Caregiver's HIV disclosure to children 12 years and under: A review and analysis of the evidence

AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV

Volumn 25, Issue 4, 2013, Pages 415-429

  Krauss, Beatrice J ^a   Letteney, Susan ^b   De Baets, Anniek J ^c   Baggaley, Rachel ^d   Okero, F Amolo ^d  

^a CITY UNIVERSITY OF NEW YORK   (United States)

^b CITY UNIVERSITY OF NEW YORK   (United States)

^c UNIVERSITY OF ANTWERP   (Belgium)

^d WORLD HEALTH ORGANIZATION   (Switzerland)

Author keywords

caregivers; children; disclosure; HIV

Indexed keywords

ANTI HUMAN IMMUNODEFICIENCY VIRUS AGENT;

CAREGIVER; CHILD; CHILD BEHAVIOR; COCHRANE LIBRARY; DEPRESSION; EVIDENCE BASED PRACTICE; GROUPS BY AGE; HEALTH CARE PLANNING; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; MENTAL HEALTH; MOTHER CHILD RELATION; OUTCOME ASSESSMENT; PATIENT COMPLIANCE; PATIENT COUNSELING; PRIORITY JOURNAL; REVIEW; SELF DISCLOSURE; SOCIAL ASPECT; SOCIAL SUPPORT; SYSTEMATIC REVIEW;

ADOLESCENT; ADOLESCENT BEHAVIOR; ADULT; AGE FACTORS; ANTI-HIV AGENTS; CAREGIVERS; CHILD; CHILD BEHAVIOR; CHILD, PRESCHOOL; COMPREHENSION; DECISION MAKING; EMOTIONS; FEMALE; HIV SEROPOSITIVITY; HUMANS; INFANT; INFANT, NEWBORN; MALE; MEDICATION ADHERENCE; PARENT-CHILD RELATIONS; PARENTS; SELF DISCLOSURE; TRUTH DISCLOSURE;

EID: 84875358710     PISSN: 09540121     EISSN: 13600451     Source Type: Journal    
DOI: 10.1080/09540121.2012.712664     Document Type: Review

References (47)

1. Armistead, L., Klein, K., & Forehand, R. (1995). Parental physical illness and child functioning. Clinical Psychology Review, 15(5), 409-422.
2. Armistead, L., Tannenbaum, L., Forehand, R., Morse, E., & Morse, P. (2001). Disclosing HIV status: Are mothers telling their children? Journal of Pediatric Psychology, 26(1), 11-20.
3. Asander, A.S., Bjorkman, A., Belfrage, E., & Faxelid, E. (2009). HIV-infected African parents living in Stockholm, Sweden: Disclosure and planning for their children's future. Health & Social Work, 34(2), 107-115.
4. Bauman, L.J., Camacho, S., Silver, E.J., Hudis, J., & Draimin, B. (2002). Behavioral problems in schoolaged children of mothers with HIV/AIDS. Clinical Child Psychology and Psychiatry, 7(1), 39-54.
5. Cluver, L., & Orkin, M. (2009). Cumulative risk and AIDSorphanhood-Interactions of stigma, bullying and poverty on child mental health in South Africa. Social Science and Medicine, 69(8), 1186-1193.
6. De Baets, A.J. (2008). Content analysis of WHO documents about HIV counselling and testing for infants, children and adolescents. World Health Organization internal scoping report, unpublished.
7. Delaney, R.O., Serovich, J.M., & Lim, J.Y. (2008). Reasons for and against maternal HIV disclosure to children and perceived child reaction. AIDS Care, 20(7), 876-880.
8. Delaney, R.O., Serovich, J.M., & Lim, J.Y. (2009). Psychological differences between HIV-positive mothers who disclose to all, some, or none of their biological children. Journal of Marital and Family Therapy, 35(2), 175-180.
9. Delva, W., Vercoutere, A., Loua, C., Lamah, J., Vansteelandt, S., De Koker, P., . . . Annemans, L. (2009). Psychological well-being and socio-economic hardship among AIDS orphans and other vulnerable children in Guinea. AIDS Care, 21(12), 1490-1498.
10. DeMatteo, D., Wells, L.M., Goldie, R.S., & King, S.M. (2002). The 'family' context of HIV: A need for comprehensive health and social policies. AIDS Care, 14(2), 261-268.
11. Evans, M., Cohen, C., Shidlo, A., & Decaprariis, P.J. (1994). Counselling HIV-negative children of parents with HIV disease-A structured protocol. AIDS Patient Care, 8(1), 16-19.
12. Fang, F., Li, X., Stanton, B., Hong, Y., Zhang, L., Zhao, G., . . . Lin, D. (2009). Parental HIV/AIDS and psychosocial adjustment among rural Chinese children. Journal of Pediatric Psychology, 34(10), 1053-1062.
13. Gelder, M.G., Andreasen, N.C., Lopez-Ibor, J.J., & Geddes, J.R., (Eds.). (2009). The new Oxford textbook of psychiatry (2nd ed.). Oxford: Oxford University Press.
14. Higgins, J.P.T., & Green, S. (2008). The Cochrane handbook for systematic reviews of interventions. West Sussex: Wiley Blackwell.
15. Ishikawa, N., Pridmore, P., Carr-Hill, R., & Chaimuangdee, K. (2010). Breaking down the wall of silence around children affected by AIDS in Thailand to support their psychosocial health. AIDS Care, 22(3), 308-313.
16. Jones, D.J., Foster, S.E., Zalot, A.A., Chester, C., & King, A. (2007). Knowledge of maternal HIV/AIDS and child adjustment: The moderating role of children's relationships with their mothers. AIDS & Behavior, 11(3), 409-420.
17. Kalichman, S.C., DiMarco, M., Austin, J., Luke, W., & DiFonzo, K. (2003). Stress, social support, and HIVstatus disclosure to family and friends among HIVpositive men and women. Journal of Behavioral Medicine, 26(4), 315-332.
18. Kmita, G., & Baranska, M. (2004). The process of disclosure of an HIV/AIDS problem in the family to children-An exploratory study. Medycyna Wieku Rozwojowego, 8(3 Pt 1), 623-640.
19. Krauss, B., Godfrey, C., O'Day, J., & Freidin, E. (2006). Hugging my uncle: The impact of a parent training on children's comfort interacting with persons with HIV. Journal of Pediatric Psychology, 31(9), 891-904.
20. Lee, M.B., & Rotheram-Borus, M.J. (2002). Parents' disclosure of HIV to their children. AIDS, 16(16), 2201-2207.
21. Letteney, S. (2006). Mothers disclosure of maternal HIV status to children: Key psychosocial correlates. Journal of HIV/AIDS & Social Services, 5(1), 67-84.
22. Li, X.M., Barnett, D., & Fang, X.Y. (2009). Lifetime incidences of traumatic events and mental health among children affected by HIV/AIDS in rural China. Journal of Clinical Child and Adolescent Psychology, 38(5), 731-744.
23. Mbaye, N., Rosenberg, A., Diouf, S., Diouf, M., Ntumbanzondo, M., Ndiour, A., . . . Hartwig, Kari A. (2009). Providing comprehensive care to children living with human immunodeficiency virus in Senegal. Vulnerable Children and Youth Studies, 4(4), 353-360.
24. Mellins, C.A., Brackis-Cott, E., Dolezal, C., Richards, A., Nicholas, S.W., & Abrams, E.J. (2002). Patterns of status disclosure to perinatally HIV-infected children and subsequent mental health outcomes. Clinical Child Psychology and Psychiatry, 7(1), 101-114.
25. Murphy, D.A., Marelich, W.D., & Hoffman, D. (2002). A longitudinal study of the impact on young children of maternal HIV serostatus disclosure. Clinical Child Psychology and Psychiatry, 7(1), 55-70.
26. Murphy, D.A., Roberts, K.J., & Hoffman, D. (2006). Young children's reactions to mothers' disclosure of maternal HIV-serostatus. Journal of Child and Family Studies, 15(1), 39-56.
27. Murphy, D.A., Steers, W.N., & Dello Stritto, M.E. (2001). Maternal disclosure of mothers' HIV serostatus to their young children. Journal of Family Psychology, 15(3), 441-450.
28. Nelms, T.P., & Zeigler, V.L. (2008). A study to develop a disclosure to children intervention for HIV-infected women. Journal of the Association of Nurses in AIDS Care, 19(6), 461-469.
29. Nostlinger, C., Bartoli, G., Gordillo, V., Roberfroid, D., & Colebunders, R. (2006). Children and adolescents living with HIV positive parents: Emotional and behavioural problems. Vulnerable Children and Youth Studies, 1(1), 29-43.
30. Oberdorfer, P., Puthanakit, T., Louthrenoo, O., Charnsil, C., Sirisanthana, V., & Sirisanthana, T. (2006). Disclosure of HIV/AIDS diagnosis to HIV-infected children in Thailand. Journal of Paediatrics & Child Health, 42(5), 283-288.
31. Osborne, M.L., Kistner, J.A., & Helgemo, B. (1993). Developmental progression in children's knowledge of AIDS: Implications for education and attitudinal change. Journal of Pediatric Psychology, 18(2), 177-192.
32. Ostrom, R.A., Serovich, J.M., Lim, J.Y., & Mason, T.L. (2006). The role of stigma in reasons for HIV disclosure and non-disclosure to children. AIDS Care, 18(1), 60-65.
33. Palin, F.L., Armistead, L., Clayton, A., Ketchen, B., Lindner, G., Kokot-Louw, P., . . . Pauw, A. (2009). Disclosure of maternal HIV-infection in South Africa: Description and relationship to child functioning. AIDS and Behavior, 13(6), 1241-1252.
34. Pequegnat, W., Bauman, L.J., & Bray, J.H. (2001). Measurement of the role of families in prevention and adaptation to HIV/AIDS. AIDS and Behavior, 5(1), 1-19.
35. Pequegnat, W., & The NIMH Consortium on Family and HIV/AIDS Research. (2002). Research issues with children infected and affected with HIV and their families. Clinical Child Psychology and Psychiatry, 7(1), 7-15.
36. Pequegnat, W., & Szapocznik, J. (2000). The role of families in preventing and adapting to HIV/AIDS. In W. Pequegnat & J. Szapocznik (Eds.), Working with families in the Era of HIV/AIDS (pp. 3-26). Thousand Oaks, CA: Sage.
37. Polisset, J., Ametonou, F., Arrive, E., Aho, A., & Perez, F. (2009). Correlates of adherence to antiretroviral therapy in HIV-infected children in Lom, Togo, West Africa. AIDS and Behavior, 13(1), 23-32.
38. Rios, L.P., Ye, C., & Thabane, L. (2010). Association between framing of the research question using the PICOT format and reporting quality of randomized controlled trials. BMC Medical Research Methodology, 10(11), 1471-2288.
39. Rotheram-Borus, M.J., Flannery, D., Rice, E., & Lester, P. (2005). Families living with HIV. AIDS Care, 17(8), 978-987.
40. Rotheram-Borus, M.J., Lee, M., Leonard, N., Lin, Y., Franzke, L., Turner, E., . . . Gwadz, M. (2003). Fouryear behavioral outcomes of an intervention for parents living with HIV and their adolescent children. AIDS, 17(8), 1217-1225.
41. Rwemisisi, J., Wolff, B., Coutinho, A., Grosskurth, H., & Whitworth, J. (2008). 'What if they ask how I got it?' Dilemmas of disclosing parental HIV status and testing children for HIV in Uganda. Health Policy Plan, 23(1), 36-42.
42. Schenk, K.D., Michaelis, A., Sapiano, T.N., Brown, L., & Weiss, E. (2010). Improving the lives of vulnerable children: Implications of horizons research among orphans and other children affected by AIDS. Public Health Reports, 125(2), 325-336.
43. Shaffer, A., Jones, D.J., Kotchick, B.A., & Forehand, R. (2001). Telling the children: Disclosure of maternal HIV infection and its effects on child psychosocial adjustment. Journal of Child & Family Studies, 10(3), 301-313.
44. Tompkins, T. (2007). Disclosure of maternal HIV status to children: To tell or not to tell . . . That is the question. Journal of Child & Family Studies, 16(6), 773-788.
45. United Nations Program on HIV/AIDS (UNAIDS). (2010). UNAIDS global report on the global AIDS epidemic (UNAIDS/10.11E j JC1958E). Geneva. Retrieved from http://www.unaids.org/en/media/unaids/contentassets/documents/unaidspublication/ 2010/20101123-globalreport-en.pdf.
46. Van der Heijden, I., & Swartz, S. (2010). Bereavement, silence and culture within a peer-led HIV/AIDS prevention strategy for vulnerable children in South Africa. African Journal of AIDS Research, 9(1), 41-60.
47. Wiener, L.S., Battles, H.B., Heilman, N., Sigelman, C.K., & Pizzo, P.A. (1996). Factors associated with disclosure of diagnosis to children with HIV/AIDS. Pediatric AIDS & HIV Infection, 7(5), 310-324.