Understanding and addressing AIDS-related stigma: From anthropological theory to clinical practice in Haiti

American Journal of Public Health

Volumn 95, Issue 1, 2005, Pages 53-59

  Castro, Arachu ^a   Farmer, Paul ^b  

^a HARVARD MEDICAL SCHOOL   (United States)

^b NONE

Author keywords

[No Author keywords available]

Indexed keywords

ANTIRETROVIRUS AGENT;

ACQUIRED IMMUNE DEFICIENCY SYNDROME; CLINICAL PRACTICE; CULTURAL ANTHROPOLOGY; HAITI; HEALTH CARE ACCESS; HEALTH CARE QUALITY; HIGHLY ACTIVE ANTIRETROVIRAL THERAPY; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; REVIEW; SEX DIFFERENCE; SHAME;

EMPIRICAL APPROACH; HEALTH CARE AND PUBLIC HEALTH;

ACQUIRED IMMUNODEFICIENCY SYNDROME; ADULT; ANTHROPOLOGY, CULTURAL; ANTIRETROVIRAL THERAPY, HIGHLY ACTIVE; CHILD; COUNSELING; FEMALE; HAITI; HUMANS; MALE; POVERTY; PREJUDICE; PUBLIC HEALTH PRACTICE; QUALITY OF LIFE;

EID: 11344262222     PISSN: 00900036     EISSN: None     Source Type: Journal    
DOI: 10.2105/AJPH.2003.028563     Document Type: Review

References (71)

1. Piot P. From planning to implementation: success against AIDS in the region. Opening speech at: 2nd Latin American Forum on HIV/AIDS and STIs; April 8, 2003; Havana, Cuba.
2. Valdiserri RO. HIV/AIDS stigma: an impediment to public health. Am J Public Health. 2002;92: 341-342.
3. Fortenberry JD, McFarlane M, Bleakley A, et al. Relationships of stigma and shame to gonorrhea and HIV screening. Am J Public Health. 2002;92:378-381.
4. Herek GM, Capitanio JP, Widaman KF. HIV-related stigma and knowledge in the United States: prevalence and trends, 1991-1999. Am J Public Health. 2002;92:371-377.
5. Egger M, Pauw J, Lopatatzidis A, et al. Promotion of condom use in a high-risk setting in Nicaragua: a randomised controlled trial. Lancet. 2000;355: 2101-2105.
6. Liechty C, Bangsberg D. Doubts about DOT: antiretroviral therapy for resource-poor countries. AIDS. 2003;17:1383-1387.
7. Farmer P. Infections and Inequalities: The Modern Plagues. Berkeley: University of California Press; 1999.
8. Scaling Up Antiretroviral Therapy in Resource-Limited Settings. Geneva, Switzerland: World Health Organization; 2002.
9. Weiser S, Wolfe W, Bangsberg D, et al. Barriers to antiretroviral adherence for patients living with HIV infection and AIDS in Botswana. J Acquir Immune Defic Syndr. 2003;34(3):281-288.
10. Lanièce I, Ciss M, Desclaux A, et al. Adherence to HAART and its principal determinants in a cohort of Senegalese adults. AIDS. 2003;17(suppl 3): S103-S108.
11. Delaunay K, Vidal L, Msellati P, Moatti J-P. La mise sous traitement antirétroviral dans l'Initiative: l'explicite et l'implicite d'un processus de sélection. In: Msellati P, Vidal L, Moatti J-P, eds. L'accès aux traitements du VIH/sida en Côte d'Ivoire. Aspects économiques, sociaux et comportementaux. Paris, France: Agence Nationale de Recherches sur le Sida; 2001:87-113.
12. Bond V, Chase E, Aggleton P. Stigma, HIV/AIDS and prevention of mother-to-child transmission in Zambia. Eval Program Plann. 2002;25:347-356.
13. Raviola G, Machoki MI, Mwaikambo E, Good MJD. HIV, disease plague, demoralization and "burnout": resident experience of the medical profession in Nairobi, Kenya. Cult Med Psychiatry. 2002;26: 55-86.
14. Cáceres Ureña FI, Duarte I, Moya EA, Pérez-Then E, Hasbún MJ, Tapia M. Análisis de la situación y la respuesta al VIH/SIDA en República Dominicana. Santo Domingo, Dominican Republic: Instituto de Estudios de Población y Desarrollos (IEPD) and Asociación Dominicana Pro-Bienestar de la Familia (PROFAMILIA); 1998.
15. Farmer P, Léandre F, Mukherjee J, et al. Community-based approaches to HIV treatment in resource-poor settings. Lancet. 2001;358:404-409.
16. Tuke DH. The Cagots. J Anthropol Instit Great Britain Ireland. 1880;9:376-385.
17. Goffman E. Asylums: Essays on the Social Situation of Mental Patients and Other Inmates. Garden City, NY: Anchor Books; 1961.
18. Goffman E. Stigma: Notes on the Management of Spoiled Identity. Garden City, NY: Anchor Books; 1963.
19. Weiss MG, Ramakrishna J. Stigma interventions and research for international health. Paper presented at: Stigma and Global Health: Developing a Research Agenda; September 5-7, 2001; Bethesda, Md.
20. Parker R, Aggleton P. HIV and AIDS-related stigma and discrimination: a conceptual framework and implications for action. Soc Sci Med. 2003;57:13-24.
21. Das V. Stigma, contagion, defect: issues in the anthropology of public health. Paper presented at: Stigma and Global Health: Developing a Research Agenda; September 5-7, 2001; Bethesda, Md.
22. Alonzo AA, Reynolds NR. Stigma, HIV and AIDS: an exploration and elaboration of a stigma trajectory. Soc Sci Med. 1995;41(3):303-315.
23. Wailoo K. Stigma, race, and disease in 20th century America: an historical overview. Paper presented at: Stigma and Global Health: Developing a Research Agenda; September 5-7, 2001; Bethesda, Md.
24. Brandt A. No Magic Bullet: A Social History of Venereal Disease in the United States Since 1880. Oxford, England: Oxford University Press; 1985.
25. Briggs C, Mantini-Briggs C. Stories in the Time of Cholera: Racial Profiling During a Medical Nightmare. Berkeley: University of California Press; 2003.
26. Gausset Q. AIDS and cultural practices in Africa: the case of the Tonga (Zambia). Soc Sci Med. 2001; 52(4):509-518.
27. Wojcicki JM, Malala J. Condom use, power and HIV/AIDS risk: sex-workers bargain for survival in Hillbrow/Joubert Park/Berea, Johannesburg. Soc Sci Med. 2001;53(1):99-121.
28. Simbulan NP, Aguilar AS, Flanigan T, Cu-Uvin S. High-risk behaviors and the prevalence of sexually transmitted diseases among women prisoners at the women state penitentiary in Metro Manila. Soc Sci Med. 2001;52(4):599-618.
29. Farmer P. AIDS and Accusation: Haiti and the Geography of Blame. Berkeley: University of California Press; 1992.
30. Finlinson HA, Robles RR, Colón HM, et al. Puerto Rican drug users experiences of physical and sexual abuse: comparisons based on sexual identities. J Sex Res. 2003;40(3):277-285.
31. Hue LE. Children's [sic] involvement in HIV/ AIDS support initiatives help reduce stigma and discrimination. Paper presented at: 14th International AIDS Conference; July 7, 2002; Barcelona, Spain.
32. McCauley A, Stewart H, Baker S, et al. HIV prevention programs can reduce stigma among students. Paper presented at: 14th International AIDS Conference; July 9, 2002; Barcelona, Spain.
33. Devine PG, Plant EA, Harrison K. The problem of "us" versus "them" and AIDS stigma. Am Behav Sci. 1999;42(7):1208-1224.
34. Herek GM. Illness, stigma, and AIDS. In: Costa P, Vanden GR, eds. Psychological Aspects of Serious Illness. Washington, DC: American Psychological Association; 1990:103-150.
35. Pryor JB, Reeder GD, Landau S. A social-psychological analysis of HIV-related stigma. Am Behav Sci. 1999;42(7):1189-1207.
36. Parker R, Camargo KR Jr. Pobreza e HIV/AIDS: aspectos antropológicos e sociológicos. Cad Saúde Pública. 2000;16(suppl 1):89-102.
37. Farmer P. Introducing ARVs in resource-poor settings. Plenary lecture. Paper presented at: 14th International AIDS Conference; July 10, 2002; Barcelona, Spain.
38. Castro A. Determinantes socio-politicos de la infección por VIH: violencia estructural y culpabilización de la víctima. Conferencia plenaria [Socio-political determinants of HIV: structural violence and the blaming of the victim. Plenary lecture]. Paper presented at: 2nd Latin American Forum on HIV/AIDS and STIs; April 10, 2003; Havana, Cuba.
39. Abadia-Barrero C. "I Have AIDS but I Am Happy": Children's Subjectivities, AIDS, and Social Responses in Brazil. Boston, Mass: Harvard School of Dental Medicine; 2002.
40. Foucault M. Histoire de la sexualité [The History of Sexuality]. Paris, France: Gallimard; 1976.
41. Bourdieu P. La distinction: Critique sociale du jugement [Distinction: A Social Critique of the Judgment of Taste]. Paris, France: Minuit; 1979.
42. Maluwa M, Aggleton P, Parker R. HIV- and AIDS-related stigma, discrimination, and human rights. Health Hum Rights. 2002;6(1):1-18.
43. Kleinman A, Wang W-Z, Li S-C, et al. The social course of epilepsy: chronic illness as social experience in interior China. Soc Sci Med. 1995;40(10): 1319-1330.
44. Good BJ, Good M-JDV. In the subjunctive mode: epilepsy narratives in Turkey. Soc Sci Med. 1994;38(6): 835-842.
45. Kleinman A, Kleinman J. Suffering and its professional transformation. Cult Med Psychiatry. 1991;15(3): 275-301.
46. Farmer P, Kleinman A. AIDS as human suffering. Dœdalus. 1989;118(2):135-160.
47. Whittaker AM. Living with HIV: resistance by positive people. Med Anthropol Q. 1992;6(4): 385-390.
48. Link B, Phelan J. Conceptualizing stigma. Annu Rev Sociol. 2001;27:363-385.
49. Link BG, Phelan J. On stigma and its public health implications. Paper presented at: Stigma and Global Health: Developing a Research Agenda; September 5-7, 2001; Bethesda, Md.
50. Castro A, Farmer P. Anthropologie de la violence: la culpabilisation des victimes. Notre Librairie: Revue des Littératures du Sud. 2002;148:102-108.
51. Farmer P. Pathologies of Power: Health, Human Rights, and the New War on the Poor. Berkeley: University of California Press; 2003.
52. Castro A, Farmer P. El sida y la violencia estructural: la culpabilización de la víctima. Cuadernos de Antropología Social. 2003;17:31-49.
53. Farmer P, Connors M, Simmons J, eds. Women, Poverty, and AIDS: Sex, Drugs, and Structural Violence. Monroe, Me: Common Courage Press; 1996.
54. Farmer P, Castro A. Un pilote en Haïti: de l'efficacité de la distribution d'antiviraux dans des pays pauvres, et des objections qui lui sont faites. Vacarme. 2002;19:17-22.
55. Castro A, Farmer P. Infectious disease in Haiti: HIV/AIDS, tuberculosis, and social inequalities. EMBO Rep. 2003;4(6 suppl):S20-S23.
56. Report on the HIV/AIDS Epidemic. Geneva, Switzerland: UNAIDS; 2004.
57. Castro A, Farmer P, Kim JY, et al., eds. Scaling Up Health Systems to Respond to the Challenge of HIV/AIDS in Latin America and the Caribbean. Washington, DC: Pan American Health Organization; 2003.
58. Lévi-Strauss C. Anthropologie structurale [Structural Anthropology]. Paris, France: Plon; 1958.
59. Sontag S. Illness as Metaphor. New York, NY: Farrar, Straus and Giroux; 1978.
60. Farmer P. Sending sickness: sorcery, politics, and changing concepts of AIDS in rural Haiti. Med Anthropol Q. 1990;4(1):6-27.
61. Farmer P. AIDS-talk and the constitution of cultural models. Soc Sci Med. 1994;38(6):801-809.
62. Altman D. AIDS in the Mind of America. Garden City, NY: Doubleday; 1986.
63. Freire P. Pedagogia del oprimido [The Pedagogy of the Oppressed]. Madrid, Spain: Siglo XXI; 1970.
64. Bacchus R. Legal and ethical dimensions of HIV/ AIDS. In: Howe G, Cobley A, eds. The Caribbean AIDS Epidemic. Kingston, Jamaica: University of the West Indies Press; 2000:151-185.
65. Walrond ER. Regional policies in relation to the HIV/AIDS epidemic in the Commonwealth Caribbean. In: Howe G, Cobley A, eds. The Caribbean AIDS Epidemic. Kingston, Jamaica: University of the West Indies Press; 2000:57-70.
66. Trotman L. HIV/AIDS in the workplace: the workers' perspective. In: Howe G, Cobley A, eds. The Caribbean AIDS Epidemic. Kingston, Jamaica: University of the West Indies Press; 2000:139-150.
67. Francis CR. The psychological dynamics of the AIDS epidemic in the Caribbean. In: Howe G, Cobley A, eds. The Caribbean AIDS Epidemic. Kingston, Jamaica: University of the West Indies Press; 2000:186-201.
68. Royes H. A Cultural Approach to HIV/AIDS Prevention and Care: Jamaica's Experience. Kingston, Jamaica: UNESCO, Cultural Policies for Development Unit; 1999. Studies and Reports, Special Series 8.
69. Sultan Y. Épidémiologie de l'infection par le virus LAV/HTLVIII chez les hémophiles polytransfusés en France. Résultats d'une enquête menée par 28 centres d'hémophiles. Nouv Rev Fr Hematol. 1986;28(5): 327-329.
70. Susser I, Kreniske J. Community organizing around HIV prevention in rural Puerto Rico. In: Bond GC, Kreniske J, Susser I, Vincent J, eds. AIDS in Africa and the Caribbean. Boulder, Colo: Westview Press; 1997:51-64.
71. Aggleton P, Parker R, Maluwa M. Stigma, Discrimination and HIV/AIDS in Latin America and the Caribbean. Washington, DC: Inter-American Development Bank; February 2003.