Toward a layered model of context for health information searching: An analysis of consumer-generated questions

Journal of the American Society for Information Science and Technology

Volumn 64, Issue 6, 2013, Pages 1158-1172

  Zhang, Yan ^a  

^a UNIVERSITY OF TEXAS AT AUSTIN   (United States)

Author keywords

end user searching; information seeking; user attributes

Indexed keywords

CONSUMER HEALTH INFORMATION; END USERS; HEALTH INFORMATION SYSTEMS; ILLNESS TRAJECTORIES; INFORMATION CHANNELS; INFORMATION SEEKING; SOCIAL AND ENVIRONMENTAL; USER ATTRIBUTES;

POPULATION STATISTICS;

INFORMATION RETRIEVAL;

EID: 84877595512     PISSN: 15322882     EISSN: 15322890     Source Type: Journal    
DOI: 10.1002/asi.22821     Document Type: Article

References (78)

1. Adams, E., Boulton, M., &, Watson, E., (2009). The information needs of partners and family members of cancer patients: a systematic literature review. Patient Education and Counseling, 77 (2), 179-186.
2. Allan, J., Aslam, J., Belkin, N., Buckley, C., Callan, J., Croft, B.,. (2003). Challenges in information retrieval and language modeling: report of a workshop held at the center for intelligent information retrieval, University of Massachusetts Amherst, September 2002. SIGIR Forum, 37 (1), 31-47.
3. Ankem, K., (2006). Factors influencing information needs among cancer patients: A meta-analysis. Library & Information Science Research, 28 (1), 7-23.
4. Arora, N.K., Hesse, B.W., Rimer, B.K., Viswanath, K., Clayman, M.L., &, Croyle, R.T., (2008). Frustrated and confused: The American public rates its cancer-related information-seeking experiences. Journal of General Internal Medicine, 23 (3), 223-228.
5. Bates, M.J., (1986). Subject access in online catalogs: A design model. Journal of the American Society for Information Science, 37 (6), 357-376.
6. Belkin, N.J., Oddy, R.N., &, Brooks, H.M., (1982). ASK for Information retrieval: Part I. Background and theory. Journal of Documentation, 38 (2), 61-71.
7. Belkin, N.J., Seeger, T., &, Wersig, G., (1983). Distributed expert problem treatment as a model for information system analysis and design. Journal of Information Science, 5 (5), 153-167.
8. Boden, C., (2009). Overcoming the linguistic divide: a barrier to consumer health information. Journal Canadian Health Libraries Association, 30 (3), 75-80.
9. Byström, K., &, Hansen, P., (2005). Conceptual framework for tasks in information studies. Journal of the American Society for Information Science and Technology, 56 (10), 1050-1061.
10. Cartright, M.-A., White, R.W., &, Horvitz, E., (2011). Intentions and attention in exploratory health search. SIGIR'11 (pp. 65-74). New York: ACM.
11. Case, D.O., (2002). Looking for information: A survey of research on information seeking, needs, and behavior. New York: Academic Press.
12. Case, D.O., Andrews, J.E., Johnson, J.D., &, Allard, S.L., (2005). Avoiding versus seeking: the relationship of information seeking to avoidance, blunting, coping, dissonance, and related concepts. Journal of the Medical Library Association, 93 (3), 353-362.
13. Charmaz, K., (2006). Constructing grounded theory: A practical guide through qualitative analysis. Thousand Oaks, CA: SAGE Publications.
14. Cool, C., (2001). The concept of situation in information science. Annual Review of Information Science and Technology (ARIST), 35, 5-42.
15. Cool, C., &, Spink, A., (2002). Issues of context in information retrieval (IR): an introduction to the special issue. Information Processing & Management, 38 (5), 605-611.
16. Courtright, C., (2008). Context in information behavior research. Annual Review of Information Science and Technology, 41 (1), 273-306.
17. Dervin, B., (1983). An overview of sense-making research: Concepts, methods, and results to date. Paper presented at the annual meeting of the International Communication Association, Dallas, TX.
18. Dervin, B., (2003). Given a context by any other name: Methodological tools for taming the unruly beast. In, B. Dervin, &, L. Foreman-Wernet, (with, E. Lauterbach,) (Eds.). Sense-making methodology reader: Selected writings of Brenda Dervin (pp. 111-132). Cresskill, NJ: Hampton Press.
19. Dervin, B., (2005). Libraries reaching out with health information to vulnerable populations: Guidance from research on information seeking and use. Journal of Medical Library Association, 93 (4) Supplement: 71-77.
20. Eakin, E.G., &, Strycker, L.A., (2001). Awareness and barriers to use of cancer support and information resources by HMO patients with breast, prostate, or colon cancer: Patient and provider perspectives. Psycho-oncology, 10 (2), 103-113.
21. Fidel, R., (1991). Searchers' selection of search keys: I. The selection routine. Journal of the American Society for Information Science, 42, 490-500.
22. Fox, S., (2011). The social life of health information, 2011. Retrieved from: http://www.pewinternet.org/~/media//Files/Reports/2011/PIP-Social-Life-of- Health-Info.pdf
23. Fox, S., &, Purcell, K., (2010). Chronic disease and the internet. Washington, DC: Pew Internet and Life Project. Retrieved from: http://pewinternet.org/~/media//Files/Reports/2010/PIP-Chronic-Disease-with- topline.pdf
24. Freund, L., &, Toms, E.G., (2005). Contextual search: From information behaviour to information retrieval. In Proceedings of the Annual Conference of the Canadian Association for Information Science.
25. Glaser, B., &, Strauss, A., (1967). The discovery of grounded theory: Strategies for qualitative research. Piscataway, NJ: Aldine Transaction.
26. Graydon, J., Galloway, S., Palmer-Wickham, S., Harrison, D., Bij, L.R.,. (1997). Information needs of women during early treatment for breast cancer. Journal of Advanced Nursing, 26 (1), 59-64.
27. Hack, T.F., Degner, L.F., &, Dyck, D.G., (1994). Relationship between preferences for decisional control and illness information among women with breast cancer: A quantitative and qualitative analysis. Social Science & Medicine (1982), 39 (2), 279-289.
28. Hesse, B.W., Arora, N.K., Burke Beckjord, E., &, Finney Rutten, L.J., (2008). Information support for cancer survivors. Cancer, 112 (11 Suppl), 2529-2540.
29. Ingwersen, P., &, Järvelin, K., (2005). The turn: Integration of information seeking and retrieval in context (the Information Retrieval Series). Secaucus, NJ: Springer.
30. Johnson, J.D., (1997). Cancer-related information seeking. Cresskill, NJ: Hampton Press.
31. Johnson, J.D., (2003). On contexts of information seeking. Information Processing & Management, 39 (5), 735-760.
32. Kelly, D., (2006). Measuring online information seeking context. Part 1: Background and method. Journal of the American Society for Information Science and Technology, 57 (13), 1729-1739.
33. Klemm, P., Reppert, K., &, Visich, L., (1998). A nontraditional cancer support group. The internet. Computers in Nursing, 16 (1), 31-36.
34. Kuhlthau, C.C., (2005). Towards collaboration between information seeking and information retrieval. Retrieved from http://informationr.net/ir/10-2/ paper225.html
35. Lee, J.H., Hu, X., &, Downie, J.S., (2005) Q&A website as the source of context metadata for information retrieval (position paper). In Proceedings of SIGIR IRiX Workshop, August 2005, Salvador, Brazil.
36. Lenz, E.R., (1984). Information seeking: A component of client decisions and health behavior. Advances in Nursing Science, 6 (3), 59-72.
37. Lin, S., &, Belkin, N.J., (2000). Modeling multiple information seeking episodes. Proceedings of the ASIS Annual Meeting, 37, 133-147.
38. Liu, Y., Bian, J., &, Agichtein, E., (2008). Predicting information seeker satisfaction in community question answering. SIGIR'08 (pp. 483-490). New York: ACM.
39. Lopes, C., &, Ribeiro, C., (2010). Context in health information retrieval: What and where. Workshop on Human-Computer Interaction and Information Retrieval 2010. New Brunswick, NJ. Retrieved from: http://research.microsoft.com/en-us/um/people/ryenw/hcir2010/docs/papers/ Lopes-pp9.pdf
40. Luo, G., &, Tang, C., (2008). On iterative intelligent medical search. SIGIR'08 (pp. 3-10). New York: ACM.
41. Marchionini, G., (1997). Information seeking in electronic environments. Cambridge, UK: Cambridge University Press.
42. Martins, D.S., Santana, L.H.Z., Biajiz, M., do Prado, A.F., & de, Souza, W.L., (2008). Context-aware information retrieval on a ubiquitous medical learning environment. SAC'08 (pp. 2348-2349). New York: ACM.
43. Mcillmurray, M.B., Thomas, C., Francis, B., Morris, S., Soothill, K., &, Al-hamad, A., (2001). The psychosocial needs of cancer patients: Findings from an observational study. European Journal of Cancer Care, 10 (4), 261-269.
44. Mesters, I., van den Borne, B., De Boer, M., &, Pruyn, J., (2001). Measuring information needs among cancer patients. Patient Education and Counseling, 43 (3), 253-262.
45. Miles, M.B., &, Huberman, A.M., (1994). Qualitative data analysis: An expanded sourcebook. Thousand Oaks, CA: SAGE.
46. Miller, S.M., (1995). Monitoring versus blunting styles of coping with cancer influence the information patients want and need about their disease: Implications for cancer screening and management. Cancer, 76 (2), 167-177.
47. Mu, X., Ryu, H., &, Lu, K., (2011). Supporting effective health and biomedical information retrieval and navigation: A novel facet view interface evaluation. Journal of Biomedical Informatics, 44 (4), 576-586.
48. Muller, C.F., (1992). Health care and gender. Russell Sage Foundation.
49. Nahl, D., &, Bilal, D., (2007). Information and emotion: The emergent affective paradigm in information behavior research and theory. Information Today, Inc.
50. Pomerantz, J., (2005). A linguistic analysis of question taxonomies: Research articles. Journal of the American Society for Information Science and Technology, 56 (7), 715-728.
51. Preece, J., (1998). Empathic communities: reaching out across the web. Interactions, 5 (2), 32-43.
52. Rieh, S.Y., (2004). On the web at home: Information seeking and web searching in the home environment. Journal of the American Society for Information Science and Technology, 55 (8), 743-753.
53. Rutten, L.J.F., Arora, N.K., Bakos, A.D., Aziz, N., &, Rowland, J., (2005). Information needs and sources of information among cancer patients: A systematic review of research (1980-2003). Patient Education and Counseling, 57 (3), 250-261.
54. Saracevic, T., (1997). The stratified model of information retrieval interaction: Extension and applications. Proceedings of the ASIS Annual Meeting, 34, 313-327.
55. Savolainen, R., (2006). Time as a context of information seeking. Library & Information Science Research, 28 (1), 110-127.
56. Sonnenwald, D.H., (1999). Evolving perspectives of human behavior: Contexts, situations, social networks and information horizons. In, T.D. Wilson, &, D.K. Allen, (Eds.), Exploring the contexts of information behaviour: Proceedings of the 2nd International Conference on Research in Information Needs, Seeking and Use in Different Contexts (pp. 176-190). London: Taylor Graham.
57. Solomon, P., (2002). Discovering information in context. Annual Review of Information Science and Technology (ARIST), 36, 229-264.
58. Talja, S., Keso, H., &, Pietilainen, T., (1999). The production of "context" in information seeking research: A metatheoretical view. Information Processing & Management, 35 (6), 751-763.
59. Taylor, R.S., (1968). Question-negotiation and information-seeking in libraries. College Research Libraries, 29 (3), 178-194.
60. Taylor, R.S., (1991) Information use environments. In, B. Dervin, (Ed.) Progress in communication sciences, v. 10 (pp. 217-225). Norwood, NJ: Ablex.
61. Toms, E.G., Freund, L., Kopak, R., &, Bartlett, J.C., (2003). The effect of task domain on search. Proceedings of the 2003 Conference of the Centre for Advanced Studies on Collaborative Research, CASCON'03 (pp. 303-312). New York: IBM Press.
62. Vakkari, P., (1997). Information seeking in context: A challenging metatheory. In, P. Vakkari, R. Savolainen, &, B. Dervin, (Eds.), Information seeking in context: Proceedings of an International Conference on Research in Information Needs, Seeking and Use in Different Contexts (pp. 451-464). London: Taylor Graham.
63. Vakkari, P., (1999). Task complexity, problem structure and information actions: Integrating studies on information seeking and retrieval. Information Processing & Management, 35 (6), 819-837.
64. Vakkari, P., (2003). Task-based information searching. Annual Review of Information Science and Technology (ARIST), 37, 413-464.
65. White, M.D., (2000). Questioning behavior on a consumer health electronic list. The Library Quarterly, 70 (3), 302-334.
66. Wildemuth, B.M., &, Freund, L., (2009). Search tasks and their role in studies of search behaviors. Paper presented at the Third Annual Workshop on Human Computer Interaction and Information Retrieval, Washington D.C., October 23, 2009.
67. Wilson, T.D., (1981). On user studies and information needs. Journal of Documentation, 37 (1), 3-15.
68. Wilson, T.D., (1997). Information behavior: An interdisciplinary perspective. Information Processing and Management, 33 (4), 551-572.
69. Wilson, T.D., (1999). Models in information behaviour research. Journal of Documentation, 55 (3), 249-270.
70. Yoon, J., &, Chung, E., (2011). Understanding image needs in daily life by analyzing questions in a social Q&A site. Journal of the American Society for Information Science and Technology, 62 (11), 2201-2213.
71. Zeng, Q. T., Crowell, J., Plovnick, R.M., Kim, E., Ngo, L., &, Dibble, E., (2006). Assisting consumer health information retrieval with query recommendations. Journal of the American Medical Informatics Association: JAMIA, 13 (1), 80-90.
72. Zeng, Q.T., Kogan, S., Plovnick, R.M., Crowell, J., Lacroix, E.-M., &, Greenes, R.A., (2004). Positive attitudes and failed queries: An exploration of the conundrums of consumer health information retrieval. International Journal of Medical Informatics, 73 (1), 45-55.
73. Zhang, Y., (2010). Contextualizing consumer health information searching: an analysis of questions in a social Q&A community. In the Proceedings of ACM International Health Informatics (IHI) Symposium, Arlington, VA, pp. 210-219.
74. Zhang, Y., (2011). A review of search interfaces in consumer health websites. Workshop on Human-Computer Interaction and Information Retrieval 2011. Mountain View, CA. Retrieved from: http://hcir.info/hcir-2012/
75. Zhang, Y., (in press). Searching for specific health-related information in MedlinePlus: Behavioral patterns and user experience. Journal of the American Society for Information Science and Technology.
76. Zhang, Y., &, Wildemuth, B.M., (2009). Qualitative analysis of content. In, B. Wildemuth, (Ed.), Applications of social research methods to questions in information and library science (pp. 308-319). Westport, CT: Libraries Unlimited
77. Zhang, Y., Wang, P., Heaton, A., &, Winkler, H., (2012). Health information searching behavior in MedlinePlus and the impact of tasks. In Proceedings of the ACM IHI'12 (pp. 641-650). New York: ACM.
78. Zickuhr, K., (2010). Generations 2010. Pew Internet & American Life project. Retrieved from: http://www.pewinternet.org/~/media//Files/Reports/2010/ PIP-Generations-and-Tech10.pdf