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Volumn 28, Issue 2, 2013, Pages 159-169

Revealing and Concealing Ill Identity: A Performance Narrative of IBD Disclosure

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CHRONIC DISEASE; HUMAN; INFLAMMATORY BOWEL DISEASE; INTERPERSONAL COMMUNICATION; PRIVACY; PSYCHOLOGICAL ASPECT;

EID: 84873646449     PISSN: 10410236     EISSN: 15327027     Source Type: Journal    
DOI: 10.1080/10410236.2012.666712     Document Type: Article
Times cited : (44)

References (60)
  • 1
    • 0035223821 scopus 로고    scopus 로고
    • Framing women's health with a sense-making approach: Magazine coverage of breast cancer and implants
    • Andsager, J. L. and Powers, A. 2001. Framing women's health with a sense-making approach: Magazine coverage of breast cancer and implants. Health Communication, 13: 163-185.
    • (2001) Health Communication , vol.13 , pp. 163-185
    • Andsager, J.L.1    Powers, A.2
  • 2
    • 70449567361 scopus 로고    scopus 로고
    • The revelation risk model (RRM): Factors that predict the revelation of secrets and the strategies used to reveal them
    • Afifi, A. and Steuber, K. 2009. The revelation risk model (RRM): Factors that predict the revelation of secrets and the strategies used to reveal them. Communication Monographs, 76: 144-176.
    • (2009) Communication Monographs , vol.76 , pp. 144-176
    • Afifi, A.1    Steuber, K.2
  • 3
    • 84905929325 scopus 로고    scopus 로고
    • Narrating problems and problematizing narratives: Linking problematic integration and narrative theory in telling stories about our health
    • In: Harter L., Japp P., Beck C., editors Mahwah, NJ, Mahwah, NJ,: Lawrence Erlbaum Associates
    • Babrow, A. S., Kline, K. N. and Rawlins, W. K. 2005. "Narrating problems and problematizing narratives: Linking problematic integration and narrative theory in telling stories about our health". In Narratives, health, and healing: Communication theory, research and practice, Edited by: Harter, L., Japp, P. and Beck, C. 31-52. Mahwah, NJ: Lawrence Erlbaum Associates.
    • (2005) Narratives, health, and healing: Communication theory, research and practice , pp. 31-52
    • Babrow, A.S.1    Kline, K.N.2    Rawlins, W.K.3
  • 4
    • 0010217992 scopus 로고
    • "Just how much did that wheelchair cost?": Management of privacy boundaries by persons with disabilities
    • Braithwaite, D. O. 1991, Summer. "Just how much did that wheelchair cost?": Management of privacy boundaries by persons with disabilities. Western Journal of Speech Communication, 55: 254-274.
    • (1991) Western Journal of Speech Communication , vol.55 , pp. 254-274
    • Braithwaite, D.O.1
  • 5
    • 0005252535 scopus 로고    scopus 로고
    • Understanding communication of persons with disabilities as cultural communication
    • In: Samovar L. A., Porter R., editors 8th, Belmont, CA, Belmont, CA,: Wadsworth
    • Braithwaite, D. O. and Braithwaite, C. A. 1997. "Understanding communication of persons with disabilities as cultural communication". In Intercultural communication: A reader, 8th, Edited by: Samovar, L. A. and Porter, R. 154-164. Belmont, CA: Wadsworth.
    • (1997) Intercultural communication: A reader , pp. 154-164
    • Braithwaite, D.O.1    Braithwaite, C.A.2
  • 6
    • 84873639464 scopus 로고    scopus 로고
    • "They make us miserable in the name of helping us": Communication of persons with visible and invisible disabilities
    • In: Ray E. B., editors Mahwah, NJ, Mahwah, NJ,: Lawrence Erlbaum Associates
    • Braithwaite, D. O. and Japp, P. 2005. "They make us miserable in the name of helping us": Communication of persons with visible and invisible disabilities". In Health communication in practice: A case study approach, Edited by: Ray, E. B. 171-179. Mahwah, NJ: Lawrence Erlbaum Associates.
    • (2005) Health communication in practice: A case study approach , pp. 171-179
    • Braithwaite, D.O.1    Japp, P.2
  • 7
    • 79751518735 scopus 로고    scopus 로고
    • Privacy management as unfinished business: Shifting boundaries in the context of infertility
    • Bute, J. J. and Vik, T. A. 2010. Privacy management as unfinished business: Shifting boundaries in the context of infertility. Communication Studies, 61: 1-20.
    • (2010) Communication Studies , vol.61 , pp. 1-20
    • Bute, J.J.1    Vik, T.A.2
  • 9
    • 0001063819 scopus 로고
    • Struggling for a self: Identity levels of the chronically ill
    • Charmaz, K. 1987. Struggling for a self: Identity levels of the chronically ill. Sociology of Health Care, 6: 283-321.
    • (1987) Sociology of Health Care , vol.6 , pp. 283-321
    • Charmaz, K.1
  • 10
    • 84873636711 scopus 로고    scopus 로고
    • Celebrating UC Success, Retrieved from
    • Celebrating UC Success. (2009). Celebrating UC Success contest announces grand prize winners. Retrieved from http://www.prnewswire.com/news-releases/celebrating-uc-success-contest-announces-grand-prize-winners-98312389.html (http://www.prnewswire.com/news-releases/celebrating-uc-success-contest-announces-grand-prize-winners-98312389.html)
    • (2009) Celebrating UC Success contest announces grand prize winners
  • 11
    • 0000681574 scopus 로고    scopus 로고
    • From the "sick role" to stories of self
    • In: Contrada R. J., Ashmore R. D., editors New York, New York,: Oxford University Press
    • Charmaz, K. 1999. "From the "sick role" to stories of self". In Self, social identity, and physical health: Interdisciplinary explorations, Edited by: Contrada, R. J. and Ashmore, R. D. 209-239. New York: Oxford University Press.
    • (1999) Self, social identity, and physical health: Interdisciplinary explorations , pp. 209-239
    • Charmaz, K.1
  • 13
    • 84869539536 scopus 로고    scopus 로고
    • Crohn's & Colitis Foundation of America, Retrieved from
    • Crohn's & Colitis Foundation of America. (2006). About Crohn's DIsease. Retrieved from http://www.ccfa.org/info/about/crohns (http://www.ccfa.org/info/about/crohns)
    • (2006) About Crohn's DIsease
  • 14
    • 84873636912 scopus 로고    scopus 로고
    • Crohn's & Colitis Foundation of America, Retrieved from
    • Crohn's & Colitis Foundation of America. (2011). How common is inflammatory bowel (IBD)? Retrieved from http://www.ccfa.org/info/about/crohns (http://www.ccfa.org/info/about/crohns)
    • (2011) How common is inflammatory bowel (IBD)?
  • 15
    • 55849101121 scopus 로고    scopus 로고
    • "Under erasure": The absent ill body in doctor-patient dialogue
    • Defenbaugh, N. 2008. "Under erasure": The absent ill body in doctor-patient dialogue. Qualitative Inquiry, 14: 1402-1424.
    • (2008) Qualitative Inquiry , vol.14 , pp. 1402-1424
    • Defenbaugh, N.1
  • 17
    • 0037262035 scopus 로고    scopus 로고
    • The call to performance
    • Denzin, N. 2003. The call to performance. Symbolic Interaction, 26: 187-207.
    • (2003) Symbolic Interaction , vol.26 , pp. 187-207
    • Denzin, N.1
  • 18
    • 84993587922 scopus 로고
    • Privacy and self-disclosure in social relationships
    • Derlega, V. J. and Chaikin, A. L. 1977. Privacy and self-disclosure in social relationships. Journal of Social Issues, 33: 102-115.
    • (1977) Journal of Social Issues , vol.33 , pp. 102-115
    • Derlega, V.J.1    Chaikin, A.L.2
  • 20
    • 67650936047 scopus 로고    scopus 로고
    • Passing for "normal": Features that affect the community inclusion of people with mental illness
    • Flanigan, E. H. and Davidson, L. 2009. Passing for "normal": Features that affect the community inclusion of people with mental illness. Psychiatric Rehabilitation Journal, 33: 18-25.
    • (2009) Psychiatric Rehabilitation Journal , vol.33 , pp. 18-25
    • Flanigan, E.H.1    Davidson, L.2
  • 21
    • 60849109406 scopus 로고    scopus 로고
    • Skinny bones #126-774-835-29: Thin gay bodies signifying a modern plague
    • Fox, R. 2007. Skinny bones #126-774-835-29: Thin gay bodies signifying a modern plague. Text and Performance Quarterly, 27: 3-19.
    • (2007) Text and Performance Quarterly , vol.27 , pp. 3-19
    • Fox, R.1
  • 23
    • 37249068050 scopus 로고    scopus 로고
    • Impact of inflammatory bowel disease on quality of life: Results of the European Federation of Crohn's and Ulcerative Colitis Associations (EFCCA) patient survey
    • Ghosh, S. and Mitchell, R. 2007. Impact of inflammatory bowel disease on quality of life: Results of the European Federation of Crohn's and Ulcerative Colitis Associations (EFCCA) patient survey. Journal of Crohn's & Colitis, 1: 10-20.
    • (2007) Journal of Crohn's & Colitis , vol.1 , pp. 10-20
    • Ghosh, S.1    Mitchell, R.2
  • 25
    • 0016381543 scopus 로고
    • Factors affecting self-disclosure: A review of the literature
    • In: Maher B. A., editors New York, New York,: Academic Press
    • Goodstein, L. D. and Reinecker, V. M. 1974. "Factors affecting self-disclosure: A review of the literature". In Progress in experimental personality research, Edited by: Maher, B. A. Vol. 7, 49-77. New York: Academic Press.
    • (1974) Progress in experimental personality research , vol.7 , pp. 49-77
    • Goodstein, L.D.1    Reinecker, V.M.2
  • 26
    • 84963176196 scopus 로고
    • The effects of family communication on psychosocial adjustment of cancer patients
    • Gotcher, J. M. 1993. The effects of family communication on psychosocial adjustment of cancer patients. Journal of Applied Communication Research, 21: 176-188.
    • (1993) Journal of Applied Communication Research , vol.21 , pp. 176-188
    • Gotcher, J.M.1
  • 27
    • 84911093295 scopus 로고    scopus 로고
    • Shittext: Toward a new coprophilic style
    • Gunn, J. 2006. Shittext: Toward a new coprophilic style. Text and Performance Quarterly, 26: 79-97.
    • (2006) Text and Performance Quarterly , vol.26 , pp. 79-97
    • Gunn, J.1
  • 29
    • 0040571808 scopus 로고
    • Chronically ill and "feeling fine": A study of communication and chronic illness
    • Hayden, S. 1993. Chronically ill and "feeling fine": A study of communication and chronic illness. Journal of Applied Communication Research, 21: 263-378.
    • (1993) Journal of Applied Communication Research , vol.21 , pp. 263-378
    • Hayden, S.1
  • 30
    • 78650797554 scopus 로고    scopus 로고
    • Family functioning and health-related quality of life in adolescents with pediatric inflammatory bowel disease
    • Herzer, M., Denson, L. A., Baldassano, R. N. and Hommel, K. A. 2011. Family functioning and health-related quality of life in adolescents with pediatric inflammatory bowel disease. European Journal of Gastroenterology & Hepatology, 23: 95-100.
    • (2011) European Journal of Gastroenterology & Hepatology , vol.23 , pp. 95-100
    • Herzer, M.1    Denson, L.A.2    Baldassano, R.N.3    Hommel, K.A.4
  • 32
    • 84961629417 scopus 로고    scopus 로고
    • Can we talk?: How learning of an invisible illness impacts forecasted relational outcomes
    • Horan, S. M., Martin, M. M., Smith, N., Schoo, M., Edisness, M. and Johnson, A. 2009. Can we talk?: How learning of an invisible illness impacts forecasted relational outcomes. Communication Studies, 60: 66-81.
    • (2009) Communication Studies , vol.60 , pp. 66-81
    • Horan, S.M.1    Martin, M.M.2    Smith, N.3    Schoo, M.4    Edisness, M.5    Johnson, A.6
  • 33
    • 38649093303 scopus 로고    scopus 로고
    • Desperately seeking legitimacy: Narratives of a biomedically invisible disease
    • In: Harter L., Japp P., Beck C., editors Mahwah, NJ, Mahwah, NJ,: Lawrence Erlbaum Associates
    • Japp, P. M. and Japp, D. K. 2005. "Desperately seeking legitimacy: Narratives of a biomedically invisible disease". In Narratives, health, and healing: Communication theory, research and practice, Edited by: Harter, L., Japp, P. and Beck, C. 107-130. Mahwah, NJ: Lawrence Erlbaum Associates.
    • (2005) Narratives, health, and healing: Communication theory, research and practice , pp. 107-130
    • Japp, P.M.1    Japp, D.K.2
  • 34
    • 34548444183 scopus 로고    scopus 로고
    • Feasibility and acceptability of gut-directed hypnosis on inflammatory bowel disease: A brief communication
    • Keefer, L. and Keshavarzian, A. 2007. Feasibility and acceptability of gut-directed hypnosis on inflammatory bowel disease: A brief communication. International Journal of Clinical & Experimental Hypnosis, 55: 457-466.
    • (2007) International Journal of Clinical & Experimental Hypnosis , vol.55 , pp. 457-466
    • Keefer, L.1    Keshavarzian, A.2
  • 35
    • 0035512678 scopus 로고    scopus 로고
    • Life after a national nightmare: Coping with invisible illness and disability
    • Keigher, S. M. and Jurkowski, E. T. 2001. Life after a national nightmare: Coping with invisible illness and disability. Health & Social Work, 26: 211-215.
    • (2001) Health & Social Work , vol.26 , pp. 211-215
    • Keigher, S.M.1    Jurkowski, E.T.2
  • 36
    • 0042423441 scopus 로고    scopus 로고
    • The impact of invisible illness on identity and contextual age across the life span
    • Kundrat, A. L. and Nussbaum, J. F. 2003. The impact of invisible illness on identity and contextual age across the life span. Health Communication, 15: 331-347.
    • (2003) Health Communication , vol.15 , pp. 331-347
    • Kundrat, A.L.1    Nussbaum, J.F.2
  • 37
    • 0013039289 scopus 로고    scopus 로고
    • Personal narrative, performance, performativity: Two or three things I know for sure
    • Langellier, K. 1999. Personal narrative, performance, performativity: Two or three things I know for sure. Text and Performance Quarterly, 19: 125-144.
    • (1999) Text and Performance Quarterly , vol.19 , pp. 125-144
    • Langellier, K.1
  • 40
  • 43
    • 0022773698 scopus 로고
    • A stress management programme for inflammatory bowel disease patients
    • Milne, B., Joachim, G. and Niedhardt, J. 1986. A stress management programme for inflammatory bowel disease patients. Journal of Advanced Nursing, 11: 561-567.
    • (1986) Journal of Advanced Nursing , vol.11 , pp. 561-567
    • Milne, B.1    Joachim, G.2    Niedhardt, J.3
  • 44
    • 84873617561 scopus 로고    scopus 로고
    • Invisible disability
    • Retrieved from
    • Moore, R. (2006, April). Invisible disability. Colorado Community Newspapers. Retrieved from http://www.invisibledisabilities.org/inthenews/colorado-communitynewspaper (http://www.invisibledisabilities.org/inthenews/colorado-communitynewspaper)
    • (2006) Colorado Community Newspapers
    • Moore, R.1
  • 45
    • 13944266012 scopus 로고    scopus 로고
    • Coming out: Considering the closet of illness
    • Myers, K. 2004. Coming out: Considering the closet of illness. Journal of Medical Humanities, 25: 255-270.
    • (2004) Journal of Medical Humanities , vol.25 , pp. 255-270
    • Myers, K.1
  • 46
    • 0034342792 scopus 로고    scopus 로고
    • A disclosure decision model: Determining how and when individuals will self-disclose
    • Omarzu, J. 2000. A disclosure decision model: Determining how and when individuals will self-disclose. Personality and Social Psychology Review, 4: 174-185.
    • (2000) Personality and Social Psychology Review , vol.4 , pp. 174-185
    • Omarzu, J.1
  • 48
    • 0000042050 scopus 로고    scopus 로고
    • Cognitive, emotional, and language processes in disclosure
    • Pennebaker, J. W. and Francis, M. E. 1996. Cognitive, emotional, and language processes in disclosure. Cognition and Emotion, 10: 601-626.
    • (1996) Cognition and Emotion , vol.10 , pp. 601-626
    • Pennebaker, J.W.1    Francis, M.E.2
  • 50
    • 84990563923 scopus 로고
    • Communication boundary management: A theoretical model of managing disclosure of private information between marital couples
    • Petronio, S. 1991. Communication boundary management: A theoretical model of managing disclosure of private information between marital couples. Communication Theory, 1: 311-335.
    • (1991) Communication Theory , vol.1 , pp. 311-335
    • Petronio, S.1
  • 52
    • 0031497733 scopus 로고    scopus 로고
    • Locating the voice of logic: Disclosure discourse of sexual abuse
    • Petronio, S., Flores, L. A. and Hecht, M. L. 1997. Locating the voice of logic: Disclosure discourse of sexual abuse. Western Journal of Communication, 61: 101-113.
    • (1997) Western Journal of Communication , vol.61 , pp. 101-113
    • Petronio, S.1    Flores, L.A.2    Hecht, M.L.3
  • 53
    • 0013039291 scopus 로고    scopus 로고
    • Performative writing
    • In: Phelan P., Lane J., editors New York, New York,: New York University Press
    • Pollock, D. 1998. "Performative writing". In The ends of performance, Edited by: Phelan, P. and Lane, J. 73-103. New York: New York University Press.
    • (1998) The ends of performance , pp. 73-103
    • Pollock, D.1
  • 54
    • 36348951988 scopus 로고    scopus 로고
    • Adolescents with inflammatory bowel disease feel ambivalent toward their parents' concern for them
    • Reichenberg, K., Lindfred, H. and Saalman, R. 2007. Adolescents with inflammatory bowel disease feel ambivalent toward their parents' concern for them. Scandinavian Journal of Caring Sciences, 21: 476-481.
    • (2007) Scandinavian Journal of Caring Sciences , vol.21 , pp. 476-481
    • Reichenberg, K.1    Lindfred, H.2    Saalman, R.3
  • 55
    • 85006578006 scopus 로고    scopus 로고
    • Painful stories of Camp Anuenue: Enactment and reenactment
    • Rich, M. D. 2001. Painful stories of Camp Anuenue: Enactment and reenactment. Text and Performance Quarterly, 21: 128-143.
    • (2001) Text and Performance Quarterly , vol.21 , pp. 128-143
    • Rich, M.D.1
  • 56
    • 33645961869 scopus 로고    scopus 로고
    • Effects of insightful disclosure within computer mediated support groups on women with breast cancer
    • Shaw, B. R., Hawkins, R., McTavish, F., Pingree, S. and Gustafson, D. H. 2006. Effects of insightful disclosure within computer mediated support groups on women with breast cancer. Health Communication, 19: 133-142.
    • (2006) Health Communication , vol.19 , pp. 133-142
    • Shaw, B.R.1    Hawkins, R.2    McTavish, F.3    Pingree, S.4    Gustafson, D.H.5
  • 57
    • 70350722420 scopus 로고    scopus 로고
    • Keepers of the secret: Desires to conceal a family member's HIV-positive status in Namibia, Africa
    • Smith, R. A. and Niedermyer, A. J. 2009. Keepers of the secret: Desires to conceal a family member's HIV-positive status in Namibia, Africa. Health Communication, 24: 459-472.
    • (2009) Health Communication , vol.24 , pp. 459-472
    • Smith, R.A.1    Niedermyer, A.J.2
  • 58
    • 84986324850 scopus 로고    scopus 로고
    • A "performative-I" copresence: Embodying the ethnographic turn in performance and the performative turn in ethnography
    • Spry, T. 2006. A "performative-I" copresence: Embodying the ethnographic turn in performance and the performative turn in ethnography". Text and Performance Quarterly, 26: 339-346.
    • (2006) Text and Performance Quarterly , vol.26 , pp. 339-346
    • Spry, T.1
  • 59
    • 0028309026 scopus 로고
    • Disability, stigma and deviance
    • Susman, J. 1994. Disability, stigma and deviance. Social Science and Medicine, 38: 15-22.
    • (1994) Social Science and Medicine , vol.38 , pp. 15-22
    • Susman, J.1


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