Health-related quality of life for children with rare diagnoses, their parents' satisfaction with life and the association between the two

Health and Quality of Life Outcomes

Volumn 11, Issue 1, 2013, Pages

  Johansen, Heidi ^a   Dammann, Brede ^a   Andresen, Inger Lise ^a   Fagerland, Morten Wang ^b  

^a SUNNAAS REHABILITATION HOSPITAL   (Norway)

^b OSLO UNIVERSITY HOSPITAL   (Norway)

Author keywords

Children's health related quality of life; Disabilities; Parent's satisfaction of life; PedsQL; Rare disorders; School children; SWLS

Indexed keywords

ADULT; ARTICLE; CHILD; CHILDHOOD DISEASE; CROSS-SECTIONAL STUDY; DISEASE ASSOCIATION; EMOTION; FEMALE; HUMAN; LIFE SATISFACTION; MAJOR CLINICAL STUDY; MALE; QUALITY OF LIFE; RARE DISEASE; SATISFACTION WITH LIFE SCALE; SCHOOL; SCHOOL CHILD; SOCIAL INTERACTION; ADOLESCENT; EDUCATION; HANDICAPPED CHILD; HEALTH STATUS; NORWAY; PARENT; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; SATISFACTION; SOCIAL PARTICIPATION;

ADOLESCENT; CHILD; CROSS-SECTIONAL STUDIES; DISABLED CHILDREN; EDUCATION; FEMALE; HEALTH STATUS; HUMANS; MALE; NORWAY; PARENTS; PERSONAL SATISFACTION; QUALITY OF LIFE; QUESTIONNAIRES; RARE DISEASES; SOCIAL PARTICIPATION;

EID: 84883511674     PISSN: None     EISSN: 14777525     Source Type: Journal    
DOI: 10.1186/1477-7525-11-152     Document Type: Article

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