Adult ADHD patient experiences of impairment, service provision and clinical management in England: A qualitative study

BMC Health Services Research

Volumn 13, Issue 1, 2013, Pages

  Matheson, Lauren ^a   Asherson, Philip ^b   Wong, Ian Chi Kei ^c   Hodgkins, Paul ^d   Setyawan, Juliana ^d   Sasane, Rahul ^e   Clifford, Sarah ^f  

^a OXFORD BROOKES UNIVERSITY   (United Kingdom)

^b KING'S COLLEGE LONDON   (United Kingdom)

^c UNIVERSITY OF HONG KONG   (Hong Kong)

^d SHIRE   (United States)

^e BAYER CORPORATION   (United States)

^f UNITED BIOSOURCE CORPORATION   (United States)

Author keywords

ADHD; Adult; Experiences; Impairment; Qualitative; Treatment

Indexed keywords

ADOLESCENT; ADULT; AGE; ARTICLE; ATTENTION DEFICIT DISORDER; COMPARATIVE STUDY; COST OF ILLNESS; DELAYED DIAGNOSIS; DOCTOR PATIENT RELATION; ECONOMICS; FEMALE; HEALTH CARE DELIVERY; HEALTH SERVICE; HUMAN; INTERVIEW; MALE; MIDDLE AGED; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; QUALITY OF LIFE; SOCIOECONOMICS; UNITED KINGDOM;

ADOLESCENT; ADULT; AGE FACTORS; ATTENTION DEFICIT DISORDER WITH HYPERACTIVITY; COST OF ILLNESS; DELAYED DIAGNOSIS; ENGLAND; FEMALE; HEALTH SERVICES ACCESSIBILITY; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; PHYSICIAN-PATIENT RELATIONS; QUALITATIVE RESEARCH; QUALITY OF LIFE; SOCIOECONOMIC FACTORS; YOUNG ADULT;

EID: 84877889245     PISSN: None     EISSN: 14726963     Source Type: Journal    
DOI: 10.1186/1472-6963-13-184     Document Type: Article

References (45)

1. Attention deficit hyperactivity disorder in adults. Rosler M, Casas M, Konofal E, Buitelaar J, World J Biol Psychiatry 2010 11 5 684 698 10.3109/15622975.2010.483249 20521876
2. European consensus statement on diagnosis and treatment of adult ADHD: The European Network Adult ADHD. Kooij SJJ, Bejerot S, Blackwell A, Caci H, Casas-Brugue M, Carpentier PJ, Edvinsson D, Fayyad J, Foeken K, Fitzgerald M, Gaillac V, Ginsberg Y, Henry C, Krause J, Lensing MB, Manor I, Niederhofer H, Nunes-Filipe C, Ohlmeier MD, Oswald P, Pallanti S, Pehlivanidis A, Ramos-Quiroga JA, Rastam M, Ryffel-Rawak D, Stes S, Asherson P, BMC Psychiatry 2010 10 67 10.1186/1471-244X-10-67 20815868
3. The age-dependent decline of attention deficit hyperactivity disorder: a meta-analysis of follow-up studies. Faraone SV, Biederman J, Mick E, Psychol Med 2006 36 2 159 165 16420712 (Pubitemid 43126140)
4. Cross-national prevalence and correlates of adult attention-deficit hyperactivity disorder. Fayyad J, De Graaf R, Kessler R, Alonso J, Angermeyer M, Demyttenaere K, De Girolamo G, Haro JM, Karam EG, Lara C, Lepine JP, Ormel J, Posada-Villa J, Zaslavsky AM, Jin R, Br J Psychiatry 2007 190 5 402 409 10.1192/bjp.bp.106.034389 17470954 (Pubitemid 46706952)
5. Attention-deficit/hyperactivity disorder in adults: An overview. Faraone SV, Biederman J, Spencer T, Wilens T, Seidman LJ, Mick E, Doyle AE, Biol Psychiatry 2000 48 1 9 20 10.1016/S0006-3223(00)00889-1 10913503 (Pubitemid 30407145)
6. Clinical assessment and treatment of attention deficit hyperactivity disorder in adults. Asherson P, Expert Rev Neurother 2005 5 4 525 539 10.1586/14737175.5.4.525 16026236 (Pubitemid 41021059)
7. Prevalence and correlates of adult attention-deficit hyperactivity disorder: Meta-analysis. Simon V, Czobor P, Bálint S, Mészáros Á Bitter I, B J Psychiatry 2009 194 3 204 211 10.1192/bjp.bp.107.048827
8. How persistent is ADHD? A controlled 10-year follow-up study of boys with ADHD. Biederman J, Petty CR, Evans M, Small J, Faraone SV, Psychiatry Res 2010 177 3 299 304 10.1016/j.psychres.2009.12.010 20452063
9. American Psychiatric Association, Diagnostic and statistical manual of mental disorders: DSM-IV-TR Washington, DC: American Psychiatric Association 2000
10. Attention-deficit/hyperactivity disorder in adults. Wilens E, Faraone SV, Biederman J, JAMA 2004 292 5 619 623 10.1001/jama.292.5.619 15292088 (Pubitemid 39014414)
11. Attention deficit hyperactivity disorder adults: Comorbidities and adaptive impairments. Murphy K, Barkley RA, Compr Psychiat 1996 37 6 393 401 10.1016/S0010-440X(96)90022-X 8932963 (Pubitemid 26383062)
12. Functional impairments in adults with self-reports of diagnosed ADHD: A controlled study of 1001 adults in the community. Biederman J, Faraone SV, Spencer TJ, Mick E, Monuteaux MC, Aleardi M, J Clin Psychiatry 2006 67 4 524 540 10.4088/JCP.v67n0403 16669717 (Pubitemid 43764229)
13. Adult attention-deficit hyperactivity disorder: recognition and treatment in general adult psychiatry. Asherson P, Chen W, Craddock B, Taylor E, Br J Psychiatry 2007 190 4 5 10.1192/bjp.bp.106.026484 17197649 (Pubitemid 46121494)
14. Functional and psychosocial impairment in adults with undiagnosed ADHD. Able SL, Johnston JA, Adler LA, Swindle RW, Psychol Med 2007 37 1 97 107 16938146 (Pubitemid 46043846)
15. The Experience of Receiving a Diagnosis and Treatment of ADHD in Adulthood. A Qualitative Study of Clinically Referred Patients Using Interpretative Phenomenological Analysis. Young S, Bramham J, Gray K, Rose E, J Atten Disord 2008 11 4 493 503 10.1177/1087054707305172 17712173
16. Experiences of Older Adult Women Diagnosed with Attention Deficit Hyperactivity Disorder. Henry E, Hill Jones S, J Women Aging 2011 23 3 246 262 10.1080/08952841.2011.589285 21767088
17. Coping strategies used by adults with ADHD. Young S, Pers Indiv Differ 2005 38 4 809 816 10.1016/j.paid.2004.06.005 (Pubitemid 40111560)
18. Management of adult attention deficit hyperactivity disorder in UK primary care: a survey of general practitioners. McCarthy S, Wilton L, Murray M, Hodgkins P, Asherson P, Wong I, Health Qual Life Outcomes 2013 11 1 22 10.1186/1477-7525-11-22 23432851
19. Qualitative Research: Reaching the parts other methods cannot reach: an introduction to qualitative methods in health and health services research. Pope C, Mays N, BMJ 1995 311 42 45 10.1136/bmj.311.6996.42 7613329
20. Diagnosis and management of attention-deficit/hyperactivity disorder in children, young people, and adults: summary of NICE guidance. Kendall T, Taylor E, Perez A, Taylor C, BMJ 2008 337 1239 10.1136/bmj.a1239 18815170
21. Attention deficit hyperactivity disorder: diagnosis and management of ADHD in children, young people and adults [ http://www.nice.org.uk/CG72 ]
22. Assessment and management of attention-deficit hyperactivity disorder in adults. Weiss M, Murray C, Can Med Assoc J 2003 168 6 715 722 (Pubitemid 36363670)
23. Understanding and evaluating qualitative research. Fossey E, Harvey C, McDermott F, Davidson L, Aust N Z J Psychiatry 2002 36 6 717 732 10.1046/j.1440-1614.2002.01100.x 12406114 (Pubitemid 35469732)
24. Determining Sample Size. Morse JM, Qual Health Res 2000 10 1 3 5 10.1177/104973200129118183
25. Validity of Pilot Adult ADHD Self-Report Scale (ASRS) to Rate Adult ADHD Symptoms. Adler LA, Spencer T, Faraone SV, Kessler RC, Howes MJ, Biederman J, Secnik K, Ann Clin Psychiatry 2006 18 3 145 148 10.1080/10401230600801077 16923651 (Pubitemid 44576434)
26. Barkley R, Murphy K, Attention-deficit Hyperactivity Disorder: A clinical workbook Guilford: Guilford Press 2006
27. Boyatzis RE, Transforming qualitative information: thematic analysis and code development London: Sage Publications 1998
28. Charmaz K, Constructing grounded theory: a practical guide through qualitative analysis London: Sage Publications 2006
29. Qualitative research in health care-Assessing quality in qualitative research. Mays N, Pope C, BMJ 2000 320 50 52 10.1136/bmj.320.7226.50 10617534 (Pubitemid 30173021)
30. QSR International Pty Ltd, NVivo qualitative data analysis software, version 9 2010
31. Child and caregiver issues in the treatment of attention deficit hyperactivity disorder: education, adherence and treatment choice. Ferrin M, Taylor E, Futur Neurol 2011 6 3 399 413 10.2217/fnl.11.5
32. Attention-deficit hyperactivity disorder: treatment discontinuation in adolescents and young adults. McCarthy S, Asherson P, Coghill D, Hollis C, Murray M, Potts L, Sayal K, De Soysa R, Taylor E, Williams T, Wong IC, B J Psychiatry 2009 194 3 273 277 10.1192/bjp.bp.107.045245
33. Persistence of pharmacological treatment into adulthood, in UK primary care, for ADHD patients who started treatment in childhood or adolescence. McCarthy S, Wilton L, Murray M, Hodgkins P, Asherson P, Wong I, BMC Psychiatry 2012 12 1 219 10.1186/1471-244X-12-219 23216881
34. The persistence of ADHD into adulthood. Young S, Pract Nurs 2001 12 11 453 456
35. Cognitive-behavioral therapy for ADHD in medication-treated adults with continued symptoms. Safren SA, Otto MW, Sprich S, Winett CL, Wilens TE, Biederman J, Behav Res Ther 2005 43 7 831 842 10.1016/j.brat.2004.07.001 15896281 (Pubitemid 40719607)
36. A combined treatment approach for adults with ADHD-results of an open study of 43 patients. Rostain AL, Ramsay JR, J Atten Disord 2006 10 2 150 159 10.1177/1087054706288110 17085625 (Pubitemid 44622769)
37. Practitioner Review: Non-pharmacological treatments for ADHD: A lifespan approach. Young S, Amarasinghe JM, J Child Psychol Psychiatry 2010 51 2 116 133 10.1111/j.1469-7610.2009.02191.x 19891745
38. Efficacy of meta-cognitive therapy for adult ADHD. Solanto M, Marks D, Wasserstein J, Mitchell K, Abikoff H, Alvir J, Kofman M, Am J Psychiatry 2010 167 Suppl 8 958 968 20231319
39. Cognitive behavioural therapy vs relaxation with educational support for medication-treated adults with ADHD and persistent symptoms: a randomized controlled trial. Safren S, Sprich S, Mimiaga M, Surman C, Knouse L, Groves M, Otto M, JAMA 2010 304 Suppl 8 875 880 20736471
40. Psychotherapy in adult attention deficit hyperactivity disorder: implications for treatment and research. Philipsen A, Expert Rev Neurother 2012 12 10 1217 1225 10.1586/ern.12.91 23082738
41. Cognitive behaviour therapy in medication-treated adults with ADHD and persistent Symptoms: A randomized controlled trial. Emilsson B, Gudjonsson G, Sigurdsson J, Baldursson G, Einarsson E, Olafsdottir H, Young S, BMC Psychiatry 2011 11 1 116 10.1186/1471-244X-11-116 21787431
42. Cessation of attention deficit hyperactivity disorder drugs in the young (CADDY)-a pharmacoepidemiological and qualitative study. Wong IC, Asherson P, Bilbow A, Clifford S, Coghill D, DeSoysa R, Hollis C, McCarthy S, Murray M, Planner C, Potts L, Sayal K, Taylor E, Health Technol Assess 2009 13 50 1 120 19846022
43. The epidemiology of pharmacologically treated attention deficit hyperactivity disorder (ADHD) in children, adolescents and adults in UK primary care. McCarthy S, Wilton L, Murray ML, Hodgkins P, Asherson P, Wong IC, BMC Pediatr 2012 12 78 1471 2431
44. The prevalence of DSM-IV attention-deficit/hyperactivity disorder: a meta-analytic review. Willcutt EG, Neurotherapeutics 2012 9 3 490 499 10.1007/s13311-012-0135-8 22976615
45. Adults with ADHD: ignored and under-treated. Drug and Therapeutics Bulletin, Drug Ther Bull 2011 49 7 73 21752832