메뉴 건너뛰기




Volumn 39, Issue 4, 2013, Pages 602-612

'It is life threatening but I don't mind'. A qualitative study using photo elicitation interviews to explore adolescents' experiences of renal replacement therapies

Author keywords

Adolescents; Established renal failure; Photo elicitation Interviewing; Renal replacement therapy

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ADOLESCENT DEVELOPMENT; ARTICLE; FEMALE; FRIEND; HUMAN; KIDNEY FAILURE; MALE; MENTAL STRESS; PATIENT ATTITUDE; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; QUALITY OF LIFE; RENAL REPLACEMENT THERAPY; UNITED KINGDOM; PSYCHOLOGY;

EID: 84879172493     PISSN: 03051862     EISSN: 13652214     Source Type: Journal    
DOI: 10.1111/j.1365-2214.2012.01399.x     Document Type: Article
Times cited : (32)

References (64)
  • 1
    • 0004325090 scopus 로고    scopus 로고
    • 10 edn. Allyn & Bacon, Boston, MA, USA.
    • Bee, H. & Boyd, D. (2003) The Developing Child, 10 edn. Allyn & Bacon, Boston, MA, USA.
    • (2003) The Developing Child
    • Bee, H.1    Boyd, D.2
  • 2
    • 0345735902 scopus 로고    scopus 로고
    • From compliance to concordance: barriers to accomplishing a re-framed model of health care interactions
    • Bissell, P. (2004) From compliance to concordance: barriers to accomplishing a re-framed model of health care interactions. Social Science & Medicine, 58, 851-862.
    • (2004) Social Science & Medicine , vol.58 , pp. 851-862
    • Bissell, P.1
  • 4
    • 13444260759 scopus 로고    scopus 로고
    • ABC of adolescence: adolescent development
    • Christie, D. & Viner, R. (2005) ABC of adolescence: adolescent development. British Medical Journal, 330, 301.
    • (2005) British Medical Journal , vol.330 , pp. 301
    • Christie, D.1    Viner, R.2
  • 5
    • 79955986422 scopus 로고    scopus 로고
    • Gender and being 'bad' inner-city students' photographs
    • (ed. P. Thompson). Routledge, Abingdon, UK.
    • Clark-Ibáñez, M. (2011) Gender and being 'bad' inner-city students' photographs. In: Doing Visual Research with Children and Young People (ed. P. Thompson ), pp. 95-113. Routledge, Abingdon, UK.
    • (2011) Doing Visual Research with Children and Young People , pp. 95-113
    • Clark-Ibáñez, M.1
  • 6
    • 33645068902 scopus 로고    scopus 로고
    • Consultation with children in hospital: children, parents' and nurses' perspectives
    • Coyne, I. (2006) Consultation with children in hospital: children, parents' and nurses' perspectives. Journal of Clinical Nursing, 15, 61-71.
    • (2006) Journal of Clinical Nursing , vol.15 , pp. 61-71
    • Coyne, I.1
  • 8
    • 79958204354 scopus 로고    scopus 로고
    • Levers and barriers to patient-centred care with children: findings from a synthesis of studies of the experiences of children living with type 1 diabetes or asthma
    • Curtis-Tyler, K. (2010) Levers and barriers to patient-centred care with children: findings from a synthesis of studies of the experiences of children living with type 1 diabetes or asthma. Child: Care, Health and Development, 37, 540-550.
    • (2010) Child: Care, Health and Development , vol.37 , pp. 540-550
    • Curtis-Tyler, K.1
  • 9
    • 27744556535 scopus 로고    scopus 로고
    • Multiple methods in qualitative research with children: more insight or just more?
    • Darbyshire, P., MacDougall, C. & Schiller, W. (2005) Multiple methods in qualitative research with children: more insight or just more? Qualitative Research, 5, 417-436.
    • (2005) Qualitative Research , vol.5 , pp. 417-436
    • Darbyshire, P.1    MacDougall, C.2    Schiller, W.3
  • 10
    • 33745661664 scopus 로고    scopus 로고
    • Children's and young people's experiences of chronic renal disease: a review of the literature, methodological commentary and an alternative proposal
    • Darbyshire, P., Oster, C. & Henning, P. (2006) Children's and young people's experiences of chronic renal disease: a review of the literature, methodological commentary and an alternative proposal. Journal of Clinical Nursing, 15, 751-760.
    • (2006) Journal of Clinical Nursing , vol.15 , pp. 751-760
    • Darbyshire, P.1    Oster, C.2    Henning, P.3
  • 11
    • 24744462743 scopus 로고    scopus 로고
    • Department of Health. Part One Dialysis and Transplantation. [Online ]. Department of Health, London, UK.
    • Department of Health (2004a) The National Service Framework for Renal Services. Part One Dialysis and Transplantation. [Online ]. Department of Health, London, UK.
    • (2004) The National Service Framework for Renal Services
  • 13
    • 78650167634 scopus 로고    scopus 로고
    • Visual storytelling: a beneficial but challenging method for health research with young people
    • Drew, S., Duncan, R. & Sawyer, S. (2010) Visual storytelling: a beneficial but challenging method for health research with young people. Qualitative Health Research, 20, 1677-1688.
    • (2010) Qualitative Health Research , vol.20 , pp. 1677-1688
    • Drew, S.1    Duncan, R.2    Sawyer, S.3
  • 16
    • 0032989499 scopus 로고    scopus 로고
    • Compliance with treatment protocols: interventions for children with chronic illness
    • Fielding, D. & Duff, A. (1999) Compliance with treatment protocols: interventions for children with chronic illness. Archives of Disease in Childhood, 80, 196-200.
    • (1999) Archives of Disease in Childhood , vol.80 , pp. 196-200
    • Fielding, D.1    Duff, A.2
  • 19
    • 67649400373 scopus 로고    scopus 로고
    • Pediatric end stage renal disease health related quality of life differs by modality: a PedsQL ESRD analysis
    • Goldstein, S., Rosburg, N., Warady, B., Seikaly, M., McDonald, R., Limbers, C. & Varni, J. (2009) Pediatric end stage renal disease health related quality of life differs by modality: a PedsQL ESRD analysis. Pediatric Nephrology, 24, 1553-1560.
    • (2009) Pediatric Nephrology , vol.24 , pp. 1553-1560
    • Goldstein, S.1    Rosburg, N.2    Warady, B.3    Seikaly, M.4    McDonald, R.5    Limbers, C.6    Varni, J.7
  • 21
    • 0037701865 scopus 로고    scopus 로고
    • Effects of educational interventions for self-management of asthma in children and adolescents: systematic review and meta-analysis
    • Guevara, J., Wolf, F., Grum, G. & Clark, N. (2003) Effects of educational interventions for self-management of asthma in children and adolescents: systematic review and meta-analysis. British Medical Journal, 326, 1308-1309.
    • (2003) British Medical Journal , vol.326 , pp. 1308-1309
    • Guevara, J.1    Wolf, F.2    Grum, G.3    Clark, N.4
  • 23
    • 34249849322 scopus 로고    scopus 로고
    • Adolescents' experience of living with diabetes
    • Huus, K. & Enskär, K. (2007) Adolescents' experience of living with diabetes. Paediatric Nursing, 19, 29-31.
    • (2007) Paediatric Nursing , vol.19 , pp. 29-31
    • Huus, K.1    Enskär, K.2
  • 24
    • 71449116967 scopus 로고    scopus 로고
    • Accessing children's perspectives through participatory photo interviews
    • Art 8
    • Jorgenson, J. & Sullivan, T. (2010) Accessing children's perspectives through participatory photo interviews. Forum: Qualitative Social Research, 11, Art. 8.
    • (2010) Forum: Qualitative Social Research , vol.11
    • Jorgenson, J.1    Sullivan, T.2
  • 25
    • 34547519139 scopus 로고    scopus 로고
    • Methodological and ethical issues in conducting qualitative research with children and young people: a literature review
    • Kirk, S. (2007) Methodological and ethical issues in conducting qualitative research with children and young people: a literature review. International Journal of Nursing Studies, 44, 1250-1260.
    • (2007) International Journal of Nursing Studies , vol.44 , pp. 1250-1260
    • Kirk, S.1
  • 26
    • 77951698458 scopus 로고    scopus 로고
    • Perceptions of health care workers prescribing augmentative and alternative communication devices to children
    • Lindsay, S. (2010) Perceptions of health care workers prescribing augmentative and alternative communication devices to children. Disability and Rehabilitation, 5, 209-222.
    • (2010) Disability and Rehabilitation , vol.5 , pp. 209-222
    • Lindsay, S.1
  • 27
    • 0037291454 scopus 로고    scopus 로고
    • Medication noncompliance in patients with chronic disease: issues in dialysis and transplantation
    • Logham-Adhem, M. (2003) Medication noncompliance in patients with chronic disease: issues in dialysis and transplantation. The American Journal of Managed Care, 9, 155-171.
    • (2003) The American Journal of Managed Care , vol.9 , pp. 155-171
    • Logham-Adhem, M.1
  • 28
    • 21344456752 scopus 로고    scopus 로고
    • Long term psychosocial outcomes reported by children and adolescents with inflammatory bowel disease
    • Mackner, L. & Crandall, W. (2005) Long term psychosocial outcomes reported by children and adolescents with inflammatory bowel disease. The American Journal of Gastroenterology, 100, 1386-1392.
    • (2005) The American Journal of Gastroenterology , vol.100 , pp. 1386-1392
    • Mackner, L.1    Crandall, W.2
  • 29
    • 0036338501 scopus 로고    scopus 로고
    • Psychological adjustment in children with end stage renal disease: the impact of maternal stress and coping
    • Madden, S., Hastings, R. & V'ant Hoff, W. (2002) Psychological adjustment in children with end stage renal disease: the impact of maternal stress and coping. Child: Care, Health and Development, 28, 323-330.
    • (2002) Child: Care, Health and Development , vol.28 , pp. 323-330
    • Madden, S.1    Hastings, R.2    V'ant Hoff, W.3
  • 30
    • 0942277087 scopus 로고    scopus 로고
    • Quality of life and psychosocial development in adolescents with epilepsy: a qualitative investigation using focus group methods
    • McEwen, M., Espie, C., Metcalfe, J., Brodie, M. & Wilson, M. (2004) Quality of life and psychosocial development in adolescents with epilepsy: a qualitative investigation using focus group methods. Seizure, 13, 15-31.
    • (2004) Seizure , vol.13 , pp. 15-31
    • McEwen, M.1    Espie, C.2    Metcalfe, J.3    Brodie, M.4    Wilson, M.5
  • 31
    • 33646367891 scopus 로고    scopus 로고
    • A randomized, controlled trial of an interactive educational computer package for children with asthma
    • McPherson, A. C., Glazebrook, C., Forster, D., James, C. & Smyth, A. (2006) A randomized, controlled trial of an interactive educational computer package for children with asthma. Pediatrics, 117, 1046-1054.
    • (2006) Pediatrics , vol.117 , pp. 1046-1054
    • McPherson, A.C.1    Glazebrook, C.2    Forster, D.3    James, C.4    Smyth, A.5
  • 32
    • 4944246740 scopus 로고    scopus 로고
    • The adolescent with a chronic condition. Part II: health care provision
    • Michaud, P.-A., Suris, J.-C. & Viner, R. (2004) The adolescent with a chronic condition. Part II: health care provision. Archives of Disease in Childhood, 89, 943-949.
    • (2004) Archives of Disease in Childhood , vol.89 , pp. 943-949
    • Michaud, P.-A.1    Suris, J.-C.2    Viner, R.3
  • 33
    • 45849093718 scopus 로고    scopus 로고
    • Dialysis access and the impact on body image: role of the nephrology nurse
    • Muringai, T., Noble, H., McGowan, A. & Chamney, M. (2008) Dialysis access and the impact on body image: role of the nephrology nurse. British Journal of Nursing, 17, 362-366.
    • (2008) British Journal of Nursing , vol.17 , pp. 362-366
    • Muringai, T.1    Noble, H.2    McGowan, A.3    Chamney, M.4
  • 34
    • 17844376277 scopus 로고    scopus 로고
    • Research with children: a critical review of the guidelines
    • Neill, S. (2005) Research with children: a critical review of the guidelines. Journal of Child Health Care, 9, 46-58.
    • (2005) Journal of Child Health Care , vol.9 , pp. 46-58
    • Neill, S.1
  • 35
    • 0028868559 scopus 로고
    • Body dissatisfaction and unhealthy weight-control practices among adolescents with and without chronic illness: a population-based study
    • Neumark-Sztainer, D., Story, M. & Resnick, M. (1995) Body dissatisfaction and unhealthy weight-control practices among adolescents with and without chronic illness: a population-based study. Archives of Pediatric and Adolescent Medicine, 149, 1330-1335.
    • (1995) Archives of Pediatric and Adolescent Medicine , vol.149 , pp. 1330-1335
    • Neumark-Sztainer, D.1    Story, M.2    Resnick, M.3
  • 36
    • 78651248589 scopus 로고    scopus 로고
    • The lived experiences of children and adolescents with end-stage renal disease
    • Nicholas, D., Picone, G. & Selkirk, E. (2011) The lived experiences of children and adolescents with end-stage renal disease. Qualitative Health Research, 21, 162-173.
    • (2011) Qualitative Health Research , vol.21 , pp. 162-173
    • Nicholas, D.1    Picone, G.2    Selkirk, E.3
  • 37
    • 0004252857 scopus 로고    scopus 로고
    • 4th edn. Open University Press, Maidenhead, UK.
    • Ogden, J. (2007) Health Psychology: A Textbook, 4th edn. Open University Press, Maidenhead, UK.
    • (2007) Health Psychology: A Textbook
    • Ogden, J.1
  • 38
    • 33751521626 scopus 로고    scopus 로고
    • Qualitative analysis and interpretation
    • 3rd edn (ed. M. Q. Patton). Sage Publications, Thousand Oaks, CA, USA.
    • Patton, M. (2002) Qualitative analysis and interpretation. In: Qualitative Research & Evaluation Methods, 3rd edn (ed. M. Q. Patton ), pp. 431-540. Sage Publications, Thousand Oaks, CA, USA.
    • (2002) Qualitative Research & Evaluation Methods , pp. 431-540
    • Patton, M.1
  • 39
    • 68549135073 scopus 로고    scopus 로고
    • Body image in adolescents: insights and implications
    • Price, B. (2009) Body image in adolescents: insights and implications. Paediatric Nursing, 21, 38-43.
    • (2009) Paediatric Nursing , vol.21 , pp. 38-43
    • Price, B.1
  • 42
    • 1642324354 scopus 로고    scopus 로고
    • Non-compliance with immunosuppressive medications in paediatric and adolescent patients receiving solid organ transplants
    • Rianthavorn, P., Ettenger, R., Malekazadeh, M., Marik, J. & Struber, M. (2004) Non-compliance with immunosuppressive medications in paediatric and adolescent patients receiving solid organ transplants. Transplantation, 77, 778-782.
    • (2004) Transplantation , vol.77 , pp. 778-782
    • Rianthavorn, P.1    Ettenger, R.2    Malekazadeh, M.3    Marik, J.4    Struber, M.5
  • 43
    • 0038314211 scopus 로고    scopus 로고
    • Treatment adherence of youth and young adults with and without a chronic illness
    • Rosina, R., Crisp, J. & Steinbeck, K. (2003) Treatment adherence of youth and young adults with and without a chronic illness. Nursing and Health Sciences, 5, 139-147.
    • (2003) Nursing and Health Sciences , vol.5 , pp. 139-147
    • Rosina, R.1    Crisp, J.2    Steinbeck, K.3
  • 44
    • 0012378367 scopus 로고    scopus 로고
    • 11th edn. McGraw Hill, New York, NY, USA.
    • Santrock, J. (2007) Child Development, 11th edn. McGraw Hill, New York, NY, USA.
    • (2007) Child Development
    • Santrock, J.1
  • 45
    • 0142009557 scopus 로고    scopus 로고
    • Concordance and children's use of medicines
    • Sanz, E. (2003) Concordance and children's use of medicines. British Medical Journal, 327, 858-860.
    • (2003) British Medical Journal , vol.327 , pp. 858-860
    • Sanz, E.1
  • 46
    • 3142680761 scopus 로고    scopus 로고
    • Strategies for ensuring trustworthiness in qualitative research projects
    • Shenton, A. (2004) Strategies for ensuring trustworthiness in qualitative research projects. Education for Information, 22, 63-75.
    • (2004) Education for Information , vol.22 , pp. 63-75
    • Shenton, A.1
  • 47
    • 85008776315 scopus 로고    scopus 로고
    • Reflecting on the development of interpretative phenomenological analysis and its contribution to qualitative research in psychology
    • Smith, J. (2004) Reflecting on the development of interpretative phenomenological analysis and its contribution to qualitative research in psychology. Qualitative Research in Psychology, 1, 39-54.
    • (2004) Qualitative Research in Psychology , vol.1 , pp. 39-54
    • Smith, J.1
  • 48
    • 0000531578 scopus 로고    scopus 로고
    • Doing interpretative phenomenological analysis
    • (eds M. Murray & K. Chamberlain). Sage, London, UK.
    • Smith, J., Jarman, M. & Osborn, M. (1999) Doing interpretative phenomenological analysis. In: Qualitative Health Psychology: Theories and Methods (eds M. Murray & K. Chamberlain ), pp. 218-240. Sage, London, UK.
    • (1999) Qualitative Health Psychology: Theories and Methods , pp. 218-240
    • Smith, J.1    Jarman, M.2    Osborn, M.3
  • 49
    • 2142822266 scopus 로고    scopus 로고
    • Coping strategies utilized by adolescents with end stage renal disease
    • Snethen, J., Broome, M., Kelber, S. & Warady, B. (2004) Coping strategies utilized by adolescents with end stage renal disease. Nephrology Nursing Journal, 31, 41-49.
    • (2004) Nephrology Nursing Journal , vol.31 , pp. 41-49
    • Snethen, J.1    Broome, M.2    Kelber, S.3    Warady, B.4
  • 51
    • 0035749373 scopus 로고    scopus 로고
    • Adherence to health advice amongst young people with a chronic illness
    • Stewart, K. & Dearman, A. (2001) Adherence to health advice amongst young people with a chronic illness. Journal of Child Health Care, 5, 155-162.
    • (2001) Journal of Child Health Care , vol.5 , pp. 155-162
    • Stewart, K.1    Dearman, A.2
  • 52
    • 4944221659 scopus 로고    scopus 로고
    • The adolescent with a chronic condition. Part I: developmental issues
    • Suris, J.-C., Michaud, P.-A. & Viner, R. (2004) The adolescent with a chronic condition. Part I: developmental issues. Archives of Disease in Childhood, 89, 938-942.
    • (2004) Archives of Disease in Childhood , vol.89 , pp. 938-942
    • Suris, J.-C.1    Michaud, P.-A.2    Viner, R.3
  • 54
    • 78049414112 scopus 로고    scopus 로고
    • Qualitative research in nutrition and dietetics: getting started
    • Swift, J. & Tischler, V. (2010) Qualitative research in nutrition and dietetics: getting started. Journal of Human Nutrition and Dietetics, 23, 559-566.
    • (2010) Journal of Human Nutrition and Dietetics , vol.23 , pp. 559-566
    • Swift, J.1    Tischler, V.2
  • 55
    • 44949105617 scopus 로고    scopus 로고
    • The experience of living with a chronic illness during adolescence: a critical review of the literature
    • Taylor, R., Gibson, F. & Franck, L. (2008) The experience of living with a chronic illness during adolescence: a critical review of the literature. Journal of Clinical Nursing, 17, 3083-3091.
    • (2008) Journal of Clinical Nursing , vol.17 , pp. 3083-3091
    • Taylor, R.1    Gibson, F.2    Franck, L.3
  • 57
    • 84879149091 scopus 로고
    • United Nations. United Nations, Geneva, Switzerland.
    • United Nations (1989) Convention on the Rights of the Child. United Nations, Geneva, Switzerland.
    • (1989) Convention on the Rights of the Child
  • 60
    • 17244380796 scopus 로고    scopus 로고
    • Young people's health: the need for action
    • Viner, R. & Barker, M. (2005) Young people's health: the need for action. British Medical Journal, 330, 901-903.
    • (2005) British Medical Journal , vol.330 , pp. 901-903
    • Viner, R.1    Barker, M.2
  • 61
    • 33748659476 scopus 로고    scopus 로고
    • Meaning of illness and illness representations
    • Volez, E. & Ramasgo, M. (2006) Meaning of illness and illness representations. Journal of Renal Care, 32, 81-85.
    • (2006) Journal of Renal Care , vol.32 , pp. 81-85
    • Volez, E.1    Ramasgo, M.2
  • 62
    • 56349108167 scopus 로고    scopus 로고
    • An ethnography of a children's renal unit: experiences of children and young people with long-term renal illness
    • Waters, A. (2008) An ethnography of a children's renal unit: experiences of children and young people with long-term renal illness. Journal of Clinical Nursing, 17, 3103-3114.
    • (2008) Journal of Clinical Nursing , vol.17 , pp. 3103-3114
    • Waters, A.1
  • 63
    • 68549120846 scopus 로고    scopus 로고
    • Involving children in research
    • Whiting, L. (2009) Involving children in research. Paediatric Nursing, 21, 32-36.
    • (2009) Paediatric Nursing , vol.21 , pp. 32-36
    • Whiting, L.1
  • 64
    • 7244258848 scopus 로고    scopus 로고
    • Assessment and management of the child requiring chronic haemodialysis
    • Wright, E. (2004) Assessment and management of the child requiring chronic haemodialysis. Paediatric Nursing, 16, 37-41.
    • (2004) Paediatric Nursing , vol.16 , pp. 37-41
    • Wright, E.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.