'What if they ask how I got it?' Dilemmas of disclosing parental HIV status and testing children for HIV in Uganda

Health Policy and Planning

Volumn 23, Issue 1, 2008, Pages 36-42

  Rwemisisi, J ^a   Wolff, B ^a,e   Coutinho, A ^b   Grosskurth, H ^a,c   Whitworth, J ^d  

^a MEDICAL RESEARCH COUNCIL   (United Kingdom)

^b AIDS Support Organization (TASO)   (Uganda)

^c LONDON SCHOOL OF HYGIENE AND TROPICAL MEDICINE   (United Kingdom)

^d WELLCOME TRUST SANGER INSTITUTE   (United Kingdom)

^e UGANDA VIRUS RESEARCH INSTITUTE   (Uganda)

Author keywords

Children; Counselling; Disclosure; HIV; Parents; VCT

Indexed keywords

ADOLESCENT; ADULT; ANALYTIC METHOD; ARTICLE; CHILD; CHILD PARENT RELATION; CONTROLLED STUDY; EMOTION; FEMALE; HIGHLY ACTIVE ANTIRETROVIRAL THERAPY; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; INTERPERSONAL COMMUNICATION; INTERVIEW; MAJOR CLINICAL STUDY; MALE; PARENT COUNSELING; PARENTAL ATTITUDE; QUALITATIVE RESEARCH; UGANDA;

ADOLESCENT; ADULT; CHILD; CHILD, PRESCHOOL; DISCLOSURE; FEMALE; HIV INFECTIONS; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; PARENT-CHILD RELATIONS; PARENTS; UGANDA;

EID: 37549041671     PISSN: 02681080     EISSN: 14602237     Source Type: Journal    
DOI: 10.1093/heapol/czm040     Document Type: Article

References (25)

1. Akpede GO, Lawal RS, Momoh SO. 2002. Perception of voluntary screening for paediatric HIV and response to post-test counselling by Nigerian parents. AIDS Care 15: 683-97.
2. American Academy of Pediatrics Committee on Pediatric AIDS.1999. Disclosure of illness status to children and adolescents with HIV infection. Pediatrics 103: 164-6.
3. Beale E, Baile WF, Aaron J. 2005. Silence is not golden: communicating with children dying from cancer. Journal of Clinical Oncology 23: 3629-31.
4. Bikaako-Kajura W, Luyirika E, Purcell D et al. 2006. Disclosure of HIV status and adherence to daily drug regimens among HIV-infected children in Uganda. AIDS and Behavior 10: S85-93.
5. Blasini I, Changry C, Cruz C et al. 2004. Disclosure model for pediatric patients living with HIV in Puerto Rico: design, implementation, and evaluation. Developmental and Behavioral Pediatrics 25: 181-9.
6. Gerson AC, Joyner M, Fosarelli P et al. 2001. Disclosure of HIV diagnosis to children: when, where, why and how. Journal of Pediatric Health Care 15: 161-7.
7. Hardy MS, Armstrong FD, Routh DK et al. 1994. Coping and communication among parents and children with human immunodeficiency virus and cancer. Journal of Developmental and Behavioural Pediatrics 15(3 Suppl): S49-53.
8. Instone SL. 2000. Perceptions of children with HIV infection when not told for so long: implications for diagnosis disclosure. Journal of Pediatric Health Care 14: 235-43.
9. Jones D, Weiss S, Bhat G, Bwalya V. 2006. Influencing sexual practices among HIV-positive Zambian women. AIDS Care 18: 629-34.
10. Kirshenbaum SB, Nevid JS. 2002. The specificity of maternal disclosure of HIV/AIDS in relation to children's adjustment. AIDS Education and Prevention 14: 1-16.
11. Kmita G, Baranska M, Niemiec T. 2002. Psychosocial intervention in the process of empowering families with children living with HIV/AIDS - a descriptive study. AIDS Care 14: 279-84.
12. Kouyoumdjian FG, Meyers T, Mtshizana S. 2005. Barriers to disclosure to children with HIV. Journal of Tropical Pediatrics 51: 285-7.
13. Manopaibon C, Shaffer N, Clark L et al. 1998. Impact of HIV on families of HIV infected women who have recently given birth. Journal of Acquired Immune Deficiency Syndromes and Human Retrovirology 18: 54-63.
14. Reyland SA, Higgins-D'Alessandro A, McMahon TJ. 2002. Tell them you love them because you never know when things could change: voices of adolescents living with HIV-positive mothers. AIDS Care 14: 285-94.
15. Rotheram-Borus MJ, Draimin BH, Reid HM, Murphy DA. 1997. The impact of illness disclosure and custody plans on adolescents whose parents live with AIDS. AIDS 11: 1159-64.
16. Rotheram-Borus MJ, Lee MB, Gwadz M, Draimin B. 2001. An intervention for parents with AIDS and their adolescent children. American Journal of Public Health 91: 1294-302.
17. Slavin LA, O'Malley JE, Koocher GP, Foster DJ. 1982. Communication of the cancer diagnosis to pediatric patients: impact in long-term adjustment. American Journal of Psychiatry 139: 179-83.
18. Uganda Ministry of Health. 2005. Uganda National Policy on HIV Counselling and Testing. Kampala: Ministry of Health.
19. Uganda MoH/ACP. 2007. Ministry of Health/AIDS Control Programme, Personal communication.
20. UNAIDS/WHO. 2004. AIDS epidemic update. Geneva: UNAIDS.
21. Watera C, Whitworth J, Muwonge R et al. 2006. Feasibility and effectiveness of cotrimoxazole prophylaxis for HIV-1- infected adults attending an HIV/AIDS clinic in Uganda. Journal of Acquired Immune Deficiency Syndrome 42: 373-8.
22. Waugh S. 2003. Parental views on disclosure of diagnosis to their HIV-positive children. AIDS Care 15: 169-76.
23. Were W, Mermin J, Wamai N et al. 2006. Undiagnosed HIV infection and couple HIV discordance among household members of HIV-infected people receiving antiretroviral therapy in Uganda. Journal of Acquired Immune Deficiency Syndrome 43: 91-5.
24. Wiener L, Theut S, Steinberg SM et al. 1994. The HIV-infected child: parental responses and psychosocial implications. American Journal of Orthopsychiatry 64: 485-92.
25. Witter S. 2004. Breaking the silence: memory books and succession planning - the experience of NACWOLA and Save the Children UK in Uganda. London: Save the Children UK.