Bridging evidence and consensus methodology for inherited metabolic disorders: Creating nutrition guidelines

Journal of Evaluation in Clinical Practice

Volumn 19, Issue 4, 2013, Pages 584-590

  Singh, Rani H ^a   Rohr, Fran ^b   Splett, Patricia L ^c  

^a EMORY UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b BOSTON CHILDREN S HOSPITAL   (United States)

^c Splett and Assoc   (United States)

Author keywords

consensus method; Delphi method; evidence based; inborn error of metabolism; inherited metabolic disorder; nominal technique; nutrition; practice guidelines

Indexed keywords

ARTICLE; CONSENSUS; DELPHI STUDY; EVIDENCE BASED PRACTICE; HUMAN; INBORN ERROR OF METABOLISM; INFORMATION RETRIEVAL; METHODOLOGY; NEWBORN SCREENING; NUTRITIONAL ASSESSMENT; NUTRITIONAL HEALTH; NUTRITIONAL SUPPORT; PRACTICE GUIDELINE; PRIORITY JOURNAL;

CONSENSUS METHOD; DELPHI METHOD; EVIDENCE-BASED; INBORN ERROR OF METABOLISM; INHERITED METABOLIC DISORDER; NOMINAL TECHNIQUE; NUTRITION; PRACTICE GUIDELINES;

CONSENSUS; DELPHI TECHNIQUE; DIET THERAPY; EVIDENCE-BASED PRACTICE; HUMANS; INFANT, NEWBORN; METABOLISM, INBORN ERRORS; NUTRITION POLICY; PRACTICE GUIDELINES AS TOPIC;

EID: 84881158555     PISSN: 13561294     EISSN: 13652753     Source Type: Journal    
DOI: 10.1111/j.1365-2753.2011.01807.x     Document Type: Article

References (26)

1. Schoen, E. J., Baker, J. C., Colby, C. J., &, Trinh, T. T., (2002) Cost-benefit analysis of universal tandem mass spectrometry for newborn screening. Pediatrics, 110, 781-786.
2. Hellekson, K. L., (2001) NIH consensus statement on phenylketonuria. American Family Physician, 63 (7), 1430-1432.
3. Franz, M. J., Boucher, J. L., Green-Pastors, J., &, Powers, M. A., (2008) Evidence-based nutrition practice guidelines for diabetes and scope and standards of practice. Journal of the American Dietetic Association, 108, S52-S58.
4. Frances, A., Kahn, D., Carpenter, D., et al,. (1998) A new method of developing expert consensus practice guidelines. The American Journal of Managed Care, 4 (7), 1023-1029.
5. Lomas, J., (1991) Words without action? The production, dissemination, and impact of consensus recommendations. Annual Review of Public Health, 12, 41-65.
6. Rycroft-Malone, J., (2001) Formal consensus: the development of a national clinical guideline. Quality in Health Care, 10 (4), 238-244.
7. Arnold, G. L., Koeberl, D. D., Matern, D., et al,. (2008) A Delphi-based consensus clinical practice protocol for the diagnosis and management of 3-methylcrotonyl CoA carboxylase deficiency. Molecular Genetics and Metabolism, 93 (4), 363-370.
8. Arnold, G. L., Van Hove, J., Freedenberg, D., et al,. (2009) A Delphi clinical practice protocol for the management of very long chain acyl-CoA dehydrogenase deficiency. Molecular Genetics and Metabolism, 96 (3), 85-90.
9. Kobayashi, K., Ueno, F., Bito, S., et al,. (2007) Development of consensus statements for the diagnosis and management of intestinal Behcet's disease using a modified Delphi approach. Journal of Gastroenterology, 42 (9), 737-745.
10. Vaneau, M., Chaby, G., Guillot, B., et al,. (2007) Consensus panel recommendations for chronic and acute wound dressings. Archives of Dermatology, 143 (10), 1291-1294.
11. Rudolph, C. D., Mazur, L. J., Liptak, G. S., et al,. (2001) Guidelines for evaluation and treatment of gastroesophageal reflux in infants and children: recommendations of the North American Society for Pediatric Gastroenterology and Nutrition. Journal of Pediatric Gastroenterology and Nutrition, 32 (Suppl. 2), S1-31.
12. Rolls, K. D., &, Elliott, D., (2008) Using consensus methods to develop clinical practice guidelines for intensive care: the intensive care collaborative project. Australian Critical Care, 21 (4), 200-215.
13. Linstone, H. A., &, Turoff, M., (eds) (1975) Delphi Method: Techniques and Applications. Reading, MA: Addison-Wesley.
14. Schmidt, K., Montgomery, L. A., Bruene, D., &, Kenney, M., (1997) Determining research priorities in pediatric nursing: a Delphi study. Journal of Pediatric Nursing, 12 (4), 201-207.
15. Likert, R. A., (1932) A technique for measurement of attitudes. Archives of Psychology, 140, 44-53.
16. Raine, R., Sanderson, C., &, Black, N., (2005) Developing clinical guidelines: a challenge to current methods. BMJ, 331 (7517), 631-633.
17. Hasson, F., Keeney, S., &, McKenna, H., (2000) Research guidelines for the Delphi survey technique. Journal of Advanced Nursing, 32 (4), 1008-1015.
18. Van de Ven, A. H., &, Delbecq, A. L., (1972) The nominal group as a research instrument for exploratory health studies. American Journal of Public Health, 62 (3), 337-342.
19. Jones, J., &, Hunter, D., (1995) Consensus methods for medical and health services research. BMJ, 311 (7001), 376-380.
20. Guyatt, G. H., Oxman, A. D., Vist, G. E., et al,. (2008) GRADE: an emerging consensus on rating quality of evidence and strength of recommendations. BMJ, 336 (7650), 924-926.
21. Fitch, K., Bernstein, S. J., Aguilar, M. S., et al,. (2001) The RAND/UCLA Appropriateness Method User's Manual.
22. American Diabetic Association (2008) Evidence Analysis Manual: steps in the ADA Evidence Analysis Process. American Dietetic Association, Scientific Affairs and Research: Chicago, IL, Fall, 2008.
23. AGREE Collaboration (2001) The Appraisal of Guidelines for Research and Evaluation (AGREE) Instrument In. London: The AGREE Research Trust.
24. Hutchings, A., Raine, R., Sanderson, C., &, Black, N., (2006) A comparison of formal consensus methods used for developing clinical guidelines. Journal of Health Services Research and Policy, 11 (4), 218-224.
25. Hutchings, A., &, Raine, R., (2006) A systematic review of factors affecting the judgments produced by formal consensus development methods in health care. Journal of Health Services Research and Policy, 11 (3), 172-179.
26. Wong, R. C., &, Favaloro, E. J., (2008) A consensus approach to the formulation of guidelines for laboratory testing and reporting of antiphospholipid antibody assays. Seminars in Thrombosis and Hemostasis, 34 (4), 361-372.