Reliability and validity of the timpsi for infants with spinal muscular atrophy type i

Pediatric Physical Therapy

Volumn 25, Issue 2, 2013, Pages 140-148

  Krosschell, Kristin J ^a   MacZulski, Jo Anne ^b   Scott, Charles ^c   King, Wendy ^d   Hartman, Jill T ^e   Case, Laura E ^f   Viazzo Trussell, Donata ^g   Wood, Janine ^h   Roman, Carolyn A ⁱ   Hecker, Eva ^j   Meffert, Marianne ^j   Léveillé, Maude ^k   Kienitz, Krista ^l   Swoboda, Kathryn J ^g  

^a NORTHWESTERN UNIVERSITY   (United States)

^b Pediatric Occupational Therapy Services   (United States)

^c CBS   (United States)

^d OHIO STATE UNIVERSITY   (United States)

^e JOHNS HOPKINS HOSPITAL   (United States)

^f DUKE UNIVERSITY MEDICAL CENTER   (United States)

^g UNIVERSITY OF UTAH SCHOOL OF MEDICINE   (United States)

^h PRIMARY CHILDREN'S MEDICAL CENTER   (United States)

ⁱ CHILDREN'S HOSPITAL OF MICHIGAN   (United States)

^j UNIVERSITY HOSPITAL OF COLOGNE   (Germany)

^k Direction de l'enseignement universitaire et de la recherche   (Canada)

^l University of Wisconsin Health   (United States)

more..

Author keywords

Child development; Female; Humans; Infant; Male; Motor skills physiology; Observer variation; Physical therapy specialty instrumentation; Physical therapy specialty standards; Reproducibility of results; Spinal muscular atrophies of childhood diagnosis; Spinal muscular atrophies of childhood physiopathology; Video recording

Indexed keywords

ARTICLE; FEMALE; HEREDITARY SPINAL MUSCULAR ATROPHY; HUMAN; MALE; MOTOR PERFORMANCE; NEWBORN; OBSERVER VARIATION; PHYSIOTHERAPY; PRESCHOOL CHILD; QUESTIONNAIRE; REPRODUCIBILITY; TIME;

CHILD, PRESCHOOL; FEMALE; HUMANS; INFANT, NEWBORN; MALE; MOTOR SKILLS; OBSERVER VARIATION; PHYSICAL THERAPY MODALITIES; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SPINAL MUSCULAR ATROPHIES OF CHILDHOOD; TIME FACTORS;

EID: 84879167010     PISSN: 08985669     EISSN: None     Source Type: Journal    
DOI: 10.1097/PEP.0b013e31828a205f     Document Type: Article

References (25)

1. Emery AE. Population frequencies of inherited neuromuscular diseases-a world survey. Neuromuscul Disord. 1991;1(1):19-29.
2. Sumner CJ. Therapeutics development for spinal muscular atrophy. NeuroRx. 2006;3(2):235-245.
3. Bertini E, Burghes A, Bushby K, et al. 134th ENMC International Workshop: outcome measures and treatment of spinal muscular atrophy, 11-13 February 2005, Naarden, the Netherlands. Neuromuscul Disord. 2005;15(11):802-816.
4. Kolb SJ, Kissel JT. Spinal muscular atrophy: a timely review. Arch Neurol. 2011;68(8):979-984.
5. Wang CH, Bonnemann CG, Rutkowski A, et al. Consensus statement on standard of care for congenital muscular dystrophies. J Child Neurol. 2010;25(12):1559-1581.
6. Krosschell KJ, Maczulski JA, Crawford TO, Scott C, Swoboda KJ. A modified Hammersmith Functional Motor Scale for use in multi-center research on spinal muscular atrophy. Neuromuscul Disord. 2006;16(7):417-426.
7. Krosschell K, Scott C, Maczulski J, et al. Reliability of the Modified Hammersmith Functional Motor Scale in young children with spinal muscular atrophy. Muscle Nerve. 2011;44(2):246-251.
8. Main M, Kairon H, Mercuri E, Muntoni F. The Hammersmith Functional Motor Scale for children with spinal muscular atrophy: a scale to test ability and monitor progress in children with limited ambula-tion. Eur J Paediatr Neurol. 2003;7(4):155-159.
9. O'Hagen JM, Glanzman AM, McDermott MP, et al. An expanded version of the Hammersmith Functional Motor Scale for SMA II and III patients. Neuromuscul Disord. 2007;17(9-10):693-697.
10. Montes J, McDermott MP, Martens WB, et al. Six-Minute Walk Test demonstrates motor fatigue in spinal muscular atrophy. Neurology. 2010;74(10):833-838.
11. Nelson L, Owens H, Hynan LS, Iannaccone ST. The gross motor function measure is a valid and sensitive outcome measure for spinal muscular atrophy. Neuromuscul Disord. 2006;16(6):374-380.
12. Merlini L, Mazzone ES, Solari A, Morandi L. Reliability of handheld dynamometry in spinal muscular atrophy. Muscle Nerve. 2002;26(1):64-70.
13. Iannaccone ST, Hynan LS. Reliability of 4 outcome measures in pedi-atric spinal muscular atrophy. Arch Neurol. 2003;60(8):1130-1136.
14. Finkel RS, Hynan LS, Glanzman AM, et al. The test of infant motor performance: reliability in spinal muscular atrophy type I. Pediatr Phys Ther. 2008;20(3):242-246.
15. Glanzman AM, Mazzone E, Main M, et al. The Children's Hospital of Philadelphia Infant Test of Neuromuscular Disorders (CHOP INTEND): test development and reliability. Neuromuscul Disord. 2010;20(3):155-161.
16. Campbell SK, Kolobe TH, Osten ET, Lenke M, Girolami GL. Construct validity of the test of infant motor performance. Phys Ther. 1995;75(7):585-596.
17. Noble Y, Boyd R. Neonatal assessments for the preterm infant up to 4 months corrected age: a systematic review. Dev Med Child Neurol. 2012;54(2):129-139.
18. Spittle AJ, Doyle LW, Boyd RN. A systematic review of the clinimetric properties of neuromotor assessments for preterm infants during the first year of life. Dev Med Child Neurol. 2008;50(4):254-266.
19. Campbell SK. The Test of Infant Motor Performance: Test Users Manual Version 2.0. Chicago, IL: IMPS LLC; 2005.
20. Campbell SK, Hedeker D. Validity of the Test of Infant Motor Performance for discriminating among infants with varying risk for poor motor outcome. J Pediatr. 2001;139(4):546-551.
21. Campbell SK, Kolobe TH, Wright BD, Linacre JM. Validity of the Test of Infant Motor Performance for prediction of 6-, 9-and 12-month scores on the Alberta Infant Motor Scale. Dev Med Child Neurol. 2002;44(4):263-272.
22. Campbell SK, Swanlund A, Smith E, Liao PJ, Zawacki L. Validity of the TIMPSI for estimating concurrent performance on the test of infant motor performance. Pediatr Phys Ther. 2008;20(1):3-10.
23. Brazelton T, Nugent J. Neonatal Behavioral Assessment Scale. 3rd ed. London, England: Mac Keith Press; 1995.
24. Oskoui M, Levy G, Garland CJ, et al. The changing natural history of spinal muscular atrophy type 1. Neurology. 2007;69(20): 1931-1936.
25. Lemoine TJ, Swoboda KJ, Bratton SL, Holubkov R, Mundorff M, SrivastavaR.Spinal muscular atrophy type 1:are proactive respiratory interventions associated with longer survival? Pediatr Crit Care Med. 2012;13(3):e161-e165.