Comparison between utility of the Thai pediatric quality of life inventory 4.0 generic core scales and 3.0 cerebral palsy module

International Journal of Rehabilitation Research

Volumn 36, Issue 1, 2013, Pages 21-29

  Tantilipikorn, Pinailug ^a   Watter, Pauline ^a   Prasertsukdee, Saipin ^b  

^a UNIVERSITY OF QUEENSLAND   (Australia)

^b MAHIDOL UNIVERSITY   (Thailand)

Author keywords

cerebral palsy; Health related quality of life; Pediatric Quality of Life Inventory; psychometric properties; Thai

Indexed keywords

CEREBRAL PALSY; HEALTH-RELATED QUALITY OF LIVES; PSYCHOMETRIC PROPERTIES; QUALITY OF LIFE; THAI;

DISEASES; INSTRUMENTS;

PEDIATRICS;

ADULT; ARTICLE; CEREBRAL PALSY; CHILD; COMPARATIVE STUDY; HEALTH STATUS INDICATOR; HUMAN; PSYCHOMETRY; QUALITY OF LIFE; THAILAND;

ADULT; CEREBRAL PALSY; CHILD; HEALTH STATUS INDICATORS; HUMANS; PSYCHOMETRICS; QUALITY OF LIFE; THAILAND;

MLCS; MLOWN;

EID: 84873409966     PISSN: 03425282     EISSN: 14735660     Source Type: Journal    
DOI: 10.1097/MRR.0b013e32835692b8     Document Type: Article

References (34)

1. Amiri P, Emad MA, Sara J, Farhad H, James V, Fazlollah G, et al. (2010). Reliability and validity of the Iranian version of the Pediatric Quality of Life Inventoryt 4.0 Generic Core Scales in adolescents. Qual Life Res 19:1501-1508.
2. Aran A (2010). Quality of life in children with cerebral palsy. In: Preedy VR, Watson RR, editors. Handbook of disease burdens and quality of life measures. New York: Springer. pp. 2453-2468.
3. Baars RM, Atherton CI, Koopman HM, Bullinger M, Power M (2005). The European DISABKIDS project: development of seven condition-specific Modules to measure health related quality of life in children and adolescents. Health Qual Life Outcomes 3: doi: 10.1186/1477-7525-3-70. (Pubitemid 41684586)
4. Chan LF, Chow SM, Lo SK (2005). Preliminary validation of the chinese version of the pediatric quality of life inventory. Int J Rehabil Res 28:219-227. (Pubitemid 44384132)
5. Davis E, Waters E (2010). Children with cerebral palsy, psychometric analysis and quality of life. In: Preedy VR, Watson RR, editors. Handbook of disease burdens and quality of life measures. New York: Springer. pp. 3657-3670.
6. Davis E, Shelly A,Waters E, Davern M (2010). Measuring the quality of life of children with cerebral palsy: comparing the conceptual differences and psychometric properties of three instruments. Dev Med Child Neurol 52:174-180.
7. Donner A, Eliasziw M (1987). Sample size requirements for reliability studies. Stat Med 6:441-448. (Pubitemid 17110907)
8. Eiser C, Morse R (2001). Can parents rate their child's health-related quality of life? Results of a systematic review. Qual Life Res 10:347-357. (Pubitemid 33079013)
9. Gates PE, Otsuka NY, Sanders JO, McGee-Brown J (2008). Relationship between parental PODCI questionnaire and School Function Assessment in measuring performance in children with CP. Dev Med Child Neurol 50:690-695.
10. Gkoltsiou K, Dimitrakaki C, Tzavara C, Papaevangelou V, Varni JW, Tountas Y (2008). Measuring health-related quality of life in Greek children: psychometric properties of the Greek version of the Pediatric Quality of Life Inventory(TM) 4.0 Generic Core Scales. Qual Life Res 17:299-305.
11. Hair JF (2006). Multivariate data analysis. 6th ed. Upper Saddle River, New Jersey: Pearson Prentice Hall.
12. Majnemer A, Shevell M, Law M, Poulin C, Rosenbaum P (2008). Reliability in the ratings of quality of life between parents and their children of school age with cerebral palsy. Qual Life Res 17:1163-1171.
13. McCarthy ML, Silberstein CE, Atkins EA, Harryman SE, Sponseller PD, Hadley- Miller NA (2002). Comparing reliability and validity of pediatric instruments for measuring health and well-being of children with spastic cerebral palsy. Dev Med Child Neurol 44:468-476. (Pubitemid 34808754)
14. McCullough N, Parkes J (2008). Use of the child health questionnaire in children with cerebral palsy: a systematic review and evaluation of the psychometric properties. J Pediatr Psychol 33:80-90.
15. McHorney CA,Ware JE Jr., Lu JF, Sherbourne CD (1994). The MOS 36-item Short- Form Health Survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups. Med Care 32:40-66.
16. Narayanan UG, Fehlings D,Weir S, Knights S, Kiran S, Campbell K (2006). Initial development and validation of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD). Dev Med Child Neurol 48:804-812. (Pubitemid 44425686)
17. Petersen S, Hagglof B, Stenlund H, Bergstrom E (2009). Psychometric properties of the Swedish PedsQL, Pediatric Quality of Life Inventory 4.0 Generic Core Scales. Acta Paediatr 98:1504-1512.
18. Pongwilairat K, Louthrenoo O, Charnsil C,Witoonchart C (2005). Quality of life of children with attention-deficit/hyperactivity disorder. J Med Assoc Thai 88:1062-1066. (Pubitemid 41411529)
19. Portney LG,Watkins MP (2009). Foundations of clinical research: applications to practice. Upper Saddle River, New Jersey: Pearson Prentice Hall.
20. Punpanich W, Boon-Yasidhi V, Chokephaibulkit K, Prasitsuebsai W, Chantbuddhiwet U, Leowsrisook P, et al. (2010). Health-related Quality of Life of Thai children with HIV infection: a comparison of the Thai Quality of Life in Children (ThQLC) with the Pediatric Quality of Life Inventory version 4.0 (PedsQL 4.0) Generic Core Scales. Qual Life Res 19:1509-1516.
21. Reinfjell T, Diseth TH, Veenstra M, Vikan A (2006). Measuring health-related quality of life in young adolescents: reliability and validity in the Norwegian version of the Pediatric Quality of Life Inventory 4.0 (PedsQL) Generic Core Scales. Health Qual Life Outcomes 4:61.
22. Rosenbaum P, Paneth N, Leviton A, Goldstein M, Bax M, Damiano D, et al. (2007). A report: the definition and classification of cerebral palsy april 2006. Dev Med Child Neurol Suppl 109:8-14. (Pubitemid 46336267)
23. Schiariti V, Fayed N, Cieza A, Klassen A, O'Donnell M (2011). Content comparison of health-related quality of life measures for cerebral palsy based on the international classification of functioning. Disabil Rehabil 33:1330-1339.
24. SCPE (2000). Surveillance of cerebral palsy in Europe: a collaboration of cerebral palsy surveys and registers. Dev Med Child Neurol 42: 816-824.
25. Tantilipikorn P, Watter P, Prasertsukdee S (2012). Feasibility, reliability, and validity of the Thai version of the Pediatric Quality of Life Inventory 3.0 cerebral palsy Module. Qual Life Res. doi: 10.1007/s11136-012- 0161-3. [Epub ahead of print; 25 March 2012].
26. Vargus-Adams J (2005). Health-related quality of life in childhood cerebral palsy. Arch Phys Med Rehabil 86:940-945. (Pubitemid 40692361)
27. Varni JW, Seid M, Kurtin PS (2001). PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 Generic Core Scales in healthy and patient populations. Med Care 39:800-812. (Pubitemid 33686263)
28. Varni JW, Burwinkle TM, Seid M, Skarr D (2003). The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambul Pediatr 3:329-341. (Pubitemid 37527280)
29. Varni JW, Burwinkle TM, Sherman SA, Hanna K, Berrin SJ, Malcarne VL, Chambers HG (2005). Health-related quality of life of children and adolescents with cerebral palsy: hearing the voices of the children. Dev Med Child Neurol 47: 592-597. (Pubitemid 41195050)
30. Varni JW, Burwinkle TM, Berrin SJ, Sherman SA, Artavia K, Malcarne VL, Chambers HG (2006). The PedsQL in pediatric cerebral palsy: reliability, validity, and sensitivity of the Generic Core Scales and Cerebral Palsy Module. Dev Med Child Neurol 48:442-449. (Pubitemid 43740904)
31. Waters E, Davis E, Mackinnon A, Boyd R, Graham HK, Kai Lo S, et al. (2007). Psychometric properties of the quality of life questionnaire for children with CP. Dev Med Child Neurol 49:49-55. (Pubitemid 46332041)
32. Waters E, Davis E, Ronen GM, Rosenbaum P, Livingston M, Saigal S (2009). Quality of life instruments for children and adolescents with neurodisabilities: how to choose the appropriate instrument. Dev Med Child Neurol 51:660-669.
33. WHOQOL (1995). The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med 41:1403-1409.
34. Yang X, Xiao N, Yan J (2011). The PedsQL in pediatric cerebral palsy: reliability and validity of the Chinese version pediatric quality of life inventory 4.0 Generic Core Scales and 3.0 cerebral palsy Module. Qual Life Res 20:243-252.