A qualitative study of youth living with crohn disease

Gastroenterology Nursing

Volumn 31, Issue 3, 2008, Pages 224-230

  Lynch, Teresa ^a   Spence, Deb ^b  

^a CHRISTCHURCH HOSPITAL   (New Zealand)

^b AUCKLAND UNIVERSITY OF TECHNOLOGY   (New Zealand)

Author keywords

[No Author keywords available]

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ADULT; ANGER; ARTICLE; ATTITUDE TO HEALTH; CHILD BEHAVIOR; CHILD PSYCHOLOGY; COST OF ILLNESS; CROHN DISEASE; DAILY LIFE ACTIVITY; FEAR; FEMALE; HEALTH SERVICE; HUMAN; MALE; MENTAL STRESS; MORALITY; NEW ZEALAND; NURSING METHODOLOGY RESEARCH; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; QUALITY OF LIFE; QUESTIONNAIRE; SELF CARE; SOCIAL BEHAVIOR; SOCIAL SUPPORT;

ACTIVITIES OF DAILY LIVING; ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADOLESCENT BEHAVIOR; ADOLESCENT PSYCHOLOGY; ADULT; ANGER; ATTITUDE TO HEALTH; COST OF ILLNESS; CROHN DISEASE; FEAR; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; MALE; MORALE; NEW ZEALAND; NURSING METHODOLOGY RESEARCH; QUALITATIVE RESEARCH; QUALITY OF LIFE; QUESTIONNAIRES; SELF CARE; SOCIAL BEHAVIOR; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL;

EID: 49249105944     PISSN: 1042895X     EISSN: 15389766     Source Type: Journal    
DOI: 10.1097/01.SGA.0000324114.01651.65     Document Type: Article

References (42)

1. Ballinger, A. B., Savage, M. O., & Sanderson, I. R. (2003). Delayed puberty associated with inflammatory bowel disease. Paediatric Research, 53(2), 205-210.
2. Baron, M. (2002). Crohn's disease in children: This chronic illness can be painful and isolating but new treatments may help. American Journal of Nursing, 102(10), 26-34.
3. British Society of Gastroenterology. (2001a). Provision of endoscopy related services in district general hospitals - BSG working party report. London: Author.
4. British Society of Gastroenterology. (2001b). Clinical practice guidelines: The nurse endoscopist. London: Author.
5. Calsbeek, H., Rijken, M., Bekkers, M. J., Kerssens, J. J., Dekker, J., & van Berge Henegouwen, G. (2002). Social position of adolescents with chronic digestive disorders. European Journal of Gastroenterology and Hepatology, 14(5), 543-549.
6. Crohn's and Colitis Foundation of America Web site. (2004). Crohn's disease. Retrieved August 8, 2004, from http://www.nlm.nih.gov/medlineplus/ crohnsdisease.html
7. Crohn's and Colitis Support Group (CCSG), Inc. (2000, March). Issues in the management of paediatric IBD. Paper presented at the 2000 Ferring IBD Symposium, Auckland, New Zealand.
8. Cutcliffe, J., & McKenna, H. (2004). Expert qualitative researchers and the use of audit trails. Journal of Advanced Nursing, 45(2), 126-133.
9. Daniel, J. (2002). Young adults' perceptions of living with chronic inflammatory bowel disease. Gastroenterology Nursing, 25(3), 83-94.
10. Decker, J. (2000). The effects of inflammatory bowel disease on adolescents. Gastroenterology Nursing, 23(2), 63-66.
11. Engstrom, I. (1999). Inflammatory bowel disease in children and adolescents: Mental health and family functioning. Journal of Pediatric Gastroenterology and Nutrition, 28(4), S28-S33.
12. Farrant, B., & Watson, P. D. (2004). Health care delivery: Perspectives of young people with chronic illness and their parents. Journal of Paediatrics and Child Health, 40(4), 175-179.
13. Ferry, G. D. (1999). Quality of life in inflammatory bowel disease: Background and definitions. Journal of Pediatric Gastroenterology and Nutrition, 28(4), S15-S18.
14. Gearry, R. B., Richardson, A., Frampton, C. M. A., Collett, J. A., Burt, M. J., Chapman, B. A., et al. (2006). High incidence of Crohn's disease in Canterbury, New Zealand: Results of an epidemiologic study. Inflammatory Bowel Diseases, 12(10), 936-943.
15. Gerson, M. J. (2002). Psychosomatics and psychoanalytic theory: The psychology of ulcerative colitis and Crohn's disease. Psychoanalytic Psychology, 19(2), 380-388.
16. Holloway, I., & Wheeler, S. (2002). Qualitative research in nursing (2nd ed.). Oxford, England: Blackwell.
17. Joachim, G. (2002). An assessment of social support in people with inflammatory bowel disease. Gastroenterology Nursing, 25(6), 246-252.
18. Kinash, R., Fischer, D. G., Lukie, B., & Carr, T. (1993). Inflammatory bowel disease impact and patient characteristics. Gastroenterology Nursing, 15, 147-155.
19. Klonowski, E. I., & Masoodi, J. E. (1999). The patient with Crohn's disease. Registered Nurse, 62(3), 32-38.
20. Lindberg, E., Lindquist, B., Holmquist, L., & Hildebrand, H. (2000). Inflammatory bowel disease in children and adolescents in Sweden, 1984-1995. Journal of Pediatric Gastroenterology and Nutrition, 30(3), 259-264.
21. Litchfield, M. (1998). The scope of advanced nursing practice. Nursing Praxis in New Zealand, 13(3), 13-24.
22. Luker, K., & Caress, A. L. (1989). Rethinking patient education. Journal of Advanced Nursing, 14, 711-718.
23. Marx, G., & Seidman, E. G. (1999). Inflammatory bowel disease in pediatric patients. Current Opinion in Gastroenterology, 15(4), 322-325.
24. Metcalf, C. (2002). Crohn's disease: An overview. Nursing Standard, 16(31), 45-52.
25. Morse, J. M., & Field, P. A. (1995). Qualitative research methods for health professionals (2nd ed.). Thousand Oaks, CA: Sage.
26. Mittermaier, C, Dejaco, C, Waldhoer, T, Oefferlbauer-Ernst, A., Miehsler, W, Beier, M., et al. (2004). Impact of depressive mood on relapse in patients with inflammatory bowel disease: A prospective 18-month follow-up study. Psychosomatic Medicine, 66(1), 79-84.
27. Nursing Council of New Zealand. (2001). The nurse practitioner™: Responding to health needs in New Zealand. Wellington, New Zealand: Author.
28. Patton, M. Q. (1990). Qualitative evaluation and research methods (2nd ed.). Newbury Park, CA: Sage.
29. Polit, D. F, Beck, C. T, & Hungler, B. D. (2001). Essentials of nursing research: Methods, appraisal and utilisation (5th ed.). Philadelphia, PA: Lippincott.
30. Rabbett, H., Elbadri, A., Thwaites, R., Northover, H., Dady, I., Firth, D., et al. (1996). Quality of life in children with Crohn's disease. Journal of Pediatric Gastroenterology and Nutrition, 23(5), 528-533.
31. Rowlinson, A. (1999a). Inflammatory bowel disease. 1: Aetiology and pathogenesis. British Journal of Nursing, 8(13), 858-862.
32. Rowlinson, A. (1999b). Inflammatory bowel disease. 2: Medical and surgical treatment. British Journal of Nursing, 8(14), 926-930.
33. Rowlinson, A. (1999c). Inflammatory bowel disease. 3: Importance of partnership in care. British Journal of Nursing, 8(15), 1013-1018.
34. Sands, B. E. (2002). Gastrointestinal and liver disease: Pathophysiology, diagnosis, management (7th ed.). Philadelphia, PA: Saunders.
35. Smith, G. D., Watson, R., Roger, D., McRorie, E., Hurst, N., Luman, W, et al. (2002). Impact of a nurse-led counselling service on quality of life in patients with inflammatory bowel disease. Journal of Advanced Nursing, 38(2), 152-160.
36. Smith, M., & M. Bryant, J. L. (2002). Mind-body and mind-gut connection in inflammatory bowel disease. Gastroenterology Nursing, 25(5), 213-217.
37. Smith, M. W (2003). Newly diagnosed with IBD. Retrieved March 24, 2004, from http://www.medscape.com/ viewarticle/464916-print
38. Smolen, D., & Topp, R. (1998). Coping methods of patients with inflammatory bowel disease and prediction of perceived health, functional status, and well-being. Gastroenterology Nursing, 21(3), 112-118, 153.
39. Streubert-Speziale, H., & Carpenter, D. (2003). Qualitative research in nursing: Advancing the humanistic imperative (3rd ed.). Philadelphia, PA: Lippincott, Williams & Wilkins.
40. United Kingdom Central Council for Nursing, Midwifery & Health Visiting. (1992a). Code of professional conduct. London: Author.
41. United Kingdom Central Council for Nursing, Midwifery & Health Visiting. (1992b). Scope of professional practice. London: Author.
42. United Kingdom Central Council for Nursing, Midwifery & Health Visiting. (1996). Guidelines for professional practice. London: Author.