Palliative care for people with heart failure: Summary of current evidence and future direction

Palliative Medicine

Volumn 27, Issue 9, 2013, Pages 822-828

  Gadoud, Amy ^a   Jenkins, Shona Mm ^b   Hogg, Karen J ^b  

^a UNIVERSITY OF HULL   (United Kingdom)

^b GLASGOW ROYAL INFIRMARY   (United Kingdom)

Author keywords

communication; health services research; Heart failure; palliative care

Indexed keywords

ACETYLSALICYLIC ACID; AMIODARONE; ANGIOTENSIN RECEPTOR ANTAGONIST; BETA ADRENERGIC RECEPTOR BLOCKING AGENT; DIGOXIN; DIPEPTIDYL CARBOXYPEPTIDASE INHIBITOR; DIURETIC AGENT; EPLERENONE; HYDRALAZINE; HYDROXYMETHYLGLUTARYL COENZYME A REDUCTASE INHIBITOR; IVABRADINE; MINERALOCORTICOID ANTAGONIST; NITRATE; SPIRONOLACTONE;

AGITATION; ARTICLE; BLOOD PRESSURE; CLINICAL PRACTICE; COUGHING; DEHYDRATION; DROWSINESS; DRUG INDUCED HEADACHE; DYSPNEA; FATIGUE; FLUSHING; GASTROINTESTINAL HEMORRHAGE; GASTROINTESTINAL SYMPTOM; GOUT; GYNECOMASTIA; HEART FAILURE; HEART RATE; HUMAN; KIDNEY DISEASE; LIVER DYSFUNCTION; MYALGIA; MYOSITIS; NAUSEA; NIGHTMARE; PAIN; PALLIATIVE THERAPY; POLICY; POTASSIUM BLOOD LEVEL; PROGNOSIS; QT PROLONGATION; SIDE EFFECT; SLEEP DISORDER; STOMACH DISEASE; STOMACH IRRITATION; SYMPTOM; TERMINAL CARE; THYROID DISEASE; VISUAL DISORDER;

COMMUNICATION; HEALTH SERVICES RESEARCH; HEART FAILURE; PALLIATIVE CARE;

COMMUNICATION; DYSPNEA; HEALTH SERVICES RESEARCH; HEART FAILURE; HUMANS; PALLIATIVE CARE; PATIENT CARE MANAGEMENT; QUALITY OF LIFE;

EID: 84884504246     PISSN: 02692163     EISSN: 1477030X     Source Type: Journal    
DOI: 10.1177/0269216313494960     Document Type: Article

References (61)

1. Davis RC, Davies MK, Yip GYH ABC of heart failure. Davis RC Davies MK Yip GYH, ed. Oxford: Blackwell Publishing Ltd ; 2006: 1-4.
2. Mosterd A, Hoes AW. Clinical epidemiology of heart failure. Heart. 2007 ; 93: 1137-1146
3. Unroe KT, Greiner MA, Hernandez AF, et al. Resource use in the last 6 months of life among Medicare beneficiaries with heart failure, 2000-2007. Arch Intern Med. 2010 ; 171: 196-203
4. Gibson R. Resource use in the last 6 months of life: what does it mean for patients?. Arch Intern Med. 2011 ; 171: 194-195
5. Kaul P, McAlister FA, Ezekowitz JA, et al. Resource use in the last 6 months of life among patients with heart failure in Canada. Arch Intern Med. 2010 ; 171: 211-217
6. Barclay S, Momen N, Case-Upton S, et al. End-of-life care conversations with heart failure patients: a systematic literature review and narrative synthesis. Br J Gen Pract. 2011 ; 61: e49 - e62
7. Low J, Pattenden J, Candy B, et al. Palliative care in advanced heart failure: an international review of the perspectives of recipients and health professionals on care provision. J Card Fail. 2011 ; 17: 231-252
8. Hopp F, Thornton N, Martin L. The lived experience of heart failure at the end of life: a systematic literature review. Health Soc Work. 2010 ; 35: 109-117
9. McMurray JJV, Adamopoulos S, Anker SD, et al. ESC Guidelines for the diagnosis and treatment of acute and chronic heart failure 2012. Eur Heart J. 2012 ; 33: 1787-1847
10. CHRONIC HEART FAILURE: national clinical guideline for diagnosis and management in primary and secondary care (NICE Clinical Guideline No 108). London: National Clinical Guideline Centre ; 2010 :
11. Goodlin SJ, Hauptman PJ, Arnold R, et al. Consensus statement: palliative and supportive care in advanced heart failure. J Card Fail. 2004 ; 10: 200-209
12. Jaarsma T, Beattie JM, Ryder M, et al. Palliative care in heart failure: a position statement from the palliative care workshop of the Heart Failure Association of the European Society of Cardiology. Eur J Heart Fail. 2009 ; 11: 433-443
13. ConnollyMBeattieJWalkerD. End of life care in heart failure: a framework for implementation. In: National End of Life Care Programme: Improving End of Life Care/NHS Improvement, 29June2010, http://www.improvement.nhs.uk/LinkClick. aspx?fileticket=KBUUEsR0mms%3D&tabid=57
14. Harrison N, Cavers D, Campbell C, et al. Are UK primary care teams formally identifying patients for palliative care before they die?. Br J Gen Pract. 2012 ; 62: e344 - e352
15. Murray SA, Boyd K, Kendall M, et al. Dying of lung cancer or cardiac failure: prospective qualitative interview study of patients and their carers in the community. BMJ. 2002 ; 325: 929
16. Stewart S, McMurray JJ. Palliative care for heart failure. BMJ. 2002 ; 325: 915-916
17. Allen LA, Stevenson LW, Grady KL, et al. Decision making in advanced heart failure. Circulation. :
18. Takeda A, Stephanie T, Taylor R, et al. Clinical service organisation for heart failure. Cochrane Database Syst Rev. 2012 ; 9: CD002752
19. Daley A, Matthews C, Williams A. Heart failure and palliative care services working in partnership: report of a new model of care. Palliat Med. 2006 ; 20: 593-601
20. Johnson M. Planning for end-of-life care in heart failure: experience of two integrated cardiology-palliative care teams. Br J Cardiol. 2012 ; 19: 71-75
21. Bekelman DB, Nowels CT, Allen LA, et al. Outpatient palliative care for chronic heart failure: a case series. J Palliat Med. 2011 ; 14: 815-821
22. Davidson PM, Paull G, Introna K, et al. Integrated, collaborative palliative care in heart failure: the St. George Heart Failure Service experience 1999-2002. J Cardiovasc Nurs. 2004 ; 19: 68-75
23. Hogg K, Jenkins S. Medical anticipatory care plans in advanced heart failure prevent hospital re-admissions. Eur Heart J. 2012 ; 33: 483-484
24. Aiken LS, Butner J, Lockhart CA, et al. Outcome evaluation of a randomized trial of the PhoenixCare intervention: program of case management and coordinated care for the seriously chronically ill. J Palliat Med. 2006 ; 9: 111-126
25. Abernethy AP, Wheeler JL. Total dyspnoea. Curr Opin Support Palliat Care. 2008 ; 2: 110-113
26. Faris RF, Flather M, Purcell H, et al. Diuretics for heart failure. Cochrane Database Syst Rev. 2012 ; 2: CD003838
27. Beattie JM, Johnson MJ. Subcutaneous furosemide in advanced heart failure: has clinical practice run ahead of the evidence base?. BMJ Support Palliat Care. 2012 ; 2: 5-6
28. Zacharias H, Raw J, Nunn A, et al. Is there a role for subcutaneous furosemide in the community and hospice management of end-stage heart failure?. Palliat Med. 2011 ; 25: 658-663
29. Ward C, Dunn F, Jenkins S, et al A practical guide to heart failure in older people. Ward C Witham M, ed. Chichester: Wiley-Blackwell ; 2009: 241-270.
30. Caraceni A, Hanks G, Kaasa S, et al. Use of opioid analgesics in the treatment of cancer pain: evidence-based recommendations from the EAPC. Lancet Oncol. 2012 ; 13: e58 - e68
31. Davies EJ, Moxham T, Rees K, et al. Exercise training for systolic heart failure: Cochrane systematic review and meta-analysis. Eur J Heart Fail. 2010 ; 12: 706-715
32. O'Connor CM, Whellan DJ, Lee KL, et al. Efficacy and safety of exercise training in patients with chronic heart failure: HF-ACTION randomized controlled trial. JAMA. 2009 ; 301: 1439-1450
33. Bausewein C, Booth S, Gysels M, et al. Non-pharmacological interventions for breathlessness in advanced stages of malignant and non-malignant diseases. Cochrane Database Syst Rev. 2008 ; 2: CD005623
34. Galbraith S, Fagan P, Perkins P, et al. Does the use of a handheld fan improve chronic dyspnea? A randomized, controlled, crossover trial. J Pain Symptom Manage. 2010 ; 39: 831-838
35. Sullivan MJ, Wood L, Terry J, et al. The Support, Education, and Research in Chronic Heart Failure Study (SEARCH): a mindfulness-based psychoeducational intervention improves depression and clinical symptoms in patients with chronic heart failure. Am Heart J. 2009 ; 157: 84-90
36. Goodyer LI, Miskelly F, Milligan P. Does encouraging good compliance improve patients' clinical condition in heart failure?. Br J Clin Pract. 1995 ; 49: 173-176
37. Jennings AL, Davies AN, Higgins JP, et al. A systematic review of the use of opioids in the management of dyspnoea. Thorax. 2002 ; 57: 939-944
38. Abernethy AP, Currow DC, Frith P, et al. Randomised, double blind, placebo controlled crossover trial of sustained release morphine for the management of refractory dyspnoea. BMJ. 2003 ; 327: 523-528
39. Oxberry SG, Torgerson DJ, Bland JM, et al. Short-term opioids for breathlessness in stable chronic heart failure: a randomized controlled trial. Eur J Heart Fail. 2011 ; 13: 1006-1012
40. Johnson MJ, McDonagh TA, Harkness A, et al. Morphine for the relief of breathlessness in patients with chronic heart failure - a pilot study. Eur J Heart Fail. 2002 ; 4: 753-756
41. Oxberry S, Bland J, Clark A, et al. Repeat dose opioids may be effective for breathlessness in chronic heart failure if given for long enough. J Palliat Med. 2013 ; 16: 250-255
42. Currow DC, McDonald C, Oaten S, et al. Once-daily opioids for chronic dyspnea: a dose increment and pharmacovigilance study. J Pain Symptom Manage. 2011 ; 42: 388-399
43. Simon ST, Higginson IJ, Booth S, et al. Benzodiazepines for the relief of breathlessness in advanced malignant and non-malignant diseases in adults. Cochrane Database Syst Rev. 2010 ; 1: CD007354
44. Cranston JM, Crockett A, Currow D. Oxygen therapy for dyspnoea in adults. Cochrane Database Syst Rev. 2008 ; 3: CD004769
45. Abernethy AP, McDonald CF, Frith PA, et al. Effect of palliative oxygen versus room air in relief of breathlessness in patients with refractory dyspnoea: a double-blind, randomised controlled trial. Lancet. 2010 ; 376: 784-793
46. Clark AL, Johnson MJ, Squire I. Does home oxygen benefit people with chronic heart failure?. BMJ. 2011 ; 342: d234
47. Abernethy AP, Currow DC. Need for mechanistically focused research of global systemic interventions in palliative care. J Pain Symptom Manage. 2010 ; 40: e5 - e8
48. Burge F, Lawson B, Mitchell G. How to move to a palliative approach to care for people with multimorbidity. BMJ. 2012 ; 345: e6324
49. Gardner RS Oxford textbook of heart failure. McDonagh TA Gardiner RS Clark AL, ed. Oxford: Oxford University Press ; 2011: 265-280.
50. Vandenbroucke JP. Why do the results of randomised and observational studies differ?. BMJ. 2011 ; 343: d7020
51. Altman DG, Vergouwe Y, Royston P, et al. Prognosis and prognostic research: validating a prognostic model. BMJ. 2009 ; 338: b605
52. Haga K, Murray S, Reid J, et al. Identifying community based chronic heart failure patients in the last year of life: a comparison of the Gold Standards Framework Prognostic Indicator Guide and the Seattle Heart Failure Model. Heart. 2012 ; 98: 579-583
53. Hogg KJ, Jenkins SMM. Prognostication or identification of palliative needs in advanced heart failure: where should the focus lie?. Heart. 2012 ; 98: 523-524
54. Boyd KJ, Worth A, Kendall M, et al. Making sure services deliver for people with advanced heart failure: a longitudinal qualitative study of patients, family carers, and health professionals. Palliat Med. 2009 ; 23: 767-776
55. Strachan P, Arthur H, Demers C, et al. The complexity of prognosis communication in heart failure: patient and cardiologists' preferences in the outpatient clinical setting. World J Cardiovasc Dis. 2013 ; 3: 108-117
56. Back AL, Arnold RM, Quill TE. Hope for the best, and prepare for the worst. Ann Intern Med. 2003 ; 138: 439-443
57. Hanratty B, Hibbert D, Mair F, et al. Doctors' perceptions of palliative care for heart failure: focus group study. BMJ. 2002 ; 325: 581-585
58. Bennett MI, Davies EA, Higginson IJ. Delivering research in end-of-life care: problems, pitfalls and future priorities. Palliat Med. 2010 ; 24: 456-461
59. Craig P, Higginson IJ, Dieppe P, Macintyre S, et al. Developing and evaluating complex interventions. Medical Research Council. 2008 ;:
60. Lingard LA, McDougall A, Schulz V, et al. Understanding palliative care on the heart failure care team: an innovative research methodology. J Pain Symptom Manage. 2013 ; 45: 901-911
61. Fitzsimons D, Strachan PH. Overcoming the challenges of conducting research with people who have advanced heart failure and palliative care needs. Eur J Cardiovasc Nurs. 2012 ; 11: 248-254