Assessment of health-related quality of life in patients with myasthenia gravis in Belgrade (Serbia)

Neurological Sciences

Volumn 33, Issue 6, 2012, Pages 1375-1381

  Basta, Ivana Z ^a   Pekmezović, Tatjana D ^a   Perić, Stojan Z ^a   Kisić Tepavčević, Darija B ^a   Rakočević Stojanović, Vidosava M ^a   Stević, Zorica D ^a   Lavrnic, Dragana V ^a  

^a UNIVERSITY OF BELGRADE   (Serbia)

Author keywords

Health related quality of life; Myasthenia gravis; Psychosocial aspects; SF 36 questionnaire

Indexed keywords

AZATHIOPRINE; CHOLINESTERASE INHIBITOR; CORTICOSTEROID; CYCLOSPORIN A; IMMUNOGLOBULIN;

ACCEPTANCE OF ILLNESS SCALE; ADULT; ARTICLE; CLINICAL FEATURE; CORTICOSTEROID THERAPY; CROSS-SECTIONAL STUDY; DISEASE SEVERITY; FEMALE; HAMILTON SCALE; HUMAN; IMMUNOSUPPRESSIVE TREATMENT; MAJOR CLINICAL STUDY; MALE; MIDDLE AGED; MULTIDIMENSIONAL SCALE OF PERCEIVED SOCIAL SUPPORT; MYASTHENIA GRAVIS; NAMED INVENTORIES, QUESTIONNAIRES AND RATING SCALES; PLASMAPHERESIS; PREDICTOR VARIABLE; PSYCHOSOCIAL CARE; QUALITY OF LIFE; SERBIA; SHORT FORM 36; THYMECTOMY; AGED; HEALTH IMPACT ASSESSMENT; HEALTH STATUS; METHODOLOGY; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; STANDARD;

ADULT; AGED; CROSS-SECTIONAL STUDIES; FEMALE; HEALTH IMPACT ASSESSMENT; HEALTH STATUS; HUMANS; MALE; MIDDLE AGED; MYASTHENIA GRAVIS; QUALITY OF LIFE; QUESTIONNAIRES; SERBIA;

EID: 84883505559     PISSN: 15901874     EISSN: 15903478     Source Type: Journal    
DOI: 10.1007/s10072-012-1170-2     Document Type: Article

References (31)

1. Meriggioli M, Sanders D (2009) Autoimmune myasthenia gravis: emerging clinical and biological heterogeneity. Lancet Neurol 8:475-490
2. Padua L, Evoli A, Aprile I, Caliandro P, Mazza S, Padua R et al. (2001) Health-related quality of life in patients with myasthenia gravis and the relationship between patient-oriented assessment and conventional measurements. Neurol Sci 22:363-369
3. Mullins L, Carpentier M, Paul R, Sanders D (2008) Diseasespecific measure of quality of life for myasthenia gravis. Muscle Nerve 38:947-956
4. Paul RH, Nash JM, Cohen R, Gilchist J, Goldstein J (2001) Quality of life and well-being of patients with myasthenia gravis. Muscle Nerve 24:512-516
5. Leonardi M, Raggi A, Antozzi C, Confalonieri P, Maggi L, Cornelio F et al. (2010) The relationship between health, disability and quality of life in myasthenia gravis: results from an Italian study. J Neurol 257:98-102
6. Raggi A, Leonardi M, Mantegazza R, Casale S, Fioravanti G (2009) Social support and self-efficacy in patients with myasthenia gravis: a common pathway towards positive health outcomes. Neurol Sci 31:41-45
7. Raggi A, Leonardi M, Antozzi C, Confaloineri P, Maggi L, Cornelio F et al. (2010) Concordance between severity of disease, disability and health-related quality of life in myasthenia gravis. Neurol Sci 31:41-45
8. Drulovic J, Pekmezovic T, Matejic B, Mesaros S, Manigoda M, Dujmovic I et al. (2007) Quality of life in patients with multiple sclerosis in Serbia. Acta Neurol Scand 115:147-152
9. Peric S, Rakocevic-Stojanovic V, Stevic Z, Basta I, Pavlovic S, Vujanac V et al. (2010) Health-related quality of life in patients with myotonic dystropy type 1 and amyotrophic lateral sclerosis. Acta Neurol Belg 110:71-77
10. Rostedt A, Padua L, Stalberg E (2006) Validation of the Swedish version of the disease-specific Myasthenia Gravis Questionnaire. Neurol Sci 27:91-96
11. Rostedt A, Padua L, Stalberg EV (2006) Correlation between regional myasthenic weakness and mental aspects of quality of life. Eur J Neurol 13:191-193
12. Twork S, Wiesmeth S, Klewer J, Pohlau D, Kuglerg J (2010) Quality of life and life circumstances in German myasthenia gravis patients. Health Qual Life Outcomes 8:129
13. Winter Y, Schepelmann K, Spottke AE, Claus D, Grothe C, Schroder R et al. (2010) Health-related quality of life in ALS, myasthenia gravis and facioscapulohumeral muscular dystrophy. J Neurol 257:1473-1481
14. Kulkantrakorn K, Sawanyawisuth K, Tiamkao S (2010) Factors correlating quality of life in patients with myasthenia gravis. Neurol Sci 31:571-573
15. Chen YT, Chang Y, Chiu HC, Yeh JH (2011) Psychosocial aspects in myasthenic patients treated by plasmapheresis. J Neurol 258:1240-1246
16. Lavrnic D, Jerebinski M, Rakocevic-Stojanovic V, Stevic Z, Lavrnic S, Pavlovic S et al. (1999) Epidemiological and clinical characteristics of myasthenia gravis in Belgrade, Yugoslavia (1983-1992). Acta Neurol Scand 100:168-174
17. Lavrnic D, Losen M, Vujic A, De Baets M, Hajdukovic LJ, Stojanovic V et al. (2005) The features of myasthenia gravis with autoantibodies to MuSK. J Neurol Neurosurg Psychiatry 76:1099-1102
18. Basta I, Pekmezovic T, Padua L, Stojanovic V, Stevic Z, Nikolic A et al. (2010) Validation of Serbian version of the disease-specific Myasthenia Gravis Questionnaire. Acta Neurol Scand 122:110-114
19. Osserman KE, Genkins G (1971) Studies in myasthenia gravis: review of twenty-year experience in over 1200 patients. Mt Sinai J Med 38:497-537
20. Stalberg E (1980) Clinical electrophysiology in myasthenia gravis. J Neurol Neurosurg Psychiatry 43:622-633
21. Jeretzki A, Barohn RJ, Ernstoff RM, Kaminski HJ, Keesey JC, Penn AS et al. (2000) Myasthenia gravis: recommendations for clinical research standards. Task Force of the Medical Scientific Advisory Board of the Myasthenia Gravis Foundation of America. Neurology 55:16-23
22. Barohn RJ, McIntire D, Herbelin L, Wolfe GI, Nations S, Bryan W (1998) Reliability testing of the Quantitative Myasthenia Gravis Score. Ann N Y Acad Sci 841:769-772
23. Hamilton M (1960) A rating scale for depression. J Neurol Neurosurg Psychiatry 23:56-62
24. Hamilton M (1959) The assessment of anxiety status by rating. Br J Med Psychol 32:50-55
25. Felton BJ, Revenson TA (1984) Coping with chronic illness: a study of illness controllability and influence of coping strategies on psychological adjustment. J Consult Clin Psychol 2:343-353
26. Zimet GD, Powell SS, Farley GK et al. (1990) Psychometric characteristics of the MSPSS. J Pers Assess 55:610-617
27. http://www.qualitymetric.com SF-36 health survey (original version) language recalls. Accessed 01 Jan 2008
28. Ware JE, Sherbourne CD (1992) 36-Item Short-Form Health Survey (SF-36). Conceptual framework and item selection. Med Care 30:473-483
29. Kulaksizoglu IB (2007) Mood and anxiety disorders in patients with myasthenia gravis: aetiology, diagnosis and treatment. CNS Drugs 21:473-481
30. Pekmezovic T, Svetel M, Ivanovic N, Dragasevic N, Petrovic I, Kisic-Tepavcevic D et al. (2009) Quality of life in patients with focal dystonia. Clin Neurol Neurosurg 111:161-164
31. Svetel M, Pekmezovic T, Tomic A, Kresojevic N, Potrebic A, Jesic R et al. (2011) Quality of life in patients with treated and clinically stable Wilson's disease. Mov Disord 26:1503-1508