Cultural barriers to African American participation in anxiety disorders research

Journal of the National Medical Association

Volumn 105, Issue 1, 2013, Pages 33-41

  Williams, Monnica T ^a   Beckmann Mendez, Diana A ^b   Turkheimer, Eric ^c  

^a UNIVERSITY OF LOUISVILLE   (United States)

^b UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO   (United States)

^c UNIVERSITY OF VIRGINIA   (United States)

Author keywords

African Americans; Anxiety; Barriers; Health disparities; Race ethnicity; Recruitment

Indexed keywords

ADULT; AFRICAN AMERICAN; ANXIETY DISORDER; ARTICLE; CLINICAL ARTICLE; CONFIDENTIALITY; CULTURAL DEPRIVATION; FEMALE; HEALTH CARE SYSTEM; HUMAN; INTERPERSONAL COMMUNICATION; MEDICAL RESEARCH; PERSONAL EXPERIENCE; PRIORITY JOURNAL; QUALITATIVE ANALYSIS; SEMI STRUCTURED INTERVIEW; ATTITUDE TO HEALTH; COMPARATIVE STUDY; COMPREHENSION; CULTURAL ANTHROPOLOGY; ETHNOLOGY; MALE; PREVALENCE; PSYCHOLOGICAL ASPECT; UNITED STATES;

ADULT; AFRICAN AMERICANS; ANXIETY DISORDERS; ATTITUDE TO HEALTH; COMPREHENSION; CULTURE; FEMALE; HUMANS; MALE; PREVALENCE; VIRGINIA;

MLCS; MLOWN;

EID: 84880836240     PISSN: 00279684     EISSN: None     Source Type: Journal    
DOI: 10.1016/S0027-9684(15)30083-3     Document Type: Article

References (45)

1. Kessler RC, Berglund P, Demler O. Lifetime prevalence and age-of-onset distributions of DSM-IV disorders in the national comorbidity survey replication. Arch Gen Psychiatry. 2005;62(6):593-602.
2. Carter MM, Sbrocco T, Carter C. African Americans and anxiety disorders research: Development of a testable theoretical framework. Psychol Psychother Theor Res Pract. 1996;33:449-463.
3. Breslau J, Aguilar-Gaxiola S, Kendler KS, et al. Specifying race-ethnic differences in risk for psychiatric disorder in a USA national sample. Psychol Med. 2006;36(1):57-68.
4. American Psychiatric Association. Diagnostic and Statistical Manual for Mental Disorders (Fourth Edition, Text Revision). Washington, DC: American Psychiatric Press; 2000.
5. Guarnaccia PJ. A cross-cultural perspective on anxiety disorders. In: Friedman S, ed. Cultural issues in the treatment of anxiety. New York, NY: The Guilford Press; 1997:3-20.
6. Williams MT, Turkheimer E. Identification and Explanation of Racial Differences on Contamination Measures. Behav Res Ther. 2007;45(12):3041-3050.
7. Hunter LR, Schmidt NB. Anxiety psychopathology in African American adults: literature review and development of an empirically informed sociocultural model. Psychol Bull. 2010;136(2):211-235.
8. Keyes KM, Hatzenbuehler ML, Alberti P, et al. Service utilization differences for axis I psychiatric and substance use disorders between White and Black adults. Psychiatr Serv. 2008;59:893-901.
9. Barlow DH, Gorman JM, Shear MK, et al. Cognitive-behavioral therapy, imipramine, or their combination for panic disorder: a randomized controlled trial. JAMA. 2000;283:2529-2536.
10. Rollman BL, Belnap BH, Mazumdar S, et al. A randomized trial to improve the quality of treatment for panic and generalized anxiety disorders in primary care. Arch Gen Psychiatry. 2005;62:1332-1341.
11. Greist J, Marks IM, Baer L, et al. Behavior therapy for obsessive-compulsive disorder guided by a computer of by a clinician compared with relaxation as a control. J Clin Psychiatry. 2002;63(2):138-145.
12. Williams M, Powers M, Yun YG, et al. Minority representation in clinical trials for obsessive-compulsive disorder. J Anxiety Disord. 2010;24:171-177.
13. Roy-Byrne P P, Perera P, Pitts CD, et al. Paroxetine response and tolerability among ethnic minority patients with mood or anxiety disorders: a pooled analysis. J Clin Psychiatry. 2005;66:1228-1233.
14. Walkup JT, Albano AM, Piacentini J, et al. Cognitive-behavioral therapy, sertraline and their combination for children and adolescents with anxiety disorders: acute phase efficacy and safety. N Engl J Med. 2008;359(26):2753- 2766.
15. Schnurr PP, Friedman MJ, Engel CC, et al. Cognitive behavioral therapy for posttraumatic stress disorder in women: A randomized controlled trial. JAMA. 2007;297:820-830.
16. Foa EB, Hembree EA, Cahill SP, et al. Randomized trial of prolonged exposure for posttraumatic stress disorder with and without cognitive restructuring: outcome at academic and community clinics. J Consult Clin Psychol. 2005;73(5):953-964.
17. Zoellner LA, Feenv NC, Fitzgibbons LA, et al. Response of African American and Caucasian women to cognitive behavioral therapy for PTSD. Behav Ther. 1999;30:581-595.
18. Outreach Notebook for the NIH Guidelines on Inclusion of Women and Minorities as Subjects in Clinical Research. Bethesda, MD: National Institutes of Health; 2002. Department of Health and Human Services, Public Health Service NIH 03-7036.
19. Monitoring adherence to the NIH policy on the inclusion of women and minorities as subjects in clinical research. Comprehensive Report: Tracking of Human Subjects Research as Reported in Fiscal Year 2006 and Fiscal Year 2007. Table 9. Fall 2008. US Department of Health and Human Services. http://orwh.od.nih.gov/inclusion/FinalAnnualReport2007.pdf. Accessed February 26, 2009.
20. Suite DH, La Bril R, Primm A, et al. Beyond misdiagnosis, misunderstanding and mistrust: relevance of the historical perspective in the medical and mental health treatment of people of color. J Natl Med Assoc. 2007;99(8):879-885.
21. The fundamentals of mental health and mental illness, Ch 2. In Mental Health: A Report of the Surgeon General. Rockville, MD: US Department of Health and Human Services, Substance Abuse and Mental Health Services Administration, Center for Mental Health Services, National Institutes of Health, National Institute of Mental Health; 1999.
22. Gamble VN. A legacy of distrust: African Americans and medical research. Am J Prev Med. 1993;9(6 suppl):35-38.
23. Whaley AL. Cultural mistrust and mental health services for African Americans: a review an meta-analysis. Counsel Psychol. 2001;29(4):513-531.
24. Gamble VN. Under the shadow of Tuskegee: African Americans and health care. Am J Public Health. 1997;87(11):1773-1778.
25. Freimuth VS, Quinn SC, Thomas SB. African American's views on research and the Tuskegee syphilis study. Soc Sci Med. 2001;52(5):797-808.
26. Whaley AL. Cultural mistrust of white mental health clinicians among African Americans with severe mental illness. Am J Orthopsychiatry. 2001;71(2):252-256.
27. Ayalon L, Alvidrez J. The experience of Black consumers in the mental health system-Identifying barriers to and facilitators of mental health treatment using the consumers' perspective. Issues Ment Health Nurs. 2007;28:1323-1340.
28. Katz RV, Kegeles SS, Kressin NR, et al. The Tuskegee legacy project: willingness of minorities to participate in biomedical research. J Health Care Poor Underserved. 2006;17:698-715.
29. Meinert JA, Blehar MC, Peindl KS, et al. Bridging the gap: Recruitment of African-American women into mental health research studies. Acad Psychiatr. 2003;27(1):21-28.
30. Jackson JS, Torres M, Caldwell CH, et al. The National Survey of American Life: A study of racial, ethnic and cultural influences on mental disorders and mental health. Int J Meth Psychiatr Res. 2004;13(4):196-207.
31. Clay C, Ellis MA, Amodeo M, et al. Recruiting a community sample of African American subjects: The nuts and bolts of a successful effort. Families in Society. 2003;84(3):396-404.
32. Hatchett BF, Holmes K, Duran DA, et al. African Americans and research participation: The recruitment process. J Black Stud. 2000;30(5):664-675.
33. Williams MT, Turkheimer E, Magee E, et al. The effects of race and racial priming on self-report of contamination anxiety. Pers Indiv Differ. 2008;44:746-757.
34. Williams MT, Turkheimer E, Schmidt K, et al. Ethnic identification biases responses to the Padua Inventory for obsessive-compulsive disorder. Assessment. 2005;12(2):174-185.
35. Williams MT, Turkheimer E. The effects of interviewer race on anxiety in African Americans. In: Leading-Edge Health Education Issues, Sebeki LV, ed. New York, NY: Nova Publishers; 2008.
36. Marshall C, Rossman G. Designing qualitative research (3rd ed). Thousand Oaks, CA: Sage; 1999.
37. Tashakkori A, Teddle C. Handbook of mixed methods in social and behavioral research. Thousand Oaks, CA: Sage; 2003.
38. Thompson VL, Bazile A, Akbar M. African Americans' perceptions of psychotherapy and psychotherapists. Prof Psychol Res Pract. 2004;35(1):19-26.
39. Corbie-Smith G, Thomas SB, Williams MV, et al. Attitudes and beliefs of African Americans toward participation in medical research. J Gen Intern Med. 1999;14:537-546.
40. Spriggs M. Canaries in the mines: children, risk, non-therapeutic research, and justice. J Med Ethics. 2004;30:176-181.
41. Snowden LR, Hastings JF, Alvidrez J. Overrepresentation of Black Americans in Psychiatric Inpatient Care. Psychiatr Serv. 2009;60(6):779-785.
42. Friedman S, Smith LC, Halpern B, et al. Obsessive-compulsive disorder in a multi-ethnic urban outpatient clinic: initial presentation and treatment outcome with exposure and ritual prevention. Behav Ther. 2003;34:397-410.
43. Gallagher-Thompson D, Solano N, Coon D, et al. Recruitment and Retention of Latino Dementia Family Caregivers in Intervention Research: Issues to Face, Lessons to Learn. Gerontologist. 2003;43(1):45-51.
44. Williams KE, Chambless DL, Steketee G. Behavioral treatment of obsessive-compulsive disorder in African Americans: clinical issues. J Behav Ther Exp Psychiatry. 1998;29:163-170.
45. Mendoza DB, Williams MT, Chapman LK, Powers M. Minority Inclusion and Ethnic Differences in Randomized Controlled Trials of Panic Disorder. J Anxiety Disord. 2012;26(5):574-582.