메뉴 건너뛰기




Volumn 19, Issue 2, 2007, Pages 115-124

Older unpaid carers' experiences supporting adults with cerebral palsy and complex communication needs in hospital

Author keywords

Ageing; Carers; Cerebral palsy; Complex communication needs; Hospitalization

Indexed keywords


EID: 34248370236     PISSN: 1056263X     EISSN: None     Source Type: Journal    
DOI: 10.1007/s10882-007-9040-1     Document Type: Article
Times cited : (18)

References (45)
  • 1
    • 6944252392 scopus 로고    scopus 로고
    • Making the communication connection
    • Adubato, S. (2004). Making the communication connection. Nursing Management, 35, 33-35.
    • (2004) Nursing Management , vol.35 , pp. 33-35
    • Adubato, S.1
  • 2
    • 0035406965 scopus 로고    scopus 로고
    • John Bowlby and James Robertson: Theorists, scientists and crusaders for improvements in the care of children in hospital
    • Alsop-Shields, L., & Mohay, H. (2001). John Bowlby and James Robertson: theorists, scientists and crusaders for improvements in the care of children in hospital. Journal of Advanced Nursing, 35(1), 50-58.
    • (2001) Journal of Advanced Nursing , vol.35 , Issue.1 , pp. 50-58
    • Alsop-Shields, L.1    Mohay, H.2
  • 3
    • 0035116229 scopus 로고    scopus 로고
    • Adults with cerebral palsy: A survey describing problems, needs, and resources, with special emphasis on locomotion [see comment]
    • Andersson, C., & Mattsson, E. (2001). Adults with cerebral palsy: a survey describing problems, needs, and resources, with special emphasis on locomotion [see comment]. Developmental Medicine & Child Neurology, 43(2), 76-82.
    • (2001) Developmental Medicine & Child Neurology , vol.43 , Issue.2 , pp. 76-82
    • Andersson, C.1    Mattsson, E.2
  • 4
    • 0031615184 scopus 로고    scopus 로고
    • Consumer-orientated outcomes in discharge planning: A pilot study
    • Armitage, S. K., & Kavanagh, K. M. (1998). Consumer-orientated outcomes in discharge planning: a pilot study. Journal of Clinical Nursing Inquiry, 7, 67-74.
    • (1998) Journal of Clinical Nursing Inquiry , vol.7 , pp. 67-74
    • Armitage, S.K.1    Kavanagh, K.M.2
  • 5
    • 0026889570 scopus 로고
    • Experiences of informal carers providing nursing support for disabled dependants
    • Atkinson, F. I. (1992). Experiences of informal carers providing nursing support for disabled dependants. Journal of Advanced Nursing, 17(7), 835-840.
    • (1992) Journal of Advanced Nursing , vol.17 , Issue.7 , pp. 835-840
    • Atkinson, F.I.1
  • 6
    • 4644266161 scopus 로고    scopus 로고
    • Australian Institute of Health and Welfare , Canberra: Australian Institute for Health and Welfare
    • Australian Institute of Health and Welfare (2003). Disability prevalence and trends. Canberra: Australian Institute for Health and Welfare.
    • (2003) Disability prevalence and trends
  • 10
    • 2342498092 scopus 로고    scopus 로고
    • Communicating with Nurses: The Experiences of 10 Individuals with an Acquired Severe Communication Impairment
    • Balandin, S., Hemsley, B., Sigafoos, J., Green, V., Forbes, R., Taylor, C., et al. (2001). Communicating with Nurses: The Experiences of 10 Individuals with an Acquired Severe Communication Impairment. Brain Impairment, 2(2), 109-118.
    • (2001) Brain Impairment , vol.2 , Issue.2 , pp. 109-118
    • Balandin, S.1    Hemsley, B.2    Sigafoos, J.3    Green, V.4    Forbes, R.5    Taylor, C.6
  • 13
    • 0031659174 scopus 로고    scopus 로고
    • Physical aspects of health in the learning disabled
    • Beange, H., & Lennox, N. (1998). Physical aspects of health in the learning disabled. Current Opinion in Psychiatry, 11(5), 531-534.
    • (1998) Current Opinion in Psychiatry , vol.11 , Issue.5 , pp. 531-534
    • Beange, H.1    Lennox, N.2
  • 14
    • 0029013049 scopus 로고
    • Medical disorders of adults with mental retardation: A population study
    • Beange, H., McElduff, A., & Baker, W. (1995). Medical disorders of adults with mental retardation: a population study. American Journal on Mental Retardation, 99(6), 595-604.
    • (1995) American Journal on Mental Retardation , vol.99 , Issue.6 , pp. 595-604
    • Beange, H.1    McElduff, A.2    Baker, W.3
  • 15
    • 3042636521 scopus 로고    scopus 로고
    • Parental substitutes? The role of siblings in the lives of older people with intellectual disability
    • Bigby, C. (1997). Parental substitutes? The role of siblings in the lives of older people with intellectual disability. Journal of Gerontological Social Work, 29(1), 3-21.
    • (1997) Journal of Gerontological Social Work , vol.29 , Issue.1 , pp. 3-21
    • Bigby, C.1
  • 17
    • 0036596850 scopus 로고    scopus 로고
    • The experiences of adults with cerebral palsy during periods of hospitalisation
    • Buzio, A., Morgan, J., & Blount, D. (2002). The experiences of adults with cerebral palsy during periods of hospitalisation. Australian Journal of Advanced Nursing, 19(4), 8-14.
    • (2002) Australian Journal of Advanced Nursing , vol.19 , Issue.4 , pp. 8-14
    • Buzio, A.1    Morgan, J.2    Blount, D.3
  • 19
    • 0026428173 scopus 로고
    • Physically disabled people in acute care
    • Dewing, J. (1991). Physically disabled people in acute care. Nursing Standard, 5(22), 37-39.
    • (1991) Nursing Standard , vol.5 , Issue.22 , pp. 37-39
    • Dewing, J.1
  • 20
    • 3042747304 scopus 로고    scopus 로고
    • Efraimsson, E., Sandman, P. O., Hydén, L. C., & Rasmussen, B. H. (2004). Discharge planning: 'fooling ourselves?' - patient participation in conferences. Journal of Clinical Nursing, 13, 562-570.
    • Efraimsson, E., Sandman, P. O., Hydén, L. C., & Rasmussen, B. H. (2004). Discharge planning: 'fooling ourselves?' - patient participation in conferences. Journal of Clinical Nursing, 13, 562-570.
  • 22
    • 25144495635 scopus 로고    scopus 로고
    • Quality of life in old age from the perspectives of older people
    • A. Walker & C. H. Hennessy, Eds, Maidenhead, England: Open University Press
    • Gabriel, Z., & Bowling, A. (2004). Quality of life in old age from the perspectives of older people. In A. Walker & C. H. Hennessy, (Eds.), Growing older: quality of life in old age (Vol. 9, pp. 14-34). Maidenhead, England: Open University Press.
    • (2004) Growing older: Quality of life in old age , vol.9 , pp. 14-34
    • Gabriel, Z.1    Bowling, A.2
  • 23
    • 0031875102 scopus 로고    scopus 로고
    • Rewards and gratifications among family caregivers: Towards a refined model of caring and coping
    • Grant, G., Ramcharan, P., McGrath, M., Nolan, M., & Keady, J. (1998). Rewards and gratifications among family caregivers: towards a refined model of caring and coping. Journal of Intellectual Disability Research, 42(Pt 1), 58-71.
    • (1998) Journal of Intellectual Disability Research , vol.42 , Issue.PART 1 , pp. 58-71
    • Grant, G.1    Ramcharan, P.2    McGrath, M.3    Nolan, M.4    Keady, J.5
  • 24
    • 0021457886 scopus 로고
    • The experience of stress in parents of children hospitalized with long-term disabilities
    • Hayes, V. E., & Knox, J. E. (1984). The experience of stress in parents of children hospitalized with long-term disabilities. Journal of Advanced Nursing, 9, 333-341.
    • (1984) Journal of Advanced Nursing , vol.9 , pp. 333-341
    • Hayes, V.E.1    Knox, J.E.2
  • 25
    • 11344257358 scopus 로고    scopus 로고
    • Without AAC: The Stories of Unpaid Carers of Adults with Cerebral Palsy and Complex Communication Needs in Hospital
    • 243-258, p
    • Hemsley, B., & Balandin, S. (2004). Without AAC: The Stories of Unpaid Carers of Adults with Cerebral Palsy and Complex Communication Needs in Hospital. Augmentative and Alternative Communication, 20(4), 243-258, p. 247.
    • (2004) Augmentative and Alternative Communication , vol.20 , Issue.4 , pp. 247
    • Hemsley, B.1    Balandin, S.2
  • 26
    • 34248398415 scopus 로고    scopus 로고
    • Older parent carers of adults with complex communication needs and their experiences in providing unpaid care in hospital
    • Hemsley, B., Balandin, S., & Sheard, C. (2004). Older parent carers of adults with complex communication needs and their experiences in providing unpaid care in hospital. Journal of Intellectual Disability Research, 48, 425.
    • (2004) Journal of Intellectual Disability Research , vol.48 , pp. 425
    • Hemsley, B.1    Balandin, S.2    Sheard, C.3
  • 28
    • 0345569082 scopus 로고    scopus 로고
    • London: Jessica Kingsley Publishers
    • Heron, C. (1998). Working with carers. London: Jessica Kingsley Publishers.
    • (1998) Working with carers
    • Heron, C.1
  • 29
    • 0031851735 scopus 로고    scopus 로고
    • Prevalence of chronic medical conditions in adults with mental retardation: Comparison with the general population
    • Kapell, D., Nightingale, B., Rodriguez, A., Lee, J. H., Zigman, W. B., & Schupf, N. (1998). Prevalence of chronic medical conditions in adults with mental retardation: comparison with the general population. Mental Retardation, 36(4), 269-279.
    • (1998) Mental Retardation , vol.36 , Issue.4 , pp. 269-279
    • Kapell, D.1    Nightingale, B.2    Rodriguez, A.3    Lee, J.H.4    Zigman, W.B.5    Schupf, N.6
  • 30
    • 34248345017 scopus 로고    scopus 로고
    • Kearney, P., Nagy, S., Wright, H., & Firkins, A. (2001, 11-12 October). These sorts of kids... Paper presented at the Children on the margin, 8th National Conference of the Association for the Welfare of Child Health (AWCH). Powerhouse Museum, Sydney.
    • Kearney, P., Nagy, S., Wright, H., & Firkins, A. (2001, 11-12 October). These sorts of kids... Paper presented at the Children on the margin, 8th National Conference of the Association for the Welfare of Child Health (AWCH). Powerhouse Museum, Sydney.
  • 32
    • 13544269478 scopus 로고    scopus 로고
    • Telling tales: A qualitative exploration of how children's nurses interpret work with unaccompanied hospitalized children
    • Livesley, J. (2005). Telling tales: a qualitative exploration of how children's nurses interpret work with unaccompanied hospitalized children. Journal of Clinical Nursing, 14, 43-50.
    • (2005) Journal of Clinical Nursing , vol.14 , pp. 43-50
    • Livesley, J.1
  • 33
    • 0021116106 scopus 로고
    • The effect on carers of hospital admission of the elderly
    • November 30
    • McKay, B., North, N., & Murray-Sykes, K. (1983, November 30). The effect on carers of hospital admission of the elderly. Nursing Times, 42-43.
    • (1983) Nursing Times , pp. 42-43
    • McKay, B.1    North, N.2    Murray-Sykes, K.3
  • 36
    • 0034462485 scopus 로고    scopus 로고
    • Health care professionals' support for older carers
    • Pickard, S., Shaw, S., & Glendinning, C. (2000). Health care professionals' support for older carers. Ageing and Society, 20, 725-744.
    • (2000) Ageing and Society , vol.20 , pp. 725-744
    • Pickard, S.1    Shaw, S.2    Glendinning, C.3
  • 37
    • 80054791556 scopus 로고
    • Narrative configuration in qualitative analysis
    • Polkinghome, D. E. (1995). Narrative configuration in qualitative analysis. Qualitative Studies in Education, 8(1), 5-23.
    • (1995) Qualitative Studies in Education , vol.8 , Issue.1 , pp. 5-23
    • Polkinghome, D.E.1
  • 38
    • 27744526640 scopus 로고    scopus 로고
    • The health and well-being of caregivers of children with cerebral palsy
    • Raina, P., O'Donnell, M., Rosenbaum, P., Brehau, J., Walter, S. D., Russell, D., et al. (2005). The health and well-being of caregivers of children with cerebral palsy. Pediatrics, 115, 626-636.
    • (2005) Pediatrics , vol.115 , pp. 626-636
    • Raina, P.1    O'Donnell, M.2    Rosenbaum, P.3    Brehau, J.4    Walter, S.D.5    Russell, D.6
  • 40
    • 84892853437 scopus 로고
    • A study into nursing children with disabilities in an acute care context
    • Melbourne: Centre for Studies in Paediatric Nursing, Royal Children's Hospital Melbourne
    • Robinson, A., Oxnam, C., Kelly, S., Broadbent, J., & Dillon, M. (1993). A study into nursing children with disabilities in an acute care context: The 3W Disability Awareness Group research report. Melbourne: Centre for Studies in Paediatric Nursing, Royal Children's Hospital Melbourne.
    • (1993) The 3W Disability Awareness Group research report
    • Robinson, A.1    Oxnam, C.2    Kelly, S.3    Broadbent, J.4    Dillon, M.5
  • 42
    • 0029366027 scopus 로고
    • Survey of carer satisfaction with the quality of care delivered to inpatients suffering from dementia
    • Simpson, R., Scotern, G., & Vincent, M. (1995). Survey of carer satisfaction with the quality of care delivered to inpatients suffering from dementia. Journal of Advanced Nursing, 22(3), 517-527.
    • (1995) Journal of Advanced Nursing , vol.22 , Issue.3 , pp. 517-527
    • Simpson, R.1    Scotern, G.2    Vincent, M.3
  • 43
    • 0030330539 scopus 로고    scopus 로고
    • Attitudes of nurses in a general hospital towards people with learning disabilities: Influences of contact, and graduate-non-graduate status, a comparative study
    • Slevin, E., & Sines, D. (1996). Attitudes of nurses in a general hospital towards people with learning disabilities: influences of contact, and graduate-non-graduate status, a comparative study. Journal of Advanced Nursing, 24(6), 1116-1126.
    • (1996) Journal of Advanced Nursing , vol.24 , Issue.6 , pp. 1116-1126
    • Slevin, E.1    Sines, D.2
  • 44
    • 1242294575 scopus 로고    scopus 로고
    • Decline in function and life expectancy of older persons with cerebral palsy
    • Strauss, D., Ojdana, K., Shavelle, R., & Rosenbloom, L. (2004). Decline in function and life expectancy of older persons with cerebral palsy. NeuroRehabilitation, 19(1), 69-78.
    • (2004) NeuroRehabilitation , vol.19 , Issue.1 , pp. 69-78
    • Strauss, D.1    Ojdana, K.2    Shavelle, R.3    Rosenbloom, L.4


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.