Parents of Adolescents with Type 1 Diabetes - Their Views on Information and Communication Needs and Internet Use. A Qualitative Study

PLoS ONE

Volumn 8, Issue 4, 2013, Pages

  Nordfeldt, Sam ^a   Ängarne Lindberg, Teresia ^a   Nordwall, Maria ^a,b   Krevers, Barbro ^a  

^a LINKÖPING UNIVERSITY   (Sweden)

^b VRINNEVI HOSPITAL   (Sweden)

Author keywords

[No Author keywords available]

Indexed keywords

ACCESS TO INFORMATION; ADOLESCENT; ARTICLE; CHILD; CLINICAL ARTICLE; CONSULTATION; CONTENT ANALYSIS; CONTROLLED STUDY; DAILY LIFE ACTIVITY; DECISION SUPPORT SYSTEM; DEMOGRAPHY; DEVELOPMENTAL STAGE; EMOTION; HUMAN; HUMAN COMPUTER INTERACTION; INFORMATION PROCESSING; INFORMATION SEEKING; INSULIN DEPENDENT DIABETES MELLITUS; INTERNET; INTERPERSONAL COMMUNICATION; INTERVIEW; KNOWLEDGE; MEDICAL INFORMATION; NEEDS ASSESSMENT; ONLINE SYSTEM; PARENTAL ATTITUDE; PEER GROUP; PERSONAL EXPERIENCE; QUALITATIVE ANALYSIS; QUALITATIVE RESEARCH; SCHOOL CHILD; SELF REPORT; SOCIAL NETWORK; ADULT; FEMALE; MALE; MIDDLE AGED; PARENT; PSYCHOLOGY; QUESTIONNAIRE; SWEDEN;

ADOLESCENT; ADULT; CHILD; DIABETES MELLITUS, TYPE 1; FEMALE; FOCUS GROUPS; HUMANS; INFORMATION SEEKING BEHAVIOR; INTERNET; MALE; MIDDLE AGED; PARENTS; QUALITATIVE RESEARCH; QUESTIONNAIRES; SWEDEN;

EID: 84876562266     PISSN: None     EISSN: 19326203     Source Type: Journal    
DOI: 10.1371/journal.pone.0062096     Document Type: Article

References (40)

1. Brink SJ, Miller M, Moltz KC, (2002) Education and multidisciplinary team care concepts for pediatric and adolescent diabetes mellitus. J Pediatr Endocrinol Metab 15: 1113-1130.
2. Wikblad KF, (1991) Patient perspectives of diabetes care and education. J Adv Nurs 16: 837-844.
3. Jaser SS, (2011) Family interaction in pediatric diabetes. Curr Diab Rep 11: 480-485.
4. Anderson BJ, Vangsness L, Connell A, Butler D, Goebel-Fabbri A, et al. (2002) Family conflict, adherence, and glycaemic control in youth with short duration Type 1 diabetes. Diabet Med 19: 635-642.
5. Lindstrom C, Aman J, Norberg AL, (2010) Increased prevalence of burnout symptoms in parents of chronically ill children. Acta Paediatr 99: 427-432.
6. Karlsson A, Arman M, Wikblad K, (2008) Teenagers with type 1 diabetes-a phenomenological study of the transition towards autonomy in self-management. Int J Nurs Stud 45: 562-570.
7. Grey M, Jaser SS, Whittemore R, Jeon S, Lindemann E, (2011) Coping skills training for parents of children with type 1 diabetes: 12-month outcomes. Nurs Res 60: 173-181.
8. Barlow JH, Ellard DR, (2004) Psycho-educational interventions for children with chronic disease, parents and siblings: an overview of the research evidence base. Child Care Health Dev 30: 637-645.
9. Hanberger L, Ludvigsson J, Nordfeldt S, (2006) Quality of care from the patient's perspective in pediatric diabetes care. Diabetes Res Clin Pract 72: 197-205.
10. Peyrot M, (2009) The DAWN Youth WebTalk Study: methods, findings, and implications. Pediatr Diabetes 10Suppl 13: 37-45.
11. Stallwood L, (2006) Relationship between caregiver knowledge and socioeconomic factors on glycemic outcomes of young children with diabetes. J Spec Pediatr Nurs 11: 158-165.
12. Borzekowski DL, Fobil JN, Asante KO, (2006) Online access by adolescents in Accra: Ghanaian teens' use of the internet for health information. Dev Psychol 42: 450-458.
13. Ravert RD, Hancock MD, Ingersoll GM, (2004) Online forum messages posted by adolescents with type 1 diabetes. Diabetes Educ 30: 827-834.
14. Bartlett YK, Coulson NS, (2011) An investigation into the empowerment effects of using online support groups and how this affects health professional/patient communication. Patient Educ. Couns. 83: 113-119.
15. Nordfeldt S, Hanberger L, Bertero C, (2010) Patient and parent views on a Web 2.0 Diabetes Portal-the management tool, the generator, and the gatekeeper: qualitative study. J Med Internet Res 12: e17.
16. Nordfeldt S, Berterö C, (2012) Young Patients' Views on the Open Web 2.0 Childhood Diabetes Patient Portal: A Qualitative Study. Future Internet 4: s514-527.
17. Valere T, (1999) Children with Diabetes. Diabetes Metab Res Rev 15: 156 Available:www.childrenwithdiabetes.com.
18. Eysenbach G, (2008) Medicine 2.0: social networking, collaboration, participation, apomediation, and openness. J Med Internet Res 10: e22.
19. Nordqvist C, Hanberger L, Timpka T, Nordfeldt S, (2009) Health professionals' attitudes towards using a Web 2.0 portal for child and adolescent diabetes care: qualitative study. J Med Internet Res 11: e12.
20. Nordfeldt S, Ängarne-Lindberg T, Berterö C (2012) To Use or Not to Use - Practitioners' perceptions of an Open Web Portal for Young Patients with Diabetes. J Med Internet Res. In press.
21. Fern EF (2001) Advanced focus group research. London: Sage Publications.
22. Morgan DL (1997) Focus groups as qualitative research. London: Sage Publications.
23. Patton MO (2002) Qualitative research and evaluation methods. Thousand Oaks, CA: Sage Publishing.
24. Krippendorff K (2004) Content Analysis. An Introduction to its Methodology.
25. Andreassen HK, Bujnowska-Fedak MM, Chronaki CE, Dumitru RC, Pudule I, et al. (2007) European citizens' use of E-health services: a study of seven countries. BMC Public Health 7: 53.
26. Loos M, Kelly S, (2006) Social well-being of siblings living with a child with diabetes:a qualitative study. Soc Work Health Care 43: 53-69.
27. Lowes L, Lyne P, (2000) Chronic sorrow in parents of children with newly diagnosed diabetes: a review of the literature and discussion of the implications for nursing practice. J Adv Nurs 32: 41-48.
28. Patton SR, Dolan LM, Smith LB, Thomas IH, Powers SW, (2011) Pediatric parenting stress and its relation to depressive symptoms and fear of hypoglycemia in parents of young children with type 1 diabetes mellitus. J Clin Psychol Med Settings 18: 345-352.
29. Smaldone A, Ritholz MD, (2011) Perceptions of parenting children with type 1 diabetes diagnosed in early childhood. J Pediatr Health Care 25: 87-95.
30. Streisand R, Swift E, Wickmark T, Chen R, Holmes CS, (2005) Pediatric parenting stress among parents of children with type 1 diabetes: the role of self-efficacy, responsibility, and fear. J Pediatr Psychol 30: 513-521.
31. Kerr C, Murray E, Stevenson F, Gore C, Nazareth I, (2006) Internet interventions for long-term conditions: patient and caregiver quality criteria. J Med Internet Res 8: e13.
32. Fox S, Raine L (2002) Internet users decide what information to trust when they or their loved ones are sick. Pew Internet & American Life Project.
33. Harris PR, Sillence E, Briggs P, (2011) Perceived Threat and Corroboration: Key Factors That Improve a Predictive Model of Trust in Internet-based Health Information and Advice. J Med Internet Res 2011 13(3): e51.
34. Tarrant C, Stokes T, Baker R, (2003) Factors associated with patients' trust in their general practitioner: a cross-sectional survey. Br J Gen Pract 53: 798-800.
35. Travaline JM, Ruchinskas R, D'Alonzo GE Jr, (2005) Patient-physician communication: why and how. J Am Osteopath Assoc 105: 13-18.
36. van't Riet A, Berg M, Hiddema F, Sol K, (2001) Meeting patients' needs with patient information systems: potential benefits of qualitative research methods. Int J Med Inform 64: 1-14.
37. Martenson EK, Fagerskiold AM, Bertero CM, (2009) Observations of health-care professionals sharing and contributing responsibility in paediatric caring situations. Int J Nurs Pract 15: 185-190.
38. Elf M, Skarsater I, Krevers B, (2011) The web is not enough, it's a base- an explorative study of what needs a web-based support system for young carers must meet. Inform Health Soc Care 36: 206-19.
39. Nordfeldt S; Berterö C, (2012) Young Patients' Views on the Open Web 2.0 Childhood Diabetes Patient Portal: A Qualitative Study. Future Internet 4: 514-527.
40. Nordfeldt S, Ängarne-Lindberg T, Berterö C, (2012) To Use or Not to Use - Practitioners' Perceptions of an Open Web Portal for Young Patients With Diabetes J Med Internet. Res14: e154.