Impact of prostheses on function and quality of life for children with unilateral congenital below-the-elbow deficiency

Journal of Bone and Joint Surgery

Volumn 88, Issue 11, 2006, Pages 2356-2365

  James, Michelle A ^a   Bagley, Anita M ^a   Brasington, Katherine ^b   Lutz, Cheryl ^c   McConnell, Sharon ^b   Molitor, Fred ^d  

^a SHRINERS HOSPITALS FOR CHILDREN NORTHERN CALIFORNIA   (United States)

^b SHRINERS HOSPITALS FOR CHILDREN   (United States)

^c SHRINERS HOSPITALS FOR CHILDREN   (United States)

^d ETR ASSOCIATES   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; ARM MALFORMATION; ARTICLE; CONTROLLED STUDY; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; PEDIATRIC OUTCOMES DATA COLLECTION INSTRUMENT; PEDIATRIC QUALITY OF LIFE INVENTORY; PRESCHOOL CHILD; PRIORITY JOURNAL; PROSTHESIS; PROSTHETIC UPPER EXTREMITY FUNCTIONAL INDEX; SCHOOL CHILD; SCORING SYSTEM; SOCIAL ASPECT; TASK PERFORMANCE; TREATMENT OUTCOME; UNILATERAL BELOW THE ELBOW TEST; UNILATERAL CONGENITAL BELOW THE ELBOW DEFICIENCY; VALIDATION PROCESS;

EID: 33750839616     PISSN: 00219355     EISSN: None     Source Type: Journal    
DOI: 10.2106/JBJS.E.01146     Document Type: Article

References (25)

1. Bochmann D, Clarke M. Prosthetic management of infants with upper extremity deficiencies. Can J Occup Ther. 1971;38:167-70.
2. Brooks MB, Shaperman J. Infant prosthetic fitting. A study of the results. Am J Occup Ther. 1965;19:329-34.
3. Curran B, Hambrey R. The prosthetic treatment of upper limb deficiency. Prosthet Orthot Int. 1991;15:82-7.
4. Kuyper MA, Breedijk M, Mulders AH, Post MW, Prevo AJ. Prosthetic management of children in The Netherlands with upper limb deficiencies. Prosthet Orthot Int. 2001;25:228-34.
5. Lamb DW, MacNaughtan AK, Fragiadakis EG. Congenital absence of the upper limb and hand. A review of the benefits in prehension and bimanual function by early prosthetic replacement. Hand. 1971;3:193-9.
6. Scotland TR, Galway HR. A long-term review of children with congenital and acquired upper limb deficiency. J Bone Joint Surg Br. 1983;65:346-9.
7. Shaperman J, Landsberger SE, Setoguchi Y. Early upper limb prosthesis fitting: when and what do we fit. J Prosthet Orthot. 2003;15:11-17.
8. Postema K, van der Donk V, van Limbeek J, Rijken RA, Poelma MJ. Prosthesis rejection in children with a unilateral congenital arm defect. Clin Rehabil. 1999;13:243-9.
9. Davids JR, Wagner LV, Meyer LC, Blackhurst DW. Prosthetic management of children with unilateral congenital below-elbow deficiency. J Bone Joint Surg Am. 2006;88:1294-300.
10. Kejlaa GH. Consumer concerns and the functional value of prostheses to upper limb amputees. Prosthet Orthot Int. 1993;17:157-63.
11. Pruitt SD, Varni JW, Seid M, Setoguchi Y. Prosthesis satisfaction outcome measurement in pediatric limb deficiency. Arch Phys Med Rehabil. 1997;78:750-4.
12. Davidson J. A survey of the satisfaction of upper limb amputees with their prostheses, their lifestyles, and their abilities. J Hand Ther. 2002;15:62-70.
13. Vitale MG, Levy DE, Moskowitz AJ, Gelijns AC, Spellmann M, Verdisco L, Roye DP Jr. Capturing quality of life in pediatric orthopaedics: two recent measures compared. J Pediatr Orthop. 2001;21:629-35.
14. Roye BD, Vitale MG, Gelijns AC, Roye DP Jr. Patient-based outcomes after clubfoot surgery. J Pediatr Orthop. 2001;21:42-9.
15. Stucki G, Ewert T, Cieza A. Value and application of the ICF in rehabilitation medicine. Disabil Rehabil. 2002;24:932-8.
16. Varni JW, Burwinkle TM, Seid M, Skarr D. The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambul Pediatr. 2003;3:329-41.
17. Varni JW, Seid M, Knight TS, Uzark K, Szer IS. The PedsQL 4.0 Generic Core Scales: sensitivity, responsiveness, and impact on clinical decision-making. J Behav Med. 2002;25:175-93.
18. AAOS Outcomes Studies Committee. AAOS normative data study and outcomes instruments. American Academy of Orthopaedic Surgeons; 2004. http://www.aaos.org/wordhtml/research.htm
19. Haynes RJ, Sullivan E. The Pediatric Orthopaedic Society of North America pediatric orthopaedic functional health questionnaire: an analysis of normals. J Pediatr Orthop. 2001;21:619-21.
20. Hunsaker FG, Cioffi DA, Amadio PC, Wright JG, Caughlin B. The American Academy of Orthopaedic Surgeons outcomes instruments: normative values from the general population. J Bone Joint Surg Am. 2002;84:208-15.
21. Wright FV, Hubbard S, Jutai J, Naumann S. The Prosthetic Upper Extremity Functional Index: development and reliability testing of a new functional status questionnaire for children who use upper extremity prostheses. J Hand Ther. 2001;14:91-104.
22. Wright FV, Hubbard S, Naumann S, Jutai J. Evaluation of the validity of the prosthetic upper extremity functional index for children. Arch Phys Med Rehabil. 2003;84:518-27.
23. Bagley AM, Molitor F, Wagner LV, Tomhave W, James MA. The Unilateral Below Elbow Test: a function test for children with unilateral congenital below elbow deficiency. Dev Med Child Neurol. 2006;48:569-75.
24. Demet K, Martinet N, Guillemin F, Paysant J, Andre JM. Health related quality of life and related factors in 539 persons with amputation of upper and lower limb. Disabil Rehabil. 2003;25:480-6.
25. Crandall RC, Tomhave W. Pediatric unilateral below-elbow amputees: retrospective analysis of 34 patients given multiple prosthetic options. J Pediatr Orthop. 2002;22:380-3.