Insight into advance care planning for patients on dialysis

Journal of Pain and Symptom Management

Volumn 45, Issue 1, 2013, Pages 104-113

  Janssen, Daisy J A ^a,b,d   Spruit, Martijn A ^a   Schols, Jos M G A ^b,c   Van Der Sande, Frank M ^e   Frenken, Leon A ^f   Wouters, Emiel F M ^a,e  

^a Centre of Expertise for Chronic Organ Failure   (Netherlands)

^b MAASTRICHT UNIVERSITY   (Netherlands)

^c MAASTRICHT UNIVERSITY   (Netherlands)

^d Maastricht University Medical Centre+ ^*  (Netherlands)

^e MAASTRICHT UNIVERSITY MEDICAL CENTER   (Netherlands)

^f Sittard Geleen Heerlen   (Netherlands)

Author keywords

advance care planning; advance directives; Chronic renal failure; communication; end stage renal disease; life sustaining treatment preferences

Indexed keywords

ADULT; ADVERSE OUTCOME; ARTICLE; ARTIFICIAL VENTILATION; CROSS-SECTIONAL STUDY; DOCTOR PATIENT RELATION; FEMALE; HEMODIALYSIS PATIENT; HUMAN; INTERPERSONAL COMMUNICATION; LONGITUDINAL STUDY; MAJOR CLINICAL STUDY; MALE; OBSERVATIONAL STUDY; OUTPATIENT; PATIENT ATTITUDE; PATIENT CARE PLANNING; PATIENT PREFERENCE; RESUSCITATION; TERMINAL CARE; TREATMENT REFUSAL;

ADVANCE CARE PLANNING; ADVANCE DIRECTIVES; AGED; AGED, 80 AND OVER; COMMUNICATION; CROSS-SECTIONAL STUDIES; DIALYSIS; FEMALE; HUMANS; MALE; MIDDLE AGED; PATIENT SATISFACTION; PHYSICIAN-PATIENT RELATIONS; QUESTIONNAIRES; TERMINAL CARE;

EID: 84872031789     PISSN: 08853924     EISSN: 18736513     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2012.01.010     Document Type: Article

References (38)

1. A. Kramer, V. Stel, and C. Zoccali An update on renal replacement therapy in Europe: ERA-EDTA Registry data from 1997 to 2006 Nephrol Dial Transplant 24 2009 3557 3566
2. S.N. Davison, and C. Torgunrud The creation of an advance care planning process for patients with ESRD Am J Kidney Dis 49 2007 27 36
3. T.R. Fried, and J.R. O'Leary Using the experiences of bereaved caregivers to inform patient- and caregiver-centered advance care planning J Gen Intern Med 23 2008 1602 1607
4. J.M. Teno, A. Gruneir, Z. Schwartz, A. Nanda, and T. Wetle Association between advance directives and quality of end-of-life care: a national study J Am Geriatr Soc 55 2007 189 194
5. K.M. Detering, A.D. Hancock, M.C. Reade, and W. Silvester The impact of advance care planning on end of life care in elderly patients: randomised controlled trial BMJ 340 2010 c1345
6. P.A. Singer, D.K. Martin, and M. Kelner Quality end-of-life care: patients' perspectives JAMA 281 1999 163 168
7. Y. Miura, A. Asai, and M. Matsushima Families' and physicians' predictions of dialysis patients' preferences regarding life-sustaining treatments in Japan Am J Kidney Dis 47 2006 122 130
8. S.N. Davison End-of-life care preferences and needs: perceptions of patients with chronic kidney disease Clin J Am Soc Nephrol 5 2010 195 204
9. T.R. Fried, E.H. Bradley, V.R. Towle, and H. Allore Understanding the treatment preferences of seriously ill patients N Engl J Med 346 2002 1061 1066
10. D.J. Janssen, M.A. Spruit, J.M. Schols, and E.F. Wouters A call for high-quality advance care planning in outpatients with severe COPD or chronic heart failure Chest 139 2011 1081 1088
11. P.A. Singer, E.C. Thiel, and C.D. Naylor Life-sustaining treatment preferences of hemodialysis patients: implications for advance directives J Am Soc Nephrol 6 1995 1410 1417
12. A.J. Russ, J.K. Shim, and S.R. Kaufman The value of "life at any cost": talk about stopping kidney dialysis Soc Sci Med 64 2007 2236 2247
13. S.N. Davison Facilitating advance care planning for patients with end-stage renal disease: the patient perspective Clin J Am Soc Nephrol 1 2006 1023 1028
14. A. Fine, B. Fontaine, M.M. Kraushar, and B.R. Rich Nephrologists should voluntarily divulge survival data to potential dialysis patients: a questionnaire study Perit Dial Int 25 2005 269 273
15. S.P. McAdoo, E.A. Brown, A.M. Chesser, K. Farrington, and E.M. Salisbury Measuring the quality of end of life management in patients with advanced kidney disease: results from the pan-Thames renal audit group Nephrol Dial Transplant 27 2012 1548 1554
16. D.J. Janssen, E.F. Wouters, J.M. Schols, and M.A. Spruit Self-perceived symptoms and care needs of patients with severe to very severe chronic obstructive pulmonary disease, congestive heart failure or chronic renal failure and its consequences for their closest relatives: the research protocol BMC Palliat Care 7 2008 5
17. D.J. Janssen, M.A. Spruit, E.F. Wouters, and J.M. Schols Family caregiving in advanced chronic organ failure J Am Med Dir Assoc 13 2012 394 399
18. D.J. Janssen, M.A. Spruit, and J.M. Schols Predicting changes in preferences for life-sustaining treatment among patients with advanced chronic organ failure Chest 141 2012 1251 1259
19. M.E. Charlson, P. Pompei, K.L. Ales, and C.R. MacKenzie A new method of classifying prognostic comorbidity in longitudinal studies: development and validation J Chronic Dis 40 1987 373 383
20. J.C. Korevaar, M.P. Merkus, and M.A. Jansen Validation of the KDQOL-SF: a dialysis-targeted health measure Qual Life Res 11 2002 437 447
21. R.D. Stapleton, E.L. Nielsen, R.A. Engelberg, D.L. Patrick, and J.R. Curtis Association of depression and life-sustaining treatment preferences in patients with COPD Chest 127 2005 328 334
22. T.R. Fried, E.H. Bradley, and V.R. Towle Assessment of patient preferences: integrating treatments and outcomes J Gerontol B Psychol Sci Soc Sci 57 2002 S348 S354
23. R. Engelberg, L. Downey, and J.R. Curtis Psychometric characteristics of a quality of communication questionnaire assessing communication about end-of-life care J Palliat Med 9 2006 1086 1098
24. E. Knauft, E.L. Nielsen, R.A. Engelberg, D.L. Patrick, and J.R. Curtis Barriers and facilitators to end-of-life care communication for patients with COPD Chest 127 2005 2188 2196
25. J.A. Sanchez-Tomero, A. Rodriguez-Jornet, and S. Balda Exploring the opinion of CKD patients on dialysis regarding end-of-life and advance care planning Nefrologia 31 2011 449 456
26. A.H. Moss, O. Hozayen, K. King, J.L. Holley, and R.J. Schmidt Attitudes of patients toward cardiopulmonary resuscitation in the dialysis unit Am J Kidney Dis 38 2001 847 852
27. T.R. Fried, J. O'Leary, P. Van Ness, and L. Fraenkel Inconsistency over time in the preferences of older persons with advanced illness for life-sustaining treatment J Am Geriatr Soc 55 2007 1007 1014
28. R.L. Sudore, and T.R. Fried Redefining the "planning" in advance care planning: preparing for end-of-life decision making Ann Intern Med 153 2010 256 261
29. J.R. Curtis, R.A. Engelberg, E.L. Nielsen, D.H. Au, and D.L. Patrick Patient-physician communication about end-of-life care for patients with severe COPD Eur Respir J 24 2004 200 205
30. D.J. Janssen, J.R. Curtis, and D.H. Au Patient-clinician communication about end-of-life care for Dutch and US patients with COPD Eur Respir J 38 2011 268 276
31. S.N. Davison, and C. Simpson Hope and advance care planning in patients with end stage renal disease: qualitative interview study BMJ 333 2006 886
32. J.R. Curtis, R. Engelberg, and J.P. Young An approach to understanding the interaction of hope and desire for explicit prognostic information among individuals with severe chronic obstructive pulmonary disease or advanced cancer J Palliat Med 11 2008 610 620
33. A.L. Back, J.P. Young, and E. McCown Abandonment at the end of life from patient, caregiver, nurse, and physician perspectives: loss of continuity and lack of closure Arch Intern Med 169 2009 474 479
34. C.G. Slatore, L.M. Cecere, and L.F. Reinke Patient-clinician communication: associations with important health outcomes among veterans with COPD Chest 138 2010 628 634
35. Y. Miura, A. Asai, and S. Nagata Dialysis patients' preferences regarding cardiopulmonary resuscitation and withdrawal of dialysis in Japan Am J Kidney Dis 37 2001 1216 1222
36. M. Kurella Tamura, M.K. Goldstein, and E.J. Perez-Stable Preferences for dialysis withdrawal and engagement in advance care planning within a diverse sample of dialysis patients Nephrol Dial Transplant 25 2010 237 242
37. D.L. Patrick, H.E. Starks, K.C. Cain, R.F. Uhlmann, and R.A. Pearlman Measuring preferences for health states worse than death Med Decis Making 14 1994 9 18
38. J.R. Curtis, D.L. Patrick, E. Caldwell, H. Greenlee, and A.C. Collier The quality of patient-doctor communication about end-of-life care: a study of patients with advanced AIDS and their primary care clinicians AIDS 13 1999 1123 1131