Measuring activity and participation in children and adolescents with disabilities: A literature review of available instruments

Australian Occupational Therapy Journal

Volumn 60, Issue 4, 2013, Pages 288-300

  Phillips, Rebecca L ^a,b   Olds, Tim ^a   Boshoff, Kobie ^a   Lane, Alison E ^c  

^a UNIVERSITY OF SOUTH AUSTRALIA   (Australia)

^b AUSTRALIAN NATIONAL UNIVERSITY   (Australia)

^c THE OHIO STATE UNIVERSITY COLLEGE OF MEDICINE   (United States)

Author keywords

Health; ICF; Outcome assessment (health care); Quality of life; Wellbeing; World Health Organization

Indexed keywords

ADOLESCENT; AUSTRALIA; CHILD; DAILY LIFE ACTIVITY; DISABILITY; DISABLED PERSON; FEMALE; HANDICAPPED CHILD; HEALTH; HUMAN; HUMAN RELATION; ICF; MALE; METHODOLOGY; OCCUPATIONAL THERAPY; OUTCOME ASSESSMENT; PRESCHOOL CHILD; QUALITY OF LIFE; REPRODUCIBILITY; REVIEW; STATISTICS; WELLBEING; WORLD HEALTH ORGANIZATION; YOUNG ADULT;

HEALTH; ICF; OUTCOME ASSESSMENT (HEALTH CARE); QUALITY OF LIFE; WELLBEING; WORLD HEALTH ORGANIZATION;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; AUSTRALIA; CHILD; CHILD, PRESCHOOL; DISABILITY EVALUATION; DISABLED CHILDREN; DISABLED PERSONS; FEMALE; HUMANS; INTERPERSONAL RELATIONS; MALE; OCCUPATIONAL THERAPY; QUALITY OF LIFE; REPRODUCIBILITY OF RESULTS; YOUNG ADULT;

EID: 84881023230     PISSN: 00450766     EISSN: 14401630     Source Type: Journal    
DOI: 10.1111/1440-1630.12055     Document Type: Review

References (41)

1. AIHW. (2003). ICF Australian user guide version 1.0. Canberra, Australia: Australian Institute of Health and Welfare.
2. Bedell, G. & Coster, W. (2008). Measuring participation of school-aged children with traumatic brain injuries: Considerations and approaches. Journal of Head Trauma Rehabilitation, 23 (4), 220-229.
3. Bedell, G. M. & Dumas, H. M. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18 (1), 65-82.
4. Berg, C. & LaVesser, P. (2006). The preschool activity card sort. OTJR: Occupation, Participation and Health, 26 (4), 143-151.
5. Coster, W., Bedell, G., Law, M., Khetani, M. A., Teplicky, R., Liljenquist, K. et al. (2011). Psychometric evaluation of the participation and environment measure for children and youth. Developmental Medicine and Child Neurology, 53 (11), 1030-1037.
6. Coster, W., Law, M., Bedell, G., Khetani, M., Cousins, M. & Teplicky, R. (2012). Development of the participation and environment measure for children and youth: Conceptual basis. Disability and Rehabilitation, 34 (3), 238-246.
7. Davies, P. L., Soon, P. L., Young, M., & Clausen-Yamaki, A. (2004). Validity and reliability of the school function assessment in elementary school students with disabilities. Physical and Occupational Therapy in Pediatrics, 24 (3), 23-43.
8. Dijkers, M. P. (2010). Issues in the conceptualization and measurement of participation: An overview. Archives of Physical Medicine and Rehabilitation, 91 (9 Suppl), S5-S16.
9. Dijkers, M. P., Whiteneck, G. & El-Jaroudi, R. (2000). Measures of social outcomes in disability research. Archives of Physical Medicine and Rehabilitation, 81 (12 Suppl 2), S63-S80.
10. Dunn, L. (2004). Validation of the CHORES: A measure of school-aged children's participation in household tasks. Scandinavian Journal of Occupational Therapy, 11 (4), 179-190.
11. Ehrmann, L. C., Aeschleman, S. R. & Svanum, S. (1995). Parental reports of community activity patterns: A comparison between young children with disabilities and their nondisabled peers. Research in Developmental Disabilities, 16 (4), 331-343.
12. Heinemann, A. W., Tulsky, D., Dijkers, M., Brown, M., Magasi, S., Gordon, W. et al. (2010). Issues in participation measurement in research and clinical applications. Archives of Physical Medicine and Rehabilitation, 91 (9 Suppl), S72-S76.
13. Henry, A. D. (1998). Development of a measure of adolescent leisure interests. American Journal of Occupational Therapy, 52 (7), 531-539.
14. Henry, A. D. (2000). Pediatric interest profiles: Surveys of play for children and adolescents. San Antonio, TX: Therapy Skill Builders.
15. Hwang, J., Davies, P. L., Taylor, M. P. & Gavin, W. J. (2002). Validation of school function assessment with elementary school children. Occupational Therapy Journal of Research, 22 (2), 48-58.
16. Jessen, E. C., Colver, A. F., Mackie, P. C. & Jarvis, S. N. (2003). Development and validation of a tool to measure the impact of childhood disabilities on the lives of children and their families. Child: Care Health and Development, 29 (1), 21-34.
17. Kemps, R. J. J. K., Siebes, R. C., Gorter, J. W., Ketelaar, M. & Jongmans, M. J. (2011). Parental perceptions of participation of preschool children with and without mobility limitations: Validity and reliability of the PART. Disability & Rehabilitation, 33 (15/16), 1421-1432.
18. Kielhofner, G. (2004). Conceptual foundations of occupational therapy (Vol. 3rd). Philadelphia, PA: F.A. Davis Company.
19. King, G., Law, M., King, S., Hurley, P., Hanna, S., Kertoy, M. et al. (2004). Children's assessment of participation and enjoyment (CAPE) and preferences for activities of children (PAC). Texas: Harcourt Assessment Inc.
20. Law, M. (2002). Participation in the occupations of everyday life. American Journal of Occupational Therapy, 56 (6), 640-649.
21. Law, M., Baptiste, S., Carswell, A., McColl, M. A., Polatajko, H. & Pollock, N. (1998). Canadian occupational performance measure (Vol. 3rd). Canada: CAOT Publications.
22. Mackie, P. C., Jessen, E. C. & Jarvis, S. N. (1998). The Lifestyle Assessment Questionnaire: An instrument to measure the impact of disability on the lives of children with cerebral palsy and their families. Child: Care Health and Development, 24 (6), 473-486.
23. Mancini, M. C., Coster, W. J., Trombly, C. A. & Heeren, T. C. (2000). Predicting elementary school participation in children with disabilities. Archives of Physical Medicine and Rehabilitation, 81 (3), 339-347.
24. McConachie, H., Colver, A. F., Forsyth, R. J., Jarvis, S. N. & Parkinson, K. N. (2006). Participation of disabled children: How should it be characterised and measured? Disability and Rehabilitation, 28 (18), 1157-1164.
25. McManus, V., Corcoran, P. & Perry, I. J. (2008). Participation in everyday activities and quality of life in pre-teenage children living with cerebral palsy in South West Ireland. BMC Pediatrics, 8 (50), 1-10.
26. Michelsen, S. I., Flachs, E. M., Uldall, P., Eriksen, E. L., McManus, V., Parkes, J. et al. (2009). Frequency of participation of 8-12-year-old children with cerebral palsy: A multi-centre cross-sectional European study. European Journal of Paediatric Neurology, 13 (2), 165-177.
27. Mishra, A. & Rangasayee, R. (2010). Development of ICF based measuring tool for inclusive education set ups. Asia Pacific Disability Rehabilitation Journal, 21 (2), 57-69.
28. Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G. & Group, P. (2009). Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. BMJ, 339 (Journal Article), b2535.
29. Morris, C., Kurinczuk, J. J. & Fitzpatrick, R. (2005). Child or family assessed measures of activity performance and participation for children with cerebral palsy: A structured review. Child: Care, Health and Development, 31 (4), 397-407.
30. Noreau, L., Lepage, C., Boissiere, L., Picard, R., Fougeyrollas, P., Mathieu, J. et al. (2007). Measuring participation in children with disabilities using the Assessment of Life Habits. Developmental Medicine and Child Neurology, 49 (9), 666-671.
31. Portney, L.G & Watkins, M. P. (2009). Foundations of clinical research: applications to practice, 3rd ed. New Jersey, USA: Pearson/Prentice Hall.
32. Rosenberg, L., Jarus, T. & Bart, O. (2010). Development and initial validation of the Children Participation Questionnaire (CPQ). Disability and Rehabilitation, 32 (20), 1633-1644.
33. Sakzewski, L., Boyd, R. & Ziviani, J. (2007). Clinimetric properties of participation measures from 5- to 13-year-old children with cerebral palsy: A systematic review. Developmental Medicine and Child Neurology, 49 (3), 232-240.
34. Simeonsson, R. J., Carlson, D., Huntington, G. S., McMillen, J. S. & Brent, J. L. (2001). Students with disabilities: A national survey of participation in school activities. Disability and Rehabilitation, 23 (2), 49-63.
35. van Tol, E., Gorter, J. W., DeMatteo, C. & Meester-Delver, A. (2011). Participation outcomes for children with acquired brain injury: A narrative review. Brain Injury, 25 (13-14), 1279-1287. doi: 10.3109/02699052.2011.613089
36. Van de Velde, D., Bracke, P., Van Hove, G., Josephsson, S. & Vanderstraeten, G. (2010). Perceived participation, experiences from persons with spinal cord injury in their transition period from hospital to home. International Journal of Rehabilitation Research, 33 (4), 346-355.
37. Washington, L. A., Wilson, S., Engel, J. M. & Jensen, M. P. (2007). Development and preliminary evaluation of a pediatric measure of community integration: The Pediatric Community Participation Questionnaire (PCPQ). Rehabilitation Psychology, 52 (2), 241-245.
38. WHO. (2001). The international classification of functioning, disability and health. Geneva, Switzerland: World Health Organization.
39. WHO. (2007). International classification of functioning, disability and health - Children and youth. Geneva: World Health Organization.
40. Young, N. L., Williams, J. I., Yoshida, K. K. & Wright, J. G. (2000). Measurement properties of the Activities Scale for Kids. Journal of Clinical Epidemiology, 53 (2), 125-137.
41. Ziviani, J., Desha, L., Feeney, R. & Boyd, R. (2010). Measures of participation outcomes and environmental considerations for children with acquired brain injury: A systematic review. Brain Impairment, 11 (2), 93-112.