Family perspectives on communication with healthcare providers during end-of-life cancer care

Oncology Nursing Forum

Volumn 33, Issue 4, 2006, Pages 753-760

  Royak Schaler, Renee ^a   Gadalla, Shahinaz M ^a   Lemkau, Jeanne P ^b   Ross, Douglas D ^a   Alexander, Carla ^a   Scott, Deborah ^a  

^a UNIVERSITY OF MARYLAND SCHOOL OF MEDICINE   (United States)

^b WRIGHT STATE UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; CROSS-SECTIONAL STUDY; FAMILY HEALTH; FEMALE; HOSPICE CARE; HUMAN; HUMAN RELATION; INFORMATION PROCESSING; INFORMATION SERVICE; INTERPERSONAL COMMUNICATION; MALE; MIDDLE AGED; PATIENT SATISFACTION; STANDARD; TERMINAL CARE;

ADULT; AGED; COMMUNICATION; CROSS-SECTIONAL STUDIES; FAMILY HEALTH; FEMALE; FOCUS GROUPS; HOSPICE CARE; HUMANS; INFORMATION SERVICES; MALE; MIDDLE AGED; PATIENT SATISFACTION; PROFESSIONAL-PATIENT RELATIONS; TERMINAL CARE;

EID: 33746233288     PISSN: 0190535X     EISSN: 15380688     Source Type: Journal    
DOI: 10.1188/06.ONF.753-760     Document Type: Review

References (31)

1. Billings, J.A., & Kolton, E. (1999). Family satisfaction and bereavement care following death in the hospital. Journal of Palliative Medicine, 2, 33-49.
2. Briss, P., Rimer, B., Reilley, B., Coates, R.C., Lee, N.C., Mullen, P., et al. (2004). Promoting informed decisions about cancer screening in communities and healthcare systems. American Journal of Preventive Medicine, 26, 67-80.
3. Clayton, J.M., Butow, P.N., & Tattersall, M.H. (2005). The needs of terminally ill patients with cancer versus those of caregivers for information regarding prognosis and end-of-life issues. Cancer, 103, 1957-1964.
4. A controlled trial to improve care for seriously ill hospitalized patients: The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). The SUPPORT principal investigators. (1995). JAMA, 274, 1591-1598.
5. Edwards, P. (2005). An overview of the end-of-life discussion. International Journal of Palliative Nursing, 11, 21-27.
6. Emanuel, L.L., von Gunten, C.F., & Ferris, F.D. (2000). Gaps in end-of-life care. Archives of Family Medicine, 9, 1176-1180.
7. Faulkner, A., Webb, P., & Maguire, P. (1991). Communication and counseling skills: Educating health professionals working in cancer and palliative care. Patient Education and Counseling, 18, 3-7.
8. Field, M.J., & Cassel, C.K. (Eds.). (1997). Approaching death: Improving care at the end of life. Washington, DC: National Academy Press.
9. Friedman, B.T., Harwood, M.K., & Shields, M. (2002). Barriers and enablers to hospice referrals: An expert overview. Journal of Palliative Medicine, 5, 73-84.
10. Gallagher, T.H., Pantilat, S.Z., Lo, B., & Papadakis, M.A. (1999). Teaching medical students to discuss advance directives: A standardized patient curriculum. Teaching and Learning in Medicine, 11, 142-147.
11. Hall, J.A., Epstein, A.M., DeCiantis, M.L., & McNeil, B.J. (1993). Physicians' liking for their patients: More evidence for the role of affect in medical care. Health Psychology, 12, 140-146.
12. Hanson, L.C., Danis, M., & Garrett, J. (1997). What is wrong with end-of-life care? Opinions of bereaved family members. Journal of the American Geriatrics Society, 45, 1339-1344.
13. Hines, B.E., & Peura, S.M. (1995). Hospice: A place for healing and dying well. Focus, 10(8), 1-4.
14. Hofmann, J.C., Wenger, N.S., Davis, R.B., Teno, J., Connors, A.F., Jr., Desbiens, N., et al. (1997). Patient preferences for communication with physicians about end-of-life decisions. SUPPORT investigatores. Study to Understand Prognoses and Preference for Outcomes and Risks of Treatment. Annals of Internal Medicine, 127, 1-12.
15. Larson, D.G., & Tobin, D.R. (2000). End-of-life conversations: Evolving practice and theory. JAMA, 284, 1573-1578.
16. Lo, B., Quill, T., & Tulsky, J. (1999). Discussing palliative care with patients. Annals of Internal Medicine, 130, 744-749.
17. McCann, R., Chodosh, J., Frankel, R., Katz, P., Naumburg, E., Tulsky, A., et al. (1998). Advance care directives and end of life decisions: An educational module. Gerontology and Geriatric Education, 18(3), 3-19.
18. McKinlay, J.B., Potter, D.A., & Feldman, H.A. (1996). Non-medical influences on medical decision-making. Social Science and Medicine, 42, 769-776.
19. Mills, M., Davies, H.T.O., & Macrae, W.A. (1994). Care of dying patients in hospital. BMJ, 309, 583-586.
20. National Center for Health Statistics. (2004). Hospice care definitions of terms. Retrieved April 18, 2006, from http://www.cdc.gov/nchs/about/ major/nhhcsd/nhhcsdefhospicecare.htm
21. Rathore, S.S., Lenert, L.A., Weinfurt, K.P., Tinoco, A., Taleghani, C.K., Harless, W., et al. (2000). The effects of patient sex and race on medical students' ratings of quality of life. American Journal of Medicine, 108, 561-566.
22. Reilly, J.M., & Ring, J. (2004). An end-of-life curriculum: Empowering the resident, patient, and family. Journal of Palliative Medicine, 7, 55-62.
23. Ross, D.D., Keay, T., Timmel, D., Alexander, C., Dignon, C., O'Mara, A., et al. (1999). Required training in hospice and palliative care at the University of Maryland School of Medicine. Journal of Cancer Education, 14, 132-136.
24. Royak-Schaler, R., Klabunde, C.N., Greene, W.F., Lannin, D.R., DeVellis, B., Wilson, K.R., et al. (2002). Communicating breast cancer risk: Patient perceptions of provider discussions. Medscape General Medicine, 7(2). Retrieved April 18, 2006, from http://www.medscape.com/view article/429553
25. Schulman, K.A., Berlin, J.A., Harless, W., Kerner, J.F., Sistrunk, S., Gersh, B.J., et al. (1999). The effect of race and sex on physicians' recommendations for cardiac catheterization. New England Journal of Medicine, 340, 618-626.
26. Schulman-Green, D., McCorkle, R., Cherlin, E., Johnson-Hurzeler, R., & Bradley, E.H. (2005). Nurses' communication of prognosis and implications for hospice referral: A study of nurses caring for terminally ill hospitalized patients. American Journal of Critical Care, 14, 64-70.
27. van Ryn, M., & Fu, S.S. (2003). Paved with good intentions: Do public health and human service providers contribute to racial/ethnic disparities in health? American Journal of Public Health, 93, 248-255.
28. Volker, D.L., Kahn, D., & Penticuff, J.H. (2004). Patient control and end-of-life care part I: The advanced practice nurse perspective. Oncology Nursing Forum, 31, 945-953.
29. von Gunten, C.F., Ferris, F.D., & Emanuel, L.L. (2000). The patient-physician relationship. Ensuring competency in end-of-life care: Communication and relational skills. JAMA, 284, 3051-3057.
30. Wenrich, M.D., Curtis, J.R., Ambrozy, D.A., Carline, J.D., Shannon, S.E., & Ramsey, P.G. (2003). Dying patients' need for emotional support and personalized care from physicians: Perspectives of patients with terminal illness, families, and health care providers. Journal of Pain and Symptom Management, 25, 236-246.
31. Wenrich, M.D., Curtis, J.R., Shannon, S.E., Carline, J.D., Ambrozy, D.A., & Ramsey, P.G. (2001). Communicating with dying patients within the spectrum of medical care from terminal diagnosis to death. Archives of Internal Medicine, 161, 868-874.