-
1
-
-
0027286145
-
Study protocol for the World Health Organization project to develop a quality of life assessment instrument (the WHOQoL)
-
WHOQoL Group
-
WHOQoL Group. Study protocol for the World Health Organization project to develop a quality of life assessment instrument (the WHOQoL). Qual Life Res 1993; 2: 153-59.
-
(1993)
Qual Life Res
, vol.2
, pp. 153-159
-
-
-
2
-
-
7444271762
-
The measurement of health-related quality of life (HRQL) in children with cerebral palsy
-
Bjornson KF, McLaughlin JF. The measurement of health-related quality of life (HRQL) in children with cerebral palsy. Eur J Neurol 2001; 8: 183-93.
-
(2001)
Eur J Neurol
, vol.8
, pp. 183-193
-
-
Bjornson, K.F.1
McLaughlin, J.F.2
-
3
-
-
0029830008
-
Quality of life research in pediatric oncology: Research methods and barriers
-
Bradlyn AS, Ritchey AC, Harris CV, et al. Quality of life research in pediatric oncology: Research methods and barriers. Cancer 1996; 78: 1333-39.
-
(1996)
Cancer
, vol.78
, pp. 1333-1339
-
-
Bradlyn, A.S.1
Ritchey, A.C.2
Harris, C.V.3
-
4
-
-
0036799680
-
Validity of three measures of health-related quality of life in children with intractable epilepsy
-
Sherman MS, Slick DJ, Connolly MB, et al. Validity of three measures of health-related quality of life in children with intractable epilepsy. Epilepsia 2002; 43: 1230-38.
-
(2002)
Epilepsia
, vol.43
, pp. 1230-1238
-
-
Sherman, M.S.1
Slick, D.J.2
Connolly, M.B.3
-
5
-
-
34047256549
-
Quality of life among adolescents with cerebral palsy: Descriptive and measurement issues
-
Livingston M, Rosenbaum PL, Russell D, Palisano RJ. Quality of life among adolescents with cerebral palsy: Descriptive and measurement issues. Dev Med Child Neurol 2007; 49: 225-31.
-
(2007)
Dev Med Child Neurol
, vol.49
, pp. 225-231
-
-
Livingston, M.1
Rosenbaum, P.L.2
Russell, D.3
Palisano, R.J.4
-
6
-
-
0031112496
-
The problem of quality of life
-
Hunt SM. The problem of quality of life. Qual Life Res 1997; 6: 205-12.
-
(1997)
Qual Life Res
, vol.6
, pp. 205-212
-
-
Hunt, S.M.1
-
8
-
-
4243090405
-
A brief guide to the selection of quality of life instrument
-
Hyland ME. A brief guide to the selection of quality of life instrument. Health Qual Life Outcomes 2003; 1: 24.
-
(2003)
Health Qual Life Outcomes
, vol.1
, pp. 24
-
-
Hyland, M.E.1
-
9
-
-
0030835421
-
Patient-based health status measurement in clinical practice: A study of its impact on epilepsy patients care
-
Wagner AK, Ehrenberg BL, Tran TA, Bungay KM, Cynn DJ, Rogers WH. Patient-based health status measurement in clinical practice: A study of its impact on epilepsy patients care. Qual Life Res 1997; 6: 329-41.
-
(1997)
Qual Life Res
, vol.6
, pp. 329-341
-
-
Wagner, A.K.1
Ehrenberg, B.L.2
Tran, T.A.3
Bungay, K.M.4
Cynn, D.J.5
Rogers, W.H.6
-
10
-
-
0035087383
-
Quality of Life measurement in children and adolescents: Issues, instruments, and applications
-
Wallander JL, Schmitt M, Koot HM. Quality of Life measurement in children and adolescents: Issues, instruments, and applications. J Clin Psychol 2001; 57: 571-85.
-
(2001)
J Clin Psychol
, vol.57
, pp. 571-585
-
-
Wallander, J.L.1
Schmitt, M.2
Koot, H.M.3
-
11
-
-
0001300969
-
The domains of life satisfaction: An attempt to order chaos
-
Cummins RA. The domains of life satisfaction: An attempt to order chaos. Soc Indic Res 1996; 38: 303-32.
-
(1996)
Soc Indic Res
, vol.38
, pp. 303-332
-
-
Cummins, R.A.1
-
12
-
-
33645022184
-
Paediatric Quality of Life Instruments: A review of the impact of the conceptual framework on outcomes
-
Davis E, Waters E, Mackinnon A, et al. Paediatric Quality of Life Instruments: A review of the impact of the conceptual framework on outcomes. Dev Med Child Neurol 2006; 48: 311-18.
-
(2006)
Dev Med Child Neurol
, vol.48
, pp. 311-318
-
-
Davis, E.1
Waters, E.2
Mackinnon, A.3
-
13
-
-
3042738179
-
Health related quality of life in childhood epilepsy: Moving beyond seizure control with minimal adverse effects
-
Available from: (accessed 1 April 2009)
-
Ronen GM, Streiner DL, Rosenbaum P. Health related quality of life in childhood epilepsy: Moving beyond seizure control with minimal adverse effects. Health Qual Life Outcomes 2003. Available from: http://www.hqlo.com/content/1/1/36, (accessed 1 April 2009).
-
(2003)
Health Qual Life Outcomes 2003
-
-
Ronen, G.M.1
Streiner, D.L.2
Rosenbaum, P.3
-
14
-
-
14944386381
-
Development of a condition-specific quality of life scale for children with cerebral palsy: Empirical thematic data reported by parents and children
-
Waters E, Maher E, Salmon L, Reddihough D, Boyd R. Development of a condition-specific quality of life scale for children with cerebral palsy: Empirical thematic data reported by parents and children. Child Care Health Dev 2005; 31: 127-35.
-
(2005)
Child Care Health Dev
, vol.31
, pp. 127-135
-
-
Waters, E.1
Maher, E.2
Salmon, L.3
Reddihough, D.4
Boyd, R.5
-
15
-
-
0041851077
-
Health-related quality of life in children with epilepsy: Development and validation of self-report and parent proxy measures
-
Ronen GM, Streiner DL, Rosenbaum P, Canadian Pediatric Epilepsy Network. Health-related quality of life in children with epilepsy: Development and validation of self-report and parent proxy measures. Epilepsia 2003; 44: 598-612.
-
(2003)
Epilepsia
, vol.44
, pp. 598-612
-
-
Ronen, G.M.1
Streiner, D.L.2
Rosenbaum, P.3
-
16
-
-
0031691511
-
The POSNA pediatric musculoskeletal functional health questionnaire: Report on reliability, validity and sensitivity to change
-
Daltroy LH, Liang MH, Fossel AH, Goldberg MJ. The POSNA pediatric musculoskeletal functional health questionnaire: Report on reliability, validity and sensitivity to change. J Pediatr Orthoped 1998; 18: 561-71.
-
(1998)
J Pediatr Orthoped
, vol.18
, pp. 561-571
-
-
Daltroy, L.H.1
Liang, M.H.2
Fossel, A.H.3
Goldberg, M.J.4
-
18
-
-
0036240916
-
Creating a measure of childhood disability: Statistical methodology
-
Mackie PC, Jessen EC, Jarvis SN. Creating a measure of childhood disability: Statistical methodology. Public Health 2002; 116: 95-101.
-
(2002)
Public Health
, vol.116
, pp. 95-101
-
-
Mackie, P.C.1
Jessen, E.C.2
Jarvis, S.N.3
-
19
-
-
0035118630
-
Impact of pediatric epilepsy on the family: A new scale for clinical and research use
-
Camfield C, Breau L, Camfield P. Impact of pediatric epilepsy on the family: A new scale for clinical and research use. Epilepsia (Series 4) 2001; 42: 104-12.
-
(2001)
Epilepsia (Series 4)
, vol.42
, pp. 104-112
-
-
Camfield, C.1
Breau, L.2
Camfield, P.3
-
21
-
-
0029163421
-
The quality of life of children with chronic epilepsy and their families: Preliminary findings with a new assessment measure
-
Hoare P, Russell M. The quality of life of children with chronic epilepsy and their families: Preliminary findings with a new assessment measure. Dev Med Child Neurol 1995; 37: 689-96.
-
(1995)
Dev Med Child Neurol
, vol.37
, pp. 689-696
-
-
Hoare, P.1
Russell, M.2
-
22
-
-
33646546182
-
The PedsQL in pediatric cerebral palsy: Reliability, validity and sensitivity of the Generic Core Scales and Cerebral Palsy Module
-
Varni JW, Burwinkle TM, Berrin SJ, et al. The PedsQL in pediatric cerebral palsy: Reliability, validity and sensitivity of the Generic Core Scales and Cerebral Palsy Module. Dev Med Child Neurol 2006; 48: 442-49.
-
(2006)
Dev Med Child Neurol
, vol.48
, pp. 442-449
-
-
Varni, J.W.1
Burwinkle, T.M.2
Berrin, S.J.3
-
23
-
-
0032809256
-
Distinguishing between quality of life and health status in quality of life research: A meta-analysis
-
Smith KW, Avis NE, Assmann SF. Distinguishing between quality of life and health status in quality of life research: A meta-analysis. Qual Life Res 1999; 8: 447-59.
-
(1999)
Qual Life Res
, vol.8
, pp. 447-459
-
-
Smith, K.W.1
Avis, N.E.2
Assmann, S.F.3
-
24
-
-
0027171985
-
The validity of health assessments: Resolving some recent differences
-
Hyland ME. The validity of health assessments: Resolving some recent differences. J Clin Epidemiol 1993; 46: 1019-23.
-
(1993)
J Clin Epidemiol
, vol.46
, pp. 1019-1023
-
-
Hyland, M.E.1
-
25
-
-
0035743751
-
Exploring links between the concepts of Quality of Life and resilience
-
Lawford J, Eiser C. Exploring links between the concepts of Quality of Life and resilience. Pediatr Rehabil 2001; 4: 209-16.
-
(2001)
Pediatr Rehabil
, vol.4
, pp. 209-216
-
-
Lawford, J.1
Eiser, C.2
-
26
-
-
0033051553
-
The disability paradox: High quality of life against all odds
-
Albrecht GL, Devlieger PJ. The disability paradox: High quality of life against all odds. Soc Sci Med 1999; 48: 977.
-
(1999)
Soc Sci Med
, vol.48
, pp. 977
-
-
Albrecht, G.L.1
Devlieger, P.J.2
-
27
-
-
34347401442
-
Quality of life and health-related quality of life of adolescents with cerebral palsy
-
Rosenbaum P, Livingston MH, Palisano R, Galuppi B, Russell D. Quality of life and health-related quality of life of adolescents with cerebral palsy. Dev Med Child Neurol 2007; 49: 516-21.
-
(2007)
Dev Med Child Neurol
, vol.49
, pp. 516-521
-
-
Rosenbaum, P.1
Livingston, M.H.2
Palisano, R.3
Galuppi, B.4
Russell, D.5
-
28
-
-
0032808439
-
Health related quality of life in childhood epilepsy: The results of childrens participation in identifying the components
-
Ronen GM, Rosenbaum P, Law M, Streiner DL. Health related quality of life in childhood epilepsy: The results of childrens participation in identifying the components. Dev Med Child Neurol 1999; 41: 554-59.
-
(1999)
Dev Med Child Neurol
, vol.41
, pp. 554-559
-
-
Ronen, G.M.1
Rosenbaum, P.2
Law, M.3
Streiner, D.L.4
-
29
-
-
0034915190
-
Health-related quality of life in childhood disorders: A modified focus group technique to involve children
-
Ronen GM, Rosenbaum P, Law M, et al. Health-related quality of life in childhood disorders: A modified focus group technique to involve children. Qual Life Res 2001; 10: 71-79.
-
(2001)
Qual Life Res
, vol.10
, pp. 71-79
-
-
Ronen, G.M.1
Rosenbaum, P.2
Law, M.3
-
30
-
-
17944401277
-
Quality of life and developmental disabilities
-
(Editorial)
-
McLaughlin JF, Bjornson KF. Quality of life and developmental disabilities. Dev Med Child Neurol 1998; 40: 435. (Editorial)
-
(1998)
Dev Med Child Neurol
, vol.40
, pp. 435
-
-
McLaughlin, J.F.1
Bjornson, K.F.2
-
31
-
-
34548281591
-
Development of the Oxford ankle foot questionnaire: Finding out how children are affected by foot and ankle problems
-
Morris C, Liabo K, Wright P, Fitzpatrick R. Development of the Oxford ankle foot questionnaire: Finding out how children are affected by foot and ankle problems. Child Care Health Dev 2007; 33: 559-68.
-
(2007)
Child Care Health Dev
, vol.33
, pp. 559-568
-
-
Morris, C.1
Liabo, K.2
Wright, P.3
Fitzpatrick, R.4
-
32
-
-
0035161833
-
Can parents rate their child's health-related quality of life? Results of a systematic review
-
Eiser C. Can parents rate their child's health-related quality of life? Results of a systematic review Qual Life Res 2001; 10: 347-57.
-
(2001)
Results of a Systematic Review Qual Life Res
, vol.10
, pp. 347-357
-
-
Eiser, C.1
-
33
-
-
0037633946
-
Being inconsistent about consistency: When coefficient alpha does and doesn't matter
-
Streiner DL. Being inconsistent about consistency: When coefficient alpha does and doesn't matter. J Pers Assess 2003; 80: 217-22.
-
(2003)
J Pers Assess
, vol.80
, pp. 217-222
-
-
Streiner, D.L.1
-
34
-
-
0037297709
-
Starting at the beginning: An introduction to coefficient alpha and internal consistency
-
Streiner DL. Starting at the beginning: An introduction to coefficient alpha and internal consistency. J Pers Assess 2003; 80: 99-103.
-
(2003)
J Pers Assess
, vol.80
, pp. 99-103
-
-
Streiner, D.L.1
-
35
-
-
33645798089
-
Longitudinal use of the Child Health Questionnaire in childhood cerebral palsy
-
Vargus-Adams J. Longitudinal use of the Child Health Questionnaire in childhood cerebral palsy. Dev Med Child Neurol 2006; 48: 343-47.
-
(2006)
Dev Med Child Neurol
, vol.48
, pp. 343-347
-
-
Vargus-Adams, J.1
-
36
-
-
39649119845
-
The relationship between Quality of Life (QoL) and functioning for children with cerebral palsy. Does poor functioning equate with poor QoL?
-
Shelly A, Davis E, Waters E, et al. The relationship between Quality of Life (QoL) and functioning for children with cerebral palsy. Does poor functioning equate with poor QoL? Dev Med Child Neurol 2007; 50: 199-203.
-
(2007)
Dev Med Child Neurol
, vol.50
, pp. 199-203
-
-
Shelly, A.1
Davis, E.2
Waters, E.3
-
37
-
-
34247364657
-
Practical issues in the application of item response theory: A demonstration using items from the Pediatric Quality of Life Inventory (PedsQL) 4.0 Generic Core Scales
-
Hill CD, Edwards MC, Thissen D, et al. Practical issues in the application of item response theory: A demonstration using items from the Pediatric Quality of Life Inventory (PedsQL) 4.0 Generic Core Scales. Med Care 2007; 45: S39-47.
-
(2007)
Med Care
, vol.45
-
-
Hill, C.D.1
Edwards, M.C.2
Thissen, D.3
-
39
-
-
33847011039
-
Psychometric properties of the quality of life questionnaire for children with CP
-
Waters E, Davis E, Mackinnon A, et al. Psychometric properties of the quality of life questionnaire for children with CP. Dev Med Child Neurol 2007; 49: 49-55.
-
(2007)
Dev Med Child Neurol
, vol.49
, pp. 49-55
-
-
Waters, E.1
Davis, E.2
Mackinnon, A.3
-
40
-
-
33748914079
-
Initial development and validation of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD)
-
Narayanan UG, Fehlings D, Weir S, Knights S, Kiran S, Campbell K. Initial development and validation of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD). Dev Med Child Neurol 2006; 48: 804-12.
-
(2006)
Dev Med Child Neurol
, vol.48
, pp. 804-812
-
-
Narayanan, U.G.1
Fehlings, D.2
Weir, S.3
Knights, S.4
Kiran, S.5
Campbell, K.6
-
41
-
-
28044440505
-
The European DISABKIDS project: Development of seven condition-specific modules to measure health related quality of life in children and adolescents
-
Baars RM, Atherton CI, Koopman HM, Bullinger M, Power M. The European DISABKIDS project: Development of seven condition-specific modules to measure health related quality of life in children and adolescents. Health Qual Life Outcomes 2005; 3: 70.
-
(2005)
Health Qual Life Outcomes
, vol.3
, pp. 70
-
-
Baars, R.M.1
Atherton, C.I.2
Koopman, H.M.3
Bullinger, M.4
Power, M.5
-
42
-
-
0034123192
-
Validation of a new Quality of Life measure for children with epilepsy
-
Sabaz M, Cairns DR, Lawson JA, Nheu N, Bleasel AF, Bye AM. Validation of a new Quality of Life measure for children with epilepsy. Epilepsia 2000; 41: 765-74.
-
(2000)
Epilepsia
, vol.41
, pp. 765-774
-
-
Sabaz, M.1
Cairns, D.R.2
Lawson, J.A.3
Nheu, N.4
Bleasel, A.F.5
Bye, A.M.6
-
43
-
-
0032780456
-
Development of a quality of life inventory for adolescents: The QoLIE-AD-48
-
Cramer JA, Westbrook L, Devinsky O, Perrine K, Glassman M, Camfield C. Development of a quality of life inventory for adolescents: The QoLIE-AD-48. Epilepsia 1999; 40: 1114-21.
-
(1999)
Epilepsia
, vol.40
, pp. 1114-1121
-
-
Cramer, J.A.1
Westbrook, L.2
Devinsky, O.3
Perrine, K.4
Glassman, M.5
Camfield, C.6
-
44
-
-
34247227073
-
Quality of life among Brazilian children with epilepsy: Validation of a parent proxy instrument (QVCE-50)
-
de Souza Maia Filho H, Streiner DL, da Mota Gomes M. Quality of life among Brazilian children with epilepsy: Validation of a parent proxy instrument (QVCE-50). Seizure 2007; 16: 324-29.
-
(2007)
Seizure
, vol.16
, pp. 324-329
-
-
de Souza Maia Filho, H.1
Streiner, D.L.2
da Mota Gomes, M.3
-
45
-
-
33750586900
-
Health-related quality of life in youth with epilepsy: Theoretical model for clinicians and researchers. Part I: The role of epilepsy and co-morbidity
-
Lach LM, Ronen GM, Rosenbaum PL, et al. Health-related quality of life in youth with epilepsy: Theoretical model for clinicians and researchers. Part I: The role of epilepsy and co-morbidity. Qual Life Res 2006; 15: 1161-71.
-
(2006)
Qual Life Res
, vol.15
, pp. 1161-1171
-
-
Lach, L.M.1
Ronen, G.M.2
Rosenbaum, P.L.3
-
46
-
-
4544243791
-
A review of subjective impact measures for use with children and adolescents with epilepsy
-
Cowan J, Baker GA. A review of subjective impact measures for use with children and adolescents with epilepsy. Qual Life Res 2004; 13: 1435-43.
-
(2004)
Qual Life Res
, vol.13
, pp. 1435-1443
-
-
Cowan, J.1
Baker, G.A.2
-
47
-
-
0942277083
-
A systematic review of the contribution of qualitative research to the study of quality of life in children and adolescents with epilepsy
-
McEwan MJ, Espie CA, Metcalfe J. A systematic review of the contribution of qualitative research to the study of quality of life in children and adolescents with epilepsy. Seizure 2004; 13: 3-14.
-
(2004)
Seizure
, vol.13
, pp. 3-14
-
-
McEwan, M.J.1
Espie, C.A.2
Metcalfe, J.3
-
48
-
-
29544449322
-
Chinese version of the parent-proxy health-related quality of life measure for children with epilepsy: Translation, cross-cultural adaptation, and reliability studies
-
Yam WKL, Chow SMK, Ronen GM. Chinese version of the parent-proxy health-related quality of life measure for children with epilepsy: translation, cross-cultural adaptation, and reliability studies. Epilepsy Behav 2005; 7: 697-707.
-
(2005)
Epilepsy Behav
, vol.7
, pp. 697-707
-
-
Yam, W.K.L.1
Chow, S.M.K.2
Ronen, G.M.3
-
49
-
-
0030978308
-
Development of a health-related-quality of life instrument for use in children with spina bifida
-
Parkin PC, Kirpalani HM, Rosenbaum PL, et al. Development of a health-related-quality of life instrument for use in children with spina bifida. Qual Life Res 1997; 6: 123-32.
-
(1997)
Qual Life Res
, vol.6
, pp. 123-132
-
-
Parkin, P.C.1
Kirpalani, H.M.2
Rosenbaum, P.L.3
-
50
-
-
7044222712
-
An instrument to measure the health status in children with hydrocephalus: The Hydrocephalus Outcome Questionnaire
-
Kulkarni AV, Rabin D, Drake JM. An instrument to measure the health status in children with hydrocephalus: The Hydrocephalus Outcome Questionnaire. J Neurosurg 2004; 101 (2 Suppl.): 134-40.
-
(2004)
J Neurosurg
, vol.101
, Issue.2 SUPPL.
, pp. 134-140
-
-
Kulkarni, A.V.1
Rabin, D.2
Drake, J.M.3
-
51
-
-
31144443047
-
Questionnaire for assessing parents'concerns about their children with hydrocephalus
-
Kulkarni AV. Questionnaire for assessing parents'concerns about their children with hydrocephalus. Dev Med Child Med 2006; 48: 108-13.
-
(2006)
Dev Med Child Med
, vol.48
, pp. 108-113
-
-
Kulkarni, A.V.1
-
52
-
-
34247520622
-
Parent-proxy and child self-reported health-related quality of life: Using qualitative methods to explain the discordance
-
Davis E, Nicholas C, Cook K, et al. Parent-proxy and child self-reported health-related quality of life: Using qualitative methods to explain the discordance. Qual Life Res 2007; 16: 863-71.
-
(2007)
Qual Life Res
, vol.16
, pp. 863-871
-
-
Davis, E.1
Nicholas, C.2
Cook, K.3
|