Relationship between HIV Stigma and Self-Isolation among People Living with HIV in Tennessee

PLoS ONE

Volumn 8, Issue 8, 2013, Pages

  Audet, Carolyn M ^a   McGowan, Catherine C ^b   Wallston, Kenneth A ^c   Kipp, Aaron M ^d  

^a VANDERBILT UNIVERSITY MEDICAL CENTER   (United States)

^b VANDERBILT UNIVERSITY SCHOOL OF MEDICINE   (United States)

^c VANDERBILT UNIVERSITY SCHOOL OF NURSING   (United States)

^d VANDERBILT UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; ATTITUDE TO ILLNESS; CLINICAL ARTICLE; COMMUNITY; COPING BEHAVIOR; FAMILY; FEAR; FEMALE; HEALTH CARE PERSONNEL; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; MALE; MEASUREMENT ACCURACY; QUANTITATIVE ANALYSIS; SELF DISCLOSURE; SOCIAL DISCRIMINATION; SOCIAL ISOLATION; SOCIAL STIGMA; UNITED STATES; VIRUS TRANSMISSION; WORKPLACE;

ADULT; FEMALE; HIV INFECTIONS; HUMANS; MALE; MIDDLE AGED; PREJUDICE; SOCIAL ISOLATION; SOCIAL STIGMA; TENNESSEE;

EID: 84881330219     PISSN: None     EISSN: 19326203     Source Type: Journal    
DOI: 10.1371/journal.pone.0069564     Document Type: Article

References (49)

1. Goffman E, (1963) Stigma; notes on the management of spoiled identity. Englewood Cliffs, NJ: Prentice Hall. 147pp.
2. Herek GM, Capitanio JP, Widaman KF, (2002) HIV-related stigma and knowledge in the United States: prevalence and trends, 1991-1999. Am J Public Health 92: 371-377. doi:10.2105/AJPH.92.3.371. PubMed: 11867313.
3. Nyblade LC, (2006) Measuring HIV stigma: existing knowledge and gaps. Psychol Health Med 11: 335-345. doi:10.1080/13548500600595178. PubMed: 17130069.
4. Earnshaw VA, Chaudoir SR, (2009) From conceptualizing to measuring HIV stigma: a review of HIV stigma mechanism measures. AIDS Behav 13: 1160-1177. doi:10.1007/s10461-009-9593-3. PubMed: 19636699.
5. Park WB, Kim JY, Kim SH, Kim HB, Kim NJ, et al. (2008) Self-reported reasons among HIV-infected patients for missing clinic appointments. Int J STD AIDS 19: 125-126. doi:10.1258/ijsa.2007.007101. PubMed: 18334069.
6. Mills EJ, Nachega JB, Bangsberg DR, Singh S, Rachlis B, et al. (2006) Adherence to HAART: a systematic review of developed and developing nation patient-reported barriers and facilitators. PLOS Med 3: e438. doi:10.1371/journal.pmed.0030438. PubMed: 17121449.
7. Kempf MC, McLeod J, Boehme AK, Walcott MW, Wright L, et al. (2010) A qualitative study of the barriers and facilitators to retention-in-care among HIV-positive women in the rural southeastern United States: implications for targeted interventions. AIDS Patient Care STDs 24: 515-520. doi:10.1089/apc.2010.0065. PubMed: 20672971.
8. Moneyham L, McLeod J, Boehme A, Wright L, Mugavero M, et al. (2010) Perceived barriers to HIV care among HIV-infected women in the Deep South. J Assoc Nurses AIDS Care 21: 467-477. doi:10.1016/j.jana.2010.03.003. PubMed: 20430653.
9. Rintamaki LS, Davis TC, Skripkauskas S, Bennett CL, Wolf MS, (2006) Social stigma concerns and HIV medication adherence. AIDS Patient Care STDs 20: 359-368. doi:10.1089/apc.2006.20.359. PubMed: 16706710.
10. Ware NC, Wyatt MA, Tugenberg T, (2006) Social relationships, stigma and adherence to antiretroviral therapy for HIV/AIDS. AIDS Care 18: 904-910. doi:10.1080/09540120500330554. PubMed: 17012079.
11. Nachega JB, Morroni C, Zuniga JM, Sherer R, Beyrer C, et al. (2012) HIV-Related Stigma, Isolation, Discrimination, and Serostatus Disclosure: A Global Survey of 2035 HIV-Infected Adults. J Int Assoc Physicians AIDS Care (Chic) 11: 172-178. doi:10.1177/1545109712436723. PubMed: 22431893.
12. Pescosolido BA, Martin JK, Lang A, Olafsdottir S, (2008) Rethinking theoretical approaches to stigma: a Framework Integrating Normative Influences on Stigma (FINIS). Soc Sci Med 67: 431-440. doi:10.1016/j.socscimed.2008.03.018. PubMed: 18436358.
13. Rao D, Kekwaletswe TC, Hosek S, Martinez J, Rodriguez F, (2007) Stigma and social barriers to medication adherence with urban youth living with HIV. AIDS Care 19: 28-33. doi:10.1080/09540120600652303. PubMed: 17129855.
14. Mugavero MJ, (2008) Improving engagement in HIV care: what can we do? Top HIV Med 16: 156-161. PubMed: 19106431.
15. Rajabiun S, Mallinson RK, McCoy K, Coleman S, Drainoni ML, et al. (2007) "Getting me back on track": the role of outreach interventions in engaging and retaining people living with HIV/AIDS in medical care. AIDS Patient Care STDs 21 (Suppl 1):: S20-S29. doi:10.1089/apc.2006.005. PubMed: 17563286.
16. Sayles JN, Wong MD, Kinsler JJ, Martins D, Cunningham WE, (2009) The association of stigma with self-reported access to medical care and antiretroviral therapy adherence in persons living with HIV/AIDS. J Gen Intern Med 24: 1101-1108. doi:10.1007/s11606-009-1068-8. PubMed: 19653047.
17. Baunach DM, Burgess EO, (2013) HIV/AIDS Prejudice and the American South. Sociol Spectr L Mid-South Sociological Association 33: 17-195.
18. Sowell RL, Seals BF, Moneyham L, Demi A, Cohen L, et al. (1997) Quality of life in HIV-infected women in the south-eastern United States. AIDS Care 9: 501-512. doi:10.1080/713613191. PubMed: 9404393.
19. Lindley LL, Coleman JD, Gaddist BW, White J, (2010) Informing faith-based HIV/AIDS interventions: HIV-related knowledge and stigmatizing attitudes at Project F.A.I.T.H. churches in South Carolina. Public Health Rep 125 (Suppl 1):: 12-20. PubMed: 20408383.
20. Centers for Disease Control and Prevention (2011) HIV Surveillance Report, 2009. http://www.cdc.gov/hiv/surveillance/resources/reports/2009report.
21. Hanna DB, Selik RM, Tang T, Gange SJ, (2012) Disparities among US states in HIV-related mortality in persons with HIV infection, 2001-2007. AIDS 26: 95-103. doi:10.1097/QAD.0b013e32834dcf87. PubMed: 22008659.
22. Centers for Disease Control and Prevention (2011) Diagnoses of HIV infection in the United States and Dependent Areas. HIV Surveillance Report. Atlanta, GA: CDC.
23. Abadía-Barrero CE, Castro A, (2006) Experiences of stigma and access to HAART in children and adolescents living with HIV/AIDS in Brazil. Soc Sci Med 62: 1219-1228. doi:10.1016/j.socscimed.2005.07.006. PubMed: 16099573.
24. Anglewicz P, Chintsanya J, (2011) Disclosure of HIV status between spouses in rural Malawi. AIDS Care, 23: 1-8. PubMed: 21390889.
25. Brown L, Macintyre K, Trujillo L, (2003) Interventions to reduce HIV/AIDS stigma: what have we learned? AIDS Educ Prev 15: 49-69. doi:10.1521/aeap.15.1.49.23844. PubMed: 12627743.
26. Bunn JY, Solomon SE, Miller C, Forehand R, (2007) Measurement of stigma in people with HIV: a reexamination of the HIV Stigma Scale. AIDS Educ Prev 19: 198-208. doi:10.1521/aeap.2007.19.3.198. PubMed: 17563274.
27. Castro A, Farmer P, (2005) Understanding and addressing AIDS-related stigma: from anthropological theory to clinical practice in Haiti. Am J Public Health 95: 53-59. doi:10.2105/AJPH.2003.028563. PubMed: 15623859.
28. Fortenberry JD, McFarlane M, Bleakley A, Bull S, Fishbein M, et al. (2002) Relationships of stigma and shame to gonorrhea and HIV screening. Am J Public Health 92: 378-381. doi:10.2105/AJPH.92.3.378. PubMed: 11867314.
29. Mbonu NC, van den Borne B, De Vries NK, (2009) Stigma of People with HIV/AIDS in Sub-Saharan Africa: A Literature Review. J Trop Med, 2009(2009): 145891. PubMed: 20309417.
30. Meiberg AE, Bos AE, Onya HE, Schaalma HP, (2008) Fear of stigmatization as barrier to voluntary HIV counselling and testing in South Africa. East Afr J Public Health 5: 49-54. PubMed: 19024410.
31. Kalichman SC, Simbayi LC, (2003) HIV testing attitudes, AIDS stigma, and voluntary HIV counselling and testing in a black township in Cape Town, South Africa. Sex Transm Infect 79: 442-447. doi:10.1136/sti.79.6.442. PubMed: 14663117.
32. Kalichman SC, Simbayi LC, Cloete A, Mthembu PP, Mkhonta RN, et al. (2009) Measuring AIDS stigmas in people living with HIV/AIDS: the Internalized AIDS-Related Stigma Scale. AIDS Care 21: 87-93. doi:10.1080/09540120802032627. PubMed: 19085224.
33. Agee BS, Funkhouser E, Roseman JM, Fawal H, Holmberg SD, et al. (2006) Migration patterns following HIV diagnosis among adults residing in the nonurban Deep South. AIDS Care 18 (Suppl 1):: S51-S58. doi:10.1080/09540120600839355. PubMed: 16938675.
34. Holzemer WL, Human S, Arudo J, Rosa ME, Hamilton MJ, et al. (2009) Exploring HIV stigma and quality of life for persons living with HIV infection. J Assoc Nurses AIDS Care 20: 161-168. doi:10.1016/j.jana.2009.02.002. PubMed: 19427593.
35. Lichtenstein B, (2005) Caught in the clinic: African American men, stigma, and STI treatment in the Deep South. Gend Soc 18: 369-388.
36. Phillips KD, Moneyham L, Thomas SP, Gunther M, Vyavaharkar M, (2011) Social context of rural Women with HIV/AIDS. Issues Ment Health Nurs 32: 374-381. doi:10.3109/01612840.2011.568273. PubMed: 21692576.
37. Lichtenstein B, (2005) Fact Sheet: Stigma as a Barrier to HIV prevention in the Deep South. Indiana University, Bloomington. Rural Center for AIDS/STD Prevention.
38. Lichtenstein B, Laska MK, Clair JM, (2002) Chronic sorrow in the HIV-positive patient: issues of race, gender, and social support. AIDS Patient Care STDs 16: 27-38. doi:10.1089/108729102753429370. PubMed: 11839216.
39. Berger BE, Ferrans CE, Lashley FR, (2001) Measuring stigma in people with HIV: psychometric assessment of the HIV stigma scale. Res Nurs Health 24: 518-529. doi:10.1002/nur.10011. PubMed: 11746080.
40. Van Rie A, Sengupta S, Pungrassami P, Balthip Q, Choonuan S, et al. (2008) Measuring stigma associated with tuberculosis and HIV/AIDS in southern Thailand: exploratory and confirmatory factor analyses of two new scales. Trop Med Int Health 13: 21-30. doi:10.1111/j.1365-3156.2007.01971.x. PubMed: 18290998.
41. Pope C, Ziebland S, Mays N, (2000) Qualitative research in health care. Analysing qualitative data. BMJ 320: 114-116. doi:10.1136/bmj.320.7227.114. PubMed: 10625273.
42. Malterud K, (2001) Qualitative research: standards, challenges, and guidelines. Lancet 358: 483-488. doi:10.1016/S0140-6736(01)05627-6. PubMed: 11513933.
43. Simbayi LC, Kalichman S, Strebel A, Cloete A, Henda N, et al. (2007) Internalized stigma, discrimination, and depression among men and women living with HIV/AIDS in Cape Town, South Africa. Soc Sci Med 64: 1823-1831. doi:10.1016/j.socscimed.2007.01.006. PubMed: 17337318.
44. Sears B, Cooper C, Younai FS, Donohoe T, (2011) HIV Discimination in Dental Care: Results of a Discrimination Testing Study in Los Angeles County. Los Angeles, CA.
45. Coleman JD, Lindley LL, Annang L, Saunders RP, Gaddist B, (2012) Development of a framework for HIV/AIDS prevention programs in African American churches. AIDS Patient Care STDs 26: 116-124. doi:10.1089/apc.2011.0163. PubMed: 22149766.
46. Courtenay-Quirk C, Wolitski RJ, Parsons JT, Gomez CA, Seropositive Urban Men's Study Team (2006) Is HIV/AIDS Stigma Dividing The Gay Community? Perceptions of HIV-Positive Men who have Sex with Men. AIDS Educ Prev 18: 56-67.
47. Fair C, Albright J, (2012) "Don't Tell Him You Have HIV Unless He's 'The One'": Romantic Relationships Among Adolescents and Young Adults with Perinatal HIV Infection. AIDS Patient Care STDs 26: 746-754. doi:10.1089/apc.2012.0290. PubMed: 23199192.
48. Dinos S, Stevens S, Serfaty M, Weich S, King M, (2004) Stigma: the feelings and experiences of 46 people with mental illness. Qualitative study. Br J Psychiatry 184: 176-181. doi:10.1192/bjp.184.2.176. PubMed: 14754832.
49. Rafferty J, (2005) Curing the stigma of leprosy. Lepr Rev 76: 119-126. PubMed: 16038245.