Effecting healthy lifestyle changes in overweight and obese young adults with intellectual disability

American Journal on Intellectual and Developmental Disabilities

Volumn 118, Issue 3, 2013, Pages 224-243

  Pett, Marjorie ^a   Clark, Lauren ^a   Eldredge, Alison ^a   Cardell, Beth ^a   Jordan, Kristine ^a   Chambless, Cathy ^a   Burley, Jeff ^b  

^a UNIVERSITY OF UTAH   (United States)

^b Salt Lake County Copperview Recreation Center   (United States)

Author keywords

Family based interventions; Intellectual disabilities; Obesity; Physical activity

Indexed keywords

ADULT; AGE; ARTICLE; BLOOD PRESSURE; BODY MASS; COHORT ANALYSIS; COMPARATIVE STUDY; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; EDUCATION; ENDURANCE; EXERCISE; FEEDING BEHAVIOR; FEMALE; FITNESS; GLUCOSE BLOOD LEVEL; HEALTH PROMOTION; HUMAN; LIFESTYLE; MALE; MENTAL PATIENT; OBESITY; PARENT; PILOT STUDY; PSYCHOLOGICAL ASPECT;

ADULT; AGE FACTORS; BLOOD GLUCOSE; BLOOD PRESSURE; BODY MASS INDEX; COHORT STUDIES; EXERCISE; FEMALE; FOOD HABITS; HEALTH PROMOTION; HUMANS; LIFE STYLE; MALE; MENTALLY DISABLED PERSONS; OBESITY; OVERWEIGHT; PARENTS; PHYSICAL ENDURANCE; PHYSICAL FITNESS; PILOT PROJECTS; YOUNG ADULT;

EID: 84883071475     PISSN: 19447515     EISSN: 19447558     Source Type: Journal    
DOI: 10.1352/1944-7558-118.3.224     Document Type: Review

References (59)

1. Abdullah, N., Horner-Johnson, W., Drum, C. E., Krahn, G. L., Staples, E., Weisser, J., & Hammond, L. (2004). Healthy lifestyles for people with disabilities [Special Issue:Oregon]. Californian Journal ofHealth Promotion, 2, 42-54.
2. American College of Sports Medicine. (2006). ACSM's guidelines for exercise testing and prescription (7th ed.). Baltimore: Williams & Wilkins.
3. American Dietetic Association. (2004). Providing nutrition services for infants, children, and adults with developmental disabilities and special health care needs. Journal of the American Dietetic Association, 104(1), 97-107. doi: 10.1016/j.jada.2003.11.002
4. Bandura, A. (1977). Self-efficacy: Toward a unifying theory of behavioral change. Psychological Review, 84, 191-215.
5. Bandura, A. (1982). Self-efficacy: Toward a unifying theory of behavior change. Psychological Review, 84, 191-215.
6. Bandura, A. (1986). Social foundations of thought and action: A social cognitive theory. Englewood Cliffs, NJ: Prentice Hall.
7. Bartlo, P., & Klein, P. J. (2011). Physical activity benefits and needs in adults with intellectual disabilities: Systematic review of the literature. American Journal on Intellectual and Developmental Disabilities, 116, 220-232. doi: 10.1352/1944-7558-116.3.220
8. Bellg, A. J., Borrelli, B., Resnick, B., Hecht, J., Minicucci, D. S., Ory, M., Czajkowski, S. (2004). Enhancing treatment fidelity in health behavior change studies: Best practices and recommendations from the NIH Behavior Change Consortium. Health Psychology, 23, 443-451. doi: 10.1037/0278-6133.23.5.443
9. Bertoli, S., Battezzati, A., Merati, G., Margonato, V., Maggioni, M., Testolin, G., & Veicsteinas, A. (2006). Nutritional status and dietary patterns in disabled people. Nutrition Metabolism & Cardiovascular Diseases, 16(2), 100-112.
10. Bodde, A. E., & Seo, D. C. (2009). A review of social and environmental barriers to physical activity for adults with intellectual disabilities. Disability and Health Journal, 2(2), 57-66. doi: 10.1016/j.dhjo.2008.11.004
11. Braddock, D. (2008). Trends in developmental disabilities services in CMS Region 8 and the United States. Estes Park, CO: Coleman Institute for Cognitive Disabilities, University of Colorado System.
12. Bronfenbrenner, U. (1979). The ecology of human development: Experiments by nature and design. Cambridge, MA: Harvard.
13. Center for Outcome Analysis. (2004). Current abilities scale. Originally modified and adapted from the AAMR Adaptive Behavior Scale by The E & R Group, Temple University, 1978-1992.
14. Further modified and copyrighted by Conroy, J. W., 1997 and 2004. Centers for Disease Control. (2011, February). Strategic Plan, 2011-2015.Available at http://www. cdc.gov/NCBDDD/AboutUs/documents/NCBDDD-StrategicPlan-2-10-11.pdf
15. Clark, L., Pett, M. A., Chambless, C., Eldredge, A. L., Cardell, B., & Peters, M. (YEAR). Emerging independence of obese young adults with intellectual disabilities undertaking healthy lifestyle behavior changes. Manuscript in preparation.
16. Conroy, J., & Bradley, V. (1985). The Pennhurst longitudinal study: A report of five years of research and analysis. Philadelphia: Temple University Developmental Disabilities Center. Boston: Human Services Research Institute.
17. Dietary Guidelines Advisory Committee. (2005). Report of the dietary guidelines advisory committee on the dietary guidelines for Americans. City, ST: Publisher.
18. Dietz, W. H., & Gortmaker, S. L. (2001). Preventing obesity in children and adolescents. Annual Review of Public Health, 22, 337-353. doi: 10.1146/annurev.publhealth.22.1.337
19. Dubbert, P. M. (2002). Physical activity and exercise: Recent advances and current challenges. Journal of Consulting and Clinical Psychology, 70, 526-536.
20. Emerson, E. (2011). Health status and health risks of the ''hidden majority'' of adults with intellectual disability. Intellectual and Developmental Disabilities, 49, 155-165. doi: 10.1352/1934-9556-49.3.155
21. Epstein, L. H., Valoski, A., Wing, R. R., & McCurley, J. (1990). Ten-year follow-up of behavioral, family-based treatment for obese children. Journal of the American Medical Association, 264, 2519-2523.
22. Fisher, K. (2004). Health disparities and mental retardation. Journal of Nursing Scholarship, 36(1), 48-53.
23. Flegal, K. M., Carroll, M. D., Ogden, C. L., & Curtin, L. R. (2010). Prevalence and trends in obesity among US adults, 1999-2008. Journal of the American Medical Association, 303, 235-241. doi: 10.1001/jama.2009.2014
24. Fox, R. A., Rosenberg, R., & Rotatori, A. F. (1985). Parent involvement in a treatment program for obese retarded adults. Journal of Behavior Therapy and Experimental Psychiatry, 16(1), 45-48.
25. Friere, P. (1970). Pedagogy of the oppressed. New York: Continuum.
26. Fujiura, G. T., Fitzsimons, N., Marks, B., & Chicoine, B. (1997). Predictors of BMI among adults with Down syndrome: The social context of health promotion. Research in Developmental Disabilities, 18, 261-274.
27. Glenny, A. M., O'Meara, S., Melville, A., Sheldon, T. A., & Wilson, C. (1997). The treatment and prevention of obesity: A systematic review of the literature. International Journal of Obesity and Related Metabolic Disorders: Journal of the International Association for the Study of Obesity, 21, 715-737.
28. Golan, M. (2008). Parental agency target of children's health. City, Israel: Maxanna Press.
29. Golan, M., Kaufman, V., & Shahar, D. R. (2006). Childhood obesity treatment: Targeting parents exclusively v. parents and children. British Journal of Nutrition, 95, 1008-1015.
30. Gruber, K. J., & Haldeman, L. A. (2009). Using the family to combat childhood and adult obesity. Preventing Chronic Disease, 6(3), A106.
31. Haddock, C. K., Sadish, W. R., Klesges, R. C., & Stein, R. J. (1994). Treatments for childhood and adolescent obesity. Annals of Behavioral Medicine, 16, 235-244.
32. Harris, P. A., Taylor, R., Thielke, R., Payne, J., Gonzalez, N., & Conde, J. G. (2009). Research electronic data capture (REDCap)- A metadata-driven methodology and workflow process for providing translational research informatics support. Journal of Biomedical Informatics, 42, 377-381. doi: 10.1016/j.jbi.2008.08.010
33. Heller, T., Hsieh, K., & Rimmer, J. H. (2002). Barriers and supports for exercise participation among adults with Down syndrome. Journal of Gerontological Social Work, 38, 161-178.
34. Heller, T., Hsieh, K., & Rimmer, J. H. (2004). Attitudinal and psychosocial outcomes of a fitness and health education program on adults with Down syndrome 7. American Journal of Mental Retardation, 109, 175-185.
35. Heller, T., Marks, B., & Ailey, S. (2001). Exercise and nutrition health education curriculum for adults with developmental disabilities. Chicago: Rehabilitation Research and Training Center on Aging with Developmental Disabilities, University of Illinois at Chicago.
36. Heller, T., Miller, A. B., Hsieh, K., & Sterns, H. (2000). Later-life planning: Promoting knowledge of options and choice-making. Mental Retardation, 38, 395-406.
37. Heller, T., & Prohaska, T. (2001). Exercise Perceptions Scale. In T. Heller, B. A. Marks, & S. H. Ailey (Eds.), Exercise and nutrition education curriculum for adults with developmental disabilities (pp. XX-XX). Chicago: University of Illinois at Chicago, Rehabilitation Research and Training Center on Aging and Developmental Disabilities. Department of Disability and Human Development.
38. Heller, T., Rimmer, J. H., Rubin, S., Marks, B., & Ailey, S. H. (2001). Exercise barriers scale. In T. Heller, B. A. Marks, & S. H. Ailey (Eds.), Exercise and nutrition educatoin curriculum for adults with developmental disabilities. Chicago: University of Illinois at Chicago, Rehabilitation Research and Training Center on Aging and Developmental Disabilities.
39. Department of Disability and Human Development. Kovacs, M. (1992). Children's depression inventory: Manual. North Tonawanda, NY: Multi-Health Systems.
40. Lahtinen, U., Rintala, P., & Malin, A. (2007). Physical performance of individuals with intellectual disability: A 30 year follow up. Adapted Physical Activity Quarterly, 24, 125-143.
41. Mann, J., Zhou, H., McDermott, S., & Poston, M. B. (2006). Healthy behavior change of adults with mental retardation: Attendance in a health promotion program 15. American Journal of Mental Retardation, 111(1), 62-73.
42. Marks, B., Heller, T., & Sisirak, J. (2006). Exercise and nutrition health education curriculum for adults with developmental disabilities (3rd ed.). Chicago: University of Illinois Chicago.
43. Marks, B. A., & Heller, T. (2003). Bridging the equity gap: Health promotion for adults with intellectual and developmental disabilities. Nursing Clinics of North America, 38, 205-228.
44. Masson, J., Pett, M. A., Reese, S. A., Metos, J., Clark, L., Eldredge, A. L., Jordan, K. C. (2011). We can too!: Development and evaluation of lesson plans for the parents of overweight young adults with intellectual disabilities. Journal of the American Dietetic Association, 111(9, Suppl. 2), A-89.
45. McLean, N., Griffin, S., Toney, K., & Hardeman, W. (2003). Family involvement in weight control, weight maintenance and weight-loss interventions: A systematic review of randomised trials. International Journal of Obesity and Related Metabolic Disorders: Journal of the International Association for the Study of Obesity, 27, 987-1005. doi: 10.1038/sj.ijo. 0802383
46. Moran, R., Drane, W., McDermott, S., Dasari, S., Scurry, J. B., & Platt, T. (2005). Obesity among people with and without mental retardation across adulthood. Obesity Research, 12, 342-349.
47. Prochaska, J. O., & DiClemente, C. (1992). States of change in the modification of problem behaviors. In M. Hersen, R. Eisler, & P. Miller (Eds.), Progress in behavior modification (pp. 183-218). Sycamore, IL: Sycamore Publishers.
48. Ravesloot, C., Seeking, T., & White, G. (2005). Living well with a disability health promotion intervention: Improved health status for consumers and lower costs for health care policymakers. Rehabilitation Psychology, 205, 239-245.
49. Reichard, A., Stolzle, H., & Fox, M. H. (2011). Health disparities among adults with physical disabilities or cognitive limitations compared to individuals with no disabilities in the United States. Disability and Health Journal, 4(2), 59-67. doi: 10.1016/j.dhjo.2010.05.003
50. Saunders, R. R., Saunders, M. D., Donnelly, J. E., Smith, B. K., Sullivan, D. K., Guilford, B., & Rondon, M. F. (2011). Evaluation of an approach to weight loss in adults with intellectual or developmental disabilities. Intellectual and Developmental Disabilities, 49(2), 103-112. doi: 10.1352/1934-9556-49.2.103
51. Seagle, H. M., Strain, G. W., Makris, A., & Reeves, R. S. (2009). Position of the American Dietetic Association: Weight management. Journal of the American Dietetic Association, 109, 330-346.
52. Shogren, K. A., Wehmeyer, M. L., Reese, R. M., & O'Hara, D. (2006). Promoting self-determination in health and medical care: A critical component of addressing health disparities in people with intellectual disabilities. Journal of Policy and Practice in Intellecutal Disabilities, 3(2), 105-113.
53. Sutherland, G., Couch, M. A., & Iacono, T. (2002). Health issues for adults with developmental disability. Research in Developmental Disabilities, 23, 422-445.
54. Tsimaras, V. K., & Fotiadou, E. G. (2004). Effect of training on the muscle strength and dynamic balance ability of adults with Down syndrome. Journal of Strength and Conditioning Research, 18, 343-347. doi: 10.1519/R-12832.1
55. U.S. Department of Health and Human Services. (2009, October 29). The president's committee for people with intellectual disabilities, Available at http://www.acf.hhs.gov/programs/pcpid/pcpid-fact.html
56. Ware, J. E., & Sherbourne, C. D. (1992). The MOS 36-Item Short Form Health Survey (SF-36): Conceptual framework and item selection. Medical Care, 30, 473-483.
57. World Health Organization. (2000). WHO Consultation on Obesity. Obesity: Preventing and Managing the Global Epidemic. WHO Technical Report Series 894. Geneva, Switzerland: Author.
58. Wrotniak, B. H., Epstein, L. H., Paluch, R. A., & Roemmich, J. N. (2004). Parent weight change as a predictor of child weight change in family-based behavioral obesity treatment. Archives of Pediatric and Adolescent Medicine, 158, 342-347.
59. Yamaki, K. (2005). Body weight status among adults with intellectual disability in the community. Mental Retardation, 43(1), 1-10.-grant ^^University of Utah Research Foundation Faculty Seed Grant Program