Data linkage infrastructure for cross-jurisdictional health-related research in Australia

BMC Health Services Research

Volumn 12, Issue 1, 2012, Pages

  Boyd, James H ^a   Ferrante, Anna M ^a   O'Keefe, Christine M ^b   Bass, Alfred J ^c   Randall, Sean M ^a   Semmens, James B ^a  

^a CURTIN UNIVERSITY   (Australia)

^b CSIRO   (Australia)

^c UNIVERSITY OF TASMANIA   (Australia)

Author keywords

Data linkage; Health; Infrastructure; Population; Research

Indexed keywords

AUSTRALIA; COMPUTER PROGRAM; COMPUTER SECURITY; CONFIDENTIALITY; ETHICS; HEALTH SERVICES RESEARCH; HUMAN; LEGISLATION AND JURISPRUDENCE; MANAGEMENT; MEDICAL RECORD; NATIONAL HEALTH SERVICE; PROCEDURES; QUALITY CONTROL; ARTICLE; LEGAL ASPECT; METHODOLOGY;

AUSTRALIA; BENCHMARKING; COMPUTER SECURITY; CONFIDENTIALITY; HEALTH SERVICES RESEARCH; HUMANS; MEDICAL RECORD LINKAGE; POLICY MAKING; SOFTWARE; STATE MEDICINE;

EID: 84871560810     PISSN: None     EISSN: 14726963     Source Type: Journal    
DOI: 10.1186/1472-6963-12-480     Document Type: Article

References (23)

1. The value of linked data for policy development, strategic planning, clinical practice and public health: An international perspective. Symposium on Health Data Linkage Adelaide University: Public Health Information Development Unit, Goldacre M, Glover J, 2003
2. Public good through data linkage: measuring research outputs from the Western Australian Data Linkage System. Brook EL, Rosman DL, Holman CDAJ, Aust N Z J Public Health 2008 32 1 19 23 10.1111/j.1753-6405.2008.00160.x 18290908 (Pubitemid 351351015)
3. Improving the evidence base for promoting quality and equity of surgical care using population-based linkage of administrative health records. Hall SE, Holman CDAJ, Finn J, Semmens JB, Int J Qual Health Care 2005 17 5 415 420 10.1093/intqhc/mzi052 15883126 (Pubitemid 41782255)
4. Record linkage in Australian epidemiological research: health benefits, privacy safeguards and future potential. Sibthorpe B, Kliewer E, Smith L, Aust J Public Health 1995 19 3 250 256 7626675
5. Health statistics and record linkage in Australia. Hobbs M, McCall M, J Chronic Disease 1970 23 375 381 10.1016/0021-9681(70)90020-2
6. The Quality of Surgical Care Project: A Model to Evaluate Surgical Outcomes in Western Australia Using Populaiton-Based Record Linkage. Semmens J, Lawrence-Brown M, Fletcher D, Rouse I, Holman CDJ, Aust N Z J Surg 1998 68 6 397 403 10.1111/j.1445-2197.1998.tb04786.x 9623457 (Pubitemid 28253185)
7. Record Linkage Strategies: Part 1: Estimating Information and Evaluating Approaches. Roos LL, Wajda A, Methods Inf Med 1990 30 2 117 123
8. Gill LE, OX-LINK, The Oxford Medical Record Linkage System Oxford: University of Oxford Record Linkage Techniques. 1997. 19
9. The Scottish Medical Record Linkage System. Kendrick SW, Clarke JA, Health Bulletin (Edinburgh) 1979 51 72 79
10. Population-based linkage of health records in Western Australia: Development of a health services research linked database. Holman D, Bass A, Rouse I, Hobbs M, Aust N Z J Public Health 1999 23 5 453 459 10.1111/j.1467-842X.1999.tb01297.x 10575763 (Pubitemid 29479210)
11. The SAIL Databank: building a national architecture for e-health research and evaluation. Ford DV, Jones KH, Verplancke J-P, Lyons RA, John G, Brown G, et al. BMC Health Serv Res 2009 9 1 157 10.1186/1472-6963-9-157 19732426
12. A decade of data linkage in Western Australia: Strategic design, applications and benefits of the WA data linkage system. Holman CDAJ, Bass AJ, Rosman DL, Smith MB, Semmens JB, Glasson EJ, et al. Aust Health Rev 2008 32 4 766 777 10.1071/AH080766 18980573
13. The Centre for Health Record Linkage: A New Resource for Health Services Research and Evaluation. Lawrence G, Dinh I, Taylor L, Health Inf Manage J 2008 37 2 60 62
14. NCRIS, Funding Agreement for the National Collaborative Research Infrastructure Strategy's Research Capability known as 'Population Health Research Network Canberra: Commonwealth Department of Education Science and Training 2009
15. O'Keefe CM, Ferrante AM, Boyd JH, Semmens JB, Operational Models 2nd Consultation Draft, Version 0.5 Perth, WA: Population Health Research Network Centre for Data Linkage 2009
16. Research use of linked health data-a best practice protocol. Kelman CW, Bass AJ, Holman CDJ, Aust N Z J Public Health 2002 26 3 251 255 10.1111/j.1467-842X.2002.tb00682.x 12141621 (Pubitemid 35446374)
17. O'Keefe CM, Ferrante AM, Boyd JH, National Linkage Keys and National Linkage Map: Ownership and Governance. Draft Version 0.5 Perth, WA: Population Health Research Network Centre for Data Linkage 2010
18. Ferrante A, Boyd JH, Data Linkage Software Evaluation: A First Report (Part I) Curtin University, Perth: PHRN Centre for Data Linkage 2010
19. Ferrante AM, Boyd JH, Data Linkage Software Evaluation: A First Report (Part II) Function and Features Curtin University, Perth: PHRN Centre for Data Linkage 2010
20. O'Keefe C, Ferrante A, Boyd J, CDL Operational Model Part 1 Curtin University: Population Health Research Network Centre for Data Linkage 2010
21. Australian Government, High Level Principles for Data Integration involving Commonwealth Data for Statistical and Research Purposes Canberra: Australian Government 2010
22. A transparent and transportable methodology for evaluating Data Linkage software. Ferrante A, Boyd J, J Biomed Inform 2012 45 1 165 172 10.1016/j.jbi.2011.10.006 22061295
23. The Process and Policy Challenges of Adapting and Implementing the Early Development Instrument in Australia. Goldfeld S, Sayers M, Brinkman S, Silburn S, Oberklaid F, Early Educ Dev 2009 20 6 978 991 cited 2012/11/29 10.1080/10409280903375800