal of Medical Internet Research, 10, e23. doi:10.2196/jmir.1056
29. Jones, C. P. (2000). Levels of racism: A theoretic framework and a gardener's tale. American Journal of Public Health, 90(8), 1212-1215. doi: 10.2105/AJPH.90.8.1212
30. Jones, C. P., Jones, C. Y., Perry, G. S., Barclay, G., & Jones, C. A. (2009). Addressing the social determinants of children's health: A cliff analogy.Journal of Health Care for the Poor and Underserved, 20, 1-12. doi:10.1353/hpu.0.0228
31. Kawachi, I., Kennedy, B. P., Lochner, K., & Prothrow-Stith, D. (1997). Social capital, income inequality, and mortality. American Journal of Public Health, 87, 1491-1498. doi:10.2105/AJPH.87 .9.1491
32. Kim, E. H., Stolyar, A., Lober, W. B., Herbaugh, A. L., Shinstrom, S. E., Zierler, B. K. . . . Kim, Y. (2009). Challenges to using an electronic personal health record by a low-income elderly population. Journal of Medical Internet Research, 11, e44. doi:10.2196/jmir.1256
33. Kozinets, R. V. (2010). Netnography: Ethnographic research in the age of the internet (1st ed.). Thousand Oaks, CA: Sage.
34. Laversin, S., Baujard, V., Gaudinat, A., Simonet, M. A., & Boyer, C. (2011). Improving the transparency of health information found on the internet through the honcode: A comparative study. Studies in Health Technology and Informatics, 169, 654-658.
35. Lorence, D. P., Park, H., & Fox, S. (2006). Racial disparities in health information access: Resilience of the Digital Divide. Journal of Medical Systems, 30, 241-249. doi:10.1007/s10916-005-9003-y
36. Mayberry, L. S., Kripalani, S., Rothman, R. L., & Osborn, C. Y. (2011). Bridging the digital divide in diabetes: Family support and implications for health literacy. Diabetes Technology Therapy, 13, 1005-1012. doi:10.1089/dia.2011.0055
37. Mehta, R. (2011). The self-quantification movement: Implications for health care professionals. Self-Care: The Journal of Consumer-led Health, 2(3), 87-92.
38. Muñoz, R. F. (2010). Using evidence-based internet interventions to reduce health disparities worldwide. Journal of Medical Internet Research, 12, e60. doi:10.2196/jmir.1463
39. NC Division of Mental Health, Developmental Disabilities and Substance Abuse Services. (2011). SOC toolbox: Cultural competence. Retrieved November 17, 2010, from http://www.ncdhhs.gov/ mhddsas/services/serviceschildfamily/Toolbox/ culturalcomp/culturalcomp.htm
40. O'Carroll, P. W. (2003). Public Health informatics and information systems. New York, NY: Springer-Verlag. doi:10.1007/b98877
41. Roblin, D. W., Houston, T. K. 2nd, Allison, J. J., Joski, P. J., & Becker, E. R. (2009). Disparities in use of a personal health record in a managed care organization. Journal of the American Medical Informatics Association, 16, 683-689. doi: 10.1197/jamia.M3169
42. Rolland, J. S. (1994). Families, illness, & disability: An integrative treatment model. New York, NY: Basic Books.
43. Sarasohn-Kahn, Jane. (2008a). Reaching patients in a health 2.0 world. Marketing Health Services, 28, 43.
44. Sarasohn-Kahn, Jane. (2008b). The wisdom of patients: Health care meets online social media. Oakland, CA: California HealthCare Foundation.
45. Shambroom, J. R., Fabregas, S. E., & Johnston, J. (2012). Validation of an automated wireless system to monitor sleep in healthy adults. Journal of Sleep Research, 21, 221-230. doi:10.1111/j.1365-2869.2011.00944.x
46. TRUSTe. (2010, October 1). Privacy Program Requirements. Retrieved November 1, 2010, from http:// www.truste.com/privacy-program-requirements/
47. Tsai, J. H. C., Taylor, V., & Tu, S. P. (2010). Technology and health education: An exploratory study of older limited-English proficient Chinese immigrants. Journal of Health Disparities Research and Practice, 3, 127-134.
48. van de Belt, T. H., Engelen, L. J. L. P. G., Berben, S. A. A., & Schoonhoven, L. (2010). Definition of health 2.0 and medicine 2.0: A systematic review. Journal of Medical Internet Research, 12, e18. doi:10.2196/jmir.1350
49. van Uden-Kraan, C. F., Drossaert, C. H. C., Taal, E., Seydel, E. R., & van de Laar, M. A. F. J. (2010). Patient-initiated online support groups: Motives for initiation, extent of success and success factors. Journal of Telemedicine and Telecare, 16, 30-34. doi:10.1258/jtt.2009.001009
50. Vargas, P. A., Robles, E., Harris, J., & Radford, P. (2010). Using information technology to reduce asthma disparities in underserved populations: A pilot study. Journal of Asthma, 47, 889-894. doi: 10.3109/02770903.2010.497887
51. Veil, S. R., & Rodgers, J. E. (2010). Reaching at-risk populations: The inconsistency of communication channels among American Indian tribes and nations in Oklahoma. Public Relations Review, 36, 302-305. doi:10.1016/j.pubrev.2010.04.002
52. Viswanath, K., & Emmons, K. M. (2009). Health communication and communication inequalities in addressing cancer disparities. In H. K. Koh (Ed.), Toward the elimination of cancer disparities: Clinical and public health perspectives (pp. 277-298). New York, NY: Springer. doi:10.1007/978-0-387-89443-0_12
53. Wetherall, D., Choffnes, D., Greenstein, B., Han, S., Hornyack, P., Jung, J., . . . Wang, X. (2011). Privacy revelations for web and mobile apps. Proc. HotOS XIII.
54. Whitaker, I. S., & Shokrollahi, K. (2009). Biomed-Experts: Unlocking the potential of the Internet to advance collaborative research in plastic and reconstructive surgery. Annals of Plastic Surgery, 63, 120. doi:10.1097/SAP.0b013e31818d448c
55. Whitford, H. M., Donnan, P. T., Symon, A. G., Kellett, G., Monteith-Hodge, E., Rauchhaus, P., & Wyatt, J. C. (2012). Evaluating the reliability, validity, acceptability, and practicality of SMS text messaging as a tool to collect research data: Results from the Feeding Your Baby project. Journal of the American Medical Informatics Association, 19, 744 -749. doi:10.1136/amiajnl-2011-000785
56. Wiederhold, B. K. (2012). Self-tracking: Better medicine through pattern recognition. Cyberpsychology, Behavior, and Social Networking, 15, 235-236. doi:10.1089/cyber.2012.1545
57. Wilkinson, R. G. (1997). Comment: Income, inequality, and social cohesion. American Journal of Public Health, 87, 1504-1506. doi:10.2105/AJPH.87 .9.1504
58. Wilkinson, R. G., & Pickett, K. (2008). Income inequality and social gradients in mortality. American Journal of Public Health, 98, 699-704. doi: 10.2105/AJPH.2007.109637