Clinical and functional evaluation of the joint status of hemophiliac adults at a Brazilian blood center

Revista Brasileira de Hematologia e Hemoterapia

Volumn 35, Issue 1, 2013, Pages 23-28

  Ferreira, Adriana Aparecida ^a   Bustamante Teixeira, Maria Teresa ^a   Leite, Isabel Cristina Gonçalves ^a   Corrêa, Camila Soares Lima ^a   de Oliveira Werneck Rodrigues, Daniela ^a   da Cruz, Danielle Teles ^a  

^a FEDERAL UNIVERSITY OF JUIZ DE FORA   (Brazil)

Author keywords

Disability evaluation; Hemarthrosis rehabilitation; Hemophilia a; Hemophilia b; Joint diseases

Indexed keywords

EID: 84876027427     PISSN: 15168484     EISSN: None     Source Type: Journal    
DOI: 10.5581/1516-8484.20130010     Document Type: Article

References (22)

1. Roberts HR, Escobar MA, White GC. Hemophilia A and hemophilia B. In: Lichtman MA, Beutler E, Kaushansky K, Kipps T, Seligsohn U, Prchal J, editors. Williams Hematology. 7th ed. New York: McGraw Hill; 2006. p.1867-1868.
2. Friedman KD, Rodgers GM. Inherited coagulation disorders. In: Greer JP, Foerster J, Rodgers GM, Paraskevas F, Glader B, Arber DA, et al. editors. Wintrobe's Clinical Hematology. 12th ed. Philadelphia: Lippincott Williams & Wilkins; 2008. p.1379-1424.
3. Villaça PR, Carneiro JD, D'Amico EA. Hemoflias. In: Zago MA, Falcão RP, Pasquini R, editores. Hematologia: fundamentos e prática. São Paulo: Atheneu; 2001. p.803-818.
4. Gurcay E, Eksioglu E, Ezer U, Tuncay R, Cakci A. Functional disability in children with hemophilic arthropathy. Rheumatol Int. 2006;26(11):1031-1035. Comment in: Rheumatol Int. 2007;27(5):501-2.
5. Gilbert MS. Musculoskeletal complications of haemophilia: the joint. Haemophilia. 2000; 6(Suppl 1):34-37.
6. Aledort LM, Haschmeyer RM, Pettersson H. A longitudinal study of orthopaedic outcomes for severe factor-VIII deficient haemophiliacs. The Orthopaedic Outcome Study Group. J Intern Med. 1994;236(4):391-399.
7. Nilsson IM, Berntorp E, Lofqvist T, Pettersson H. Twenty-five years experience of prophylactic treatment in severe haemophilia A and B. J Intern Med. 1992;232(1):25-32. Comment in: J Intern Med. 1992;232(1):1-2.
8. van den Berg HM, Fischer K, van der Bom JG, Roosendaal G, Mauser-Bunschoten EP. Effects of prophylactic treatment regimens in children with severe haemophilia: a comparison of different strategies. Haemophilia. 2002;8(Suppl 2):43-46.
9. Gringeri A, Lundin B, von Mackensen S, Mantovani LG, Mannucci PM. Primary and secondary prophylaxis in children with haemophilia A reduces bleeding frequency and arthropathy development compared to on-demand treatment: a 10-year, randomized, clinical trial [abstract]. J Thromb Haemost. 2009;7(Suppl 2):OC-MO-034. Presented at: XXII Congress of the International Society of Thrombosis and Haemostasis; 2009 Jul 11-16; Boston, USA.
10. Manco-Johnson MJ, Abshire TC, Shapiro AD, Riske B, Hacker MR, Kilcoyne R, et al. Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia. N Engl J Med. 2007;357(6):535-544. Comment in: N Engl J Med. 2007;357(6):603-5; N Engl J Med. 2007;357(20):2087; author reply 2087-8.
11. Brasil. Ministério da Saúde. Secretaria de Atenção à Saúde. Departamento de Atenção Especializada, Coordenação Geral de Sangue e Hemoderivados. Protocolo brasileiro de proflaxia primária para hemoflia grave [Internet]. Brasília: Ministério da Saúde; 2011. [cited 2012 Jul 21]. Available from: http://portal.saude.gov.br/portal/arquivos/ pdf/protocolo_proflaxia_primaria.pdf
12. Pergantou H, Platokouki H, Matsinos G, Papakonstantinou O, Papadopoulos A, Xafaki P, et al. Assessment of the progression of heamophilic arthropathy in children. Haemophilia. 2010;16(1):124-129.
13. Beeton K, Padkin J. Physiotherapy in the management of hemophilia. In: Lee CA, Berntorp EE, Hoots WK, editors. Textbook of Hemophilia. 2nd ed. Oxford: Blackwell; 2010. p.200-205.
14. Feldman BM, Funk S, Lundin B, Doria AS, Ljung R, Blanchette V; International Prophylaxis Study Group (IPSG). Musculoeskeletal measurement tools from the International Prophylaxis Study Group (IPSG). Haemophilia. 2008;14(Suppl 3):162-169.
15. Poonnoose PM, van Genderen FR. Clinimetrics instruments in hemophilia. In: Lee CA, Berntorp EE, Hoots WK, editors. Textbook of Hemophilia. 2nd ed. Oxford: Blackwell; 2010. p.207-214.
16. Saulyte Trakymiene S, Ingerslev J, Rageliene L. Utility of the Haemophilia Joint Score in study of episodically treated boys with severe haemophilia A and B in Lithuania. Haemophilia. 2010;16(3):479-486.
17. Manco-Johnson MJ, Kilcoyne RF. Magnetic resonance imaging/ joint outcome assessment. In: Lee CA, Berntorp EE, Hoots WK, editors. Textbook of hemophilia. Oxford: Blackwell; 2005. p.182-192.
18. Pettersson H, Gilbert M. Diagnostic imaging in hemophilia: musculoskeletal and other hemorrhagic complications. Berlin: Springer-Verlag; 1985. p. 56-65.
19. Poonnoose PM, Manigandan C, Thomas R, Shyamkumar NK, Kavitha ML, Bhattacharji S, et al. Functional Independence Score in Haemophilia: a new performance-based instrument to measure disability. Haemophilia. 2005;11(6):598-602.
20. Poonnoose PM, Thomas R, Keshava SN, Cherian RS, Padankatti S, Pazani D, et al. Psychometric analysis of the Functional Independence Score in Haemophilia (FISH). Haemophilia. 2007;13(5):620-6.
21. Santos CS, Coutinho CM, Porto MG, Gonçalves PG. Relatório de auditoria. Ação de atenção aos pacientes portadores de coagulopatia [Internet]. Brasília: Tribunal de Contas da União, Secretaria de Fiscalização e Avaliação de Programas de Governo; julho de 2007. [cited 2012 Jun 21]. Available from: http://portal2.tcu.gov.br/portal/page/ portal/TCU/comunidades/programas_governo/areas_atuacao/saude/ Coagulopatias.pdf
22. den Uijl IE, Mauser- Bunschoten EP, Roosendaal G, Schutgens RE, Biesma DH, Grobbee DE, et al. Clinical severity of haemophilia A: does the classifcation of the 1950s still stand? Haemophilia. 2011;17(6):849-853.