Surgery in young adults with inflammatory bowel disease: A narrative account

International Journal of Nursing Studies

Volumn 50, Issue 11, 2013, Pages 1566-1575

  Allison, Marion ^a   Lindsay, James ^a   Gould, Dinah ^b   Kelly, Daniel ^b  

^a ROYAL LONDON HOSPITAL   (United Kingdom)

^b CARDIFF UNIVERSITY   (United Kingdom)

Author keywords

Inflammatory bowel disease; Narrative study; Surgery; Young people

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; ARTICLE; FEMALE; HUMAN; INFLAMMATORY BOWEL DISEASE; MALE; MENTAL STRESS; NARRATIVE STUDY; PSYCHOLOGICAL ASPECT; SURGERY; VERBAL COMMUNICATION; YOUNG ADULT; YOUNG PEOPLE;

INFLAMMATORY BOWEL DISEASE; NARRATIVE STUDY; SURGERY; YOUNG PEOPLE;

ADAPTATION, PSYCHOLOGICAL; ADULT; FEMALE; HUMANS; INFLAMMATORY BOWEL DISEASES; MALE; NARRATION; STRESS, PSYCHOLOGICAL; YOUNG ADULT;

EID: 84884131322     PISSN: 00207489     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.ijnurstu.2013.04.003     Document Type: Article

References (47)

1. Arnett J. Emerging adulthood: a theory of development from the teens through the twenties. American Psychologist 2000, 55:469-480.
2. Berndtsson I., Oresland T., Hulten L. Sexuality in patients with ulcerative colitis before and after restorative proctocolectomy: a prospective study. Scandinavian Journal of Gastroenterology 2004, 39(4):374-379.
3. British Society of Gastroenterology Guidelines for the Management of Inflammatory Bowel Disease in Adults 2003, BSG, London.
4. Brown H., Randle J. Living with a stoma: a review of the literature. Journal of Clinical Nursing 2005, 14:74-81.
5. Camilleri-Brennan J., Munro A., Steele R. Does an ileoanal pouch offer a better quality of life than a permanent ileostomy for patients with ulcerative colitis?. Journal of Gastrointestinal Surgery 2003, 7(6):814-819.
6. Carmon E., Keidar A., Ravid A., Goldman G., Rabau M. The correlation between quality of life and functional outcome in ulcerative colitis patients after proctocolectomy ileal pouch anal anastomosis. Colorectal Disease 2003, 5(3):228-232.
7. Coffey J.C., Winter D., Neary P., Murphy A., Redmond H., Kirwan W. Quality of life after ileal pouch-anal anastomosis: an evaluation of diet and other factors using the Cleveland Global Quality of Life instrument. Diseases of the Colon and Rectum 2002, 45:30-38.
8. Cresswell J. Narrative research designs. Educational Research: Planning Conducting and Evaluating Quantitative and Qualitative Research 2008, 511-550. Pearson Education, Inc., Upper Saddle River, NJ. 3rd ed.
9. Daniel J. Young adults' perceptions of living with chronic Inflammatory Bowel Disease. Gastroenterology Nursing 2002, 25(3):83-94.
10. da Silva G., Hull T., Roberts P., Ruiz D., Wexner S., Weiss E., Nogueras J., Daniel N., Bast J., Hammel J., Sands D. The effect of colorectal surgery in female sexual function, body image. Self-esteem and general health: a prospective study. Annals of Surgery 2008, 248(2):266-272.
11. Fazio V., O'Riordain M., Lavery I., Church J., Lau P., Strong S., Hull T. Long-term functional outcome and quality of life after stapled restorative proctocolectomy. Annals of Surgery 1999, 230(4):575-584.
12. Freeman H. Comparison of long-standing paediatric onset and adult onset Crohn's disease. Journal of Paediatric Gastroenterology and Nutrition 2004, 39:183-186.
13. Galandiuk S., Kimberling J., Al-Mishlab T., Stromberg A. Perianal Crohn's disease: predictors of need for permanent diversion. Annals of Surgery 2005, 241(5):796-802.
14. Goodhand J., Dawson R., Hefferon M., Tshuma N., Swanson G., Wahed M., Croft N., Lindsay J. Inflammatory Bowel Disease in young people: the case for transitional clinics. Inflammatory Bowel Diseases 2010, 16(6):947-952.
15. Gupta N., Cohen S., Bostrom A., Kirschner B., Baldassano R., Winter H., Ferry G., Smith T., Abramson O., Gold B., Heyman M. Risk factors for initial surgery in paediatric patients with Crohn's disease. Gastroenterology 2006, 130(4):1069-1077.
16. Haglund K. Conducting life history research with adolescents. Qualitative Health Research 2004, 14:1309-1319.
17. Häuser W., Dietz N., Steder-Neukamm U., Janke K., Stallmach A. Biopsychosocial determinants of health-related quality of life after ileal pouch anal anastomosis for ulcerative colitis. Inflammatory Bowel Diseases 2004, 10(4):399-407.
18. Hwang J., Varma M. Surgery for Inflammatory Bowel Disease. World Journal of Gastroenterology 2008, 14(17):2678-2690.
19. Hymans J., Davis P., Lere T., Justinich C., Markowitz J. Clinical outcome of ulcerative colitis in children. Journal of Paediatrics 1996, 129:81-88.
20. Irvine E. Review article: patients' fears and unmet needs in Inflammatory Bowel Disease. Alimentary Pharmacology and Therapeutics 2004, 20(Suppl.):54-59.
21. Kyngäs H. Patient education: perspective of adolescents with a chronic disease. Journal of Clinical Nursing 2003, 12:744-751.
22. Lynch T., Spence D. A qualitative study of youth living with Crohn's disease. Gastroenterology Nursing 2007, 31(3):224-230.
23. McGuire B., Brannigan A., O'Connell P. Review: Ileal pouch - anal anastomosis British Journal of Surgery 2007, 94(7):812-823.
24. Mishler E. Research Interviewing: Context and Narrative 1986, Harvard University Press, Cambridge, MA.
25. Moser G., Tillinger W., Sachs G., Genser D., Maier-Dobersberger T., Spiess K., Wyatt J., Vogelsang H., Lochs H., Gangl A. Disease related worries and concerns: a study on outpatients with Inflammatory Bowel Disease. European Journal of Gastroenterology and Hepatology 1995, 7(9):853.
26. Moses P., Moore B., Ferrentino N., Bensen S., Vecchio J. Inflammatory Bowel Disease: 1 origins, presentation and course. Postgraduate Medicine 1998, 103(5):77-84.
27. Muller K., Prosser R., Bampton P., Mountifield R., Andrews J. Female gender and surgery impair relationships body image, and sexuality in Inflammatory Bowel Disease. Inflammatory Bowel Diseases 2010, 16:657-663.
28. Notter J., Bernard P. Preparing for loop ileostomy surgery: women's accounts from a qualitative study. International Journal of Nursing Studies 2006, 43:147-159.
29. Persson E., Hellström A. Experiences of Swedish men and women 6-12 weeks after Ostomy surgery. Journal of Wound, Ostomy and Continence Nursing 2002, 29(2):103-108.
30. Pikarsky A., Gervaz P., Wexner S. Perianal Crohn's disease: a new scoring system to evaluate and predict outcome of surgical intervention. Archives of Surgery 2002, 137:774-777.
31. Rayhorn N. Treatment of Inflammatory Bowel Disease in the adolescent. Journal of Infusion Nursing 2001, 24(4):255-262.
32. Richbourg L., Thorpe J., Rapp C. Difficulties experienced by the ostomate after hospital discharge. Journal of Wound, Ostomy and Continence Nursing 2007, 34(1):70-79.
33. Richmond, H., 2002. Learners' Lives: A Narrative Analysis. The Qualitative Report, Vol. 7, No. 3 Retrieved 11.8.2012, from http://www.nova.edu/ssss/QR/QR7-3/richmond.html.
34. Rigueiro M., Mardini H. Treatment of perianal fistulising Crohn's disease with infliximab alone or as an adjunct to examination under anaesthesias with seton placement. Inflammatory Bowel Disease 2003, 9:98-103.
35. Rubin H., Rubin I. Qualitative Interviewing: the Art of Hearing Data 2005, Sage, Thousand Oaks. 2nd ed.
36. Savard J., Woodgate R. Young peoples' experience of living with ulcerative colitis and an ostomy. Gastroenterology Nursing 2009, 32(1):33-41.
37. Schwartz D., Pemberton J., Sandborn W. Diagnosis and treatment of perianal fistulas in Crohn's disease. Annals of Internal Medicine 2001, 135:906-918.
38. Scott H., Northover J. Evaluation of surgery for perianal Crohn's fistulas. Diseases of the Colon and Rectum 1996, 39:1039-1043.
39. Sinclair L. Young adults with permanent ileostomies: experiences during the first 4 years after surgery. Journal of Wound, Ostomy and Continence Nursing 2009, 36(3):306-316.
40. Thirlby R., Sobrino M., Randall J. The long-term benefit of surgery on health-related quality of life in patients with Inflammatory Bowel Disease. Archives of Surgery 2001, 136(5):521-527.
41. Thomas C., Madden F., Jehu D. Psychological effects of stomas: 1. Psychosocial morbidity one year after surgery. Journal of Psychosomatic Research 1987, 31(3):311-316.
42. Thorpe G., MacArthur M., Richardson B. Bodily change following faecal stoma formation: qualitative interpretive synthesis. Journal of Advanced Nursing 2009, 65(9):1778-1789.
43. Van Dongen L., Lubbers E. Perianal fisulas in patients with Crohn's disease. Archives of Surgery 1996, 121:187-1190.
44. Van Limbergen J., Russell R., Drummong H., Aldhous M., Round N., Nimmo E., Smith L., Gillett P., McGrogan P., Weaver L., Bisset W., Mahdi G., Arnoot I., Satsangi J., Wilson D. Definition of phenotype characteristics of child-onset Inflammatory Bowel Disease. Gastroenterology 2008, 135:1114-1122.
45. Vernier-Massouille G., Balde M., Salleron J., Turck D., Dupas J., Mouterde O., Merle V., Salomez J., Branche J., Marti R., Lerebours E., Cortot A., Gower-Rousseau C., Colomberl J. Natural history of pediatric Crohn's disease: a population-based cohort study. Gastroenterology 2008, 135(4). 1106-1103.
46. Wengraf T. Qualitative Research Interviewing 2001, Sage, Thousand Oaks.
47. White C., Unwin J. Postoperative adjustment to surgery resulting in the formation of a stoma: the importance of stoma-related cognitions. British Journal of Health Psychology 1998, 3:85-93.