Relational autonomy or undue pressure? Family's role in medical decision-making

Scandinavian Journal of Caring Sciences

Volumn 22, Issue 1, 2008, Pages 128-135

  Ho, Anita ^a,b  

^a ST CATHERINE UNIVERSITY   (United States)

^b UNIVERSITY OF BRITISH COLUMBIA   (Canada)

Author keywords

Autonomy; Ethical analysis; Ethics; Family; Feminism; Philosophy; Relational identity; Shared decision making; Undue pressure

Indexed keywords

ADULT; ARTICLE; CONFLICT; COOPERATION; CULTURAL ANTHROPOLOGY; DECISION MAKING; ETHICS; FAMILY; HUMAN; HUMAN RELATION; INDIVIDUALITY; INFORMED CONSENT; LIVING WILL; METHODOLOGY; MORALITY; PATERNALISM; PATIENT PARTICIPATION; PATIENT RIGHT; PERSONAL AUTONOMY; PSYCHOLOGICAL ASPECT; ROLE PLAYING;

ADULT; ADVANCE DIRECTIVES; CONFLICT (PSYCHOLOGY); COOPERATIVE BEHAVIOR; CULTURAL DIVERSITY; DECISION MAKING; DISSENT AND DISPUTES; FAMILY; HUMANS; INDIVIDUALITY; INFORMED CONSENT; MORALS; PATERNALISM; PATIENT PARTICIPATION; PATIENT RIGHTS; PERSONAL AUTONOMY; PROFESSIONAL-FAMILY RELATIONS; ROLE;

EID: 38949169558     PISSN: 02839318     EISSN: 14716712     Source Type: Journal    
DOI: 10.1111/j.1471-6712.2007.00561.x     Document Type: Article

References (45)

1. Beauchamp T, Faden R, King N. A History and Theory of Informed Consent. 1986, Oxford University Press, New York.
2. Berg J, Appelbaum P. Informed Consent: Legal Theory and Clinical Practice. 2001, Oxford University Press, New York.
3. Veatch R. Abandoning informed consent. Hastings Cent Rep 1995 25 : 5 12.
4. Schneider C. The Practice of Autonomy: Patients, Doctors, and Medical Decisions. 1998, Oxford University Press, New York.
5. Sahlsten M, Larsson I, Plos K, Lindencrona C. Hindrance for patient participation in nursing care. Scand J Caring Sci 2005 19 : 223 9.
6. Saunders P. Encouraging patients to take part in their own care. Nurs Stand 1992 6 : 36 39.
7. Breslin J. Autonomy and the role of the family in making decisions at the end of life. J Clin Ethics 2005 16 : 11 19.
8. Hardwig J. What about the family? Hastings Cent Rep 1990 20 : 5 10.
9. Brison S. Outliving oneself: trauma, memory, and personal identity. In Feminists Rethink the Self (Tietjens Meyer D ed 1997, Westview Press, Boulder, CO, 12 39.
10. Donchin A. Autonomy, interdependence, and assisted suicide: respecting boundaries/crossing lines. Bioethics 2000 14 : 187 204.
11. Nelson HL, Nelson JL. The Patient in the Family: An Ethics of Medicine and Families. 1995, Routledge, New York.
12. Sherwin S (ed A relational approach to autonomy in health care. In The Politics of Women's Health: Exploring Agency and Autonomy. 1988, Temple University Press, Philadelphia, 19 47.
13. Blustein J. The family in medical decisionmaking. Hastings Cent Rep 1993 23 : 6 13.
14. Chesla CA, Stannard D. Breakdown in the nursing care of families in the ICU. Am J Crit Care 1997 6 : 64 71.
15. Hupcey E. Looking out for the patient and ourselves - the process of family integration into the ICU. J Clin Nurs 1999 8 : 253 62.
16. Söderström IM, Benzien E, Saveman BI. Nurses' experiences of interactions with family members in intensive care units. Scand J Caring Sci 2003 17 : 185 92.
17. Nelson JL. Taking families seriously. Hastings Cent Rep 1992 22 : 6 12.
18. Levine C, Zuckerman C. The trouble with families: toward an ethic of accommodation. Ann Intern Med 1999 130 : 148 52.
19. Buchanan A, Brock D. Deciding for Others: The Ethics of Surrogate Decision Making. 1989, Cambridge University Press, Cambridge.
20. Berger J. Patients' interests in their family members' well-being: an overlooked, fundamental consideration within substituted judgments. J Clin Ethics 2005 16 : 3 10.
21. Jecker N. Being a burden on others. J Clin Ethics 1993 4 : 16 20.
22. Agich GJ. Reassessing autonomy in long-term care. Hastings Cent Rep 1990 20 : 12 17.
23. Waterworth S, Luker KA. Reluctant collaborators: do patients want to be involved in decisions concerning care? J Adv Nurs 1990 15 : 971 6.
24. Nease RF, Blair Brooks W. Patient desire for information and decision making in health care decisions: the autonomy preference index and the health opinion survey. J Gen Intern Med 1995 10 : 593 600.
25. Volker D. Control and end-of-life care: does ethnicity matter? Am J Hosp Palliat Care 2005 6 : 442 6.
26. Dupree CY. The attitudes of Black Americans toward advance directives. J Transcult Nurs 2000 11 : 12 18.
27. Perkins HS, Geppert C, Gonzales A, Cortez J, Hazuda H. Cross-cultural similarities and differences in attitudes about advance care planning. J Gen Intern Med 2002 17 : 48 57.
28. Donchin A. Understanding autonomy relationally: toward a reconfiguration of bioethical principles. J Med Philos 2001 26 : 365 86.
29. Titler MG, Bombei C, Schutte DL. Developing family-focused care. Crit Care Nurs Clin North Am 1995 7 : 375 86.
30. Moazam F. Families, patients, and physicians in medical decisionmaking: a Pakistani perspective". Hastings Cent Rep 2000 30 : 28 37.
31. Ng E, Wilkins R, Gendron F, Berthelot JM. Dynamics of Immigrants' Health in Canada: Evidence From the National Population Health Survey. 2005, Statistics, Canada.
32. Friedenberg RM. Patient-doctor relationships. Radiology 2003 226 : 306 8.
33. Dekkers W. Autonomy and dependence: chronic physical illness and decision-making capacity. Med Health Care Philos 2001 4 : 185 92.
34. O'Neill O. Autonomy and Trust in Bioethics. 2002, Cambridge University Press, Cambridge.
35. Roberts D. Reconstructing the patient: starting with women of color. In Feminism and Bioethics: Beyond Reproduction (Wolf S ed 1996, Oxford University Press, New York, 117 25.
36. Held V. Feminist transformations of moral theory. Philos Phenomenal Res 1990 50 : 321 44.
37. Zuckerman C. Till death do us part: family caregiving at the end of life. In Always on Call: When Illness Turns Families into Caregivers (Levine C ed 2004, Vanderbilt University Press, Nashville, 176 89.
38. Berger JT, Brody G, Eisenstein L, Pollack S. Do potential recipients of cardiopulmonary resuscitation want their family members to attend? A survey of public preferences J Clin Ethics 2004 15 : 237 42.
39. Terry PB, Vetesse M, Song J, Forman J, Haller KB, Miller DJ et al. End-of-life decision making: when patients and surrogates disagree. J Clin Ethics 1999 10 : 286 93.
40. Donchin A. Autonomy and interdependence: quandaries in genetic decision making. In Relational Autonomy: Feminist Perspectives on Autonomy, Agency, and the Social Self (Mackenzie C, Stoljar N eds 2000, Oxford University Press, New York, 236 58.
41. Mappes T, Zembaty J. Patient choices, family interests, and physician obligations. Kennedy Inst Ethics J 1994 4 : 27 46.
42. Okin S. Families and feminist theory: some past and present issues. In Feminism and Families (Nelson HL ed 1997, Routledge, New York, 13 26.
43. Hyun I. Waiver of informed consent, cultural sensitivity, and the problem of unjust families and traditions. Hastings Cent Rep 2002 32 : 14 22.
44. Tietjens Meyers D. Intersectional identity and the authentic self? Opposites attract. In Relational Autonomy: Feminist Perspectives on Autonomy, Agency, and the Social Self (Mackenzie C, Stoljar N eds 2000, Oxford University Press, New York, 151 80.
45. Ho A. Family and informed consent in multicultural setting. AJOB 2006 6 : 26 28.