Health communication and communication inequalities in addressing cancer disparities

Toward the Elimination of Cancer Disparities: Clinical and Public Health Perspectives

Volumn , Issue , 2009, Pages 277-298

  Viswanath, K ^a   Emmons, Karen M ^b  

^a DANA FARBER CANCER INSTITUTE   (United States)

^b NONE

Author keywords

[No Author keywords available]

Indexed keywords

EID: 84900257352     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.1007/978-0-387-89443-0_12     Document Type: Chapter

References (134)

1. Arora N. K., Hesse B. W., Rimer B. K., Viswanath K., Clayman M. L., Croyle R. T. Frustrated and Confused: The American Public Rates its Cancer-Related Information- Seeking Experiences. J Gen Intern Med. 2008;23(3):223-228.
2. Balint J., Shelton W. Regaining the initiative. Forging a new model of the patient-physician relationship. JAMA. 1996;275(11):887-891.
3. Banks S. M., Salovey P., Greener S., Rothman A. J., Moyer A., Beauvais J., et al. The effects of message framing on mammography utilization. Health Psychol. 1995;14(2):178-184.
4. Berkman L, Glass T. Social integration, social networks, social support, and health. In Social Epidemiology. L. Berkman & I. Kawachi, eds. New York: Oxford University Press, 2000.
5. Berland G. K., Elliott M. N., Morales L. S., Algazy J. I., Kravitz R. L., Broder M. S., et al. Health information on the Internet: accessibility, quality, and readability in English and Spanish. JAMA. 2001;285(20):2612-2621.
6. Bonfadelli H. The Internet and knowledge gaps: A theoretical and empirical investigation. Euro J Commun. 2002;17:65-84.
7. Byers T., Mouchawar J., Marks J., Cady B., Lins N., Swanson G., et al. The American Cancer Society challenge goals: How far can cancer rates decline in the U.S. by the year 2015? Cancer. 1999;86:715-727.
8. Capella J. Integrating message effects and behavior change theories: Organizing comments and unanswered questions. J Commun. 2006; 56 (suppl):S265-S278.
9. Carlsson M. Cancer patients seeking information from sources outside the health care system. Support Care Cancer. 2000;8(6):453-457.
10. Case D. O., Andrews J. E., Johnson J. D., Allard S. L. Avoiding versus seeking: the relationship of information seeking to avoidance, blunting, coping, dissonance, and related concepts. J Med Lib Assoc. 2005;93(3):353-362.
11. Cegala D. J. Patient communication skills training: a review with implications for cancer patients. Patient Educ Couns. 2003:50(1):91-94.
12. Center for Disease Control Cigarette Use Among High School Students-United States 1991 2007 MMWR 2008 57 25 686-688
13. Chalmers K., Marles S., Tataryn D., Scott-Findlay S., Serfas K. Reports of information and support needs of daughters and sisters of women with breast cancer. Eur J Cancer Care. 2003:12(1):81-90.
14. Charles C. A., Whelan T., Gafni A., Willan A., Farrell S. Shared treatment in decision making: what does it mean to physicians? J Clin Oncol. 2003; 21(5):932-936.
15. Cherlin E., Fried T., Prigerson H. G., Schulman-Green D., Johnson-Hurzeler R., Bradley E. H. Communication between physicians and family caregivers about care at the end of life: when do discussions occur and what is said? J Palliat Med. 2005;8(6):1176-1185.
16. Colditz G., DeJong D., Emmons K., Hunter D., Mueller N., Sorensen G. Harvard report on cancer prevention: prevention of human cancer, volume 2. Cancer Causes Control. 1997;8(suppl 1)
17. Cooper L., Roter D. Patient-provider communication: The effect of race and ethnicity on process and outcomes of healthcare. In Unequal Treatment: Confronting Racial and Ethnic Disparities in Healthcare
18. B. Smedley A. Stith & A. Nelson, eds. Washington, DC: The National Academies Press, 2003.
19. Croft D. R., Peterson M. W. An evaluation of the quality and contents of asthma education on the World Wide Web. Chest. 2002;121(4):1301-1307.
20. CrowleyW. F., Jr., Sherwood L., Salber P., Scheinberg D., Slavkin H., TilsonH., et al. Clinical research in theUnited States at a crossroads: proposal for a novel public-private partnership to establish a national clinical research enterprise. JAMA. 2004;291(9):1120-1126.
21. Czaja R., Manfredi C., Price J. The determinants and consequences of information seeking among cancer patients. J Health Commun. 2003; 8 (6):529-562.
22. D'Alessandro D. M., Kingsley P., Johnson-West J. The readability of pediatric patient education materials on the World WideWeb. Arch Pediatr Adolesc Med. 2001;155(7):807-812.
23. Dalton M. A., Sargent J. D., Beach M. L., Titus-Ernstoff L., Gibson J. J., Ahrens M. B., et al. Effect of viewing smoking in movies on adolescent smoking initiation: a cohort study. Lancet. 2003;362(9380):281-285.
24. Davey H. M., Butow P. N., Armstrong B. K. Cancer patients' preferences for written prognostic information provided outside the clinical context. Br J Cancer. 2003:89(8):1450-1456.
25. Davis K. C., Nonnemaker J. M., Farrelly M. C. Association between national smoking prevention campaigns and perceived smoking prevalence among youth in the United States. J Adol Health. 2007;41(5):430-436.
26. Davis T. C., Williams M. V., Marin E., Parker R. M., Glass J. Health literacy and cancer communication. CA Cancer J Clin. 2002:52(3):134-149.
27. Doak C. C., Doak L. G., Root J. H. Teaching Patients with Low Literacy Skills
28. 1996. Earle C. C. Cancer survivorship research and guidelines: maybe the cart should be beside the horse. J Clin Oncol. 2007;25(25):3800-3801.
29. Edelman M. Political Language. New York: Academic Press, 1977
30. Ellis P., Robinson P., Ciliska D., Armour T., Brouwers M., O'Brien M. A., et al. A systematic review of studies evaluating diffusion and dissemination of selected cancer control interventions. Health Psychol. 2005;24(5):488-500.
31. Epstein R. M., Alper B. S., Quill T. E. Communicating evidence for participatory decision making. JAMA. 2004;291(19):2359-2366.
32. Ettema J. S. Three phases in the creation of information inequities: an empirical campaign. J Broadcasting. 1984;28(4):383-395.
33. Farrelly M. C., Davis K. C., Haviland M. L., Messeri P., Healton C. G. Evidence of a doseresponse relationship between ''truth'' antismoking ads and youth smoking prevalence. Am J Public Health. 2005;95(3):425-431.
34. Finnegan J. R., Viswanath K., Kahn E., Hannan P. Exposure to the sources of heart disease prevention information: community type and social group differences. Journal Q. 1993;70(3):569-584.
35. Finnegan J. R., Viswanath K., Loken B. Predictors of cardiovascular health knowledge among suburban cable TV subscribers and non-subscribers. Health Educ Res. 1988;3:141-151.
36. Finney L. J., Iannotti R. J. Message framing and mammography screening: a theory-driven intervention. Behav Med. 2002;28(1):5-14.
37. Folkman S., Lazarus R. S. An analysis of coping in a middle-aged community sample. J Health Soc Behav. 1980;21(3):219-239.
38. Galea S., Vilahov D. Handbook of Urban Health: Populations, Methods, and Practice. New York: Sprinter, 2005.
39. Gamson W. A. Foreword. In Framing Public Life: Perspectives on our Understanding of the Social World
40. S. D. Reese J. R. Gandy & A. E. Grant, eds. Mahwah NJ: Lawrence Erlbaum Associates, 2001
41. Gamson W. A., Modigliani A. The changing culture of affirmative action. In Research in Political Sociology. Vol. 3. R. D. Braungart, ed. Greenwich CT: JAI Press, 1987, pp. 137-177.
42. Graber M. A., D'Alessandro D. M., Johnson-West J. Reading level of privacy policies on Internet health Web sites. J Fam Pract. 2002;51(7):642-645.
43. Green M. Narratives and cancer communication. J Commun. 2006; 56 suppl:S163-S183.
44. Green M., Brock T. C. The role of transportation in the persuasiveness of public narratives. J Pers Soc Psychol. 2000;79(5):701-721.
45. Greiner K. A., Born W., Nollen N., Ahluwalia J. S. Knowledge and perceptions of colorectal cancer screening among urban African Americans. J Gen Int Med. 2005;20(11):977-983.
46. Hack T. F., Pickles T., Bultz B. D., Denger L. F., Katz A. K., Davison B. J. Feasibility of an audiotape intervention for patients with cancer: a multicenter, randomized controlled pilot study. J Psycosoc Oncol. 1999;17(2):1-15.
47. Hiatt R. A., Rimer B. K. A new strategy for cancer control research. Cancer, Epidemiol, Biomarkers Prev. 1999;8(11):957-964.
48. Hilgartner S., Bosk C. L. The rise and fall of social problems-A public arenas model. Am J Soc. 1988;94(1):53-78.
49. Hornik R. (ed.). Public Health Communication: Evidence for Behavior Change. New York: Lawrence Erlbaum, 2002.
50. Huchcroft S., Snodgrass T., Troyan S. Testing the effectiveness of an information booklet for cancer patients. J Psychosoc Oncol. 1984;2(2), 73-83.
51. Institute of Medicine, & Committee on Communication for Behavior Change in the 21st Century: Improving the Health of Diverse Populations. Speaking of Health: Assessing Health Communication Strategies for Diverse Populations. Washington, DC: National Academies Press, 2002.
52. Iyengar S. Is Anyone Responsible?: How Television Frames Public Issues. Chicago: University of Chicago Press, 1991.
53. Johnson J. The effects of a patient education course on persons with a chronic illness. Cancer Nurs. 1982:5(2):117-123.
54. Johnson J. D. Cancer-related information seeking. Cresskill, New Jersey: Hampton Press, Inc., 1997.
55. Kaphingst K., Zanfini C., Emmons K. Accessibility of web sites containing colorectal cancer information to adults with limited literacy. Cancer Causes Control. 2006;17(2):147-151.
56. Kaplan GA. What's wrong with social epidemiology, and how can we make it better? Epidemiol Rev. 2004;26:124-135.
57. Katzman N. The impact of communication technology. J Commun. 1974;24(4):47-58.
58. Kawachi I., Berkman L. Social cohesion, social capital, and health. In Social Epidemiology. L. Berkman & I. Kawachi, eds. New York: Oxford University Press, 2000, pp. 174-190.
59. Kawachi I., Kim D., Coutts A., Subramanian S. V. Commentary: Reconciling the three accounts of social capital. Int J Epidemiol. 2004;33(4):682-690; discussion 700-684.
60. Kawachi I., Kroenke C. Socioeconomic disparities in cancer incidence and mortality. In Cancer Epidemiology and Prevention. 3rd ed. D. Schottenfeld & J. F. J. Fraumeni. eds. Oxford: Oxford University Press, 2006.
61. Kerner J., Rimer B., Emmons K. M. Dissemination research and research dissemination: How can we close the gap? Health Psychol. 2005;24(5):443-446.
62. Kontos E. Z., Bennett G. G., Viswanath K. Barriers and facilitators to home computer and Internet use among urban novice computer users of low socioeconomic position. J Med Internet Res. 2007;9(4):e31
63. Kraetschmer N., Sharpe N., Urowitz S., Deber R. B. How does trust affect patient preferences for participation in decision-making? Health Expect. 2004;7(4):17-326.
64. Kreuter M. W., McClure S. The role of culture in health communication. Ann Rev Pub Health. 2004;25:439-455.
65. Krieger N. Historical roots of social epidemiology: socioeconomic gradients in health and contextual analysis. Intl J Epidemiol. 2001;30(4):899-900.
66. Krieger N. Why epidemiologists cannot afford to ignore poverty. Epidemiology. 2007;18(6):658-663.
67. Krieger N., Chen J. T., Waterman P. D., Rehkopf D. H., Subramanian S. V. Painting a truer picture of US socioeconomic and racial/ethnic health inequalities: the Public Health Disparities Geocoding Project. Am J Pub Health. 2005;95(2):312-323.
68. LaCoursiere S. P., Knobf M. T., McCorkle R. Cancer patients' self-reported attitudes about the Internet. J Med Internet Res. 2005;7(3):e22.
69. Lauver D., Rubin M. Message framing, dispositional optimism, and follow-up for abnormal Papanicolaou tests. Res Nurs Health. 1990;13(3):199-207.
70. Lazarus W. Online Content for low-income and under served Americans: the digital divide's new frontier: a strategic audit of activities and opportunities. Santa Monica: Children's Partnership, 2002
71. Lewis C. L., Pignone M. P., Sheridan S. L., Downs S. M., Kinsinger L. S. A randomized trial of three videos that differ in the framing of information about mammography in women 40 to 49 years old. J Gen Intern Med. 2003;18(11):875-883.
72. Leydon G. M., Boulton M., Moynihan C., Jones A., Mossman J., Boudioni M., et al. Cancer patients' information needs and information seeking behaviour: in depth interview study. Brit Med J. 2000;320(7239):909-913.
73. Liang W., Burnett C. B., Rowland J. H., Meropol N. J., Eggert L., Hwang Y. T., et al. Communication between physicians and older women with localized breast cancer: implications for treatment and patient satisfaction. J Clin OncoL. 2002;20(4):1008-1016.
74. Llewellyn-Thomas H. A., McGreal M. J., Thiel E. C. Cancer patients' decision making and trial-entry preferences: the effects of ''framing'' information about short-term toxicity and long-term survival. Med Decis Making. 1995;15(1):4-12.
75. Lynch J., Kaplan G. Socioeconomic position. In Social Epidemiology. L. Berkman & I. Kawachi, eds. New York: Oxford University Press, 2000, pp. 13-35.
76. Lynch J., Smith G. D., Kaplan G. A., House J. S. Income inequality and mortality: importance to health of individual income, psychosocial environment, or material conditions. Brit Med J. 2000;320(7243):1200-1204.
77. Mankoff S. P., Brander C., Ferrone S., Marincola F. M. Lost in translation: obstacles to translational medicine. J Transl Med. 2004;2(1):14.
78. Marincola F. M. Translational medicine: a two-way road. J Transl Med. 2003;1(1):1.
79. McPherson C. J., Higginson I. J., Hearn J. Effective methods of giving information in cancer: a systematic literature review of randomized controlled trials. J Public Health Med. 2001;23(3);227-234.
80. Meissner H. I., Rimer B. K., Davis W. W., Eisner E. J., Siegler I. C. Another round in the mammography controversy. J. Women's Health (Larchmt) 2003a; 12(3): 261-74.
81. Meissner H. I., Breen N., Yabroff K. R. Whatever happened to clinical breast examinations? Am J Prev Med. 2003b;25(3):259-263.
82. Meyerowitz B. E., Chaiken S. The effect of message framing on breast self-examination attitudes, intentions, and behavior. J Pers Soc Psychol. 1987;52(3):500-510.
83. Miller S. M. Monitoring and blunting: validation of a questionnaire to assess styles of information seeking under threat. J Pers Social Psych. 1987;52(2):345-353.
84. Mills M. E., Sullivan K. The importance of information giving for patients newly diagnosed with cancer: a review of the literature. J Clin Nurs. 1999;8(6):631-642.
85. Mohide E. A., Whelan T. J., Rath D., Gafni A., Willan A. R., Czukar D., et al. A randomized trial of two information packages distributed to new cancer patients before their initial appointment at a regional cancer center. Br J Cancer. 1996;73(12):1588-1593.
86. National Cancer Institute of Canada Working Group on Translation The language and logic of research transfer - finding common ground. Presentation Conducted by Bendixen and Associates NCM Poll.
87. New California Media Partnership (2005). New California Media partnership, The Ethnic Media in America: The Giant Hidden in Plain Sight
88. Norum J., Grev A., Moen M. A., Balteskard L., Holthe K. Information and communication technology (ICT) in oncology. Patients' and relatives' experiences and suggestions. Supportive Care in Cancer. 2003;11(5):286-293.
89. Olien C. N., Donohue G. A., Tichenor P. J. Structure, communication, and social power: evolution of the knowledge gap hypothesis. In Mass Communication Review Yearbook 4. E. Wartella & D. C. Whitney, eds. Beverly Hills, CA: Sage, 1983, pp. 455-462.
90. Paltoo D. N., Chu K. C. Patterns in cancer incidence among American Indians/Alaska natives, United States, 1992-1999. Pub Health Reports. 2004;119(4):443-451.
91. Pew.Digital Divisions. www.pewinternet.org. 2005. Accessed October 2005
92. Phelan J. C., Link B. G., Diez-Roux A., Kawachi I., Levin B. ''Fundamental causes'' of social inequalities in mortality: a test of the theory. J Health Soc Behav. 2004;45(3):265-285.
93. Piette J. D. Satisfaction with automated telephone disease management calls and its relationship to their use. Diabetes Educ. 2000;26(6):1003-1010.
94. Piette J. D., McPhee S. J., Weinberger M., Mah C. A., Kraemer F. B. Use of automated telephone disease management calls in an ethnically diverse sample of low-income patients with diabetes. Diabetes Care. 1999;22(8):1302-1309.
95. Piette J. D., Weinberger M., McPhee S. J., Mah C. A., Kraemer F. B., Crapo L. M. Do automated calls with nurse follow-up improve self-care and glycemic control among vulnerable patients with diabetes? Am J Med. 2000;108(1):20-27.
96. Ramanadhan S.,Viswanath K. Health and the information non-seekers: a profile. Health Commun. 2006;20(2):131-139.
97. Rees C. E., Bath P. A. The information needs and source preferences of women with breast cancer and their family members: a review of the literature published between 1988 and 1998. J Adv Nurs. 2000;31(4):833-841.
98. Rees C. E., Bath P. A. Information-seeking behaviors of women with breast cancer. Oncol Nurs Forum. 2001;28(5):899-907.
99. Reese S. D., Gandy O. H., Grant A. E., eds. Framing Public Life: Perspectives on Media and Our Understanding of the Social World. Mahwah, NJ: Lawrence Erlbaum Associates, 2001.
100. Reynolds D. Cervical cancer in Hispanic/Latino women. Clinical J Oncology Nurs. 2004;8(2):146-150.
101. Ries L. A. G., Eisner M. P., Kosary C. L., Hankey B. F., Miller B. A., Clegg L., et al., eds. SEER Cancer Statistics Review, 1975-2001. Bethesda, MD: National Cancer Institute, 2004.
102. Rimer B. K., Briss P. A., Zeller P. K., Chan E. C., Woolf S. H. Informed decision making: what is its role in cancer screening? Cancer. 2004;101(5 suppl):1214-1228.
103. Rimer B. K., Lyons E. J., Ribisl K. M., Bowling J. M., Golin C. E., Forlenza M. J., et al. How new subscribers use cancer-related online mailing lists. J Med Internet Res. 2005;7(3):e32.
104. Rutten L. J., Arora N. K., Bakos A. D., Aziz N., Rowland J. Information needs and sources of information among cancer patients: a systematic review of research (1980-2003). Patient Educ Couns. 2005;57(3):250-261.
105. Salovey P., Williams-Piehota P. Field experiments in social psychology: Message framing and the promotion of health protective behaviors. Am Behav Scientist. 2004;47(5):488-505.
106. Scherer C. W. The videocassette recorder and the information inequity. J Commun. 1989;39(3):94-109.
107. Schneider T. R., Salovey P., Apanovitch A. M., Pizarro J., McCarthy D., Zullo J., et al. The effects of message framing and ethnic targeting on mammography use among low-income women. Health Psychol. 2001;20(4):256-266.
108. Schou I., Ekeberg O., Sandvik L., Hjermstad M. J., Ruland C. M. Multiple predictors of health-related quality of life in early stage breast cancer. Data from a year follow-up study compared with the general population. Qual Health Res. 2005;14(8):1813-1823.
109. Sharp J. W. The Internet. Changing the way cancer survivors obtain information. Cancer Pract. 1999;7(5):266-269.
110. Slater M. D. Entertainment education and the persuasive impact of narratives. In Narrative Impact: Social and Cognitive Foundations.M. C. Green, J. F. Strange, & T. C. Brock, eds. Mahwah, NJ: Lawrence Erlbaum, 2002, pp. 157-181.
111. Sorensen G., Emmons K., Hunt M. K., Barbeau E., Goldman R., Peterson K., et al. Model for incorporating social context in health behavior interventions: applications for cancer prevention for working-class, multiethnic populations. Prev Med. 2003;37:188-197.
112. Stein C. J., Colditz G. A. Modifiable risk factors for cancer. Brit J Cancer. 2004;90(2):299-303.
113. Stryker J. E. Media and marijuana: A longitudinal analysis of news media effects on adolescents' marijuana use and related outcomes, 1977-1999.J HealthComm. 2003;8(4):305-328.
114. Stryker J. E., Emmons K. M., Viswanath K. (2006). Uncovering differences across the cancer control continuum: a comparison of ethnic and mainstream cancer newspaper stories. Prev Med. 2007;44(1):20-25.
115. Tichenor P. J., Donohue G. A., Olien C. N. Mass media flow and differential growth in knowledge. Pub Opin Q. 1970;34(2):159-170.
116. Tichenor P. J., Donohue G. A., Olien C. N. Community Conflict and the Newbury Park, CA: Sage Publications, 1980.
117. Tomita M. R. The role of cable television in providing information on world news: A test of the knowledge gap hypothesis. Unpublished Doctoral Dissertation. University of Minnesota, Minneapolis, 1989
118. Twombly R. Experts debate message sent by increased cancer survival rate. J Natl Cancer Inst. 2004;96(19):1412-1413.
119. US Department of Commerce, National Telecommunications and Information Administration, & Economic and Statistics Administration. Falling through the net: toward digital inclusion http://www.ntia.doc.gov/ntiahome/ digitaldivide/
120. Viswanath K. The communications revolution and cancer control. Nat Rev Cancer. 2005;5(10):828-835.
121. Viswanath K. Public communications and its role in reducing and eliminating health disparities. In Examining the Health Disparities Research Plan of the National Institutes of Health: Unfinished Business G. E. Thomson, F. Mitchell, M. B. Williams, eds. Washington, DC: Institute of Medicine, 2006, pp. 215-253.
122. Viswanath K. Social Capital and Health Communications. In Social Capital and Health. I. Kawachi, S. V. Subramanian, D. Kim, eds. New York: Springer, 2008.
123. Viswanath K., Blake K. D., Meissner H. I., Saiontz N. G., Mull C., Freeman C. S., et al. Occupational practices and the making of health news: a national survey of health and medical journalists in the United States. J Health Comm. 2008;13(8):759-777.
124. Viswanath K., Breen N., Meissner H., Moser R. P., Hesse B., Steele W. R., et al. Cancer knowledge and disparties in the information age. J Health Comm. 2006; 11 suppl 1:1-17.
125. Viswanath K., Demers D. Mass media from a macrosocial perspective. In Mass Media, Social Control and Social Change: A Macrosocial Perspective. D. Demers, K. Viswanath, eds. Ames, IA: Iowa State University Press, 1999, pp. 3-28.
126. Viswanath K., Emmons K. M. Message effects and social determinants of health: its application to cancer disparities. J Comm. 2006;56 suppl 1:S238-S264
127. Viswanath K., Finnegan J. R. The knowledge gap hypothesis: twenty five years later. In Communication Yearbook 19. B. Burleson, ed. Thousand Oaks: Sage Publications, 1996, pp. 187-227.
128. Viswanath K., Finnegan J. R. Community health campaigns and secular trends: insights from the Minnesota Heart Health Program and Community Trials in Heart Disease Prevention. In Public Health Communication: Evidence for Behavior Change. R. Hornik, ed. New York: Lawrence Erlbaum, 2002, pp. 289-312.
129. Viswanath K., Kreuter M. W. Health disparities, communication inequalities, and eHealth. Am J Prev Med. 2007;32(5 suppl):S131-S133.
130. Viswanath K., Ramanadhan S., Kontos E. Z. Mass Media and Population Health: A Macrosocial View. In Macrosocial Determinants of Population Health. S. Galea, ed. New York: Springer, 2007, pp. 275-294.
131. Walker J. A. What is the effect of preoperative information on patient satisfaction? Br J Nurs. 2007;16(1):27-32.
132. Warren J. L., Yabroff K. R., Meekins A., Topor M., Lamont E. B., BrownM. L. Evaluation of trends in the cost of initial cancer treatment. J Natl Cancer Inst. 2008;100(12):888-897.
133. Wolff M., Bates T., Beck B., Young S., Ahmed S. M., Maurana C. Cancer prevention in underserved African American communities: barriers and effective strategies-a review of the literature. Wisc Med J. 2003;102(5):36-40.
134. Worth K. A., Dal Cin S., Sargent J. D. Prevalence of smoking among major movie characters: 1996-2004. Tobacco Control. 2006;15(6):442-446.