Community-building versus career-building research: The challenges, risks, and responsibilities of conducting research with Aboriginal and Native American communities

Journal of Cancer Education

Volumn 20, Issue SUPPL. 1, 2005, Pages 41-46

  Mitchell, Terry Leigh ^a   Baker, Emerance ^a   Castro, Lisa ^b  

^a WILFRID LAURIER UNIVERSITY   (Canada)

^b Native American Cancer Research   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ABORIGINE; AMERICAN INDIAN; CANCER RESEARCH; COMMUNITY CARE; ETHICS; HUMAN; METHODOLOGY; NORTH AMERICA; PRACTICE GUIDELINE; PRIORITY JOURNAL; PRIVACY; REVIEW;

BIOMEDICAL RESEARCH; BREAST NEOPLASMS; CANADA; COMMUNITY-INSTITUTIONAL RELATIONS; CONSUMER PARTICIPATION; CULTURAL CHARACTERISTICS; FEMALE; GENITAL NEOPLASMS, FEMALE; HUMANS; INDIANS, NORTH AMERICAN; INUITS; PATIENT SELECTION; UNITED STATES;

EID: 18844421850     PISSN: 08858195     EISSN: None     Source Type: Journal    
DOI: 10.1207/s15430154jce2001s_10     Document Type: Review

References (12)

1. Green L, George M, Daniel M, Frankish C. Study of Participatory Research in Health Promotion: Review and Recommendations for the Development of Participatory Research in Health Promotion in Canada by the Institute of Health Promotion Research, University of British Columbia & B. C. consortium for Health Promotion. Ottawa, Ontario, Canada: Royal Society of Canada; 1995.
2. Chrisman NJ, Strickland CJ, Powell K, et al. Community partnership research with the YakamaIndianNation.Hum Organ. 1999;58:134-141.
3. Park, P. What is participatory research? A theoretical and methodological perspective. In: Park P, Brydon-Miller M, Hall B, Jackson T, eds. Voices of Change: Participatory Research in the United States and Canada. Toronto, Ontario, Canada: Ontario Institute for Studies in Education; 1993:1.
4. Hall B. Participatory research, popular knowledge and power: a personal reflection. Convergence. 1981;14:6-19.
5. Hagey RS. The use and abuse of participatory action research. Chronic Dis Can. 1997;18:1-6.
6. Schnarch B. Ownership, control, access and possession (OCAP) or self-determination applied to research: a critical analysis of contemporary first nations research and some options for first nation communities. J Aboriginal Health. 2004;1:80-95.
7. O'Neil JD, Reading JR, Leader A. Ethics of Aboriginal research. Human Organization. 1998;57:230-237.
8. Castellano MB. Ethics of Aboriginal research. J Aboriginal Health. 2004;1:98-114.
9. Macaulay AC, Delormier T, McComber AM, et al. Participatory research with native community of Kahnawake creates innovative code of research ethics. Can J Public Health. 1998;89(2):105-108.
10. Burhansstipanov L, Gilbert A, LaMarca K, Krebs LU. An innovative path to improving cancer care in Indian country. Public Health Rep. 2001 Sep-Oct;116(5):424-433.
11. Elias B, O'neil JD, Sanderson D. The politics of trust and participation: a case study of developing first nations and university capacity to build health information systems in a first nations context. J Ab-original Health. 2004;1:68-78.
12. Little Bear L. Jagged worldviews colliding. In: Battiste M, ed. Reclaiming Indigenous Voice and Vision. Vancouver, British Columbia, Canada: UBC Press; 2000:85.