Disclosure of their hiv status to infected children: A review of the literature

Journal of Tropical Pediatrics

Volumn 59, Issue 2, 2013, Pages 84-89

  Pinzón iregui, María C ^a   Beck sagué, Consuelo M ^a   Malow, Robert M ^a  

^a FLORIDA INTERNATIONAL UNIVERSITY   (United States)

Author keywords

Caregivers; Children; HIV disclosure; Low and middle income countries

Indexed keywords

AGE DISTRIBUTION; ARTICLE; CHILDHOOD DISEASE; CHILDHOOD MORTALITY; CLINICAL ASSESSMENT; CROSS-SECTIONAL STUDY; DISEASE COURSE; ECONOMIC DEVELOPMENT; HEALTH CARE PERSONNEL; HIGHLY ACTIVE ANTIRETROVIRAL THERAPY; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; INDUSTRIALIZATION; INTERPERSONAL COMMUNICATION; LOWEST INCOME GROUP; META ANALYSIS; PERSONNEL; PROSPECTIVE STUDY; PSYCHOTRAUMA; QUALITY OF LIFE; SYSTEMATIC REVIEW;

ANTIRETROVIRAL THERAPY, HIGHLY ACTIVE; CAREGIVERS; CHILD; HIV INFECTIONS; HUMANS; TRUTH DISCLOSURE;

EID: 84875767726     PISSN: 01426338     EISSN: 14653664     Source Type: Journal    
DOI: 10.1093/tropej/fms052     Document Type: Article

References (43)

1. UNAIDS. http://www.unaids.org/globalreport/AIDSinfo.htm (29 February 2012, date last accessed).
2. Meyers T, Moultrie H, Naidoo K, et al. Challenges to pediatric HIV care and treatment in South Africa. J Infect Dis 2007;196:S474-81.
3. Gortmaker SL, Hughes M, Cervia J, et al. Effect of combination therapy including protease inhibitors on mortality among children and adolescents infected with HIV-1. N Engl J Med 2001;345:1522-8.
4. Sutcliffe CG, van Dijk JH, Bolton C, et al. Effectiveness of antiretroviral therapy among HIV-infected children in Sub-Saharan Africa. Lancet Infect Dis 2008;8: 477-89.
5. Slavin LA, O'Malley JE, Koocher GP, et al. Communication of the cancer diagnosis to pediatric patients: impact on long-term adjustment. Am J Psychiatry 1982;139:179-83.
6. American Academy of Pediatrics Committee on Pediatric AIDS. Disclosure of illness status to children and adolescents with HIV infection. Pediatrics 1999; 103:164-6.
7. Abrams E, El-Sadr W, Rabkin M. The Pediatric Clinical Manual. International Center for AIDS Programs. http://www.plateforme elsa.org/docs/ Documents/ Pediatric_ Clinical_Manual. Pdf (17 October 2011, date last accessed).
8. Wiener L, Mellins CA, Marhefka S, et al. Disclosure of an HIV diagnosis to children: history, current research, and future directions. J Dev Behav Pediatr 2007;28: 155-66.
9. Bachanas P, Kullgren K, Suzman Schwartz K, et al. Predictors of psychological adjustment in school age children infected with HIV. J Pediatr Psychol 2001;26: 343-52.
10. Weiner L, Battles HB. Untangling the web: a close look at diagnosis disclosure among HIV infected adolescents. J Adolesc Health 2006;38:307-09.
11. Santamaria E, Dolezal C, Marhefka S, et al. Psychosocial implications of HIV serostatus disclosure to youth and perinatally acquired HIV. AIDS Patient Care STDS 2011;25:257-64.
12. Ferris M, Burau K, Schweitzer AM, et al. The influence of disclosure of HIV diagnosis on time to disease progression in a cohort of Romanian children and teens. AIDS Care 2007;19:1088-94.
13. Hammami N, Nostlinger C, Hoeree T, et al. Integrating adherence to HAART into children's daily lives: a qualitative study. Pediatrics 2004;114:e591-7.
14. Brown B, Oladakun R, Osinusi S. Disclosure of HlV status to infected children in a Nigerian HIV care programme. AIDS Care 2011;23:1053-8.
15. Arun S, Singh AK, Lodha R, et al. Disclosure of the HIV Infection status in children. Indian J Pediatr 2009; 76:805-13.
16. Menon A, Glazebrook C, Campain N, et al. Mental Health and disclosure of HIV status in Zambian adolescents with HIV infection: implications for peersupport programs. J Acquir Immune Defic Syndr 2007;46:349-54.
17. Kouyoumdjian F, Meyers T, Mtshizana S. Barriers to disclosure to children with HIV. J Trop Pediatr 2005; 51:285-7.
18. Vaz L, Eng E, Maman S, et al. Telling children they have HIV: lessons learned from findings of a qualitative study in Sub-Saharan Africa. AIDS Patient Care STDS 2010;24:247-56.
19. Vreeman R, Nyandiko W, Ayaya S, et al. The perceived impact of disclosure of pediatric HIV status on pediatric antiretroviral therapy adherence, child well-being and social relationships in a resource limited setting. AIDS Patient Care STDS 2010;24:639-49.
20. Moodley K, Myer L, Michaels D, et al. Pediatric HIV disclosure in South Africa: caregiver's perspectives on discussing HIV with infected children. S Afr Med J 2006;96:201-3.
21. Myer L, Moodley K, Hendricks F, et al. Health care providers' perspectives on discussing HIV status with infected children. J Trop Pediatr 2006;52:293-5.
22. Bikaako-Kajura W, Luyirika E, Purcell D, et al. Disclosure of HIV status and adherence to daily drug regimens among HIV infected children in Uganda. AIDS Behav 2006;10:S85-93.
23. Bhattacharya M, Prakash A, Sharma M. Patterns of diagnosis disclosure and its correlates in HIV infected North Indian children. J Trop Pediatr 2010;57:405-11.
24. Biadgiling S, Deribew A, Amberbir A, et al. Factors associated with HIV/AIDS diagnostic disclosure to HIV infected children receiving HAART: a multicenter study in Addis Ababa, Ethiopia. PLoS One 2011;6:1-6.
25. Vaz L, Corneli A, Dulyx J, et al. The process of HIV status disclosure to HIV positive youth in Kinshasa, DRC. AIDS Care 2008;20:842-52.
26. Oberdorfer P, Puthanakit T, Louthrenoo O. Disclosure of HIV/AIDS diagnosis in HIV-infected children in Thailand. J Pediatr Child Health 2006;42:283-8.
27. Boon-yasidhi V, Kottapat U, Durier Y, et al. Diagnosis disclosure in HIV infected Thai children. J Med Assoc Thai 2005;88:100-6.
28. Kallem S, Renner L, Ghebremichael M, et al. Prevalence and Pattern of disclosure of HIV status in infected children in Ghana. AIDS Behav 2011;15:1121-7.
29. Marques H, Gravato N, Lecussan P, et al. Disclosure of HIV infection from the perspective of adolescents living with HIV/AIDS and their parents and caregivers. Cad Saude Publica 2006;22:619-29.
30. Wiener LS, Battles HB, Heilman N, et al. Factors associated with disclosure of diagnosis to children with HIV/ADIS. Pediatr AIDS HIV Infect 1996;7: 310-324.
31. Mellins CA, Brackis-Cott E, Dolezal C, et al. Patterns of HIV status disclosure to perinatally HIV-infected children and subsequent mental health outcomes. Clin Child Psychol Psychiatry 2002;7:101-114.
32. Instone S. Perceptions of children with HIV infection when not told for so long: implications for diagnostic disclosure. J Pediatr Health Care 2000;14:235-43.
33. Butler A, Williams P, Howland L, et al. Impact of disclosure of HIV infection on health related quality of life among children and adolescents with HIV infection. Pediatrics 2009;123:935-943.
34. Blasini I, Chantry C, Cruz C, et al. Disclosure model for pediatric patients living with HIV in Puerto Rico: design, implementation and evaluation. J Dev Behav Pediatr 2004;25:181-9.
35. Lester P, Chesney M, Cooke M, et al. When the time comes to talk about HIV: factors associated with diagnostic disclosure and emotional distress in HIV infected children. J Acquir Immune Defic Syndr 2002;31: 309-17.
36. Lester P, Chesney M, Cooke M, et al. Diagnostic disclosure to HIV infected children: how parents decide when and what to tell. Clin Child Psychol Psychiatry 2002;7:85-99.
37. Funck-Brentano I, Costagliola D, Seibel N, et al. Patterns of disclosure and perceptions of the HIV in infected elementary school-age children. Arch Pediatr Adolesc Med 1997;151:978-85.
38. Waugh S. Parental views on disclosure of diagnosis to their HIV-positive children. AIDS Care 2003;15: 169-76.
39. Thorne C, Newell ML, Peckham CS. Disclosure of diagnosis and planning for the future in HIV affected children. Child Care Health Dev 2006;26:29-40.
40. Trejo AM, Palacio JE, Mosquera M, et al. Revelación del estado serológico para VIH/SIDA en niños, niñas y adolescentes: una revisió n teó rica (Disclosure of serologic HIV/AIDS status children and adolescents: a theoretical review. Rev Chil Salud Pública 2009;13: 143-54.
41. Mahy M, Stover J, Kiragu K, et al. What will it take to achieve virtual elimination of mother-to-child transmission of HIV? An assessment of current progress and future needs. Sex Transm Infect 2010;86(Suppl 2):ii48-55.
42. Moszynski P. Global elimination of mother to child HIV transmission is now achievable, say agencies. BMJ 2010;341:c5152.
43. Human Rights Watch News. Why governments should promote supportive disclosure, 1 December 2010. http://www.hrw.org/node/94635To (28 March 2012, date last accessed).