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Volumn 17, Issue 4, 2006, Pages 698-715

The Tuskegee Legacy Project: Willingness of minorities to participate in biomedical research

Author keywords

Clinical studies; Minority recruitment; Participation in research; Tuskegee Syphilis Study

Indexed keywords

ADULT; ARTICLE; CLINICAL TRIAL; FEAR; FEMALE; HUMAN; MALE; MEDICAL RESEARCH; METHODOLOGY; MIDDLE AGED; MINORITY GROUP; PERSONNEL MANAGEMENT; PSYCHOLOGICAL ASPECT; RESEARCH SUBJECT; URBAN POPULATION;

EID: 33845676302     PISSN: 10492089     EISSN: None     Source Type: Journal    
DOI: 10.1353/hpu.2006.0126     Document Type: Article
Times cited : (154)

References (37)
  • 2
    • 33845652200 scopus 로고    scopus 로고
    • Legacy Committee request
    • Tuskegee Syphilis Study Legacy Committee. Reverby SM, ed. Chapel Hill, NC: University of North Carolina Press
    • Tuskegee Syphilis Study Legacy Committee. Legacy Committee request. In: Reverby SM, ed. Tuskegee's truths: rethinking the Tuskegee Syphilis Study. Chapel Hill, NC: University of North Carolina Press, 2000; 559-66.
    • (2000) Tuskegee's Truths: Rethinking the Tuskegee Syphilis Study , pp. 559-566
  • 3
    • 33750204712 scopus 로고    scopus 로고
    • Clinton regrets "clearly racist" U.S. study
    • May 17: Health
    • Mitchell A. Clinton regrets "clearly racist" U.S. study. NY Times. 1997 May 17: Health.
    • (1997) NY Times
    • Mitchell, A.1
  • 4
    • 0023480575 scopus 로고
    • Recruitment experience in clinical trials: Literature summary and annotated bibliography
    • Hunninghake DB, Darby CA, Probstfield JL. Recruitment experience in clinical trials: literature summary and annotated bibliography. Control Clin Trials. 1987 Dec;8(4 Suppl):6S-30S.
    • (1987) Control Clin Trials , vol.8 , Issue.4 SUPPL.
    • Hunninghake, D.B.1    Darby, C.A.2    Probstfield, J.L.3
  • 5
    • 0028791332 scopus 로고
    • Recruiting minorities into clinical trials: Toward a participant-friendly system
    • Dec 6
    • Swanson MS, Ward AJ. Recruiting minorities into clinical trials: toward a participant-friendly system. J Natl Cancer Inst. 1995 Dec 6;87(23):1747-59.
    • (1995) J Natl Cancer Inst , vol.87 , Issue.23 , pp. 1747-1759
    • Swanson, M.S.1    Ward, A.J.2
  • 6
    • 0026346149 scopus 로고
    • The Tuskegee Syphilis Study, 1932 to 1972: Implications for HIV education and AIDS risk education programs in the black community
    • Nov
    • Thomas SB, Quinn SC. The Tuskegee Syphilis Study, 1932 to 1972: implications for HIV education and AIDS risk education programs in the black community. Am J Public Health. 1991 Nov;81(11):1498-505.
    • (1991) Am J Public Health. , vol.81 , Issue.11 , pp. 1498-1505
    • Thomas, S.B.1    Quinn, S.C.2
  • 7
    • 0034137421 scopus 로고    scopus 로고
    • Racial disparities in biomedical research
    • Feb
    • Kressin NR, Meterko M, Wilson, NJ. Racial disparities in biomedical research. J Natl Med Assoc. 2000 Feb;92(2):62-9.
    • (2000) J Natl Med Assoc , vol.92 , Issue.2 , pp. 62-69
    • Kressin, N.R.1    Meterko, M.2    Wilson, N.J.3
  • 8
    • 0030761568 scopus 로고    scopus 로고
    • Why are African Americans underrepresented in medical research studies? Impediments to participation
    • Mar
    • Shavers-Hornaday VL, Lynch CF, Burmeister, et al. Why are African Americans underrepresented in medical research studies? Impediments to participation. Ethn Health. 1997 Mar;2(1-2):31-45.
    • (1997) Ethn Health , vol.2 , Issue.1-2 , pp. 31-45
    • Shavers-Hornaday, V.L.1    Lynch, C.F.2    Burmeister3
  • 9
    • 0027732543 scopus 로고
    • A legacy of distrust: African Americans and medical research
    • Nov-Dec
    • Gamble VN. A legacy of distrust: African Americans and medical research. Am J Prev Med. 1993 Nov-Dec;9(6 Suppl):35-8.
    • (1993) Am J Prev Med , vol.9 , Issue.6 SUPPL. , pp. 35-38
    • Gamble, V.N.1
  • 10
    • 0026947194 scopus 로고
    • Twenty years after. the legacy of the Tuskegee Syphilis Study. When evil intrudes
    • Nov-Dec
    • Caplan AL. Twenty years after. The legacy of the Tuskegee Syphilis Study. When evil intrudes. Hastings Cent Rep. 1992 Nov-Dec;22(6):29-32.
    • (1992) Hastings Cent Rep , vol.22 , Issue.6 , pp. 29-32
    • Caplan, A.L.1
  • 11
    • 0017840309 scopus 로고
    • The Tuskegee Study of syphilis: Analysis of moral versus methodologic aspects
    • Jan
    • Benedek TG. The Tuskegee Study of syphilis: analysis of moral versus methodologic aspects. J Chron Dis. 1978 Jan;31(1):35-50.
    • (1978) J Chron Dis , vol.31 , Issue.1 , pp. 35-50
    • Benedek, T.G.1
  • 12
    • 14544274619 scopus 로고    scopus 로고
    • Minority recruitment and participation in health research
    • Nov-Dec
    • Corbie-Smith GM. Minority recruitment and participation in health research. N C Med J. 2004 Nov-Dec;6(6):385-7.
    • (2004) N C Med J , vol.6 , Issue.6 , pp. 385-387
    • Corbie-Smith, G.M.1
  • 13
    • 0031230728 scopus 로고    scopus 로고
    • The Tuskegee Syphilis Study and women's health
    • Fall
    • Gamble VN. The Tuskegee Syphilis Study and women's health. J Am Med Womens Assoc. 1997 Fall;52(4):195-6.
    • (1997) J Am Med Womens Assoc , vol.52 , Issue.4 , pp. 195-196
    • Gamble, V.N.1
  • 14
    • 0036562475 scopus 로고    scopus 로고
    • Factors influencing medical information seeking among African American cancer patients
    • May-Jun
    • Matthews AK, Sellergren, SA, Manfredi C, et al. Factors influencing medical information seeking among African American cancer patients. J Health Commun. 2002 May-Jun;7(3):205-19.
    • (2002) J Health Commun , vol.7 , Issue.3 , pp. 205-219
    • Matthews, A.K.1    Sellergren, S.A.2    Manfredi, C.3
  • 15
    • 0346362492 scopus 로고    scopus 로고
    • Nuremberg and Tuskegee: Lessons for contemporary American medicine
    • Pressel DM. Nuremberg and Tuskegee: lessons for contemporary American medicine. J Natl Med Assoc. 2003 Dec;95(12): 1216-25.
    • (2003) J Natl Med Assoc , vol.95 , Issue.12 , pp. 1216-1225
    • Pressel, D.M.1
  • 16
    • 0141639684 scopus 로고    scopus 로고
    • Race, ethnic group, and clinical research
    • Oct 4
    • Rathore SS, Krumholz HM. Race, ethnic group, and clinical research. BMJ. 2003 Oct 4;327(7418):763-4.
    • (2003) BMJ , vol.327 , Issue.7418 , pp. 763-764
    • Rathore, S.S.1    Krumholz, H.M.2
  • 17
    • 0038685069 scopus 로고    scopus 로고
    • Race and trust in the health care system
    • Bouleware LE, Cooper LA, Ratner LE, et al. Race and trust in the health care system. Pub Health Rep. 2003 Jul-Aug;118(4):358-65.
    • (2003) Pub Health Rep , vol.118 , Issue.4 , pp. 358-365
    • Bouleware, L.E.1    Cooper, L.A.2    Ratner, L.E.3
  • 18
    • 22044433806 scopus 로고    scopus 로고
    • The legacy of Tuskegee and trust in medical care: Is Tuskegee responsible for race differences in mistrust of medical care?
    • Jul
    • Brandon DT, Issac LA, LaVeist, TA. The legacy of Tuskegee and trust in medical care: is Tuskegee responsible for race differences in mistrust of medical care? J Natl Med Assoc. 2005 Jul; 97(7):951-6.
    • (2005) J Natl Med Assoc , vol.97 , Issue.7 , pp. 951-956
    • Brandon, D.T.1    Issac, L.A.2    LaVeist, T.A.3
  • 19
    • 27844590755 scopus 로고    scopus 로고
    • Misinformation and misbeliefs in the Tuskegee Study of Untreated Syphilis fuel mistrust in the healthcare system
    • Nov
    • White RM. Misinformation and misbeliefs in the Tuskegee Study of Untreated Syphilis fuel mistrust in the healthcare system. J Natl Med Assoc. 2005 Nov;97(11): 1566-73.
    • (2005) J Natl Med Assoc , vol.97 , Issue.11 , pp. 1566-1573
    • White, R.M.1
  • 20
    • 0033532291 scopus 로고    scopus 로고
    • Uses and abuses of Tuskegee
    • May
    • Fairchild AL, Bayer R. Uses and abuses of Tuskegee. Science. 1999 May;284(5416): 919-21.
    • (1999) Science , vol.284 , Issue.5416 , pp. 919-921
    • Fairchild, A.L.1    Bayer, R.2
  • 21
    • 84860051726 scopus 로고
    • Charlottesville (VA), February 23, 1994. Charlottesville, VA: University of Virginia Center for Bioethics and UVA Library Historical Collections
    • "Doing Bad in the Name of Good?: The Tuskegee Syphilis Study and its Legacy" Symposium. Charlottesville (VA), February 23, 1994. Charlottesville, VA: University of Virginia Center for Bioethics and UVA Library Historical Collections, 1994.
    • (1994) "Doing Bad in the Name of Good?: The Tuskegee Syphilis Study and Its Legacy" Symposium
  • 22
    • 33845669505 scopus 로고    scopus 로고
    • Introduction. More than a metaphor: An overview of the scholarship of the study
    • Reverby SM, ed. Chapel Hill, NC: University of North Carolina Press
    • Reverby SM. Introduction. More than a metaphor: an overview of the scholarship of the study. In: Reverby SM, ed. Tuskegee's truths: rethinking the Tuskegee Syphilis Study. Chapel Hill, NC: University of North Carolina Press, 2000; 9.
    • (2000) Tuskegee's Truths: Rethinking the Tuskegee Syphilis Study , pp. 9
    • Reverby, S.M.1
  • 23
    • 0032874638 scopus 로고    scopus 로고
    • Attitudes and beliefs of African Americans toward participation in medical research
    • Sep
    • Corbie-Smith G, Thomas SB, Williams MV, et al. Attitudes and beliefs of African Americans toward participation in medical research. J Gen Intern Med. 1999 Sep; 14(9):537-46.
    • (1999) J Gen Intern Med , vol.14 , Issue.9 , pp. 537-546
    • Corbie-Smith, G.1    Thomas, S.B.2    Williams, M.V.3
  • 24
    • 0034544232 scopus 로고    scopus 로고
    • African-American attitudes regarding cancer clinical trials and research studies: Results from focus group methodology
    • Winter
    • Green BL, Partridge EE, Fouad MN, et al. African-American attitudes regarding cancer clinical trials and research studies: results from focus group methodology. Ethn Dis. 2000 Winter;10(1):76-86.
    • (2000) Ethn Dis , vol.10 , Issue.1 , pp. 76-86
    • Green, B.L.1    Partridge, E.E.2    Fouad, M.N.3
  • 25
    • 0035211813 scopus 로고    scopus 로고
    • African Americans' views on research and the Tuskegee Syphilis Study
    • Mar
    • Freimuth VS, Quinn SC, Thomas SB, et al. African Americans' views on research and the Tuskegee Syphilis Study. Soc Sci Med. 2001 Mar;52(5):797-808.
    • (2001) Soc Sci Med , vol.52 , Issue.5 , pp. 797-808
    • Freimuth, V.S.1    Quinn, S.C.2    Thomas, S.B.3
  • 26
    • 3242769268 scopus 로고    scopus 로고
    • The Tuskegee Study of Untreated Syphilis and public perceptions of biomedical research: A focus group study
    • Aug
    • Bates BR, Harris TM. The Tuskegee Study of Untreated Syphilis and public perceptions of biomedical research: a focus group study. J Nat Med Assoc. 2004 Aug; 96(8):1051-64.
    • (2004) J Nat Med Assoc , vol.96 , Issue.8 , pp. 1051-1064
    • Bates, B.R.1    Harris, T.M.2
  • 27
    • 0034232903 scopus 로고    scopus 로고
    • Factors affecting African-American participation in AIDS research
    • Jul
    • Sengupta S, Strauss RP, DeVellis R, et al. Factors affecting African-American participation in AIDS research. J Acquir Immune Defic Syndr. 2000 Jul;24(3):275-84.
    • (2000) J Acquir Immune Defic Syndr , vol.24 , Issue.3 , pp. 275-284
    • Sengupta, S.1    Strauss, R.P.2    DeVellis, R.3
  • 28
    • 0037320023 scopus 로고    scopus 로고
    • Willingness to participate in clinical treatment research among older African Americans and Whites
    • Feb
    • Brown DR, Topcu M. Willingness to participate in clinical treatment research among older African Americans and Whites. Gerontologist. 2003 Feb;43(1):62-72.
    • (2003) Gerontologist , vol.43 , Issue.1 , pp. 62-72
    • Brown, D.R.1    Topcu, M.2
  • 29
    • 0000369651 scopus 로고    scopus 로고
    • Participation in health education, health promotion, and health research by African Americans: Effects of the Tuskegee Syphilis Experiment
    • Green BL, Maisiak R, Wang MQ, et al. Participation in health education, health promotion, and health research by African Americans: Effects of the Tuskegee Syphilis Experiment. J Health Educ. 1997;28(4):196-201.
    • (1997) J Health Educ , vol.28 , Issue.4 , pp. 196-201
    • Green, B.L.1    Maisiak, R.2    Wang, M.Q.3
  • 30
    • 0034353679 scopus 로고    scopus 로고
    • Knowledge of the Tuskegee sudy and its impact on willingness to participate in medical research studies
    • Dec
    • Shavers VL, Lynch CF, Burmeister LF. Knowledge of the Tuskegee sudy and its impact on willingness to participate in medical research studies. J Natl Med Assoc. 2000 Dec; 92(12)563-72.
    • (2000) J Natl Med Assoc , vol.92 , Issue.12 , pp. 563-572
    • Shavers, V.L.1    Lynch, C.F.2    Burmeister, L.F.3
  • 31
    • 0038014114 scopus 로고    scopus 로고
    • The Tuskegee Legacy Project: History, preliminary scientific findings, and unanticipated societal benefits
    • Jan
    • Katz RV, Kegeles SS, Green BL, et al. The Tuskegee Legacy Project: history, preliminary scientific findings, and unanticipated societal benefits. Dent Clin North Am. 2003 Jan;47(1):1-19.
    • (2003) Dent Clin North Am , vol.47 , Issue.1 , pp. 1-19
    • Katz, R.V.1    Kegeles, S.S.2    Green, B.L.3
  • 32
    • 84882552788 scopus 로고
    • NIH guidelines on inclusion of women and minorities as subjects in clinical research
    • Mar 18; Available at
    • National Institutes of Health. NIH guidelines on inclusion of women and minorities as subjects in clinical research. NIH Guide. 1994 Mar 18;23:(11). Available at http://grants.nih.gov/grants/guide/notice-files/not94-100.html.
    • (1994) NIH Guide , vol.23 , Issue.11
  • 35
    • 33751224822 scopus 로고
    • Convergent and discriminant validation by the multitrait-multimethod matrix
    • Mar
    • Campbell DT, Fiske DW. Convergent and discriminant validation by the multitrait-multimethod matrix. Psychol Bull. 1959 Mar;56(2):81-105.
    • (1959) Psychol Bull , vol.56 , Issue.2 , pp. 81-105
    • Campbell, D.T.1    Fiske, D.W.2
  • 36
    • 3543036993 scopus 로고    scopus 로고
    • Special populations recruitment for the Women's Health Initiative: Successes and limitations
    • Aug
    • Fouad MN, Corbie-Smith G, Curb D, et al. Special populations recruitment for the Women's Health Initiative: successes and limitations. Control Clin Trials. 2004 Aug; 25(4):335-52.
    • (2004) Control Clin Trials , vol.25 , Issue.4 , pp. 335-352
    • Fouad, M.N.1    Corbie-Smith, G.2    Curb, D.3
  • 37
    • 33644842676 scopus 로고    scopus 로고
    • Are racial and ethnic minorities less willing to participate in health research?
    • Feb
    • Wendler D, Kington R, Madans J, et al. Are racial and ethnic minorities less willing to participate in health research? PLoS Med. 2006 Feb;3(2):e19.
    • (2006) PLoS Med , vol.3 , Issue.2
    • Wendler, D.1    Kington, R.2    Madans, J.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.