Growing awareness of the importance of health literacy in individuals with COPD

COPD: Journal of Chronic Obstructive Pulmonary Disease

Volumn 10, Issue 1, 2013, Pages 72-78

  Sadeghi, Shiva ^a   Brooks, Dina ^a   Stagg Peterson, Shelley ^a   Goldstein, Roger ^a  

^a UNIVERSITY OF TORONTO   (Canada)

Author keywords

COPD; Health literacy; Patient provider communication.

Indexed keywords

ANXIETY; AWARENESS; CHRONIC OBSTRUCTIVE LUNG DISEASE; CLINICAL EVALUATION; CLINICAL PRACTICE; COMPREHENSION; DEPRESSION; HEALTH CARE PERSONNEL; HEALTH CARE SYSTEM; HEALTH LITERACY; HEALTH PROMOTION; HUMAN; HYPOXEMIA; INFORMED CONSENT; INTERPERSONAL COMMUNICATION; KNOWLEDGE; LEARNING; MEDICAL INFORMATION; MEDICATION ERROR; PATIENT COMPLIANCE; PATIENT DECISION MAKING; PATIENT EDUCATION; PERSONNEL; PRESCRIPTION; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; REVIEW; SELF CARE;

COMMUNICATION; EDUCATIONAL MEASUREMENT; HEALTH LITERACY; HUMANS; MEDICATION ADHERENCE; PATIENT EDUCATION AS TOPIC; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE;

EID: 84874060283     PISSN: 15412555     EISSN: 15412563     Source Type: Journal    
DOI: 10.3109/15412555.2012.727919     Document Type: Review

References (91)

1. Cazzola M, MacNee W, Martinez FJ, Rabe KF, Franciosi LG, Barnes PJ, et al. Outcomes for COPD pharmacological trails: From lung function to biomarkers. European Respiratory Journal 2008;31:416-468
2. Nici L, Donner C, Wouters E, Zuwallack R, Ambrosino N, Bourbeau J, et al. American Thoracic Society/European Respiratory Society statement on pulmonary rehabilitation. Am J respire Crit Care Med 2006; 173: 1390-1413. DOI: 10.1164/rccm.200508-1211ST.
3. Crisafulli E, Costi S, Luppi F, Cirelli G, et al. Role of comorbidities in a cohort of patients with COPD undergoing pulmonary rehabilitation. Thorax 2008;63:487-492. doi:10.1136/thx.2007.086371
4. Ries AL, BauldoffGS, Carlin BW, Casaburi R, et al. Pulmonary Rehabilitation: Joint ACCP/AACVPR Evidence-Based Clinical Practice Guidelines. Chest 2007;131(5 Suppl):4S-42S.
5. Casaburi R, ZuWallack R. Pulmonary rehabilitation for management of chronic obstructive pulmonary disease. New Engl J Med 2009; 360:1329-1335.
6. Bourbeau, J, Julien, M, Maltais, F, et al. Reduction of hospital utilization in patients with chronic obstructive pulmonary disease: a disease-specific self-management intervention. Arch Intern Med 2003;163:585-91.
7. Sauro A, Greco A, Greco P L, Scalzitti F, Sirignano AR, Sortino D, Letizia M. The COPD Italian Lung Information Needs Questionnaire (LINQ): Development, preliminary validation, and findings. European Journal of General Practice 2008;14:65-67.
8. Hill K, Mangovski-Alzamora S, Blouin M, Guyatt G, Heels-Ansdell D, Bragaglia P, Tamari I, Jones K, Goldstein R. Diseasespecific education in the primary care setting increases the knowledge of people with chronic obstructive pulmonary disease: A randomized controlled trial. Patient Education Counseling 2010;81(1):14-8.
9. Maples P, Franks A, Ray S, Barger Stevens A, Wallace LS. Development and validation of a low-literacy Chronic Obstructive Pulmonary Disease knowledge Questionnaire (COPD-Q). Patient education and Counseling 2009.
10. White R, Walker P, Roberts S, White P. Bristol COPD Knowledge Questionnaire (BCKQ): Testing what we teach patients about COPD. Chronic Respiratory Disease 2006;3:123-31.
11. Gazmararian JA, Williams MV, Peel J, Baker DW. Health literacy and knowledge of chronic disease. Patient Education and Counseling. 2003;51:267-75.
12. Bass PF 3rd, Wilson JF, Griffith CH, Barnett DR. Residents' ability to identify patients with poor literacy skills. Acad Med 2002;77(10):1039-41.
13. Yawn BP, Colice GL, Hodder R. Practical aspects of inhaler use in the management of chronic obstructive lung disease in the primary care setting International Journal of COPD 2012;7: 495-502
14. Williams MV, Baker DW Parker RM Nurss JR. Relationship of functional health literacy to patients' knowledge of their chronic disease Archives of Internal Medicine 1998;1581-11
15. Williams MV, Baker DW, Honig EG, Lee TM, Nowlan A. Inadequate literacy is a barrier to asthma knowledge and selfcare. Chest 1998; 114: 1008-1015.
16. Prigatano GP, et al. Neuropsychological test performance in mildly hypoxemic patients with chronic obstructive pulmonary disease. J Consult Clin Psychol 1983;51(1):108-16.
17. Janssen DJA, Engelberg RA, Curtis JR. Toward patient-tailored education in COPD. Patient Education and Counseling 2010;81:1-2.
18. Booker R. Effective communication with the patient. Eur Respir Rev 2005;14(96):93-96. DOI: 10.1183/09059180.00009603.
19. Parikh NS, Parker RM, Nurss JR, Baker DW, Williams MV. Shame and Health Literacy: The Unspoken Connection. Patient Educ Counsel 1996;27(1):33-39.
20. Speros CI. More than just words: Promoting health literacy in older adults. Online J Issues Nurs 2009; 14(3):12.
21. Zanchetta, Margaret S., & Poureslami, Iraj M. Health literacy within the reality of immigrants' culture and language. Canadian Journal of Public Health 2006; 97(2),26-30.
22. Lam TP, Cheng YH, Chan YL. Low literacy Chinese patients: How are they affected and how do they cope with health matters? A qualitative study BMC Public Health 2004;4 (14): 1-5.
23. Parkin T. Discrepancies between patient and professionals recall and perceptions of an outpatient consultation. Diabet Med 2003;20:909-914.
24. Schillinger D, Piette J, Grumbach K, Wang F. Closing the loop: Physician communication with diabetic patients who have low health literacy. Arch Intern Med 2003; 163(1):83.
25. Simonds SK. Health education as social policy. Health Promot Monogr 1974;2: 1-10.
26. Nutbeam D. The evolving concept of health literacy. Soc Sci Med 2008; 67:2072-8.
27. Kutner M, Greenberg E, Jin Y, Paulsen C. The health literacy of America's adults: Results from the 2003 National Assessment of Adult Literacy (NCES 2006-483). U.S. Department of Education. Washington, DC: National Center for Education Statistics. http://nces.ed.gov/pubs2006/2006483-1.pdf.
28. A Prescription to End Confusion. Committee on Health Literacy. Board on Neuroscience and Behavioral Health. Lynn Nielsen-Bohlman, Allison M. Panzer, David A. Kindig, Editors. Institute of Medicine of the National Academies. The National Academies Press, Washington, D.C. http://www.nap.edu/openbook.php?isbn= 0309091179.
29. World Heatlh Organization (WHO). Ottawa Charter for Health Promotion. First International Conference on Health Promotion. Ottawa, November, 21, 1986. WHO/HPR/ HEP/95.1; 1986.
30. World Health Organization (WHO). Health Promotion Glossary. WHO/HPR/98.1. WHO, Geneva; 1998.
31. Weiss BD. Health literacy: an important issue for communicating health information to patients. Zhonghua Yi Xue Za Zhi (Chinese Medical Association-Taipei) 2001; 64(11):603-608.
32. Dexter ER, Levine SE, Velasco PM. Maternal schooling and health related language and literacy skills in rural Mexico. Compar Educ Rev 1998; 42:139-162.
33. Wilson FL, Racine E, Tekieli V, Williams B. Literacy, readability and cultural barriers: critical factors to consider when educating older African Americans about anticoagulation therapy. J Clin Nurs 2003; 12(2):275-282.
34. Hernandez LM. Measures of health literacy: Workshop summary. Washington, DC: The National Academic Press, 2009.
35. Partridge MR, Karlsson N, Small IR. Patient insight into the impact of chronic obstructive pulmonary disease in the morning: An internet survey. Curr Med Res Opin 2009; 25(8):2043-2048.
36. Mancuso CA, Rincon M. Asthma patients' assessments of health care and medical decision making: the role of health literacy. J Asthma 2006; 43(1):41-44.
37. Davidson E, Jing JL, Sheik A. The impact of ethnicity on asthma care. Primary Care Respiratory Journal 2010;19(3):202-8.
38. Reid JC, Klachko DM, Kardash CA, Robinson RD, Scholes R, Howard D. Why people don't learn from diabetes literature: influence of text and reader characteristics. Pat Educ Counsel 1995;25(1):31-38.
39. Parker R. Health literacy: A challenge for American patterns and their health acre providers. Health Promo Inter 2000; 15(4):277-283.
40. Wolf MS, Gazmararian JA, Baker DW. Health literacy and functional health status among older adults. Arch Intern Med 2005; 165:1946-1952.
41. Jotkowitz A, Porath A. Health literacy, access to care and outcomes of care. Amer J Bioeth 2007; 7(11):25-27.
42. Dewalt DA, Berjman ND, Sheridan SL, Lohr KN, Pignone M. Literacy and health outcomes: A systematic review. J Gen Intern Med 2004; 19:1228-1239.
43. Baker DW, Parker R, Williams M, Clark WS. Health literacy and the risk of hospital admission. Journal of General Internal Medicine 1998; 13(12):791-798.
44. Lee S, Ahsan MA, Yound IC. Health literacy, social support, and health: A research agenda. Soc Sci Med 2004; 58:1309-1321.
45. Baker DW, Gazmarian J, Williams MV, Scott T, Parker R, Green D, Ren J, Peel J. Functional Health Literacy and the Risk of Hospital Admission Among Managed Care Enrollees. Amer J Publ Health 2002; 92(8):1278-1283.
46. Berkman ND, DeWalt DA, Pignone MP, Sheridan SL, Lohr KN, Lux L, Sutton SF, Swinson T, Bonito AJ. Literacy and Health Outcomes. Evidence Report/Technology Assessment No. 87. Rockville, MD: Agency for Healthcare Research and Quality. http://www.ahrq.gov/downloads/pub/evidence/pdf/literacy/ literacy.pdf; 2004.
47. Apter AJ, Paasche-Orlow MK, Remillard JT, Bennett IM, Ben-Joseph EP, Batista RM, Hyde J, Rudd RE. Numeracy and communication with patients: They are counting on us. J Gen Inter Med 2008; 23(12):2117.
48. U.S. Department of Health and Human Services. Healthy People 2010 (2nd ed.) [with Understanding and Improving Health (vol. 1) and Objectives for Improving Health (vol. 2)]. Washington, DC: U.S. Government Printing Office; 2000.
49. Kutner M, Greenberg E, Jin Y, Paulsen C. The health literacy of America's adults: Results from the 2003 National Assessment of Adult Literacy (NCES 2006-483).
50. Canadian Council on Learning [CCL]. Health Literacy in Canada: Fact Sheet. http://www.ccl-cca.ca/CCL/Reports/HealthLiteracy; 2008.
51. Canadian Council on Learning [CCL]. Health Literacy in Canada: Fact Sheet. http://www.ccl-cca.ca/CCL/Reports/HealthLiteracy; 2008.
52. Canadian Council on Learning [CCL]. Health Literacy in Canada: Fact Sheet. http://www.ccl-cca.ca/CCL/Reports/HealthLiteracy; 2008.
53. Department for Education and Skills, Government of (UK). The skills for life survey: A national needs and impact survey of literacy, numeracy and ICT skills. Norwich, UK: 2003.
54. Davis TC, Long SW, Jackson RH, Mayeaux EJ, George RB, Murphy PW, Crouch MAC. Rapid estimate of adult literacy in medicine: A shortened screening instrument. Family Medicine 1993;25:391-395.
55. Parker RM, Baker DW, Williams MV, Nurss JR. The test of functional health literacy in adults. J Gen Intern Med 1995; 10:537-541.
56. Nurss JR, Baker DW, Davis TC, Parker RM, Williams MV. Difficulties in functional health literacy screening in Spanish-Speaking Adults. J Read 1995; 38(8):632-637.
57. Weiss BD, Mays MZ, Martz W, Castro KM, De Walt DA, Pignone MP, Hale FA. Quick assessment of literacy in primary care: The newest vital sign. Ann Fam Med 2005; 3:514-522.
58. Ciccarelli Shah L, West P, Bremmeyr K, Savoy-Moore RT. Health literacy instrument in family medicine: The "Newest Vital Sign" ease of use and correlates. J Am Board Fam Med (ABFM) 2010; 23(2):195-203. doi:10.3122/ jabfm.2010.02.07.070278.
59. Morris NS, MacLean CD, Chew LD, Littenberg B. The Single Item Literacy Screener: evaluation of a brief instrument to identify limited reading ability. BMC Fam Pract 2006; 7:21.
60. Rawson KA, Gunstad J, Hughes J, Spitznagel MB, Potter V, et al. The METER: A Brief, Self-Administered Measure of Health Literacy. J Gen Intern Med 2009; 25(1):67-71. DOI: 10.1007/s11606-009-1158-7.
61. Educational testing Service (ETS). Test Content for Health Activities Literacy Tests. 2011, http://www.ets.org/literacy/about/content/health- Activities-content.
62. Baker DW. The Meaning and the Measure of Health Literacy. J Gen Intern Med 2006; 21(8): 878-883. doi: 10.1111/j.1525-1497.2006.00540.x
63. Nutbeam D. Defining and measuring health literacy: what can we learn from literacy studies? Inter J Publ Health 2009; 54(5):303-305, DOI: 10.1007/s00038-009-0050-x.
64. Rudd R, Kirsch I, Yamamoto K. Literacy and Health in America. Princeton NJ: Educational Testing Services; 2004.
65. Hernandez LM. Measures of Health Literacy: Workshop summary. Washington, DC: The National Academics Press; 2009.
66. Stickland M, Jourdain T, Wong EY, Rodgers WM, Jendzjowsky NG, MacDonald GF. Using Telehealth technology to deliver pulmonary rehabilitation in chronic obstructive pulmonary disease patients. Can Respir J 2011; 18:216-220.
67. Roberts JN, Ghiassi R, Partridge MR. Health literacy in COPD. Inter J COPD 2008; 3(4):1-9.
68. Sridhar M, Taylor R, Dawson S, et al. A nurse led intermediate care package inpatients who have been hospitalized with an acute exacerbation of chronic obstructive disease. Thorax 2008; 63:194-200. DOI: 10.1136/thx.2007. 077578.
69. Beckman HB, Frankel RM.The effect of physician behavior on the collection of data. Ann Inter Med 1984; 101:692-696.
70. Brown CE, Roberts NJ Partridge MR. Does the use of a glossary aid patient understanding of the letter sent to their general practitioner? Clin Med 2007; 7:457-460.
71. Bosworth HB, Olsen MK, Gentry P, Orr M, Dudley T, McCant F, Oddone EZ. Nurse administered telephone intervention for blood pressure control: a patient tailored multifactorial intervention. Patient Educ Couns 2005; 7:5-14.
72. Houts PS, Doak CC, Doak LG, Loscalzo MJ. The role of pictures in improving health communication: A review of research on attention, comprehension, recall, and adherence. Pat Educ Counsel 2006; 61:173-190.
73. McCray A. Promoting health literacy. J Amer Med Inform Asso 2005; 12(2):152-163.
74. Roberts NJ, Mohamed Z, Wong PS, et al. The development and comprehensibility of a pictorial asthma action plan. Patient education and counseling 2009; 74(1):12-18. DOI: 10.1016/j. pec.2008.07.049.
75. Roberts NJ, Partridge MR. Evaluation of a paper and electronic pictorial COPD action plan. Chron Respir Dis 2011; 8(1):31-40.
76. Plimpton S, Root J. Materials and strategies that work in low literacy health communication. Publ Health Rep 1994; 109:86-92.
77. Bass PF III, Wilson JF, Griffin CH, Barnett DR. Residents' ability to identify patients with poor literacy skills. Acad Med 2002; 77(10):1039-1041.
78. Villaire M, Mayer G. Low health literacy: The impact on chronic illness management. Prof Case Mgmt 2007; 12(4):217-218.
79. Powers BJ, Trinh, JV, Bosworth HB. Can this patient read and understand written health information? JAMA 2010; 304(1):76-84.
80. Ryan JG, Leguen F, Weiss BD, Albury S, Jennings T, Velez F, Salibi N. Will patients agree to have their literacy skills assessed in clinical practice? Health Education Research 2008;23(4):603-611.
81. Osborne H. Health Literacy from A to Z: Practical Ways to Communicate Your Health Message. Sudbury, Massachusetts: Jones and Bartlett Publishers, 2005.
82. Dowse R, Ehlers MS. The evaluation of pharmaceutical pictograms in a low-literate South African population. Patient Educ Couns 2001; 45(2):87-99.
83. Nimmon L. Photonovels Through Critical Pedagogy: A Consciousness Raising Health Literacy Project With ESL Speaking Immigrant Women. Germany: VDM Verlag, 2009.
84. Partridge MR. Asthma education: More reading or more reviewing? J Roy Soc Med 1986; 79:326-328.
85. Eng TR. The e-health Landscape: A Train Map of Emerging Information and Communication Technologies in Health and Healthcare. Princeton, NJ: The Robert Wood Johnson Foundation; 2001.
86. Baur CE. Using the internet to move beyond the brochure and improve health literacy. In Schwartzberg JG, VanGeest JB, Wang AA, eds. Understanding Health Literacy: Implications for Medicine and Public Health. AMA Press, Chicago, Il. 2005: 141-154.
87. Rothman RL, Malone R, Bryant B, Shintani A, Crigler B, DeWalt DA, Dittus RS, Weinberger M, Pignone MP. A randomized trial of a primary-care based disease management program to improve cardiovascular risk factors and glycated hemoglobin levels in patients with diabetes. J Amer Med Assoc 2005; 118:276-284.
88. Van Servellen G, Carpio F, Lopez M, Garcia-Teague L, Herrera G, Monterrosa F, Gomez R, Lombardi E. Program to enhance health literacy and treatment adherence in low-income HIVinfected Latino men and women. AIDS Patient Care ST 2003; 17:581-594.
89. Weiss BD, Francis L, Senf JH, Heist K. Literacy education as treatment for depression in patients with limited literacy and depression: A randomized control trail. J Gen Intern Med 2006; 21:823-828.
90. World Health Communication Associates. Health Literacy, Part 2: Evidence and Case Studies. Axbridge, UK; WHCA, 2010.
91. Freeman HP, Muth BJ, Kerner JF. Expanding access to cancer screening and clinical follow-up among the medically underserved. Cancer Pract 1995; 3(1):19-30.