"That really shouldn't have happened": People with aphasia and their spouses narrate adverse events in hospital

Aphasiology

Volumn 27, Issue 6, 2013, Pages 706-722

  Hemsley, Bronwyn ^a   Werninck, Maryanne ^b   Worrall, Linda ^b  

^a UNIVERSITY OF NEWCASTLE   (Australia)

^b UNIVERSITY OF QUEENSLAND   (Australia)

Author keywords

Adverse events; Aphasia; Communication disorders

Indexed keywords

ADULT; AGED; APHASIA; ARTICLE; CLINICAL ARTICLE; DISTRESS SYNDROME; FEMALE; HOSPITAL ADMISSION; HUMAN; INTERPERSONAL COMMUNICATION; INTERVIEW; LANGUAGE DISABILITY; LENGTH OF STAY; LIFE EVENT; MALE; PATIENT SAFETY; SPOUSE; VERBAL COMMUNICATION;

EID: 84879555595     PISSN: 02687038     EISSN: 14645041     Source Type: Journal    
DOI: 10.1080/02687038.2012.748181     Document Type: Article

References (33)

1. Andrews, L. B., Stocking, C., Krizek, T., Gottlieb, L., Krizek, C., Vargish, T. and Siegler, M. 1997. An alternative strategy for studying adverse events in medical care. The Lancet, 349: 309 - 313. doi: 10.1016/s0140-6736(96)08268-2
2. Asplund, K., Jonsson, F., Eriksson, M., Stegmayr, B., Appelros, P., Norrving, B. and Asberg, K. H. 2009. Patient dissatisfaction with acute stroke care. Stroke, 40: 3851 - 3856. doi: 10.1161/strokeaha.109.561985
3. Atwal, A., Tattersall, K., Murphy, S., Davenport, N., Craik, C., Caldwell, K. and McIntyre, A. 2007. Older adults experiences of rehabilitation in acute health care. Scandinavian Journal of Caring Sciences, 21: 371 - 378. doi: 10.1111/j.1471-6712.2007.00469.x
4. Auditor-General for Western Australia. 2009. First do no harm: Reducing adverse events in public hospitals Report No. 10
5. Australian Commission on Quality and Safety in Healthcare. (2008). Australian charter on healthcare rights. Retrieved from http://www.safetyandquality.gov.au/our-work/national-perspectives/charter-of-healthcare-rights/ (http://www.safetyandquality.gov.au/our-work/national-perspectives/charter-of-healthcare-rights/)
6. Bartlett, G., Blais, R., Tamblyn, R., Clermont, R. J. and MacGibbon, B. 2008. Impact of patient communication problems on the risk of preventable adverse events in acute care settings. Canadian Medical Association Journal, 178,: 1555 - 1562. doi: 10.1503/cmaj.070690
7. Blackstone, S. W., Ruschke, K., Wilson-Stronks, A. and Lee, C. 2011. Converging communication vulnerabilities in health care: An emerging role for speech-language pathologists and audiologists. Newsletter of the ASHA Special Interest Division 14: Perspectives on Communication Disorders and Sciences in Culturally and Linguistically Diverse Populations, 18: 3 - 11.
8. Clinical Excellence Commission. 2007. Giving a voice to patient safety in New South Wales, Sydney: Centre for Clinical Governance Research.
9. Denzin, N. and Lincoln, Y. 1994. Handbook of qualitative research, Thousand Oaks, CA: Sage.
10. Department of Health. (2010). The Australian charter of healthcare rights in Victoria (Department of Health, Victorian Government). Retrieved from http://docs.health.vic.gov.au/docs/doc/A828F4D7161E1D77CA2578AA007DDA38/$FILE/1105029_ACHCR_A5_FA_web.pdf
11. Ebright, P. R., Urden, L., Patterson, E. and Chalko, B. 2004. Themes surrounding novice nurse near-miss and adverse-event situations. Journal of Nursing Administration, 34: 531 - 538.
12. Fleischer, S., Berg, A., Zimmermann, M., Wüste, K. and Behrens, J. 2009. Nurse-patient interaction and communication: A systematic literature review. Journal of Public Health, 17: 339 - 353. doi: 10.1007/s10389-008-0238-1
13. Hemsley, B., Balandin, S. and Togher, L. 2007. Older unpaid carers' experiences supporting adults with cerebral palsy and complex communication needs in hospital. Journal of Developmental and Physical Disabilities, 19: 115 - 124. doi: 10.1007/s10882-007-9040-1
14. Hemsley, B., Balandin, S. and Togher, L. 2008a. Family caregivers discuss roles and needs in supporting adults with cerebral palsy and complex communication needs in the hospital setting. Journal of Developmental and Physical Disabilities, 20: 257 - 274. doi: 10.1007/s10882-007-9095-z
15. Hemsley, B., Balandin, S. and Togher, L. 2008b. Professionals' views on the roles and needs of family carers of adults with cerebral palsy and complex communication needs in hospital. Journal of Intellectual & Developmental Disability, 33: 127 - 136. doi: 10.1080/13668250802082898
16. Hemsley, B., Balandin, S. and Worrall, L. 2011. The "Big 5" and beyond: Nurses, paid carers, and adults with developmental disability discuss communication needs in hospital. Applied Nursing Research, 24: e51 - e58.
17. Hemsley, B., Balandin, S. and Worrall, L. 2012. Nursing the patient with complex communication needs: Time as a barrier and a facilitator to successful communication in hospital. Journal of Advanced Nursing, 68: 116 - 126.
18. The Joint Commission. (2010) Advancing effective communication, cultural competence, and patient- and family-centered care: A roadmap for hospitals. Retrieved from http://www.jointcommission.org/
19. Morris, R., Payne, O. and Lambert, A. 2007. Patient, carer and staff experience of a hospital-based stroke service. International Journal for Quality in Health Care, 19: 105 - 112. doi: 10.1093/intqhc/mzl073
20. O'Halloran, R., Worrall, L. and Hickson, L. 2011. Environmental factors that influence communication between patients and their healthcare providers in acute hospital stroke units: An observational study. International Journal of Language & Communication Disorders, 46 (1): 30 - 47. doi: 10.3109/13682821003660380
21. Perry, L. and Middleton, S. 2011. An investigation of family carers' needs following stroke survivors' discharge from acute hospital care in Australia. Disability and Rehabilitation, 33: 1890 - 1900. doi: 10.3109/09638288.2011.553702
22. Polkinghorne, D. E. 1995. Narrative configuration in qualitative analysis. International Journal of Qualitative Studies in Education, 8: 5 - 23. doi: 10.1080/0951839950080103
23. Health, Queensland. 2010. Patient Safety: From learning to action III. Third Queensland health report on clinical incidents in the Queensland public health system 2007/8, Queensland: Queensland Government.
24. Riessman, C. K. 1993. Narrative Analysis, Newbury Park, CA: Sage.
25. Riessman, C. K. 2008. Narrative Methods for the Human Sciences, Thousand Oaks, CA: Sage.
26. Rose, T. A., Worrall, L. E., McKenna, K. T., Hickson, L. M. and Hoffmann, T. C. 2009. Do people with aphasia receive written stroke and aphasia information?. Aphasiology, 23: 364 - 392. doi: 10.1080/02687030802568108
27. Runciman, W. B., Baker, G. R., Michel, P., Jauregui, I. L., Lilford, R. J., Andermann, A., and Weeks, W. B. 2008. The epistemology of patient safety research. International Journal of Evidence-Based Healthcare, 6: 476 - 486. doi: 10.1111/j.1479-6988.2008.00117.x
28. Somerford, P. J., Lee, A. H. and Yau, K. K. W. 2004. Ischemic stroke hospital stay and discharge destination. Annals of Epidemiology, 14: 773 - 777. doi: 10.1016/j.annepidem.2004.02.003
29. State of Queensland (Queensland Health) (2002). Making the most of a visit to your health service: Your rights and responsibilities (Queensland Government [Queensland Health]). Retrieved from http://www.health.qld.gov.au/qhppc/docs/booklet.pdf
30. Weissman, J. S., Schneider, E. C., Weingart, S. N., Epstein, A. M., David-Kasdan, J., Feibelmann, S. and Gatsonis, C. 2008. Comparing patient-reported hospital adverse events with medical record review: Do patients know something that hospitals do not?. Annals of Internal Medicine, 149: 100 - 108.
31. World Health Organization, Research Priority Setting Working Group of World Health Organization for Patient Safety. 2008. Summary of the evidence on patient safety: Implications for research, Geneva: Author.
32. World Health Organization, Research Priority Setting Working Group of World Health Organization for Patient Safety. 2009. Global priorities for patient safety research: Better knowledge for safer care, Geneva: Author.
33. World Health Organization. 2011. World report on disability, Geneva: Author.