A trustful relationship-the importance for relatives to actively participate in the meeting with the physician

International Journal of Qualitative Studies on Health and Well-being

Volumn 8, Issue 1, 2013, Pages

  Pennbrant, Sandra ^a  

^a UNIVERSITY WEST   (Sweden)

Author keywords

Elderly care; Physician; Qualitative interview study; Relative; Socio cultural perspective

Indexed keywords

ADAPTIVE BEHAVIOR; AGED; ARTICLE; COOPERATION; DOCTOR PATIENT RELATION; ELDERLY CARE; FAMILY; FEMALE; HEALTH PERSONNEL ATTITUDE; HOME CARE; HOSPITAL DISCHARGE; HUMAN; HUMAN RELATION; INTERPERSONAL COMMUNICATION; MALE; PHYSICIAN; PSYCHOLOGICAL ASPECT; QUALITATIVE INTERVIEW STUDY; QUALITATIVE RESEARCH; RELATIVE; SOCIO-CULTURAL PERSPECTIVE; STANDARD; VERY ELDERLY;

ELDERLY CARE; PHYSICIAN; QUALITATIVE INTERVIEW STUDY; RELATIVE; SOCIO-CULTURAL PERSPECTIVE;

ADAPTATION, PSYCHOLOGICAL; AGED; AGED, 80 AND OVER; ATTITUDE OF HEALTH PERSONNEL; COMMUNICATION; COOPERATIVE BEHAVIOR; FAMILY; FEMALE; HOME CARE SERVICES; HUMANS; MALE; PATIENT DISCHARGE; PHYSICIAN-PATIENT RELATIONS; PHYSICIANS; PROFESSIONAL-FAMILY RELATIONS; QUALITATIVE RESEARCH;

EID: 84878939896     PISSN: 17482623     EISSN: 17482631     Source Type: Journal    
DOI: 10.3402/qhw.v8i0.20608     Document Type: Article

References (71)

1. Agar, M. H. (1985). Institutional discourse. Text, 5, 147-168.
2. Andershed, B., & Ternestedt, B-M. (2001). Development of a theoretical framework describing relatives' involvement in palliative care. Journal of Advanced Nursing, 34, 554-562.
3. Aronsson, K., & Larsson, U. S. (1987). Politeness strategies and doctor-patient communication. On the social choreography of collaborative thinking. Journal of Language and Social Psychology, 6, 1-27.
4. Attree, M. (2001). Patients' and relatives' experiences and perspectives of 'Good' and 'Not so Good' quality care. Journal of Advanced Nursing, 33, 456-466. doi: 10.1046/j.1365-2648.2001.01689.x.
5. Barry, C. A., Stevenson, F. A., Britten, N., Barber, N., & Bradley, C. P. (2001). Giving voice to the lifeworld. More humane, more effective medical care? A qualitative study of doctor-patient communication in general practice. Social, Science & Medicine, 53, 487-505.
6. Beisecker, A. E. (1989). The influence of a companion on the doctor-elderly patient interaction. Health Communication, 1, 55-70.
7. Beisecker, A. E., Brecheisen, M. A., Ashworth, J., & Hayes, J. (1996). Perceptions of the role of cancer patients' companions during medical appointments. Journal of psychosocial oncology, 14, 29-45.
8. Brown, J. B., Brett, P., Stewart, M., & Marshall, J. N. (1998). Roles and influence of people who accompany patients on visits to the doctor. Canadian Family Physician, 44, 1644-1650.
9. Bryman, A. (2011). Samhallsvetenskapliga metoder (Methods in social science). (2nd ed.). Malmo: Liber.
10. Dowsett, S. M., Saul, J. L., Butow, P. N., Dunn, S. M., Boyer, M. J., Findlow, R., et al. (2000). Communication styles in the cancer consultation: Preferences for a patient-centered approach. Psycho-Oncology, 9, 147-156.
11. Fiske, J. (1990). Introduction to communication studies (2nd ed.). London: Routledge.
12. Fortinsky, R. H. (2001). Health care triads and dementia care: Integrative framework and future directions. Aging & Mental Health, 5, 35-48.
13. Gilmour, J. A. (2002). Dis/integrated care: Family caregivers and in-hospital respite care. Journal of Advanced Nursing, 39, 546-553.
14. Glasser, M., & Miller, B. (1998). Caregiver and physician perspectives of medical encounters involving dementia patients. American Journal of Alzheimer's Disease and Other Dementias, 13, 70-80.
15. Glasser, M., Prohaska, T., & Gravdal, J. (2001). Elderly patients and their accompanying caregivers on medical visits. Research on Aging, 23, 326-348.
16. Greene, M. G., Majerovitz, S. D., Adelman, R. D., & Rizzo, C. (1994). The effects of the presence of a third person on the physician-older patient medical interview. Journal of American Geriatrics Society, 42, 413-419.
17. Hedemalm, A., Schaufelberger, M., & Ekman, I. (2007). A review of records from follow-up visits for immigrant and Swedish patients at a heart failure clinic. The European Journal of Cardiovascular Nursing, 6, 216-222.
18. Hertzberg, A., & Ekman, S. L. (2008). "We not them and us?" Views on the relationships and interactions between staff and relatives of older people permanently living in nursing homes. Journal of Advanced Nursing, 31, 614-622.
19. Hertzberg, A., Ekman, S. L., & Axelsson, K. (2003). 'Relatives are a resource, but..': Registered Nurses' views and experiences of relatives of residents in nursing homes. Journal of Clinical Nursing, 12, 431-4441.
20. Hesselink, G., Flink, M., Olsson, M., Barach, P., Dudzik-Urbaniak, E., Orrego, C, et al. (2012). Are patients discharged with care? A qualitative study of perceptions and experiences of patients, family members and care providers. BMJ Quality and Safety, 21, 39-49. doi: 10.1136/bmjqs-2012-001165.
21. Hesslefors Arktoft, E. (1996). I ord och handling. Innebörder av "att anknyta till elevers erfarenheter", uttryckta av larare (By word and action: the meaning of "using pupil experiences", expressed by teachers). (PhD diss.). Goteborg: ACTA Universitatis Gothoburgensis. Goteborgs Studies in educational sciences 110.
22. Ho, A. (2008). Relational autonomy or undue pressure? Family's role in medical decision-making. Scandinavian Journal of Caring Sciences, 22, 128-135.
23. Jakobsson, E., Bergh, I., & Öhlen, J. (2007). The turning point: Identifying end-of-life care in everyday health care practice. Contemporary Nurse, 27(1), 107-118.
24. Jansson, W., Nordberg, G., & Grafstrom, M. (2001). Patterns of elderly spousal caregiving in dementia care: An observational study. Journal of Advanced Nursing, 34, 804-812.
25. Johanson, M., Larsson, U. S., Saljo, R., & Svardsudd, K. (1998). Lifestyle discussion in the provision of health care. An empirical study of patient-physician interaction. Social Science & Medicine, 1, 103-112.
26. Junefelt, K. (2001). Sociocultural theory and methods*From the standpoint of a linguist. In U. Satterlund Larsson (Ed.), Socio-cultural theory and methods an anthology (pp. 87-117). Vanersborg: Vanersborg University College of Health Sciences.
27. Karnieli-Miller, O., Werner, P., Neufeld-Kroszynski, G., & Eidelman, S. (2012). Are you talking to me?! An exploration of the triadic physician-patient-companion communication within memory clinics encounters. Patient Education and Counseling, 88, 381-390. doi: 10.1016/j.pec.2012.06.014.
28. Kissane, D. W (2004). The challenge of discrepancies in values among physicians, patients, and family members. Cancer, 100, 1771-1775.
29. Korfage, I. J., Audrey, S., Hak, T, Blazeby, J. M., Abel, J., & Campbell, R. M. (2013). Recognising the importance of'family time-out' in consultations: an exploratory qualitative study. BMJ Open, 3, e002144. doi: 10.1136/bmjopen-2012-002144.
30. Kristjanson, L. (1999). Families of palliative care patients; a model of care. In S. Aranda & M. O'Connor (Eds.), Palliative care nursing: A guide to practice (pp. 279-293). Melbourne: Ausmed.
31. Labrecque, M. S., Blanchard, C. G., Ruckdeschel, J. C, & Blanchard, E. B. (1991). The impact of family presence on the physician-cancer patient interaction. Social, Science & Medicine, 33, 1253-1261.
32. Larsson, U. S., Saljo, R., & Aronsson, K. (1987). Patient-doctor communication on smoking and drinking: Lifestyle in medical consultations. Social, Science & Medicine, 25, 1129-1137.
33. Levenstein, J. H., McCracken, E. C, McWhinney, I. R., Stewart, M. A., & Brown, J. B. (1986). The patient-centered clinical method. A model for the doctor-patient interaction in family medicine. Family Practice, 3, 24-30.
34. Levine, C. (2004). The good doctor: the carer's perspective. Clinical Medicine, 4, 244-245.
35. Levine, C, & Zuckerman, C. (1999). The trouble with families: Toward an ethic of accommodation. Annual Internal Medicine, 130, 148-152.
36. Li, H. (2005). Hospitalized elders and family caregivers: a topology of family worry. Journal of Clinical Nursing, 14, 3-8.
37. Lofmark, U., & Hammarstrom, A. (2005). Older stroke patients' negotiations within the hierarchic medical context. Qualitative Health Research, 15, 778-790. doi: 10.1177/104973 2305275891.
38. Magnusson, A., & Granskar, M. (2005). Next of kin's experiences of transferring critically ill patients. Vard i Norden, 25, 15-19.
39. Mehnert, A., Lehmann, C, & Koch, U. (2012). Doctor-patient interaction: Dealing with difficult situations. Bundesgesund-heitsblatt Gesundheitsforschung Gesundheitsschutz, 55, 1134-1143. doi: 10.1007/s00103-012- 1544-x.
40. Mishler, E. G. (1984). Discourse of medicine: Dialectics of medical interviews. Norwood, NJ: Ablex.
41. Mishler, E. G. (1986). Research interviewing. Context and narrative. Cambridge, MA: Harvard University Press.
42. Patton, M. Q. (2002). Qualitative research & evaluation methods. London: Sage.
43. Paul, F., Hendry, C, & Cabrelli, L. (2004). Meeting patient and relatives' information needs upon transfer from an intensive unit: the development and evaluation of an information booklet. Journal of Clinical Nursing, 13, 396-405.
44. Perreault, M., Paquin, G., Kennedy, S., Desmarais, J., & Tardif, H. (1999). Patients' perspective on their relatives' involvement in treatment during a short-term psychiatric hospitalization. Social Psychiatry and Psychiatric Epidemiology, 34, 157-165.
45. Petek Ster, M. (2012). Teaching communication at the Medical School in Ljubljana. Acta Medica Academica, 41, 38-46. doi: 10.5644/ama2006-124.34.
46. Polit, D. F., & Beck, C. T (2006). Nursing research. Generating and assessing evidence for nursing practice (8th ed.). Philadelphia: Lippincott Williams & Wilkins.
47. Rogoff, B. (1990). Apprenticeship in thinking. New York: Oxford University Press.
48. Royak-Schaler, R., Gadalla, S. M., Lemkau, J. P., Ross, D. D., Alexander, C, & Scott, D. (2006). Family perspectives on communication with healthcare providers during end-of-life cancer care. Oncology Nursing Forum, 33, 753-760.
49. Rydeman, I., Tornkvist, L., Agreus, L., & Dahlberg, K. (2012). Being in-between and lost in the discharge process*An excursus of two empirical studies of older persons', their relatives', and care professionals experience. International Journal of Qualitative Studies on Health Well-being, 7, 1-9, 19678. http://dx.doi.org/10.3402/qhw.v7i0.19678
50. Sakai, E. Y, & Carpenter, B. D. (2011). Linguistic features of power dynamics in triadic dementia diagnostic conversations. Patient Education and Counseling, 85, 295-298.
51. Saljo, R. (2000). Practical learning. A socio-cultural perspective. Stockholm: Bokforlaget Prisma.
52. Sayers, G. M., & Bethell, H. W. (2004). Pacing extremely old patients: Who decides*the doctor, the patient, or the relatives? Heart, 90, 134-135.
53. Schilling, L. M., Scatena, L., Steiner, J. F., Albertson, G. A., Lin, C. T, Cyran, L., et al. (2002). The third person in the room: Frequency, role, and influence of companions during primary care medical encounters. Journal of Family Practice, 51, 685-690.
54. Schweitzer, S., van Oorschot, B., Kohler, N., Leppert, K., Steibach, K., Hausmann, C, et al. (2005). The patient and his family. Psychotherapie Psychosomatik Medizinische Psychologie, 55, 298-304.
55. Selander, S. (1991). Om kommunikation i varden och medicinsk information. (Health care communication and medical information). SPOV, 11, 3-10.
56. SFS. (1982:763). Lagen om andring i halso-och sjukva?rdslagen [Swedish Health and Medical Service Act]. Stockholm, Sweden: Ministry of Health and Social Affairs (amended from 2011:1576). Retrieved April 17, 2012, from http://www.notisum.se
57. Shields, C. G., Epstein, R. M., Fiscella, K., Franks, P., McCann, R., McCormick, K., et al. (2005). Influence of accompanied encounters on patient-centeredness with older patients. Journal of American Board Family Medicine, 18, 344-354.
58. Silliman, R. A. (2000). Caregiving issues in geriatric medical encounter. Clinics in Geriatric Medicine, 16, 51-60.
59. Silverman, D. (2001). Interpreting qualitative data method for analysing talk, text and interaction. London: Sage.
60. Silverman, D. (2006). Interpreting qualitative data. Method for analyzing talk, text and interaction (3rd ed.). London: Sage.
61. SOU (1997:170). Awareness of meeting of elderly. Stockholm, Sweden: Ministry of Health and Social Affairs.
62. Swedish Government Bill. (2005/06:115). National development plan for health and social care for the elderly. Retrieved January 16, 2013, from: http://www.sweden.gov.se/sb/d/5692/a/60665
63. The National Board of Health and Welfare. (1998). The elderly mission. Stockholm: Author
64. The National Board of Health and Welfare. (2008). Your safety and security as a patient. Stockholm: The National Board of Health and Welfare.
65. Vetenskapsradet. (2003). Riktlinjer for etisk vardering av medicinsk humanforskning. MRF-rapport. [Swedish Research Council. Guidelines for the ethical evaluation of medical research]. Uppsala: Almqvist & Wiksell.
66. Vygotsky, L. S. (1987). Thought and language. Cambridge, MA: MIT Press.
67. Wertsch, J. (1998). Voices of mind. Cambridge, MA: Harvard University Press.
68. Wilz, G., & Meichsner, F. (2012). Involving family members of chronically ill patients in physician-patient communication. Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz, 55, 1125-1131. doi: 10.1007/s00103-012-1532-1.
69. Wolff, J. L., Clayman, M. L., Rabins, P., Cook, M. A., & Roter, D. L. (2012). An exploration of patient and family engagement in routine primary care visits. Health Expectations, 16, 1-11. doi: 10.1111/hex.12019.
70. Wolff, J. L., & Roter, D. L. (2012). Older adults' mental health function and patient-centered care: does the presence of a family companion help or hinder communication? Journal of General Internal Medicine, 27, 661-668.
71. World Health Organization. (2003). Information needs for research, policy and action on ageing and older persons: Definition of an older or elderly person. Geneva, Switzerland.