Women's experiences in a community-based participatory research randomized controlled trial

Qualitative Health Research

Volumn 23, Issue 6, 2013, Pages 847-860

  Kneipp, Shawn M ^a   Lutz, Barbara J ^b   Levonian, Catherine ^b   Cook, Christa ^b   Hamilton, Jill B ^a   Roberson, Dawne ^a  

^a UNIVERSITY OF NORTH CAROLINA   (United States)

^b UNIVERSITY OF FLORIDA   (United States)

Author keywords

dimensional analysis; focus groups; health outcomes; intervention programs; longitudinal studies; marginalized populations; participatory action research (PAR)

Indexed keywords

ADULT; ARTICLE; CULTURAL COMPETENCE; ECONOMICS; EQUIPMENT; FEMALE; HEALTH STATUS; HEALTH SURVEY; HUMAN; HUMAN RELATION; INFORMATION PROCESSING; INTERVIEW; MIDDLE AGED; PARTICIPATORY RESEARCH; POVERTY; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; RANDOMIZED CONTROLLED TRIAL (TOPIC); SOCIAL CARE; STANDARD; YOUNG ADULT; DEVICES; PSYCHOLOGY; STANDARDS;

ADULT; COMMUNITY-BASED PARTICIPATORY RESEARCH; CULTURAL COMPETENCY; FEMALE; FOCUS GROUPS; HEALTH STATUS; HEALTH SURVEYS; HUMANS; INTERPERSONAL RELATIONS; INTERVIEWS AS TOPIC; MIDDLE AGED; POVERTY; PUBLIC ASSISTANCE; QUESTIONNAIRES; RANDOMIZED CONTROLLED TRIALS AS TOPIC; YOUNG ADULT;

EID: 84876793848     PISSN: 10497323     EISSN: 15527557     Source Type: Journal    
DOI: 10.1177/1049732313483924     Document Type: Article

References (49)

1. Angen M. J.. Evaluating interpretive inquiry: Reviewing the validity debate and opening the dialogue. Qualitative Health Research. 2000 ; 10: 378-395
2. Banks-Wallace J.. Emancipatory potential of storytelling in a group. Image Journal of Nursing Scholarship. 1998 ; 30: 17-21
3. Banks-Wallace J.. Talk that talk: Storytelling and analysis rooted in African American oral tradition. Qualitative Health Research. 2002 ; 12: 410-426
4. Beal C. C., Stuifbergen A., Volker D., Becker H.. Women's experiences as members of attention control and experimental intervention groups in a randomized controlled trial. Canadian Journal of Nursing Research. 2009 ; 41 (4). 16-31
5. Bowers B., Schatzman L. Developing grounded theory: The second generation. Morse J. Stern P. Corbin B. Bowers B. Clarke A. E. Charmaz K., ed. Walnut Creek, CA: Left Coast Press ; 2009 :
6. Brown P., Morello-Frosch R., Brody J. G., Altman R. G., Rudel R. A., Senier L., Simpson R.. Institutional review board challenges related to community-based participatory research on human exposure to environmental toxins: A case study. Environmental Health. 2010 ; 9 (39). 1-12
7. Clayton D. K., Rogers S., Stuifbergen A.. Answers to unasked questions: Writing in the margins. Research in Nursing & Health. 1999 ; 22: 512-522
8. Cook W. K.. Integrating research and action: A systematic review of community-based participatory research to address health disparities in environmental and occupational health in the USA. Journal of Epidemiology and Community Health. 2008 ; 62: 668-676
9. Fagnoni C. Welfare reform: More coordinated federal effort could help states and localities move TANF recipients with impairments toward employment. Washington, DC: U. S. General Accounting Office ; 2001 :
10. Flaskerud J. H., Nyamathi A. M.. New paradigm for health disparities needed. Nursing Research. 2002 ; 51: 139
11. Fogg L., Gross D.. Threats to validity in randomized clinical trials. Research in Nursing & Health. 2000 ; 23: 79-87
12. French D. P., Sutton S.. Reactivity of measurement in health psychology: How much of a problem is it? What can be done about it?. British Journal of Health Psychology. 2010 ; 15: 453-468
13. Grassley J. S., Nelms T. P.. Tales of resistance and other emancipatory functions of storytelling. Journal of Advanced Nursing. 2009 ; 65: 2447-2453
14. Harding S. Whose science? Whose knowledge?: Thinking from women's lives. New York: Cornell University Press ; 1991 :
15. Hughes J. R., Keely J. P., Fagerstrom K. O., Callas P. W.. Intentions to quit smoking change over short periods of time. Addictive Behaviors. 2005 ; 30: 653-663
16. Israel B. A., Eng E., Schulz A. J., Parker E. A. Methods in community-based participatory research for health. San Francisco: Jossey-Bass ; 2005 :
17. Jackson C. J., Dixon-Woods M., Eborall H., Kenyon S., Toozs-Hobson P., Tincello D. G.. Women's views and experiences of a patient preference trial in surgery: A qualitative study of the CARPET1 trial. Clinical Trials. 2010 ; 7: 696-704
18. Kneipp S. M., Kairalla J., Lutz B. J., Pereira D. B., Hall A., Flocks J., Schwartz T.. Public health nursing case management for women receiving Temporary Assistance for Needy Families: A randomized controlled trial using community-based participatory research. American Journal of Public Health. 2011 ; 101: 1759-1768
19. Kobeissi L., Nakkash R., Ghantous Z., Saad M. A., Yassin N.. Evaluating a community based participatory approach to research with disadvantaged women in the southern suburbs of Beirut. Journal of Community Health. 2011 ; 36: 741-747
20. Kreuter M. W., Wray R. J.. Tailored and targeted health communication: Strategies for enhancing information relevance. American Journal of Health Behavior, 27. 2003 ;: S227 - S232
21. Ladner J. Tomorrow's tomorrow: The Black woman. Lincoln: University of Nebraska Press ; 1995 :
22. Lincoln Y. S., Guba E. G. Naturalistic inquiry. Newbury Park, CA: Sage ; 1985 :
23. Lutz B. J., Kneipp S., Means D.. Developing a health screening questionnaire for women in welfare transition programs in the United States. Qualitative Health Research. 2009 ; 19: 105-115
24. Malone R. E., Yerger V. B., McGruder C., Froelicher E.. "It's like Tuskegee in reverse": A case study of ethical tensions in institutional review board review of community-based participatory research. American Journal of Public Health. 2006 ; 96: 1914-1919
25. Minkler M.. Community-based research partnerships: Challenges and opportunities. Journal of Urban Health, 82. 2005 ;:
26. Minkler M., Wallerstein N. Community-based participatory research for health. San Francisco: Jossey-Bass ; 2003 :
27. Mitchell T. L., Baker E.. Community-building versus career-building research: The challenges, risks, and responsibilities of conducting research with aboriginal and Native American communities. Journal of Cancer Education, 20. 2005 ;: 41-46
28. Morgan D. L., Krueger R. A. The focus group tool kit: Volumes 1-6. Thousand Oaks, CA: Sage ; 1997 :
29. Ochocka J., Janzen R., Nelson G.. Sharing power and knowledge: Professional and mental health consumer/survivor researchers working together in a participatory action research project. Psychiatric Rehabilitation Journal. 2002 ; 25: 379-387
30. Parker E. A., Israel B. A., Williams M., Brakefield-Caldwell W., Lewis T. C., Robins T., Keeler G.. Community action against asthma: Examining the partnership process of a community-based participatory research project. Journal of General Internal Medicine. 2003 ; 18: 558-567
31. Pivak J. R., Goelman H.. Evaluation of a community-based participatory research consortium from the perspective of academics and community service providers focused on child health and well-being. Health Education & Behavior. 2011 ; 38: 271-281
32. Poussaint A. F., Alexander A. Lay my burden down: Unraveling suicide and the mental health crisis among African Americans. Boston: Beacon Press Books ; 2000 :
33. Doncaster, Victoria, Australia: Author ; 2010 :
34. Reeve P., Cornell S., D'Costa B., Janzen R., Ochocka J.. From our perspective: Consumer researchers speak about their experience in a community mental health research project [Brief report]. Psychiatric Rehabilitation Journal. 2002 ; 25: 403-409
35. Rolfe G.. Validity, trustworthiness and rigour: Quality and the idea of qualitative research [Review]. Journal of Advanced Nursing. 2006 ; 53: 304-310
36. Rubin D. C., Boals A., Klein K.. Autobiographical memories for very negative events: The effects of thinking about and rating memories. Cognitive Therapy and Research. 2010 ; 34: 35-48
37. Sandelowski M.. Rigor or rigor mortis: The problem of rigor in qualitative research revisited [Review]. Advances in Nursing Science. 1993 ; 16 (2). 1-8
38. Schatzman L. Social organization and social process essays in honor of Anselm Strauss. Maines D. R., ed. New York: Aldine De Gruyter ; 1991: 303-314.
39. Shalin D. N.. Pragmatism and social interactionism. American Sociological Review, 51. 1986 ;:
40. Slade P., Morrell C. J., Rigby A., Ricci K., Spittlehouse J., Brugha T. S.. Postnatal women's experiences of management of depressive symptoms: A qualitative study. British Journal of General Practice. 2010 ; 60 (580). e440 - e448
41. Unequal treatment: Confronting racial and ethnic disparities in health care. Smedley B. D. Stith A. Y. Nelson A. R., ed. Washington, DC: National Academies Press ; 2003 :
42. Smith T. B., Rodriguez M. D., Bernal G.. Culture. Journal of Clinical Psychology. 2011 ; 67: 166-175
43. Smyth R. M., Jacoby A., Elbourne D.. Deciding to join a perinatal randomised controlled trial: Experiences and views of pregnant women enrolled in the Magpie Trial. Midwifery. 2011 ; 28 (4). e478 - e485
44. Steckler A., Linnan L. Process evaluation for public health interventions and research. San Francisco: Jossey-Bass ; 2002 :
45. Swanson K. M.. Effects of caring, measurement, and time on miscarriage impact and women's well-being. Nursing Research. 1999 ; 48 (6). 288-298
46. Taylor J. Y.. Colonizing images and diagnostic labels: Oppressive mechanisms for African American women's health. Advances in Nursing Science. 1999 ; 21 (3). 32-45
47. Trotta R. L.. Quality of death: A dimensional analysis of palliative care in the nursing home. Journal of Palliative Medicine. 2007 ; 10: 1116-1127
48. Healthy people 2020. Washington, DC: Author ; 2010 :
49. Viswanathan M., Ammerman A., Eng E., Gartlehner G., Lohr K., Griffith D., Whitener L. Community based participatory research: Assessing the evidence. Rockville, MD: Agency for Healthcare Research and Quality ; 2004 :